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A catch up on Lung problem and doctors
  1. #1
    Harvey R. Stone Guest

    Default A catch up on Lung problem and doctors

    I had my RD appointment which had been moved up a month because I
    wanted to get started on treatment for RA lung. He said and rightly so
    that he did not have enough information from the lung specialist to
    prescribe the right amount of steroid. He also said that he would start me
    on 30mg of prednisone daily taken early.
    The next day was the lung specialist appointment and I informed him of
    what the RD had done and that I had instructions from my RD to raise or
    lower the amount as this doctor wants. He wanted 10mg more or 40mg of
    prednisone a day and that is what we will do. He also scheduled me for the
    full test of my lungs and blood oxygen level testing to be done on their
    schedule. I am to receive a call on the date and time. I have had this
    before 3 years ago and since I have lost so much of my lungs in those years.
    I do not expect good results but it is information we have to have to see
    how much good the prednisone is doing.

    This high daily prednisone level is going to go on for many, many
    months.
    I worry about my eyes, ears,, whatever with long term steroid use much less
    eating a hole in my stomach. I think I can keep that from happening but
    you never know. Any thoughts,,,,,???

    Harv



  2. #2
    Donna G. Guest

    Default Re: A catch up on Lung problem and doctors




    Hey Harv,


    As some one who has been down this road several times, I know just how
    frustrating and discouraging it all can be.

    Are you on anything for your stomach at all? If not, this might be
    something you want to ask your doctors about.

    I had to be on 60 mgs of prednisone for
    6 months the first time, then 1 year the second time. It is not fun, but
    is what is needed to get the damage to your lungs slowed down and
    hopefully stopped before you lose any more function.

    They may also talk to you about going on Imuran as that is another
    common med that is used for this problem/condition.
    A lot will depend on what your pulmonary function testing shows. VERY
    IMPORTANT to keep the RD and the Lung doc communicating with one another
    on all of this. Hopefully your lung doc sends the RD copies of all the
    pulmonary function tests (PFT's).

    The side effects of the pred is definitely a worry, especially when you
    have to be on those kinds of doses for a long period of time, but then
    again, if you aren't breathing, the rest doesn't really matter. So, as
    hard as it might be, focus on getting the issues with your lungs dealt
    with first, and express those other concerns to your RD and
    Pulmonologist so that they can keep on top of things and hopefully head
    off any other problems.

    Know, my friend, that prayers are being lifted for you and that there be
    no further damage or complications!!!

    You've had so much to deal with as of late!!! Praying that the pred
    will at least give you some relief from the shingles issues, the joint
    issues, etc.

    Hang in there!!! We're all here for you when you need us!



    Hugs,

    ..
    ..
    ..
    ..

    Donna
    ..
    ..
    ..
    ..
    1.) ANGELS EXIST, but some times, since they don't all have wings, we
    call them FRIENDS......


    2.) J.K.M.A.


  3. #3
    RhondaM Guest

    Default Re: A catch up on Lung problem and doctors

    (((((((Harv)))))))))) I just do not know what to say, but that I am thinking
    about you.

    "Harvey R. Stone" <[email protected]> wrote in message
    news:21hCj.459$[email protected]..
    > I had my RD appointment which had been moved up a month because I
    > wanted to get started on treatment for RA lung. He said and rightly so
    > that he did not have enough information from the lung specialist to
    > prescribe the right amount of steroid. He also said that he would start
    > me on 30mg of prednisone daily taken early.
    > The next day was the lung specialist appointment and I informed him of
    > what the RD had done and that I had instructions from my RD to raise or
    > lower the amount as this doctor wants. He wanted 10mg more or 40mg of
    > prednisone a day and that is what we will do. He also scheduled me for
    > the full test of my lungs and blood oxygen level testing to be done on
    > their schedule. I am to receive a call on the date and time. I have had
    > this before 3 years ago and since I have lost so much of my lungs in those
    > years. I do not expect good results but it is information we have to have
    > to see how much good the prednisone is doing.
    >
    > This high daily prednisone level is going to go on for many, many
    > months.
    > I worry about my eyes, ears,, whatever with long term steroid use much
    > less eating a hole in my stomach. I think I can keep that from happening
    > but you never know. Any thoughts,,,,,???
    >
    > Harv
    >




