do any of you have trouble with heat/perspiring?

I don't know if I can face summer again. Something is really haywire
in my internal thermostat. this is different than hot flashes, which
I've had for about 7 years. This occurs with the slightest bit of
exertion, even indoors. My head, face and neck perspire dramatically.
if it progresses, the top of my head tingles and i feel. . . weird.
not sure how else to describe it. i'm constantly mopping my forehead.
i don't know if this is some medical problem, some facet of menopause,
the side effect of a medication or what. one doc suggested it might be
"carcinoid syndrome" but i've been checked for that and don't have it.
since we're on a lot of the same meds, i thought i'd ask here. does
this sound familiar to anyone?

diane

I am wondering if you have a virus. I get like that during a virus too
because of the perimenopause stuff, it is hard to tell which is which.

I hope they find something and can fix it soon for you.

I hate the hot flash kind of stuff with a passion.

--
Love and Hugs to all
Jo the squirrely one

>I don't know if I can face summer again. Something is really haywire
> in my internal thermostat. this is different than hot flashes, which
> I've had for about 7 years. This occurs with the slightest bit of
> exertion, even indoors. My head, face and neck perspire dramatically.
> if it progresses, the top of my head tingles and i feel. . . weird.
> not sure how else to describe it. i'm constantly mopping my forehead.
> i don't know if this is some medical problem, some facet of menopause,
> the side effect of a medication or what. one doc suggested it might be
> "carcinoid syndrome" but i've been checked for that and don't have it.
> since we're on a lot of the same meds, i thought i'd ask here. does
> this sound familiar to anyone?
>
> diane
>

For me it was the med effexor - yes all those feelings Diane. When I went
off the side effects went away.

Kelly

"Diane" <dcham@aol.com> wrote in message
news:1175549313.484082.294760@p77g2000hsh.googlegr oups.com...
>I don't know if I can face summer again. Something is really haywire
> in my internal thermostat. this is different than hot flashes, which
> I've had for about 7 years. This occurs with the slightest bit of
> exertion, even indoors. My head, face and neck perspire dramatically.
> if it progresses, the top of my head tingles and i feel. . . weird.
> not sure how else to describe it. i'm constantly mopping my forehead.
> i don't know if this is some medical problem, some facet of menopause,
> the side effect of a medication or what. one doc suggested it might be
> "carcinoid syndrome" but i've been checked for that and don't have it.
> since we're on a lot of the same meds, i thought i'd ask here. does
> this sound familiar to anyone?
>
> diane
>

kelly, i went off effexor for that reason, but i went on it initially
for hot flashes and they came back with a vengeance. then i went on
cymbalta. it may be the cymbalta. i found a site that also lists
remicade and arava as possible culprits. and of course i can't go off
them. i'll discuss with my doc.

thanks,

diane

Arava did not do that to me. Have you been on arava and remicade longer
than the symptoms? To me they weren't like hot flashes - more like "hot"
flashes with itchies on the head - pins and needle feeling. hard to
describe.

Good luck figuring it out Diane. Doesn't it annoy you when you have to play
detective and they don't even give you a badge? I figure all of us deserve
at least a detective badge!

Will be thinking of you. I hated that feeling.

Kelly

"Diane" <dcham@aol.com> wrote in message
news:1175566883.372390.38260@l77g2000hsb.googlegro ups.com...
> kelly, i went off effexor for that reason, but i went on it initially
> for hot flashes and they came back with a vengeance. then i went on
> cymbalta. it may be the cymbalta. i found a site that also lists
> remicade and arava as possible culprits. and of course i can't go off
> them. i'll discuss with my doc.
>
> thanks,
>
> diane
>

I've had something going on the last few years, too, though not quite as bad
as yours. I warm up so fast with exertion and often find myself sweating eve
in the winter when I'm in buildings that stay a few degrees warmer than we
keep the house. In the summer, humidity doesn't work at all with me - I'll
be sweating a lot at 70 degrees if it's humid. I've thought about mentioning
it to my doc, but haven't yet. We've been through so many changes since Aug
2000, I've thought my body might just be still confused.

