A catch up on Lung problem and doctors
-
A catch up on Lung problem and doctors
I had my RD appointment which had been moved up a month because I
wanted to get started on treatment for RA lung. He said and rightly so
that he did not have enough information from the lung specialist to
prescribe the right amount of steroid. He also said that he would start me
on 30mg of prednisone daily taken early.
The next day was the lung specialist appointment and I informed him of
what the RD had done and that I had instructions from my RD to raise or
lower the amount as this doctor wants. He wanted 10mg more or 40mg of
prednisone a day and that is what we will do. He also scheduled me for the
full test of my lungs and blood oxygen level testing to be done on their
schedule. I am to receive a call on the date and time. I have had this
before 3 years ago and since I have lost so much of my lungs in those years.
I do not expect good results but it is information we have to have to see
how much good the prednisone is doing.
This high daily prednisone level is going to go on for many, many
months.
I worry about my eyes, ears,, whatever with long term steroid use much less
eating a hole in my stomach. I think I can keep that from happening but
you never know. Any thoughts,,,,,???
Harv
-
Re: A catch up on Lung problem and doctors
Hey Harv,
As some one who has been down this road several times, I know just how
frustrating and discouraging it all can be.
Are you on anything for your stomach at all? If not, this might be
something you want to ask your doctors about.
I had to be on 60 mgs of prednisone for
6 months the first time, then 1 year the second time. It is not fun, but
is what is needed to get the damage to your lungs slowed down and
hopefully stopped before you lose any more function.
They may also talk to you about going on Imuran as that is another
common med that is used for this problem/condition.
A lot will depend on what your pulmonary function testing shows. VERY
IMPORTANT to keep the RD and the Lung doc communicating with one another
on all of this. Hopefully your lung doc sends the RD copies of all the
pulmonary function tests (PFT's).
The side effects of the pred is definitely a worry, especially when you
have to be on those kinds of doses for a long period of time, but then
again, if you aren't breathing, the rest doesn't really matter. So, as
hard as it might be, focus on getting the issues with your lungs dealt
with first, and express those other concerns to your RD and
Pulmonologist so that they can keep on top of things and hopefully head
off any other problems.
Know, my friend, that prayers are being lifted for you and that there be
no further damage or complications!!!
You've had so much to deal with as of late!!! Praying that the pred
will at least give you some relief from the shingles issues, the joint
issues, etc.
Hang in there!!! We're all here for you when you need us!
Hugs,
..
..
..
..
Donna
..
..
..
..
1.) ANGELS EXIST, but some times, since they don't all have wings, we
call them FRIENDS......
2.) J.K.M.A.
-
Re: A catch up on Lung problem and doctors
(((((((Harv)))))))))) I just do not know what to say, but that I am thinking
about you.
"Harvey R. Stone" <[email protected]> wrote in message
news:21hCj.459$[email protected]..
> I had my RD appointment which had been moved up a month because I
> wanted to get started on treatment for RA lung. He said and rightly so
> that he did not have enough information from the lung specialist to
> prescribe the right amount of steroid. He also said that he would start
> me on 30mg of prednisone daily taken early.
> The next day was the lung specialist appointment and I informed him of
> what the RD had done and that I had instructions from my RD to raise or
> lower the amount as this doctor wants. He wanted 10mg more or 40mg of
> prednisone a day and that is what we will do. He also scheduled me for
> the full test of my lungs and blood oxygen level testing to be done on
> their schedule. I am to receive a call on the date and time. I have had
> this before 3 years ago and since I have lost so much of my lungs in those
> years. I do not expect good results but it is information we have to have
> to see how much good the prednisone is doing.
>
> This high daily prednisone level is going to go on for many, many
> months.
> I worry about my eyes, ears,, whatever with long term steroid use much
> less eating a hole in my stomach. I think I can keep that from happening
> but you never know. Any thoughts,,,,,???
>
> Harv
>
-
Re: A catch up on Lung problem and doctors
Harv, what Donna said!
Gwen
"Donna G." <[email protected]> wrote in message
news:[email protected]..
>
>
>
> Hey Harv,
>
>
> As some one who has been down this road several times, I know just how
> frustrating and discouraging it all can be.