  4. #4
    Guest

    Default Re: A catch up on Lung problem and doctors

    Harv, what Donna said!
    Gwen


    "Donna G." <[email protected]> wrote in message
    news:[email protected]..
    >
    >
    >
    > Hey Harv,
    >
    >
    > As some one who has been down this road several times, I know just how
    > frustrating and discouraging it all can be.
    >
    > Are you on anything for your stomach at all? If not, this might be
    > something you want to ask your doctors about.
    >
    > I had to be on 60 mgs of prednisone for
    > 6 months the first time, then 1 year the second time. It is not fun, but
    > is what is needed to get the damage to your lungs slowed down and
    > hopefully stopped before you lose any more function.
    >
    > They may also talk to you about going on Imuran as that is another
    > common med that is used for this problem/condition.
    > A lot will depend on what your pulmonary function testing shows. VERY
    > IMPORTANT to keep the RD and the Lung doc communicating with one another
    > on all of this. Hopefully your lung doc sends the RD copies of all the
    > pulmonary function tests (PFT's).
    >
    > The side effects of the pred is definitely a worry, especially when you
    > have to be on those kinds of doses for a long period of time, but then
    > again, if you aren't breathing, the rest doesn't really matter. So, as
    > hard as it might be, focus on getting the issues with your lungs dealt
    > with first, and express those other concerns to your RD and
    > Pulmonologist so that they can keep on top of things and hopefully head
    > off any other problems.
    >
    > Know, my friend, that prayers are being lifted for you and that there be
    > no further damage or complications!!!
    >
    > You've had so much to deal with as of late!!! Praying that the pred
    > will at least give you some relief from the shingles issues, the joint
    > issues, etc.
    >
    > Hang in there!!! We're all here for you when you need us!
    >
    >
    >
    > Hugs,
    >
    > .
    > .
    > .
    > .
    >
    > Donna
    > .
    > .
    > .
    > .
    > 1.) ANGELS EXIST, but some times, since they don't all have wings, we
    > call them FRIENDS......
    >
    >
    > 2.) J.K.M.A.
    >




  5. #5
    Harvey R. Stone Guest

    Default Re: A catch up on Lung problem and doctors


    "Donna G." <[email protected]> wrote in message
    news:[email protected]..
    >
    >
    >
    > Hey Harv,
    >
    >
    > As some one who has been down this road several times, I know just how
    > frustrating and discouraging it all can be.
    >
    > Are you on anything for your stomach at all? If not, this might be
    > something you want to ask your doctors about.


    I have been in the past,,, Previsid but nothing now.


    >
    > I had to be on 60 mgs of prednisone for
    > 6 months the first time, then 1 year the second time. It is not fun, but
    > is what is needed to get the damage to your lungs slowed down and
    > hopefully stopped before you lose any more function.
    >
    > They may also talk to you about going on Imuran as that is another
    > common med that is used for this problem/condition.
    > A lot will depend on what your pulmonary function testing shows. VERY
    > IMPORTANT to keep the RD and the Lung doc communicating with one another
    > on all of this. Hopefully your lung doc sends the RD copies of all the
    > pulmonary function tests (PFT's).
    >
    > The side effects of the pred is definitely a worry, especially when you
    > have to be on those kinds of doses for a long period of time, but then
    > again, if you aren't breathing, the rest doesn't really matter. So, as
    > hard as it might be, focus on getting the issues with your lungs dealt
    > with first, and express those other concerns to your RD and
    > Pulmonologist so that they can keep on top of things and hopefully head
    > off any other problems.
    >
    > Know, my friend, that prayers are being lifted for you and that there be
    > no further damage or complications!!!
    >
    > You've had so much to deal with as of late!!! Praying that the pred
    > will at least give you some relief from the shingles issues, the joint
    > issues, etc.
    >
    > Hang in there!!! We're all here for you when you need us!
    > Hugs,