--
Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

that sounds similar, nann. could you be perimenopausal?

diane

"Diane" <dcham@aol.com> wrote in message
news:1175549313.484082.294760@p77g2000hsh.googlegr oups.com...
>I don't know if I can face summer again. Something is really haywire
> in my internal thermostat. this is different than hot flashes, which
> I've had for about 7 years. This occurs with the slightest bit of
> exertion, even indoors. My head, face and neck perspire dramatically.
> if it progresses, the top of my head tingles and i feel. . . weird.
> not sure how else to describe it. i'm constantly mopping my forehead.
> i don't know if this is some medical problem, some facet of menopause,
> the side effect of a medication or what. one doc suggested it might be
> "carcinoid syndrome" but i've been checked for that and don't have it.
> since we're on a lot of the same meds, i thought i'd ask here. does
> this sound familiar to anyone?
>
> diane
>

Very. It doesn't always happen to me. But if I'm not feeling well or
feeling particularly out of shape its worse.

Charlie is a great one of talking me into going with him to one store to
pick up one thing, and first thing I know we are going on five store and the
second full circuit of town and still haven't found what he's looking for
(or he's looking for something else)

When I push to far my scalp will start to sweat. If I don't quit then, my
face will flush and I'll start to sweat all over and feel very light headed.
Also by then my intestines will be starting to protest as well.

If I've been sick I can only manage about 1/4 of the grocery store.

Jo

YES!!!
Please be sure to have your thyroid function checked. When I go
hypothyroid my temperature regulation is horrendous. It's a very common
symptom. Make sure they check your T3 and T4 levels, not just TSH (TSH
can be normal but you may have trouble converting t4 -> t3 or you may
even have Hashimoto's, which is automimmune system attacking the thyroid
and is common if you have other immune issues. See this for further
info: http://www.armourthyroid.com/hypothy.../symptoms.html

Aim


Diane wrote:
> I don't know if I can face summer again. Something is really haywire
> in my internal thermostat. this is different than hot flashes, which
> I've had for about 7 years. This occurs with the slightest bit of
> exertion, even indoors. My head, face and neck perspire dramatically.
> if it progresses, the top of my head tingles and i feel. . . weird.
> not sure how else to describe it. i'm constantly mopping my forehead.
> i don't know if this is some medical problem, some facet of menopause,
> the side effect of a medication or what. one doc suggested it might be
> "carcinoid syndrome" but i've been checked for that and don't have it.
> since we're on a lot of the same meds, i thought i'd ask here. does
> this sound familiar to anyone?
>
> diane
>

Aim, i've had my thyroid functioning checked every which way by
several docs and they always say it's normal. i visited that site, but
it says senistivity to cold rather than to heat. thanks for the input,
tho.

diane

yeah sensitivity to cold is the most common but I had heat sensitivity
in the extreme. In fact I thought I was starting early menopause.
Basically the thyroid controls your body's tstat, among many other
things, so it can go wonky in any direction. Also they've recently
lowered the acceptable limits for thyroid function - so what was
previously "borderline" or even normal can now be considered out of
limits. Just in case it's been awhile since the last check. Anything
over a 2 is now considered hypothyroid. Used to be up to 5 was
acceptable, and 6 borderline.

Probably telling you stuff you already know, but just in case someone
else doesn't...

Hang in there. Hope it gets better!!

Amy


Diane wrote:
> Aim, i've had my thyroid functioning checked every which way by
> several docs and they always say it's normal. i visited that site, but
> it says senistivity to cold rather than to heat. thanks for the input,
> tho.
>
> diane
>
>

On Tue, 3 Apr 2007 12:13:21 -0400, Diane wrote
(in message <1175616801.410441.107930@d57g2000hsg.googlegroups .com>):

> that sounds similar, nann. could you be perimenopausal?
>
> diane
>
>

I did menopause surgically back in August of 99. Have been on premarin since
3 weeks post-op. (thank goodness we'd had the a/c in the house and car both
fixed the month before surgery! lol) The major sweats thing has been just
the past 3-4 years. Some of the other posts here have me wondering if it
might be a med side effect, something I hadn't thought of before. I need to
do some research, then talk to my doctor.

