osteoporosis drugs, caution?

[njs]

longtime lurker, RA 25 yrs survivor.

Recently my dentist was concerned about a couple bony protuberances in
gums below back molars. The nubs were wearing sores on my tongue which
was what made me go to the dentist. "Ain't touching those, get thee to
an oral surgeon.'

The surgeon suspected a biophosphate reaction in my jaw. decaying bone
maybe. (There are a number of products included in this list, I am not
mentioning what I had been taking.) How long, 3 years? five years?
scared me silly!

Only one lab in the country tests blood for the presence of over
medication, so off my blood went. Asked why the drugs were even
marketed, surgeon said it works well in 95% of the cases. So where does
that leave the rest of us?

Thank goodness, my test was negative, lower than dr expected in fact.
The decision to resume the drug was left to me.

Small article in Sunday's paper now mention possibility of leg bone
involvement! That settles it for me--risk spine/hip fractures, not go
looking for other problems thank you. I wonder if the bone stengtheners
will evenually be pulled from market.

Sore places have healed, gum recovers the nubs, Off to my dental
cleaning finally.

So, has anyone else had a scare? a warning? actual jawbone
involvement? And surgeon mentioned pred aggravates the possibly--that
means so many of us, right?

Rarely any substantive medical discussion here in ages, shame. Jump in
here longtime ASA folks----

[Lil Abner]

On 10/20/2010 8:34 PM, njs wrote:
> longtime lurker, RA 25 yrs survivor.
>
> Recently my dentist was concerned about a couple bony protuberances in
> gums below back molars. The nubs were wearing sores on my tongue which
> was what made me go to the dentist. "Ain't touching those, get thee to
> an oral surgeon.'
>
> The surgeon suspected a biophosphate reaction in my jaw. decaying bone
> maybe. (There are a number of products included in this list, I am not
> mentioning what I had been taking.) How long, 3 years? five years?
> scared me silly!
>
> Only one lab in the country tests blood for the presence of over
> medication, so off my blood went. Asked why the drugs were even
> marketed, surgeon said it works well in 95% of the cases. So where does
> that leave the rest of us?
>
> Thank goodness, my test was negative, lower than dr expected in fact.
> The decision to resume the drug was left to me.
>
> Small article in Sunday's paper now mention possibility of leg bone
> involvement! That settles it for me--risk spine/hip fractures, not go
> looking for other problems thank you. I wonder if the bone stengtheners
> will evenually be pulled from market.
>
> Sore places have healed, gum recovers the nubs, Off to my dental
> cleaning finally.
>
> So, has anyone else had a scare? a warning? actual jawbone
> involvement? And surgeon mentioned pred aggravates the possibly--that
> means so many of us, right?
>
> Rarely any substantive medical discussion here in ages, shame. Jump in
> here longtime ASA folks----
>
gee thanks. On the eve of taking a Reclast infusion for osteporosis.
Quickly tell me what you are talking about.

[Leslie& The Furbabies in MO.]

A friend was taking one of those well-known/well publicized drugs to prevent
osteoporosis. He had to have several surgeries on his jaw bones to remove
massive amounts of dead tissue and infection. (He has severe RA.) And
before the surgeons would touch the area he had to have all his teeth pulled
and get dentures. He's now a part of the class action lawsuit.

Amazing how it does exactly what it's supposed to prevent- in some cases.

Leslie

"njs" <[email protected]> wrote in message
news:[email protected]..
> longtime lurker, RA 25 yrs survivor.
>
> Recently my dentist was concerned about a couple bony protuberances in
> gums below back molars. The nubs were wearing sores on my tongue which
> was what made me go to the dentist. "Ain't touching those, get thee to
> an oral surgeon.'
>
> The surgeon suspected a biophosphate reaction in my jaw. decaying bone
> maybe. (There are a number of products included in this list, I am not
> mentioning what I had been taking.) How long, 3 years? five years?
> scared me silly!
>
> Only one lab in the country tests blood for the presence of over
> medication, so off my blood went. Asked why the drugs were even
> marketed, surgeon said it works well in 95% of the cases. So where does
> that leave the rest of us?
>
> Thank goodness, my test was negative, lower than dr expected in fact.
> The decision to resume the drug was left to me.
>
> Small article in Sunday's paper now mention possibility of leg bone
> involvement! That settles it for me--risk spine/hip fractures, not go
> looking for other problems thank you. I wonder if the bone stengtheners
> will evenually be pulled from market.
>
> Sore places have healed, gum recovers the nubs, Off to my dental
> cleaning finally.
>
> So, has anyone else had a scare? a warning? actual jawbone
> involvement? And surgeon mentioned pred aggravates the possibly--that
> means so many of us, right?
>
> Rarely any substantive medical discussion here in ages, shame. Jump in
> here longtime ASA folks----
>

[kel]

I have heard this and it has been posted here before. For me the side
effect would be less of a chance than problems with the osteoporosis. My
doctor has warned me on the side effect.