>
> Are you on anything for your stomach at all? If not, this might be
> something you want to ask your doctors about.
>
> I had to be on 60 mgs of prednisone for
> 6 months the first time, then 1 year the second time. It is not fun, but
> is what is needed to get the damage to your lungs slowed down and
> hopefully stopped before you lose any more function.
>
> They may also talk to you about going on Imuran as that is another
> common med that is used for this problem/condition.
> A lot will depend on what your pulmonary function testing shows. VERY
> IMPORTANT to keep the RD and the Lung doc communicating with one another
> on all of this. Hopefully your lung doc sends the RD copies of all the
> pulmonary function tests (PFT's).
>
> The side effects of the pred is definitely a worry, especially when you
> have to be on those kinds of doses for a long period of time, but then
> again, if you aren't breathing, the rest doesn't really matter. So, as
> hard as it might be, focus on getting the issues with your lungs dealt
> with first, and express those other concerns to your RD and
> Pulmonologist so that they can keep on top of things and hopefully head
> off any other problems.
>
> Know, my friend, that prayers are being lifted for you and that there be
> no further damage or complications!!!
>
> You've had so much to deal with as of late!!! Praying that the pred
> will at least give you some relief from the shingles issues, the joint
> issues, etc.
>
> Hang in there!!! We're all here for you when you need us!
>
>
>
> Hugs,
>
> .
> .
> .
> .
>
> Donna
> .
> .
> .
> .
> 1.) ANGELS EXIST, but some times, since they don't all have wings, we
> call them FRIENDS......
>
>
> 2.) J.K.M.A.
>
-
Re: A catch up on Lung problem and doctors
"Donna G." <[email protected]> wrote in message
news:[email protected]..
>
>
>
> Hey Harv,
>
>
> As some one who has been down this road several times, I know just how
> frustrating and discouraging it all can be.
>
> Are you on anything for your stomach at all? If not, this might be
> something you want to ask your doctors about.
I have been in the past,,, Previsid but nothing now.
>
> I had to be on 60 mgs of prednisone for
> 6 months the first time, then 1 year the second time. It is not fun, but
> is what is needed to get the damage to your lungs slowed down and
> hopefully stopped before you lose any more function.
>
> They may also talk to you about going on Imuran as that is another
> common med that is used for this problem/condition.
> A lot will depend on what your pulmonary function testing shows. VERY
> IMPORTANT to keep the RD and the Lung doc communicating with one another
> on all of this. Hopefully your lung doc sends the RD copies of all the
> pulmonary function tests (PFT's).
>
> The side effects of the pred is definitely a worry, especially when you
> have to be on those kinds of doses for a long period of time, but then
> again, if you aren't breathing, the rest doesn't really matter. So, as
> hard as it might be, focus on getting the issues with your lungs dealt
> with first, and express those other concerns to your RD and
> Pulmonologist so that they can keep on top of things and hopefully head
> off any other problems.
>
> Know, my friend, that prayers are being lifted for you and that there be
> no further damage or complications!!!
>
> You've had so much to deal with as of late!!! Praying that the pred
> will at least give you some relief from the shingles issues, the joint
> issues, etc.
>
> Hang in there!!! We're all here for you when you need us!
> Hugs,
> Donna
I will try to do with the doctors as you outlined.
thanks
Harv
-
Re: A catch up on Lung problem and doctors
Thanks
Harv
<[email protected]> wrote in message
news:5e2a8$47d9d104$45491df5$[email protected]..
> Harv, what Donna said!
> Gwen
>
>
> "Donna G." <[email protected]> wrote in message
> news:[email protected]..
>>
>>
>>
>> Hey Harv,
>>
>>
>> As some one who has been down this road several times, I know just how
>> frustrating and discouraging it all can be.
>>
>> Are you on anything for your stomach at all? If not, this might be
>> something you want to ask your doctors about.
>>
>> I had to be on 60 mgs of prednisone for
>> 6 months the first time, then 1 year the second time. It is not fun, but
>> is what is needed to get the damage to your lungs slowed down and
>> hopefully stopped before you lose any more function.
>>
>> They may also talk to you about going on Imuran as that is another
>> common med that is used for this problem/condition.
