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  #1  
Old 09-25-2007, 08:11 AM
Squirrely
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Default Dry eyes, mouth only part of Sjögren's

I thought this article was interesting, I never knew Shogrens could cause
all this stuff.

Dr. Paul Donohue

http://www.stltoday.com/stltoday/lif...D?OpenDocument

Dry eyes, mouth only part of Sjögren's
By Dr. Paul Donohue

Monday, Sep. 24 2007

Dear Dr. Donohue: I have had Sjögren's syndrome for more than five
years. I
never have had much of a problem with it other than dry eyes and dry
mouth.

Recently I have had pain in my shoulders, arms, wrists and fingers.
The doctor
says my Sjögren's is "off the chart." He told me to take Tylenol Extra
Strength. I need stronger pain medicine. The doctor says there hasn't
been much
research on Sjögren's, so I have no idea what kind of treatment I
should be
getting. Can you give me any help? I was also diagnosed with lymphoma.



Dry eyes and dry mouth are the classic Sjögren's (SHOW-grins) syndrome
symptoms
due to an immune-system attack on the tear and salivary glands. There
are
medicines for both.

Sjögren's can bring on joint pains, swollen lymph nodes, lung
involvement,
inflamed blood vessels, kidney and liver trouble, neuropathy and
muscle
inflammation. About 2.5 percent of Sjögren's patients come down with a
lymphoma.

Yours is a complicated case that needs the direction of experts — a
rheumatologist for whom Sjögren's is part of his or her area of
expertise and
an oncologist for the lymphoma cancer. Furthermore, other joint
diseases —
rheumatoid arthritis and lupus — can coexist with Sjögren's, and
either could
be the reason for your pain. Those illnesses call for the attention of
a
rheumatologist specialist.

Contact the Sjögren's Syndrome Foundation. The foundation's toll-free
number is
1-800-475-6473, and its website is www.sjogrens.org.



Dear Dr. Donohue: For three and a half years, I was diagnosed as
having
inflammatory bowel disease, but the doctor was vague about calling it
either
Crohn's disease or ulcerative colitis. I had to use the bathroom 10 to
15 times
a day. I did not fit the picture of a person with IBD, since I gained
weight. I
got a second opinion and was told I had irritable bowel syndrome. I
took
Lomotil and it helped, but I still had accidents. I mentioned to the
doctor
that I had had my gallbladder removed, and he put me on Colestid.
Today I lead
a relatively active life, eat salads and fruits and have my diabetes
under
control. People should know this side effect of gallbladder surgery.



The gallbladder stores bile and shoots it into the intestine after a
fatty meal
to aid in digestion. Without a gallbladder, bile drips into the
intestine more
or less constantly, and most people get along quite well with that
arrangement.
For a few, however, the constant drip irritates the intestine and
brings on
diarrhea.

Colestid and another medicine, Questran, absorb bile, and either often
ends
bile-induced diarrhea.

Write Dr. Donohue at P.O. Box 536475, Orlando, Fla. 32853-6475.‚


__________________________________________________ ___________________
If you enjoy reading about interesting news, you might like the 3
O'Clock Stir from
STLtoday.com. Sign up and you'll receive an email with unique stories
of the day,
every Monday-Friday, at no charge.
Sign up at http://newsletters.stltoday.com


--
Love and Hugs to all
Jo the squirrely one


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  #2  
Old 09-25-2007, 06:11 PM
DeeTee and Bob Taggart
Guest
 
Posts: n/a
Default Re: Dry eyes, mouth only part of Sjögren's

Yep - that's why my rheumy treats me as though I had RA. Methotrexate,
Plaquenil, Prednisone and Ultram.