    > Donna


    I will try to do with the doctors as you outlined.
    thanks
    Harv



  6. #6
    Harvey R. Stone Guest

    Default Re: A catch up on Lung problem and doctors

    Thanks
    Harv

    <[email protected]> wrote in message
    news:5e2a8$47d9d104$45491df5$[email protected]..
    > Harv, what Donna said!
    > Gwen
    >
    >
    > "Donna G." <[email protected]> wrote in message
    > news:[email protected]..
    >>
    >>
    >>
    >> Hey Harv,
    >>
    >>
    >> As some one who has been down this road several times, I know just how
    >> frustrating and discouraging it all can be.
    >>
    >> Are you on anything for your stomach at all? If not, this might be
    >> something you want to ask your doctors about.
    >>
    >> I had to be on 60 mgs of prednisone for
    >> 6 months the first time, then 1 year the second time. It is not fun, but
    >> is what is needed to get the damage to your lungs slowed down and
    >> hopefully stopped before you lose any more function.
    >>
    >> They may also talk to you about going on Imuran as that is another
    >> common med that is used for this problem/condition.
    >> A lot will depend on what your pulmonary function testing shows. VERY
    >> IMPORTANT to keep the RD and the Lung doc communicating with one another
    >> on all of this. Hopefully your lung doc sends the RD copies of all the
    >> pulmonary function tests (PFT's).
    >>
    >> The side effects of the pred is definitely a worry, especially when you
    >> have to be on those kinds of doses for a long period of time, but then
    >> again, if you aren't breathing, the rest doesn't really matter. So, as
    >> hard as it might be, focus on getting the issues with your lungs dealt
    >> with first, and express those other concerns to your RD and
    >> Pulmonologist so that they can keep on top of things and hopefully head
    >> off any other problems.
    >>
    >> Know, my friend, that prayers are being lifted for you and that there be
    >> no further damage or complications!!!
    >>
    >> You've had so much to deal with as of late!!! Praying that the pred
    >> will at least give you some relief from the shingles issues, the joint
    >> issues, etc.
    >>
    >> Hang in there!!! We're all here for you when you need us!
    >>
    >>
    >>
    >> Hugs,
    >>
    >> .
    >> .
    >> .
    >> .
    >>
    >> Donna
    >> .
    >> .
    >> .
    >> .
    >> 1.) ANGELS EXIST, but some times, since they don't all have wings, we
    >> call them FRIENDS......
    >>
    >>
    >> 2.) J.K.M.A.
    >>

    >
    >




  7. #7
    Harvey R. Stone Guest

    Default Re: A catch up on Lung problem and doctors

    Thanks
    Harv
    "RhondaM" <[email protected]> wrote in message
    news:7%jCj.21665$[email protected]..
    > (((((((Harv)))))))))) I just do not know what to say, but that I am
    > thinking about you.
    >




  8. #8
    Carole Guest

    Default Re: A catch up on Lung problem and doctors

    I have no answers for you, Harv, but I will include you in my prayers.
    I'm sure the doctors can give you the answers you need.

    Hugs,
    Carole

  9. #9
    DeeTee and Bob Taggart Guest

    Default Re: A catch up on Lung problem and doctors

    Piggy-backing on Donna's post because I haven't yet seen the original post.

    Hang in there, Kiddo. This is not going to be easy, but none of us really
    have it easy. We love you and you will be in our prayers.