>> A lot will depend on what your pulmonary function testing shows. VERY
>> IMPORTANT to keep the RD and the Lung doc communicating with one another
>> on all of this. Hopefully your lung doc sends the RD copies of all the
>> pulmonary function tests (PFT's).
>>
>> The side effects of the pred is definitely a worry, especially when you
>> have to be on those kinds of doses for a long period of time, but then
>> again, if you aren't breathing, the rest doesn't really matter. So, as
>> hard as it might be, focus on getting the issues with your lungs dealt
>> with first, and express those other concerns to your RD and
>> Pulmonologist so that they can keep on top of things and hopefully head
>> off any other problems.
>>
>> Know, my friend, that prayers are being lifted for you and that there be
>> no further damage or complications!!!
>>
>> You've had so much to deal with as of late!!! Praying that the pred
>> will at least give you some relief from the shingles issues, the joint
>> issues, etc.
>>
>> Hang in there!!! We're all here for you when you need us!
>>
>>
>>
>> Hugs,
>>
>> .
>> .
>> .
>> .
>>
>> Donna
>> .
>> .
>> .
>> .
>> 1.) ANGELS EXIST, but some times, since they don't all have wings, we
>> call them FRIENDS......
>>
>>
>> 2.) J.K.M.A.
>>
>
>
-
Re: A catch up on Lung problem and doctors
Thanks
Harv
"RhondaM" <[email protected]> wrote in message
news:7%jCj.21665$[email protected]..
> (((((((Harv)))))))))) I just do not know what to say, but that I am
> thinking about you.
>
-
Re: A catch up on Lung problem and doctors
I have no answers for you, Harv, but I will include you in my prayers.
I'm sure the doctors can give you the answers you need.
Hugs,
Carole
-
Re: A catch up on Lung problem and doctors
Piggy-backing on Donna's post because I haven't yet seen the original post.
Hang in there, Kiddo. This is not going to be easy, but none of us really
have it easy. We love you and you will be in our prayers.
DeeTee
"Donna G." <[email protected]> wrote in message
news:[email protected]..
>
>
>
> Hey Harv,
>
>
> As some one who has been down this road several times, I know just how
> frustrating and discouraging it all can be.
>
> Are you on anything for your stomach at all? If not, this might be
> something you want to ask your doctors about.
>
> I had to be on 60 mgs of prednisone for
> 6 months the first time, then 1 year the second time. It is not fun, but
> is what is needed to get the damage to your lungs slowed down and
> hopefully stopped before you lose any more function.
>
> They may also talk to you about going on Imuran as that is another
> common med that is used for this problem/condition.
> A lot will depend on what your pulmonary function testing shows. VERY
> IMPORTANT to keep the RD and the Lung doc communicating with one another
> on all of this. Hopefully your lung doc sends the RD copies of all the
> pulmonary function tests (PFT's).
>
> The side effects of the pred is definitely a worry, especially when you
> have to be on those kinds of doses for a long period of time, but then
> again, if you aren't breathing, the rest doesn't really matter. So, as
> hard as it might be, focus on getting the issues with your lungs dealt
> with first, and express those other concerns to your RD and
> Pulmonologist so that they can keep on top of things and hopefully head
> off any other problems.
>
> Know, my friend, that prayers are being lifted for you and that there be
> no further damage or complications!!!
>
> You've had so much to deal with as of late!!! Praying that the pred
> will at least give you some relief from the shingles issues, the joint
> issues, etc.
>
> Hang in there!!! We're all here for you when you need us!
>
>
>
> Hugs,
>
> .
> .
> .
> .
>
> Donna
> .
> .
> .
> .
> 1.) ANGELS EXIST, but some times, since they don't all have wings, we
> call them FRIENDS......
>
>
> 2.) J.K.M.A.
>
-
Re: A catch up on Lung problem and doctors
Prayers still coming your way Harv,
Just watch the pred usuage though because of the adrenals. I would take 20
mg in morning and 10 in afternoon, but that is just me because I do have
adrenal issues. I found too doing it that way it is easier to come off of it
at 2.5 every two weeks then if I was taking it all at one time.
I sure hope something soon works to help with the lungs, I don't have RA
lung but boy do I know the lung issues too well.