DeeTee

"Squirrely" <sqjo@sonic.net> wrote in message
news:46f89933$0$14148$742ec2ed@news.sonic.net...
>I thought this article was interesting, I never knew Shogrens could cause
>all this stuff.
>
> Dr. Paul Donohue
>
> http://www.stltoday.com/stltoday/lif...D?OpenDocument
>
> Dry eyes, mouth only part of Sjögren's
> By Dr. Paul Donohue
>
> Monday, Sep. 24 2007
>
> Dear Dr. Donohue: I have had Sjögren's syndrome for more than five
> years. I
> never have had much of a problem with it other than dry eyes and dry
> mouth.
>
> Recently I have had pain in my shoulders, arms, wrists and fingers.
> The doctor
> says my Sjögren's is "off the chart." He told me to take Tylenol
> Extra
> Strength. I need stronger pain medicine. The doctor says there hasn't
> been much
> research on Sjögren's, so I have no idea what kind of treatment I
> should be
> getting. Can you give me any help? I was also diagnosed with
> lymphoma.
>
>
>
> Dry eyes and dry mouth are the classic Sjögren's (SHOW-grins)
> syndrome symptoms
> due to an immune-system attack on the tear and salivary glands. There
> are
> medicines for both.
>
> Sjögren's can bring on joint pains, swollen lymph nodes, lung
> involvement,
> inflamed blood vessels, kidney and liver trouble, neuropathy and
> muscle
> inflammation. About 2.5 percent of Sjögren's patients come down with
> a
> lymphoma.
>
> Yours is a complicated case that needs the direction of experts - a
> rheumatologist for whom Sjögren's is part of his or her area of
> expertise and
> an oncologist for the lymphoma cancer. Furthermore, other joint
> diseases -
> rheumatoid arthritis and lupus - can coexist with Sjögren's, and
> either could
> be the reason for your pain. Those illnesses call for the attention
> of a
> rheumatologist specialist.
>
> Contact the Sjögren's Syndrome Foundation. The foundation's toll-free
> number is
> 1-800-475-6473, and its website is www.sjogrens.org.
>
>
>
> Dear Dr. Donohue: For three and a half years, I was diagnosed as
> having
> inflammatory bowel disease, but the doctor was vague about calling it
> either
> Crohn's disease or ulcerative colitis. I had to use the bathroom 10
> to 15 times
> a day. I did not fit the picture of a person with IBD, since I gained
> weight. I
> got a second opinion and was told I had irritable bowel syndrome. I
> took
> Lomotil and it helped, but I still had accidents. I mentioned to the
> doctor
> that I had had my gallbladder removed, and he put me on Colestid.
> Today I lead
> a relatively active life, eat salads and fruits and have my diabetes
> under
> control. People should know this side effect of gallbladder surgery.
>
>
>
> The gallbladder stores bile and shoots it into the intestine after a
> fatty meal
> to aid in digestion. Without a gallbladder, bile drips into the
> intestine more
> or less constantly, and most people get along quite well with that
> arrangement.
> For a few, however, the constant drip irritates the intestine and
> brings on
> diarrhea.
>
> Colestid and another medicine, Questran, absorb bile, and either
> often ends
> bile-induced diarrhea.
>
> Write Dr. Donohue at P.O. Box 536475, Orlando, Fla. 32853-6475.,
>
>
> __________________________________________________ ___________________
> If you enjoy reading about interesting news, you might like the 3
> O'Clock Stir from
> STLtoday.com. Sign up and you'll receive an email with unique stories
> of the day,
> every Monday-Friday, at no charge.
> Sign up at http://newsletters.stltoday.com
>
>
> --
> Love and Hugs to all
> Jo the squirrely one
>



Reply With Quote
  #3  
Old 09-25-2007, 06:11 PM
Peter
Guest
 
Posts: n/a
Default =?iso-8859-1?q?Re:_Dry_eyes,_mouth_only_part_of_Sj=F6gren's?=

On 25 Sep, 15:33, "DeeTee and Bob Taggart" <ke3iu_nos...@hotmail.com>
wrote:
> Yep - that's why my rheumy treats me as though I had RA. Methotrexate,
> Plaquenil, Prednisone and Ultram.
>
> DeeTee
>
> "Squirrely" <s...@sonic.net> wrote in message
>
> news:46f89933$0$14148$742ec2ed@news.sonic.net...
>
> >I thought this article was interesting, I never knew Shogrens could cause
> >all this stuff.

>
> > Dr. Paul Donohue

>
> >http://www.stltoday.com/stltoday/lif...sf/drpauldonoh...

>
> > Dry eyes, mouth only part of Sjögren's
> > By Dr. Paul Donohue

>
> > Monday, Sep. 24 2007

>
> > Dear Dr. Donohue: I have had Sjögren's syndrome for more than five
> > years. I
> > never have had much of a problem with it other than dry eyes and dry
> > mouth.

>
> > Recently I have had pain in my shoulders, arms, wrists and fingers.
> > The doctor
> > says my Sjögren's is "off the chart." He told me to take Tylenol
> > Extra
> > Strength. I need stronger pain medicine. The doctor says there hasn't
> > been much
> > research on Sjögren's, so I have no idea what kind of treatment I
> > should be
> > getting. Can you give me any help? I was also diagnosed with
> > lymphoma.

>
> > Dry eyes and dry mouth are the classic Sjögren's (SHOW-grins)
> > syndrome symptoms
> > due to an immune-system attack on the tear and salivary glands. There
> > are
> > medicines for both.

>
> > Sjögren's can bring on joint pains, swollen lymph nodes, lung
> > involvement,
> > inflamed blood vessels, kidney and liver trouble, neuropathy and
> > muscle
> > inflammation. About 2.5 percent of Sjögren's patients come down with
> > a
> > lymphoma.