    DeeTee

    "Donna G." <[email protected]> wrote in message
    news:[email protected]..
    >
    >
    >
    > Hey Harv,
    >
    >
    > As some one who has been down this road several times, I know just how
    > frustrating and discouraging it all can be.
    >
    > Are you on anything for your stomach at all? If not, this might be
    > something you want to ask your doctors about.
    >
    > I had to be on 60 mgs of prednisone for
    > 6 months the first time, then 1 year the second time. It is not fun, but
    > is what is needed to get the damage to your lungs slowed down and
    > hopefully stopped before you lose any more function.
    >
    > They may also talk to you about going on Imuran as that is another
    > common med that is used for this problem/condition.
    > A lot will depend on what your pulmonary function testing shows. VERY
    > IMPORTANT to keep the RD and the Lung doc communicating with one another
    > on all of this. Hopefully your lung doc sends the RD copies of all the
    > pulmonary function tests (PFT's).
    >
    > The side effects of the pred is definitely a worry, especially when you
    > have to be on those kinds of doses for a long period of time, but then
    > again, if you aren't breathing, the rest doesn't really matter. So, as
    > hard as it might be, focus on getting the issues with your lungs dealt
    > with first, and express those other concerns to your RD and
    > Pulmonologist so that they can keep on top of things and hopefully head
    > off any other problems.
    >
    > Know, my friend, that prayers are being lifted for you and that there be
    > no further damage or complications!!!
    >
    > You've had so much to deal with as of late!!! Praying that the pred
    > will at least give you some relief from the shingles issues, the joint
    > issues, etc.
    >
    > Hang in there!!! We're all here for you when you need us!
    >
    >
    >
    > Hugs,
    >
    > .
    > .
    > .
    > .
    >
    > Donna
    > .
    > .
    > .
    > .
    > 1.) ANGELS EXIST, but some times, since they don't all have wings, we
    > call them FRIENDS......
    >
    >
    > 2.) J.K.M.A.
    >




  10. #10
    Squirrely Guest

    Default Re: A catch up on Lung problem and doctors

    Prayers still coming your way Harv,

    Just watch the pred usuage though because of the adrenals. I would take 20
    mg in morning and 10 in afternoon, but that is just me because I do have
    adrenal issues. I found too doing it that way it is easier to come off of it
    at 2.5 every two weeks then if I was taking it all at one time.

    I sure hope something soon works to help with the lungs, I don't have RA
    lung but boy do I know the lung issues too well.

    I just found out too that my dad had COPD and so does my brother, so I am
    wondering if this is like a genetic kind of COPD that the three of us have
    or what. It was weird to see that in three of us.

    I always eat when taking my pred. I take like a hot pocket, eat part of it
    then take my pred, and it doesn't seem to bother my tummy like it used to
    when I didn't eat something with it. I don't know if that would help stop
    putting a hole in it though. I hope so. I don't take meds with it, so I
    could end up with one.


    --
    Love and Hugs to all
    Jo the squirrely one
    I am nuts about you.

    > I had my RD appointment which had been moved up a month because I
    > wanted to get started on treatment for RA lung. He said and rightly so
    > that he did not have enough information from the lung specialist to
    > prescribe the right amount of steroid. He also said that he would start
    > me on 30mg of prednisone daily taken early.
    > The next day was the lung specialist appointment and I informed him of
    > what the RD had done and that I had instructions from my RD to raise or
    > lower the amount as this doctor wants. He wanted 10mg more or 40mg of
    > prednisone a day and that is what we will do. He also scheduled me for
    > the full test of my lungs and blood oxygen level testing to be done on
    > their schedule. I am to receive a call on the date and time. I have had
    > this before 3 years ago and since I have lost so much of my lungs in those
    > years. I do not expect good results but it is information we have to have
    > to see how much good the prednisone is doing.
    >
    > This high daily prednisone level is going to go on for many, many
    > months.
    > I worry about my eyes, ears,, whatever with long term steroid use much
    > less eating a hole in my stomach. I think I can keep that from happening
    > but you never know. Any thoughts,,,,,???
    >
    > Harv
    >




  11. #11
    Harvey R. Stone Guest

    Default Re: A catch up on Lung problem and doctors


    "DeeTee and Bob Taggart" <[email protected]> wrote in message
    news:47d9f0c7$0$30721$[email protected]..
    > Piggy-backing on Donna's post because I haven't yet seen the original
    > post.
    >
    > Hang in there, Kiddo. This is not going to be easy, but none of us really
    > have it easy. We love you and you will be in our prayers.
    >
    > DeeTee
    >