--
Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare

Well Nann, if your "body is confused", then so is mine. I sweat at the
slightest activity. When I'm cleaning house, even in the winter, I have to
open a door/window or turn on the air-conditioner; same for ironing. Part
of it is because there are some meds that cause one to sweat more -
antidepressants, for instance. And, I'm on 2 different ones in that
category. I suppose we can also blame our hormones ;-) Nanny
"Nann Bell" <hanbellGOGATORS@earthlink.net> wrote in message
news:0001HW.C237DA050070BD3E11B004D0@news.east.ear thlink.net...
> I've had something going on the last few years, too, though not quite as
> bad
> as yours. I warm up so fast with exertion and often find myself sweating
> eve
> in the winter when I'm in buildings that stay a few degrees warmer than we
> keep the house. In the summer, humidity doesn't work at all with me -
> I'll
> be sweating a lot at 70 degrees if it's humid. I've thought about
> mentioning
> it to my doc, but haven't yet. We've been through so many changes since
> Aug
> 2000, I've thought my body might just be still confused.
>
> --
> Nann
> remove the Gator cheer to email me
> Simply the thing I am shall make me live --- William Shakespeare
>

nanny, that sounds closest to what happens to me. even playing with my
six month old grandson on my lap (bouncing him) in a 72 degree house
is enough to do it.
here's an unbelievably long list of drugs that can contribute to the
problem. i'm on three of them. the site also has a similarly long list
of diseases that can contribute, RA being one of them.

http://www.sweathelp.org/pdf/Diaphoretic_Class.pdf

diane

as a guy, i have similar

had all the tests, thyroid, etc.etc. no problems there and no i do not
have any other identified condition

so....docs suggest that indeed it's a combination of the basic soft
tissue inflammation and the meds...

turns out a bunch of the meds can do this but can't find the web pages
that i read it on - perhaps someone here knows the one i mean?

Diane wrote:
>
> I don't know if I can face summer again. Something is really haywire
> in my internal thermostat. this is different than hot flashes, which
> I've had for about 7 years. This occurs with the slightest bit of
> exertion, even indoors. My head, face and neck perspire dramatically.
> if it progresses, the top of my head tingles and i feel. . . weird.
> not sure how else to describe it. i'm constantly mopping my forehead.
> i don't know if this is some medical problem, some facet of menopause,
> the side effect of a medication or what. one doc suggested it might be
> "carcinoid syndrome" but i've been checked for that and don't have it.
> since we're on a lot of the same meds, i thought i'd ask here. does
> this sound familiar to anyone?
>
> diane

Diane,


I have been having this type of problem now for a couple of years and it
truly is so uncomfortable when it hits. I have gotten so I just dread
the summer months as it is just too unbearable to contend with. I like
the winter because then when I get those waves of hot flashes and
sweating where the sweat will literally just roll of my head, I like to
go stand, barefoot, out on the cold cement balcony! I finally pinned
most of my problem down to the prednisone I take every day. Have been
on it for years and years, but it is only these last 3 years or so that
I have had the heat/perspiring problem. I had talked to my pcp, my
ob/gyn, and my cardiologist, and it was the cardiologist that was the
one that said he thought it was probably the pred and to keep a record
of when things seemed to get worse. Turns out that when I have the
worst problems is when I am on the higher doses of steroids for a burst
and then start tapering down. Yikes, then it really gets bad!!! And,
Yes, I have had my thyroid tested as well as female hormones, etc
tested. Pred is my biggest problem and I'm sure the inflammation of
the RA just adds to it as well.


Sure hope you can find a way to be more comfortable. For me, it's just
lots and lots of very cold liquids and more use of fans and a/c.


Donna G.
..
..
..
ANGELS EXIST, but some times, since they don't all have wings, we call
them FRIENDS......