>
> > Yours is a complicated case that needs the direction of experts - a
> > rheumatologist for whom Sjögren's is part of his or her area of
> > expertise and
> > an oncologist for the lymphoma cancer. Furthermore, other joint
> > diseases -
> > rheumatoid arthritis and lupus - can coexist with Sjögren's, and
> > either could
> > be the reason for your pain. Those illnesses call for the attention
> > of a
> > rheumatologist specialist.

>
> > Contact the Sjögren's Syndrome Foundation. The foundation's toll-free
> > number is
> > 1-800-475-6473, and its website iswww.sjogrens.org.

>
> > Dear Dr. Donohue: For three and a half years, I was diagnosed as
> > having
> > inflammatory bowel disease, but the doctor was vague about callingit
> > either
> > Crohn's disease or ulcerative colitis. I had to use the bathroom 10
> > to 15 times
> > a day. I did not fit the picture of a person with IBD, since I gained
> > weight. I
> > got a second opinion and was told I had irritable bowel syndrome. I
> > took
> > Lomotil and it helped, but I still had accidents. I mentioned to the
> > doctor
> > that I had had my gallbladder removed, and he put me on Colestid.
> > Today I lead
> > a relatively active life, eat salads and fruits and have my diabetes
> > under
> > control. People should know this side effect of gallbladder surgery.

>
> > The gallbladder stores bile and shoots it into the intestine aftera
> > fatty meal
> > to aid in digestion. Without a gallbladder, bile drips into the
> > intestine more
> > or less constantly, and most people get along quite well with that
> > arrangement.
> > For a few, however, the constant drip irritates the intestine and
> > brings on
> > diarrhea.

>
> > Colestid and another medicine, Questran, absorb bile, and either
> > often ends
> > bile-induced diarrhea.

>
> > Write Dr. Donohue at P.O. Box 536475, Orlando, Fla. 32853-6475.,

>
> > __________________________________________________ ___________________
> > If you enjoy reading about interesting news, you might like the 3
> > O'Clock Stir from
> > STLtoday.com. Sign up and you'll receive an email with unique stories
> > of the day,

.. It isn.t> > every Monday-Friday, at no charge.
> > Sign up athttp://newsletters.stltoday.com

>
> > --
> > Love and Hugs to all
> > Jo the squirrely one


I have Sjogrens as well, it isn't terrible, but I have the dry mouth
and get too many gut upsets for my liking. I also have rheumatoid
arthritis My impression is that none of my medics have ever taken it
seriously, though when I was a lecturer, it made talking at any length
impossible.

Treatment here is more or less the same as for RA, with tear aids
thrown in.

Peter

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  #4  
Old 09-26-2007, 05:01 AM
Norman
Guest
 
Posts: n/a
Default Re: =?ISO-8859-15?Q?Dry_eyes,_mouth_only_part_of_Sj=F6gren's?=

I have Sjogren's (a gift from the AS) which is not as bad as it could be. I
keep lubricating eye drops and saline nasal spray handy. The big thing for me
is that it keeps me from using a CPAP for apnea; when I use the machine, I wake
up in about an hour with an incredibly dry and sore throat, even when using a
humidifier between the unit and the face mask. I also try to keep a bottle of
water handy and take regular sips.

I have been told that the dry mouth from Sjogren's can accelerate tooth decay
and that people with Sjogren's should take care.
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  #5  
Old 09-27-2007, 12:15 AM
Squirrely
Guest
 
Posts: n/a
Default Re: Dry eyes, mouth only part of Sjögren's

I didn't realize they treated it like this. So I am learning alot that I
didn't know about this.

I can't wait till I can get the money to get a rheumy and a real one at
that. I have numerous eye drs say I have it, but the one rheumy that I saw
said I didn't have it. But yet I have all the symptoms of what is listed in
that article. So who knows. Maybe that is finally the answer i need.

--
Love and Hugs to all
Jo the squirrely one

> Yep - that's why my rheumy treats me as though I had RA. Methotrexate,
> Plaquenil, Prednisone and Ultram.
>
> DeeTee
>



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  #6  
Old 09-27-2007, 12:15 AM
Squirrely
Guest
 
Posts: n/a
Default Re: Dry eyes, mouth only part of Sjögren's

Thanks Peter, I am learning alot about this now. I can't wait till I can get
a real dr and hopefully then I can get some treatment for it. Shoot I
couldn't even get them to get me the liquid salvia or anything for it. I am
so dried out.


--
Love and Hugs to all
Jo the squirrely one

I have Sjogrens as well, it isn't terrible, but I have the dry mouth
and get too many gut upsets for my liking. I also have rheumatoid
arthritis My impression is that none of my medics have ever taken it
seriously, though when I was a lecturer, it made talking at any length
impossible.

Treatment here is more or less the same as for RA, with tear aids
thrown in.

Peter


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