    Can't ask for more than that.
    thanks
    Harv



  12. #12
    Harvey R. Stone Guest

    Default Re: A catch up on Lung problem and doctors


    "Squirrely" <[email protected]> wrote in message
    news:47da0c48$0$84251$[email protected]..
    > Prayers still coming your way Harv,
    >
    > Just watch the pred usuage though because of the adrenals. I would take 20
    > mg in morning and 10 in afternoon, but that is just me because I do have
    > adrenal issues. I found too doing it that way it is easier to come off of
    > it at 2.5 every two weeks then if I was taking it all at one time.
    >
    > I sure hope something soon works to help with the lungs, I don't have RA
    > lung but boy do I know the lung issues too well.
    >
    > I just found out too that my dad had COPD and so does my brother, so I am
    > wondering if this is like a genetic kind of COPD that the three of us have
    > or what. It was weird to see that in three of us.
    >
    > I always eat when taking my pred. I take like a hot pocket, eat part of it
    > then take my pred, and it doesn't seem to bother my tummy like it used to
    > when I didn't eat something with it. I don't know if that would help stop
    > putting a hole in it though. I hope so. I don't take meds with it, so I
    > could end up with one.
    >
    >
    > --
    > Love and Hugs to all
    > Jo the squirrely one
    > I am nuts about you.


    Things to think about.
    Thanks
    Harv



  13. #13
    Thumper Guest

    Default Re: A catch up on Lung problem and doctors

    On Thu, 13 Mar 2008 16:29:34 -0500, "Harvey R. Stone"
    <[email protected]> wrote:

    > I had my RD appointment which had been moved up a month because I
    >wanted to get started on treatment for RA lung. He said and rightly so
    >that he did not have enough information from the lung specialist to
    >prescribe the right amount of steroid. He also said that he would start me
    >on 30mg of prednisone daily taken early.
    > The next day was the lung specialist appointment and I informed him of
    >what the RD had done and that I had instructions from my RD to raise or
    >lower the amount as this doctor wants. He wanted 10mg more or 40mg of
    >prednisone a day and that is what we will do. He also scheduled me for the
    >full test of my lungs and blood oxygen level testing to be done on their
    >schedule. I am to receive a call on the date and time. I have had this
    >before 3 years ago and since I have lost so much of my lungs in those years.
    >I do not expect good results but it is information we have to have to see
    >how much good the prednisone is doing.
    >
    > This high daily prednisone level is going to go on for many, many
    >months.
    >I worry about my eyes, ears,, whatever with long term steroid use much less
    >eating a hole in my stomach. I think I can keep that from happening but
    >you never know. Any thoughts,,,,,???
    >
    >Harv
    >

    First things first. If Prednisone helps your lungs then so be it.
    Not everyone has really bad reactions to Prednisone. I'm not so sure
    that any of the biologicals some of us take aren't just as bad for
    you. Good luck Harv.
    Thumper

  14. #14
    nanny Guest

    Default Re: A catch up on Lung problem and doctors

    I'm so sorry, Harv, that you are going through this. That's a lot of Pred,
    but in your case it's probably going to be your redemption. Just want you
    to know that I care. Nanny
    "Harvey R. Stone" <[email protected]> wrote in message
    news:21hCj.459$[email protected]..
    > I had my RD appointment which had been moved up a month because I
    > wanted to get started on treatment for RA lung. He said and rightly so
    > that he did not have enough information from the lung specialist to
    > prescribe the right amount of steroid. He also said that he would start
    > me on 30mg of prednisone daily taken early.
    > The next day was the lung specialist appointment and I informed him of
    > what the RD had done and that I had instructions from my RD to raise or
    > lower the amount as this doctor wants. He wanted 10mg more or 40mg of
    > prednisone a day and that is what we will do. He also scheduled me for
    > the full test of my lungs and blood oxygen level testing to be done on
    > their schedule. I am to receive a call on the date and time. I have had
    > this before 3 years ago and since I have lost so much of my lungs in those
    > years. I do not expect good results but it is information we have to have
    > to see how much good the prednisone is doing.
    >
    > This high daily prednisone level is going to go on for many, many
    > months.
    > I worry about my eyes, ears,, whatever with long term steroid use much
    > less eating a hole in my stomach. I think I can keep that from happening
    > but you never know. Any thoughts,,,,,???
    >
    > Harv
    >