>
> turns out a bunch of the meds can do this but can't find the web pages
> that i read it on - perhaps someone here knows the one i mean?
>

here it is, paul.

http://www.sweathelp.org/pdf/Diaphoretic_Class.pdf

diane

My heavens, I'm taking 5 of the meds in the link you provided! No wonder
I'm one hot woman ;-) Spring is here - get out those fans and air
conditioners! Nanny
"Diane" <dcham@aol.com> wrote in message
news:1175694061.914620.141630@o5g2000hsb.googlegro ups.com...
> nanny, that sounds closest to what happens to me. even playing with my
> six month old grandson on my lap (bouncing him) in a 72 degree house
> is enough to do it.
> here's an unbelievably long list of drugs that can contribute to the
> problem. i'm on three of them. the site also has a similarly long list
> of diseases that can contribute, RA being one of them.
>
> http://www.sweathelp.org/pdf/Diaphoretic_Class.pdf
>
> diane
>

On 4/4/07 1:47 PM, in article 461410F6.1FBB7AC5@bellatlantic.net, "Paul T.
Holland" <pholland@bellatlantic.net> wrote:

> as a guy, i have similar
>
> had all the tests, thyroid, etc.etc. no problems there and no i do not
> have any other identified condition
>
> so....docs suggest that indeed it's a combination of the basic soft
> tissue inflammation and the meds...
>
> turns out a bunch of the meds can do this but can't find the web pages
> that i read it on - perhaps someone here knows the one i mean?
>
> Diane wrote:
>>
>> I don't know if I can face summer again. Something is really haywire
>> in my internal thermostat. this is different than hot flashes, which
>> I've had for about 7 years. This occurs with the slightest bit of
>> exertion, even indoors. My head, face and neck perspire dramatically.
>> if it progresses, the top of my head tingles and i feel. . . weird.
>> not sure how else to describe it. i'm constantly mopping my forehead.
>> i don't know if this is some medical problem, some facet of menopause,
>> the side effect of a medication or what. one doc suggested it might be
>> "carcinoid syndrome" but i've been checked for that and don't have it.
>> since we're on a lot of the same meds, i thought i'd ask here. does
>> this sound familiar to anyone?
>>
>> diane

I had problems like that as well. I was joking that I was having hot
flashes. My wife was freezing while anything seemed to warm me up. The
strange thing was that when I felt the warmest and I thought I was
overheating, my measured temperature was actually depressed below normal.

Along with other symptoms, I guessed that I was having thyroid problems, but
it did not quite fit. Thyroid tests were normal. I was suspicious of my
medications, but could never pin anything down.

Now, about five years later or so, that problem seems to be gone, but I have
others. I now have great thirst and urine volume. I was suggesting diabetes
insipidus to my primary care physician, but getting pooh-poohed. That
possibility still lingers in my mind.

Bill
-- Fermez le Bush--about two years to go.

On Wed, 04 Apr 2007 03:30:18 GMT, Nann Bell <hanbellGOGATORS@earthlink.net>
wrote:

>On Tue, 3 Apr 2007 12:13:21 -0400, Diane wrote
>(in message <1175616801.410441.107930@d57g2000hsg.googlegroups .com>):
>
>> that sounds similar, nann. could you be perimenopausal?
>>
>> diane
>>
>>
>
>I did menopause surgically back in August of 99. Have been on premarin since
>3 weeks post-op. (thank goodness we'd had the a/c in the house and car both
>fixed the month before surgery! lol) The major sweats thing has been just
>the past 3-4 years. Some of the other posts here have me wondering if it
>might be a med side effect, something I hadn't thought of before. I need to
>do some research, then talk to my doctor.

Hi Nann, I had a hysterectomy and bi-lateral when I was only 28, almost 30
years ago, and for years I suffered with unusual sweats, plus awful yeast
infections. Finally it was determined that Premarin was the source of both
problems, and I was switched to Ogen. Bingo! No more sweats, no more
yeast infections.

In fact, menopause as a serious phase has been thwarted by the Ogen, and my
former MD tried to get me to reduce the Ogen dose to allow my body to go
through natural menopause once I hit 55. But with everything else going on
I told her that there is no way I'm going to deal with that if I can avoid
it by choice via Ogen!!