I just found out too that my dad had COPD and so does my brother, so I am
wondering if this is like a genetic kind of COPD that the three of us have
or what. It was weird to see that in three of us.
I always eat when taking my pred. I take like a hot pocket, eat part of it
then take my pred, and it doesn't seem to bother my tummy like it used to
when I didn't eat something with it. I don't know if that would help stop
putting a hole in it though. I hope so. I don't take meds with it, so I
could end up with one.
--
Love and Hugs to all
Jo the squirrely one
I am nuts about you.
> I had my RD appointment which had been moved up a month because I
> wanted to get started on treatment for RA lung. He said and rightly so
> that he did not have enough information from the lung specialist to
> prescribe the right amount of steroid. He also said that he would start
> me on 30mg of prednisone daily taken early.
> The next day was the lung specialist appointment and I informed him of
> what the RD had done and that I had instructions from my RD to raise or
> lower the amount as this doctor wants. He wanted 10mg more or 40mg of
> prednisone a day and that is what we will do. He also scheduled me for
> the full test of my lungs and blood oxygen level testing to be done on
> their schedule. I am to receive a call on the date and time. I have had
> this before 3 years ago and since I have lost so much of my lungs in those
> years. I do not expect good results but it is information we have to have
> to see how much good the prednisone is doing.
>
> This high daily prednisone level is going to go on for many, many
> months.
> I worry about my eyes, ears,, whatever with long term steroid use much
> less eating a hole in my stomach. I think I can keep that from happening
> but you never know. Any thoughts,,,,,???
>
> Harv
>
-
Re: A catch up on Lung problem and doctors
"DeeTee and Bob Taggart" <[email protected]> wrote in message
news:47d9f0c7$0$30721$[email protected]..
> Piggy-backing on Donna's post because I haven't yet seen the original
> post.
>
> Hang in there, Kiddo. This is not going to be easy, but none of us really
> have it easy. We love you and you will be in our prayers.
>
> DeeTee
>
Can't ask for more than that.
thanks
Harv
-
Re: A catch up on Lung problem and doctors
"Squirrely" <[email protected]> wrote in message
news:47da0c48$0$84251$[email protected]..
> Prayers still coming your way Harv,
>
> Just watch the pred usuage though because of the adrenals. I would take 20
> mg in morning and 10 in afternoon, but that is just me because I do have
> adrenal issues. I found too doing it that way it is easier to come off of
> it at 2.5 every two weeks then if I was taking it all at one time.
>
> I sure hope something soon works to help with the lungs, I don't have RA
> lung but boy do I know the lung issues too well.
>
> I just found out too that my dad had COPD and so does my brother, so I am
> wondering if this is like a genetic kind of COPD that the three of us have
> or what. It was weird to see that in three of us.
>
> I always eat when taking my pred. I take like a hot pocket, eat part of it
> then take my pred, and it doesn't seem to bother my tummy like it used to
> when I didn't eat something with it. I don't know if that would help stop
> putting a hole in it though. I hope so. I don't take meds with it, so I
> could end up with one.
>
>
> --
> Love and Hugs to all
> Jo the squirrely one
> I am nuts about you.
Things to think about.
Thanks
Harv
-
Re: A catch up on Lung problem and doctors
On Thu, 13 Mar 2008 16:29:34 -0500, "Harvey R. Stone"
<[email protected]> wrote:
> I had my RD appointment which had been moved up a month because I
>wanted to get started on treatment for RA lung. He said and rightly so
>that he did not have enough information from the lung specialist to
>prescribe the right amount of steroid. He also said that he would start me
>on 30mg of prednisone daily taken early.
> The next day was the lung specialist appointment and I informed him of
>what the RD had done and that I had instructions from my RD to raise or
>lower the amount as this doctor wants. He wanted 10mg more or 40mg of
>prednisone a day and that is what we will do. He also scheduled me for the
>full test of my lungs and blood oxygen level testing to be done on their
>schedule. I am to receive a call on the date and time. I have had this
>before 3 years ago and since I have lost so much of my lungs in those years.
>I do not expect good results but it is information we have to have to see
>how much good the prednisone is doing.
>
> This high daily prednisone level is going to go on for many, many
>months.