  15. #15
    Harvey R. Stone Guest

    Default Re: A catch up on Lung problem and doctors




    > First things first. If Prednisone helps your lungs then so be it.
    > Not everyone has really bad reactions to Prednisone. I'm not so sure
    > that any of the biologicals some of us take aren't just as bad for
    > you. Good luck Harv.
    > Thumper


    Thanks Thumper

    harv



  16. #16
    Harvey R. Stone Guest

    Default Re: A catch up on Lung problem and doctors


    "nanny" <[email protected]> wrote in message
    news:47db03c1$0$1108$[email protected]..
    > I'm so sorry, Harv, that you are going through this. That's a lot of
    > Pred, but in your case it's probably going to be your redemption. Just
    > want you to know that I care. Nanny


    It is a tool to use for what I have and if I do not show improvement they
    will raise it up and add other things to the mix. I lost too much too
    fast. I may even have to have a biopsy to check for cancer. The lung
    specialist has brought that up twice. We shall see.
    Harv



  17. #17
    Lyn Guest

    Default Re: A catch up on Lung problem and doctors

    Bummer Harvey, however, at least treatment is available.

    I had a cataract in my left eye caused by pred. I know you are aware of
    the bad stuff, maybe have your eyes checked on a very regular basis.
    Other than that, you know I wish you the very best. At least you are
    smart enough to take care of all of this.

    God bless.

    Lyn


    Harvey R. Stone wrote:

    > I had my RD appointment which had been moved up a month because I
    >wanted to get started on treatment for RA lung. He said and rightly so
    >that he did not have enough information from the lung specialist to
    >prescribe the right amount of steroid. He also said that he would start me
    >on 30mg of prednisone daily taken early.
    > The next day was the lung specialist appointment and I informed him of
    >what the RD had done and that I had instructions from my RD to raise or
    >lower the amount as this doctor wants. He wanted 10mg more or 40mg of
    >prednisone a day and that is what we will do. He also scheduled me for the
    >full test of my lungs and blood oxygen level testing to be done on their
    >schedule. I am to receive a call on the date and time. I have had this
    >before 3 years ago and since I have lost so much of my lungs in those years.
    >I do not expect good results but it is information we have to have to see
    >how much good the prednisone is doing.
    >
    > This high daily prednisone level is going to go on for many, many
    >months.
    >I worry about my eyes, ears,, whatever with long term steroid use much less
    >eating a hole in my stomach. I think I can keep that from happening but
    >you never know. Any thoughts,,,,,???
    >
    >Harv
    >
    >
    >
    >


  18. #18
    Harvey R. Stone Guest

    Default Re: A catch up on Lung problem and doctors


    "Lyn" <[email protected]> wrote in message
    news:[email protected]..
    > Bummer Harvey, however, at least treatment is available.
    > I had a cataract in my left eye caused by pred. I know you are aware of
    > the bad stuff, maybe have your eyes checked on a very regular basis.
    > Other than that, you know I wish you the very best. At least you are
    > smart enough to take care of all of this.
    >
    > God bless.
    >
    > Lyn
    >
    >


    Thank you Lyn,,,, nice of you to say that but the truth of it is I do the
    best I can with what I have. It is really up to the specialists to make
    the moves even if I am kicking them in the butttt to get it done. If I
    were smart, I would not of lost over a third of my lung capacity that will
    not be coming back. We can only hope that others learn from what takes
    place and take care of themselves.
    Harv



  19. #19
    Donna G. Guest

    Default Re: A catch up on Lung problem and doctors




    OK, Harv, now cut that out!!!

    The loss of lung use that you have experienced has nothing to do with
    you not being smart. Even the most intelligent of people suffer health
    issues that are beyond their control or that kind of sneak up on them
    unexpectedly. And yet, we all may have symptoms at some point that are
    very easy to ignore or write off to something else, doesn't mean you
    aren't smart!!!

    Give yourself a break here. You have been dealing with an awfully full
    plate for a very long time now!!!

    ..
    ..
    ..
    ..

    Donna
    ..
    ..
    ..
    ..
    1.) ANGELS EXIST, but some times, since they don't all have wings, we
    call them FRIENDS......