Eventually my body will gradually phase through menopause, hopefully with
as little discomfort to me as possible. I sense it's happening already
because of changes I've noticed lately, although some of it could well be
due to long term Prednisone therapy.

As long as I don't have to go through the insanity part, I really would
prefer to let it happen as a low level event in the background....hehehe,
who wouldn't?!! So I'm on Ogen forever, as far as I'm concerned. <chuckle>

--
LadyKitt

"Life is not a journey to the grave with the intention
of arriving safely in a pretty and well preserved body,
but rather to slide in broadside, thoroughly used up,
totally worn out, and proclaiming: WOW...WHAT A RIDE!!!"

On 4 Apr 2007 06:41:01 -0700, "Diane" <dcham@aol.com> wrote:

>nanny, that sounds closest to what happens to me. even playing with my
>six month old grandson on my lap (bouncing him) in a 72 degree house
>is enough to do it.
>here's an unbelievably long list of drugs that can contribute to the
>problem. i'm on three of them. the site also has a similarly long list
>of diseases that can contribute, RA being one of them.
>
>http://www.sweathelp.org/pdf/Diaphoretic_Class.pdf
>
>diane

Hi Diane, I have very aggressive RA, and am fortunate now to live in a
northern climate where it's cool most of the time. While I'm in a constant
state of flare, there are super-aggressive states of flare that vex me
about once a week during which it's like my body's on fire. My form of RA
is attacking all of my joints, every one including my ribs, neck at the
base of my skull, jaw, etc., as well as all connective tissues and many
vital organs such as my vocal chords, and my lungs (rheumatoid pleural
effusion, and nodules).

So essentially my whole body becomes "inflamed" during these extreme
flares, and that's when I suffer the profuse type of sweating. It's like
my body puts out enormous amounts of heat from the inflammation (I'm
allergic to anti-inflammatory drugs, can't take them). When that happens I
try to stay cool, and I sleep an awful lot, which seems to help. For some
reason when I sleep my body temp drops quite a bit. As soon as I wake up
and get up again the sweat pours out. So I try to "sleep off" the extreme
flares, for a day or so, and everything gets back to my "normal" state of
flare, which is more tolerable.

Somehow I don't think that will help you much, though. Each of us seems to
react a bit differently to the combination of our RA disease and the drugs
that we have to take to try to treat it. If it's not your thyroid, and not
menopause, perhaps it's simply an all-body heating up phase of the RA
flareups? Don't know.

I do know that I drink enormous amounts of iced drinks most of the time,
and that helps a lot....especially if I put crushed ice in the drinks and
suck on the ice regularly.

Hope you find the answer soon, it sounds extremely unpleasant, what you're
dealing with!
--
LadyKitt

"Life is not a journey to the grave with the intention
of arriving safely in a pretty and well preserved body,
but rather to slide in broadside, thoroughly used up,
totally worn out, and proclaiming: WOW...WHAT A RIDE!!!"

hi kitt,
ugh, i really feel for you. your situation reminds us how invasive RA
can be. i don't think that's what's making me hot though. i think
mines more a combo of meds and being menopausal. when i'm in bed, i
alternate the hot and cold typical of menopause. this has gone on for
YEARS.

i'm glad you moved to a cooler clime! i moved to a warmer one.

diane

.. I now have great thirst and urine volume. I was suggesting diabetes
> insipidus to my primary care physician, but getting pooh-poohed. That
> possibility still lingers in my mind.
>

bill, maybe your doc would be willing to test you for this, to ease
your mind if nothing else. good luck,

diane

Bill,

good luck with getting tested and finding out about the diabetes inspididus.
I still have a diagnosis from my pcp that I do have it, but my endo kept
telling us no it is not. Well they had ruled out other things and the blood
tests kind of pointed that way and so did the symptoms. But this endo is the
one that says my adrenal gland is fine even though I have masses on both of
them and i do get weird blood and urine labs. I also go into adrenal crises
but she is still saying oh no it is not. So it is a matter of who to believe
at this point.