>I worry about my eyes, ears,, whatever with long term steroid use much less
>eating a hole in my stomach. I think I can keep that from happening but
>you never know. Any thoughts,,,,,???
>
>Harv
>
First things first. If Prednisone helps your lungs then so be it.
Not everyone has really bad reactions to Prednisone. I'm not so sure
that any of the biologicals some of us take aren't just as bad for
you. Good luck Harv.
Thumper
-
Re: A catch up on Lung problem and doctors
I'm so sorry, Harv, that you are going through this. That's a lot of Pred,
but in your case it's probably going to be your redemption. Just want you
to know that I care. Nanny
"Harvey R. Stone" <[email protected]> wrote in message
news:21hCj.459$[email protected]..
> I had my RD appointment which had been moved up a month because I
> wanted to get started on treatment for RA lung. He said and rightly so
> that he did not have enough information from the lung specialist to
> prescribe the right amount of steroid. He also said that he would start
> me on 30mg of prednisone daily taken early.
> The next day was the lung specialist appointment and I informed him of
> what the RD had done and that I had instructions from my RD to raise or
> lower the amount as this doctor wants. He wanted 10mg more or 40mg of
> prednisone a day and that is what we will do. He also scheduled me for
> the full test of my lungs and blood oxygen level testing to be done on
> their schedule. I am to receive a call on the date and time. I have had
> this before 3 years ago and since I have lost so much of my lungs in those
> years. I do not expect good results but it is information we have to have
> to see how much good the prednisone is doing.
>
> This high daily prednisone level is going to go on for many, many
> months.
> I worry about my eyes, ears,, whatever with long term steroid use much
> less eating a hole in my stomach. I think I can keep that from happening
> but you never know. Any thoughts,,,,,???
>
> Harv
>
-
Re: A catch up on Lung problem and doctors
> First things first. If Prednisone helps your lungs then so be it.
> Not everyone has really bad reactions to Prednisone. I'm not so sure
> that any of the biologicals some of us take aren't just as bad for
> you. Good luck Harv.
> Thumper
Thanks Thumper
harv
-
Re: A catch up on Lung problem and doctors
"nanny" <[email protected]> wrote in message
news:47db03c1$0$1108$[email protected]..
> I'm so sorry, Harv, that you are going through this. That's a lot of
> Pred, but in your case it's probably going to be your redemption. Just
> want you to know that I care. Nanny
It is a tool to use for what I have and if I do not show improvement they
will raise it up and add other things to the mix. I lost too much too
fast. I may even have to have a biopsy to check for cancer. The lung
specialist has brought that up twice. We shall see.
Harv
-
Re: A catch up on Lung problem and doctors
Bummer Harvey, however, at least treatment is available.
I had a cataract in my left eye caused by pred. I know you are aware of
the bad stuff, maybe have your eyes checked on a very regular basis.
Other than that, you know I wish you the very best. At least you are
smart enough to take care of all of this.
God bless.
Lyn
Harvey R. Stone wrote:
> I had my RD appointment which had been moved up a month because I
>wanted to get started on treatment for RA lung. He said and rightly so
>that he did not have enough information from the lung specialist to
>prescribe the right amount of steroid. He also said that he would start me
>on 30mg of prednisone daily taken early.
> The next day was the lung specialist appointment and I informed him of
>what the RD had done and that I had instructions from my RD to raise or
>lower the amount as this doctor wants. He wanted 10mg more or 40mg of
>prednisone a day and that is what we will do. He also scheduled me for the
>full test of my lungs and blood oxygen level testing to be done on their
>schedule. I am to receive a call on the date and time. I have had this
>before 3 years ago and since I have lost so much of my lungs in those years.
>I do not expect good results but it is information we have to have to see
>how much good the prednisone is doing.
>
> This high daily prednisone level is going to go on for many, many
>months.
>I worry about my eyes, ears,, whatever with long term steroid use much less
>eating a hole in my stomach. I think I can keep that from happening but
>you never know. Any thoughts,,,,,???
>
>Harv
>
>
>
>
-
Re: A catch up on Lung problem and doctors
"Lyn" <[email protected]> wrote in message
news:[email protected]..
> Bummer Harvey, however, at least treatment is available.
> I had a cataract in my left eye caused by pred. I know you are aware of
> the bad stuff, maybe have your eyes checked on a very regular basis.