    2.) J.K.M.A.


  20. #20
    Harvey R. Stone Guest

    Default Re: A catch up on Lung problem and doctors


    "Donna G." <[email protected]> wrote in message
    news:[email protected]..
    >
    >
    >
    > OK, Harv, now cut that out!!!
    >
    > The loss of lung use that you have experienced has nothing to do with
    > you not being smart. Even the most intelligent of people suffer health
    > issues that are beyond their control or that kind of sneak up on them
    > unexpectedly. And yet, we all may have symptoms at some point that are
    > very easy to ignore or write off to something else, doesn't mean you
    > aren't smart!!!
    >
    > Give yourself a break here. You have been dealing with an awfully full
    > plate for a very long time now!!!
    > Donna
    > .


    OK, ok , you are right. It is time for me to put something on that
    plate. I have lost 44 lbs and the right food is needed. All that
    prednisone will make that easy. :-)
    Harv



  21. #21
    Thumper Guest

    Default Re: A catch up on Lung problem and doctors

    On Sun, 16 Mar 2008 08:48:33 -0500, "Harvey R. Stone"
    <[email protected]> wrote:

    >
    >"Donna G." <[email protected]> wrote in message
    >news:[email protected]..
    >>
    >>
    >>
    >> OK, Harv, now cut that out!!!
    >>
    >> The loss of lung use that you have experienced has nothing to do with
    >> you not being smart. Even the most intelligent of people suffer health
    >> issues that are beyond their control or that kind of sneak up on them
    >> unexpectedly. And yet, we all may have symptoms at some point that are
    >> very easy to ignore or write off to something else, doesn't mean you
    >> aren't smart!!!
    >>
    >> Give yourself a break here. You have been dealing with an awfully full
    >> plate for a very long time now!!!
    >> Donna
    >> .

    >
    >OK, ok , you are right. It is time for me to put something on that
    >plate. I have lost 44 lbs and the right food is needed. All that
    >prednisone will make that easy. :-)
    >Harv
    >

    I wish I lost 44 lbs but not the way you did it. Tomorrow I start
    really paying attention to diet and exercise and have a goal of 70-80
    lbs. I'm on a low dose of prednisone so I'm not so hungry all the
    time. The problem is exercise. My back and hips are killing me but I
    suppose they will get better when I lose wait. I'm just starting on
    the treadmill very slowly. I have to see my cardiologist next week
    and my echo cardiogram shows a low EF rate of 40%. Hopefully I can
    bring that up.

    It's kind of funny. There are tons of people running around with an
    EF rate as low or lower and don't know it because they haven't yet
    gotten involved with cardiologists.
    Thumper

  22. #22
    Guest

    Default Re: A catch up on Lung problem and doctors

    Harv, don't you dare blow away!!!!
    Gwen


    "Harvey R. Stone" <[email protected]> wrote in message
    news:Sy9Dj.4307$[email protected] ...
    >
    > "Donna G." <[email protected]> wrote in message
    > news:[email protected]..
    >>
    >>
    >>
    >> OK, Harv, now cut that out!!!
    >>
    >> The loss of lung use that you have experienced has nothing to do with
    >> you not being smart. Even the most intelligent of people suffer health
    >> issues that are beyond their control or that kind of sneak up on them
    >> unexpectedly. And yet, we all may have symptoms at some point that are
    >> very easy to ignore or write off to something else, doesn't mean you
    >> aren't smart!!!
    >>
    >> Give yourself a break here. You have been dealing with an awfully full
    >> plate for a very long time now!!!
    >> Donna
    >> .