I sure do hope you have better luck with the answers to it. I know it is not
fun.


--
Love and Hugs to all
Jo the squirrely one
>
> I had problems like that as well. I was joking that I was having hot
> flashes. My wife was freezing while anything seemed to warm me up. The
> strange thing was that when I felt the warmest and I thought I was
> overheating, my measured temperature was actually depressed below normal.
>
> Along with other symptoms, I guessed that I was having thyroid problems,
> but
> it did not quite fit. Thyroid tests were normal. I was suspicious of my
> medications, but could never pin anything down.
>
> Now, about five years later or so, that problem seems to be gone, but I
> have
> others. I now have great thirst and urine volume. I was suggesting
> diabetes
> insipidus to my primary care physician, but getting pooh-poohed. That
> possibility still lingers in my mind.
>
> Bill
> -- Fermez le Bush--about two years to go.
>
>

Hi Jo,
Can't you get the two docs to talk to each other and hash this out?
GaryZ


"Squirrely" <sqjo@sonic.net> wrote in message
news:46150d30$0$14116$742ec2ed@news.sonic.net...
> Bill,
>
> good luck with getting tested and finding out about the diabetes
> inspididus. I still have a diagnosis from my pcp that I do have it, but my
> endo kept telling us no it is not. Well they had ruled out other things
> and the blood tests kind of pointed that way and so did the symptoms. But
> this endo is the one that says my adrenal gland is fine even though I have
> masses on both of them and i do get weird blood and urine labs. I also go
> into adrenal crises but she is still saying oh no it is not. So it is a
> matter of who to believe at this point.
>
> I sure do hope you have better luck with the answers to it. I know it is
> not fun.
>
>
> --
> Love and Hugs to all
> Jo the squirrely one
>>
>> I had problems like that as well. I was joking that I was having hot
>> flashes. My wife was freezing while anything seemed to warm me up. The
>> strange thing was that when I felt the warmest and I thought I was
>> overheating, my measured temperature was actually depressed below normal.
>>
>> Along with other symptoms, I guessed that I was having thyroid problems,
>> but
>> it did not quite fit. Thyroid tests were normal. I was suspicious of my
>> medications, but could never pin anything down.
>>
>> Now, about five years later or so, that problem seems to be gone, but I
>> have
>> others. I now have great thirst and urine volume. I was suggesting
>> diabetes
>> insipidus to my primary care physician, but getting pooh-poohed. That
>> possibility still lingers in my mind.
>>
>> Bill
>> -- Fermez le Bush--about two years to go.
>>
>>
>
>

nope my dr did try talking with her and the other one wouldn't have anything
to do with it. She feels that my pcp was putting her nose in where it didn't
belong.

I don't have those drs anymore, I don't have a dr at all anymore.


--
Love and Hugs to all
Jo the squirrely one
"Gary Z"
> Hi Jo,
> Can't you get the two docs to talk to each other and hash this out?
> GaryZ

On Wed, 4 Apr 2007 22:49:23 -0400, Diane wrote
(in message <1175741363.819866.174140@y80g2000hsf.googlegroups .com>):

>> turns out a bunch of the meds can do this but can't find the web pages
>> that i read it on - perhaps someone here knows the one i mean?
>>
>
> here it is, paul.
>
> http://www.sweathelp.org/pdf/Diaphoretic_Class.pdf
>
> diane

aha - I finally got around to looking at the list and I se that tramadol is
on it. As I remember it, this really became a hassle for me around the time
I started taking that and the periods of the day when I'm most prone to being
warm I think are at time distances from my last pill. I need to chart and
analyze this some more before I see the doc again.

Tramadol has dulled the edge some for me without taking the pain away so much
that I overdo it so I've really liked it. Don't want to change, but maybe I
can learn to work WITH it more. (mike says not to worry about sweating some
and I had to tell him it's not vanity, but comfort! It's hard to have sweat
pouring off of you when everyone else is comfortable!

--
Nann
remove the Gator cheer to email me
Simply the thing I am shall make me live --- William Shakespeare