> Other than that, you know I wish you the very best. At least you are
> smart enough to take care of all of this.
>
> God bless.
>
> Lyn
>
>
Thank you Lyn,,,, nice of you to say that but the truth of it is I do the
best I can with what I have. It is really up to the specialists to make
the moves even if I am kicking them in the butttt to get it done. If I
were smart, I would not of lost over a third of my lung capacity that will
not be coming back. We can only hope that others learn from what takes
place and take care of themselves.
Harv
-
Re: A catch up on Lung problem and doctors
OK, Harv, now cut that out!!!
The loss of lung use that you have experienced has nothing to do with
you not being smart. Even the most intelligent of people suffer health
issues that are beyond their control or that kind of sneak up on them
unexpectedly. And yet, we all may have symptoms at some point that are
very easy to ignore or write off to something else, doesn't mean you
aren't smart!!!
Give yourself a break here. You have been dealing with an awfully full
plate for a very long time now!!!
..
..
..
..
Donna
..
..
..
..
1.) ANGELS EXIST, but some times, since they don't all have wings, we
call them FRIENDS......
2.) J.K.M.A.
-
Re: A catch up on Lung problem and doctors
"Donna G." <[email protected]> wrote in message
news:[email protected]..
>
>
>
> OK, Harv, now cut that out!!!
>
> The loss of lung use that you have experienced has nothing to do with
> you not being smart. Even the most intelligent of people suffer health
> issues that are beyond their control or that kind of sneak up on them
> unexpectedly. And yet, we all may have symptoms at some point that are
> very easy to ignore or write off to something else, doesn't mean you
> aren't smart!!!
>
> Give yourself a break here. You have been dealing with an awfully full
> plate for a very long time now!!!
> Donna
> .
OK, ok , you are right. It is time for me to put something on that
plate. I have lost 44 lbs and the right food is needed. All that
prednisone will make that easy. :-)
Harv
-
Re: A catch up on Lung problem and doctors
On Sun, 16 Mar 2008 08:48:33 -0500, "Harvey R. Stone"
<[email protected]> wrote:
>
>"Donna G." <[email protected]> wrote in message
>news:[email protected]..
>>
>>
>>
>> OK, Harv, now cut that out!!!
>>
>> The loss of lung use that you have experienced has nothing to do with
>> you not being smart. Even the most intelligent of people suffer health
>> issues that are beyond their control or that kind of sneak up on them
>> unexpectedly. And yet, we all may have symptoms at some point that are
>> very easy to ignore or write off to something else, doesn't mean you
>> aren't smart!!!
>>
>> Give yourself a break here. You have been dealing with an awfully full
>> plate for a very long time now!!!
>> Donna
>> .
>
>OK, ok , you are right. It is time for me to put something on that
>plate. I have lost 44 lbs and the right food is needed. All that
>prednisone will make that easy. :-)
>Harv
>
I wish I lost 44 lbs but not the way you did it. Tomorrow I start
really paying attention to diet and exercise and have a goal of 70-80
lbs. I'm on a low dose of prednisone so I'm not so hungry all the
time. The problem is exercise. My back and hips are killing me but I
suppose they will get better when I lose wait. I'm just starting on
the treadmill very slowly. I have to see my cardiologist next week
and my echo cardiogram shows a low EF rate of 40%. Hopefully I can
bring that up.
It's kind of funny. There are tons of people running around with an
EF rate as low or lower and don't know it because they haven't yet
gotten involved with cardiologists.
Thumper
-
Re: A catch up on Lung problem and doctors
Harv, don't you dare blow away!!!!
Gwen
"Harvey R. Stone" <[email protected]> wrote in message
news:Sy9Dj.4307$[email protected] ...
>
> "Donna G." <[email protected]> wrote in message
> news:[email protected]..
>>
>>
>>
>> OK, Harv, now cut that out!!!
>>
>> The loss of lung use that you have experienced has nothing to do with
>> you not being smart. Even the most intelligent of people suffer health
>> issues that are beyond their control or that kind of sneak up on them
>> unexpectedly. And yet, we all may have symptoms at some point that are
>> very easy to ignore or write off to something else, doesn't mean you
>> aren't smart!!!