I am going to be taking reclast. I can't tolerate the others.

kelly

"njs" <[email protected]> wrote in message
news:[email protected]..
> longtime lurker, RA 25 yrs survivor.
>
> Recently my dentist was concerned about a couple bony protuberances in
> gums below back molars. The nubs were wearing sores on my tongue which
> was what made me go to the dentist. "Ain't touching those, get thee to
> an oral surgeon.'
>
> The surgeon suspected a biophosphate reaction in my jaw. decaying bone
> maybe. (There are a number of products included in this list, I am not
> mentioning what I had been taking.) How long, 3 years? five years?
> scared me silly!
>
> Only one lab in the country tests blood for the presence of over
> medication, so off my blood went. Asked why the drugs were even
> marketed, surgeon said it works well in 95% of the cases. So where does
> that leave the rest of us?
>
> Thank goodness, my test was negative, lower than dr expected in fact.
> The decision to resume the drug was left to me.
>
> Small article in Sunday's paper now mention possibility of leg bone
> involvement! That settles it for me--risk spine/hip fractures, not go
> looking for other problems thank you. I wonder if the bone stengtheners
> will evenually be pulled from market.
>
> Sore places have healed, gum recovers the nubs, Off to my dental
> cleaning finally.
>
> So, has anyone else had a scare? a warning? actual jawbone
> involvement? And surgeon mentioned pred aggravates the possibly--that
> means so many of us, right?
>
> Rarely any substantive medical discussion here in ages, shame. Jump in
> here longtime ASA folks----
>
>

[Kate]

On Oct 20, 9:13*pm, "kel" <kelly...@shaw.ca> wrote:
> I have heard this and it has been posted here before. *For me the side
> effect would be less of a chance than problems with the osteoporosis. *My
> doctor has warned me on the side effect.
>
> I am going to be taking reclast. *I can't tolerate the others.
>
> kelly
>
> "njs" <fjs...@webtv.net> wrote in message
>
> news:[email protected]..
>
>
>
> > longtime lurker, RA 25 yrs *survivor.
>
> > Recently my dentist was concerned about a couple bony protuberances in
> > gums below back molars. *The nubs *were wearing sores on my tongue which
> > was what made me go to the dentist. *"Ain't touching those, get thee to
> > an oral surgeon.'
>
> > The surgeon suspected a biophosphate reaction in my jaw. decaying bone
> > maybe. *(There are a number of products included in this list, I am not
> > mentioning what I had been taking.) *How long, 3 years? *five years?
> > scared me silly!
>
> > Only one lab in the country tests blood for the presence of *over
> > medication, so off my blood went. *Asked why the drugs were even
> > marketed, surgeon said it works well in 95% of the cases. *So where does
> > that leave the rest of us?
>
> > Thank goodness, my test was negative, lower than dr expected in fact.
> > The decision to resume the drug was left to me.
>
> > Small article in Sunday's paper now mention possibility of leg bone
> > involvement! *That settles it for me--risk spine/hip fractures, not go
> > looking for other problems thank you. *I wonder if the bone stengtheners
> > will evenually be pulled from market.
>
> > Sore places have healed, gum recovers the nubs, Off to my dental
> > cleaning finally.
>
> > So, has anyone else had a scare? *a warning? *actual jawbone
> > involvement? *And surgeon mentioned pred aggravates the possibly--that
> > means so many of us, right?
>
> > Rarely any substantive medical discussion here in ages, *shame. *Jump in
> > here longtime ASA folks----- Hide quoted text -
>
> - Show quoted text -

Well I see there is an increased risk of "atypical" femur fractures on
bisphosphonates like Boniva which I was on. I can't find any info on
what determines a femur fracture is atypical. I expect the lawyers
will be on TV soon with a class action lawsuit. My next med after
Forteo is likely an estrogen like drug. I have lots of dental caries
problems from Sjogrens so will avoid the potential osteonecrosis meds.
KateR