    >
    > OK, ok , you are right. It is time for me to put something on that
    > plate. I have lost 44 lbs and the right food is needed. All that
    > prednisone will make that easy. :-)
    > Harv
    >
    >




  23. #23
    Harvey R. Stone Guest

    Default Re: A catch up on Lung problem and doctors




    >>

    > I wish I lost 44 lbs but not the way you did it. Tomorrow I start
    > really paying attention to diet and exercise and have a goal of 70-80
    > lbs. I'm on a low dose of prednisone so I'm not so hungry all the
    > time. The problem is exercise. My back and hips are killing me but I
    > suppose they will get better when I lose wait. I'm just starting on
    > the treadmill very slowly. I have to see my cardiologist next week
    > and my echo cardiogram shows a low EF rate of 40%. Hopefully I can
    > bring that up.
    >
    > It's kind of funny. There are tons of people running around with an
    > EF rate as low or lower and don't know it because they haven't yet
    > gotten involved with cardiologists.
    > Thumper


    But you have and know how to do what is right for you. You are doing great
    and my kind of hero. It probably took quite awhile to put all that weight
    on you,,,,, so don't be in a rush to get it all off. With hips and lower
    back with pain,,,, people just do not know how hard this is for you. It is
    you that you are saving. God's speed.
    Harv



  24. #24
    Thumper Guest

    Default Re: A catch up on Lung problem and doctors

    On Sun, 16 Mar 2008 20:30:15 GMT, "Harvey R. Stone"
    <[email protected]> wrote:

    >
    >
    >
    >>>

    >> I wish I lost 44 lbs but not the way you did it. Tomorrow I start
    >> really paying attention to diet and exercise and have a goal of 70-80
    >> lbs. I'm on a low dose of prednisone so I'm not so hungry all the
    >> time. The problem is exercise. My back and hips are killing me but I
    >> suppose they will get better when I lose wait. I'm just starting on
    >> the treadmill very slowly. I have to see my cardiologist next week
    >> and my echo cardiogram shows a low EF rate of 40%. Hopefully I can
    >> bring that up.
    >>
    >> It's kind of funny. There are tons of people running around with an
    >> EF rate as low or lower and don't know it because they haven't yet
    >> gotten involved with cardiologists.
    >> Thumper

    >
    >But you have and know how to do what is right for you. You are doing great
    >and my kind of hero. It probably took quite awhile to put all that weight
    >on you,,,,, so don't be in a rush to get it all off. With hips and lower
    >back with pain,,,, people just do not know how hard this is for you. It is
    >you that you are saving. God's speed.
    >Harv
    >

    Thanks Harv.
    Thumper

  25. #25
    Norman Guest

    Default Re: A catch up on Lung problem and doctors

    When one of my doctors prescribes something which he says may interact with a
    treatment from another doctor, I ask him to talk to the other doctor directly
    and let me know what the decide together. So far, they have all been willing to
    do this, and I don't have to play messenger (and, possibly, get something
    wrong).

  26. #26
    Harvey R. Stone Guest

    Default Re: A catch up on Lung problem and doctors


    "Norman" <[email protected]> wrote in message
    news:[email protected]..
    > When one of my doctors prescribes something which he says may interact
    > with a
    > treatment from another doctor, I ask him to talk to the other doctor
    > directly
    > and let me know what the decide together. So far, they have all been
    > willing to
    > do this, and I don't have to play messenger (and, possibly, get something
    > wrong).


    Well said Bones,,,, I will try for that.
    Harv



  27. #27
    ANN M Guest

    Default Re: A catch up on Lung problem and doctors

    Harv,
    I didn't reply sooner, but it wasn't because I didn't add you to my
    prayer list as soon as I read about your appointment and the not so
    fantastic news about your lungs.
    I will continue to keep you in prayer and hopefully the medicine will
    work and you will be able to stop the process of deterioration in your
    lungs.
    Ann


  28. #28
    Harvey R. Stone Guest

    Default Re: A catch up on Lung problem and doctors


    "ANN M" <[email protected]> wrote in message
    news:[email protected]..
    > Harv,
    > I didn't reply sooner, but it wasn't because I didn't add you to my
    > prayer list as soon as I read about your appointment and the not so
    > fantastic news about your lungs.
    > I will continue to keep you in prayer and hopefully the medicine will
    > work and you will be able to stop the process of deterioration in your
    > lungs.
    > Ann
    >


    Thank you Ann,,,,, All a person can do is wait and see and hope for the
    best.
    I do feel kind of strung out on 40mg of pred a day but others take more to
    fight this.
    Harv



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