>>
>> Give yourself a break here. You have been dealing with an awfully full
>> plate for a very long time now!!!
>> Donna
>> .
>
> OK, ok , you are right. It is time for me to put something on that
> plate. I have lost 44 lbs and the right food is needed. All that
> prednisone will make that easy. :-)
> Harv
>
>
-
Re: A catch up on Lung problem and doctors
>>
> I wish I lost 44 lbs but not the way you did it. Tomorrow I start
> really paying attention to diet and exercise and have a goal of 70-80
> lbs. I'm on a low dose of prednisone so I'm not so hungry all the
> time. The problem is exercise. My back and hips are killing me but I
> suppose they will get better when I lose wait. I'm just starting on
> the treadmill very slowly. I have to see my cardiologist next week
> and my echo cardiogram shows a low EF rate of 40%. Hopefully I can
> bring that up.
>
> It's kind of funny. There are tons of people running around with an
> EF rate as low or lower and don't know it because they haven't yet
> gotten involved with cardiologists.
> Thumper
But you have and know how to do what is right for you. You are doing great
and my kind of hero. It probably took quite awhile to put all that weight
on you,,,,, so don't be in a rush to get it all off. With hips and lower
back with pain,,,, people just do not know how hard this is for you. It is
you that you are saving. God's speed.
Harv
-
Re: A catch up on Lung problem and doctors
On Sun, 16 Mar 2008 20:30:15 GMT, "Harvey R. Stone"
<[email protected]> wrote:
>
>
>
>>>
>> I wish I lost 44 lbs but not the way you did it. Tomorrow I start
>> really paying attention to diet and exercise and have a goal of 70-80
>> lbs. I'm on a low dose of prednisone so I'm not so hungry all the
>> time. The problem is exercise. My back and hips are killing me but I
>> suppose they will get better when I lose wait. I'm just starting on
>> the treadmill very slowly. I have to see my cardiologist next week
>> and my echo cardiogram shows a low EF rate of 40%. Hopefully I can
>> bring that up.
>>
>> It's kind of funny. There are tons of people running around with an
>> EF rate as low or lower and don't know it because they haven't yet
>> gotten involved with cardiologists.
>> Thumper
>
>But you have and know how to do what is right for you. You are doing great
>and my kind of hero. It probably took quite awhile to put all that weight
>on you,,,,, so don't be in a rush to get it all off. With hips and lower
>back with pain,,,, people just do not know how hard this is for you. It is
>you that you are saving. God's speed.
>Harv
>
Thanks Harv.
Thumper
-
Re: A catch up on Lung problem and doctors
When one of my doctors prescribes something which he says may interact with a
treatment from another doctor, I ask him to talk to the other doctor directly
and let me know what the decide together. So far, they have all been willing to
do this, and I don't have to play messenger (and, possibly, get something
wrong).
-
Re: A catch up on Lung problem and doctors
"Norman" <[email protected]> wrote in message
news:[email protected]..
> When one of my doctors prescribes something which he says may interact
> with a
> treatment from another doctor, I ask him to talk to the other doctor
> directly
> and let me know what the decide together. So far, they have all been
> willing to
> do this, and I don't have to play messenger (and, possibly, get something
> wrong).
Well said Bones,,,, I will try for that.
Harv
-
Re: A catch up on Lung problem and doctors
Harv,
I didn't reply sooner, but it wasn't because I didn't add you to my
prayer list as soon as I read about your appointment and the not so
fantastic news about your lungs.
I will continue to keep you in prayer and hopefully the medicine will
work and you will be able to stop the process of deterioration in your
lungs.
Ann
-
Re: A catch up on Lung problem and doctors
"ANN M" <[email protected]> wrote in message
news:[email protected]..
> Harv,
> I didn't reply sooner, but it wasn't because I didn't add you to my
> prayer list as soon as I read about your appointment and the not so
> fantastic news about your lungs.
> I will continue to keep you in prayer and hopefully the medicine will
> work and you will be able to stop the process of deterioration in your
> lungs.
> Ann
>
Thank you Ann,,,,, All a person can do is wait and see and hope for the
best.
I do feel kind of strung out on 40mg of pred a day but others take more to
fight this.
Harv
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