Ping: Kelly E.

How are you doing after your second round of rituxan infusions?

Is the fatigue lifting at all yet???

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Donna
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1.) ANGELS EXIST, but some times, since they don't all have wings, we
call them FRIENDS......


2.) J.K.M.A.

The fatique starting lifting today - I actually did a tiny bit of weeding in
the garden. I think I should be okay for Seattle by Thursday if I continue
to improve (well going anyhow so doesn't matter.

The worst right now is the neurological crap - spasms again and i can't
figure out why. Unfortunately as you know the pain meds just don't touch
that. If you ever figure it out - well give me a call! collect!

Are you recouping at all? I know you go back in this week but imagine it is
harder with the cast on this time? Been thinking of you a lot.

Off to have another nap! Nap, water, nap, water eat, sleep, nap, nap nap.

So it goes. But just think how good it feels when it starts to kick in!

Kelly
"Donna G." <DKGBeeker@webtv.net> wrote in message
news:16875-48956D3A-1446@storefull-3112.bay.webtv.net...
>
>
>
> How are you doing after your second round of rituxan infusions?
>
> Is the fatigue lifting at all yet???
>
> .
> .
> .
> .
>
> Donna
> .
> .
> .
> .
> 1.) ANGELS EXIST, but some times, since they don't all have wings, we
> call them FRIENDS......
>
>
> 2.) J.K.M.A.
>

Just don't over do before your trip so that you can hopefully enjoy the
trip thoroughly!

Sorry to hear about the nerve stuff spasming and such, that is just the
worst!!! Pray that it eases up for you soon!

I go for round two tomorrow and will just be glad to get it out of the
way and be done with it.

..
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Donna
..
..
..
..
1.) ANGELS EXIST, but some times, since they don't all have wings, we
call them FRIENDS......


2.) J.K.M.A.

thank goodness - will be thinking of you. Hopefully that casts won't be in
the way and your port behaves! I am trying hard not to overdo things. This
trip is going to be great! If not the hotel is close enough for a nap.

The nerve spasms is probably an infection somewhere - usually is. Or maybe
the heat (not very hot today though) or maybe just because it is doing it.
Never really know why it over rides the gabapentin. Ticks me off though. I
can get the pain level to a 7 until this happens. Last 2 days it is riding
at an 8 - hard to concentrate on anything else but that.

You take it easy tomorrow. Breathe, breathe, breathe! Slowly and easily.

Kelly
"Donna G." <DKGBeeker@webtv.net> wrote in message
news:16875-48962961-1602@storefull-3112.bay.webtv.net...
>
>
>
>
> Just don't over do before your trip so that you can hopefully enjoy the
> trip thoroughly!
>
> Sorry to hear about the nerve stuff spasming and such, that is just the
> worst!!! Pray that it eases up for you soon!
>
> I go for round two tomorrow and will just be glad to get it out of the
> way and be done with it.
>
> .
> .
> .
> .
>
> Donna
> .
> .
> .
> .
> 1.) ANGELS EXIST, but some times, since they don't all have wings, we
> call them FRIENDS......
>
>
> 2.) J.K.M.A.
>

On Sun, 3 Aug 2008 17:01:41 -0400, Kelly wrote
(in message <V0plk.55899$nD.31144@pd7urf1no>):

> The worst right now is the neurological crap - spasms again and i can't
> figure out why. Unfortunately as you know the pain meds just don't touch
> that. If you ever figure it out - well give me a call! collect!

(((((((((((((((Kelly)))))))))))))) geez, I've only had spasms for short
periods of time and i can't imagine how you tolerate them for longer. I
know, you do what you have to, but that really, really sucks.

> Off to have another nap! Nap, water, nap, water eat, sleep, nap, nap nap.

I assume there are visits to the bathroom somewhere in there too? ;-)

--
Nann
remove the Gator cheer to email me
Change everything. Love & forgive.

yup many bathroom trips as I am water loading to get rid of this hungover
med feeling. And the spasms become like an old friend Nann - they tell me
something in my body is wrong when they are bad - usually a uti or a toenail
digging into my foot (I do have some numbness so don't always feel it). I
would give it up but..... It reminds me that the RA is not always the worst
thing in life (yeah right - I think I heard that from some lousy do-gooder
talking to me. Honest the garbage out of my mouth today!)

I spent time on the internet again researching this neuro pain and it
appears I am doing the only thing I haven't done yet and it is sort of
working. So onwards. This too will pass. Just having a mild pity party.

Kelly
"Nann Bell" <hanbellGOGATORS@earthlink.net> wrote in message
news:0001HW.C4BBD1FE0018F315F0284550@news.east.ear thlink.net...
> On Sun, 3 Aug 2008 17:01:41 -0400, Kelly wrote
> (in message <V0plk.55899$nD.31144@pd7urf1no>):
>
>> The worst right now is the neurological crap - spasms again and i can't
>> figure out why. Unfortunately as you know the pain meds just don't touch
>> that. If you ever figure it out - well give me a call! collect!
>
> (((((((((((((((Kelly)))))))))))))) geez, I've only had spasms for short
> periods of time and i can't imagine how you tolerate them for longer. I
> know, you do what you have to, but that really, really sucks.
>
>> Off to have another nap! Nap, water, nap, water eat, sleep, nap, nap
>> nap.
>
> I assume there are visits to the bathroom somewhere in there too? ;-)
>
> --
> Nann
> remove the Gator cheer to email me
> Change everything. Love & forgive.
>
>

Kelly, please don't let things go too long if there is any chance you
might have another uti!

..
..
..
..

Donna
..
..
..
..
1.) ANGELS EXIST, but some times, since they don't all have wings, we
call them FRIENDS......


2.) J.K.M.A.

I agree with Donna. Don't let it go too long without being diagnosed, if it
is a UTI. Prayers coming for you.

--
Navy
Take out the FISH to email me.
"Kelly" <kelly.e1@shaw.ca> wrote in message
news:sqtlk.56142$nD.29986@pd7urf1no...
> yup many bathroom trips as I am water loading to get rid of this hungover
> med feeling. And the spasms become like an old friend Nann - they tell me
> something in my body is wrong when they are bad - usually a uti or a
> toenail digging into my foot (I do have some numbness so don't always feel
> it). I would give it up but..... It reminds me that the RA is not always
> the worst thing in life (yeah right - I think I heard that from some lousy
> do-gooder talking to me. Honest the garbage out of my mouth today!)
>
> I spent time on the internet again researching this neuro pain and it
> appears I am doing the only thing I haven't done yet and it is sort of
> working. So onwards. This too will pass. Just having a mild pity party.
>
> Kelly
> "Nann Bell" <hanbellGOGATORS@earthlink.net> wrote in message
> news:0001HW.C4BBD1FE0018F315F0284550@news.east.ear thlink.net...
>> On Sun, 3 Aug 2008 17:01:41 -0400, Kelly wrote
>> (in message <V0plk.55899$nD.31144@pd7urf1no>):
>>
>>> The worst right now is the neurological crap - spasms again and i can't
>>> figure out why. Unfortunately as you know the pain meds just don't
>>> touch
>>> that. If you ever figure it out - well give me a call! collect!
>>
>> (((((((((((((((Kelly)))))))))))))) geez, I've only had spasms for short
>> periods of time and i can't imagine how you tolerate them for longer. I
>> know, you do what you have to, but that really, really sucks.
>>
>>> Off to have another nap! Nap, water, nap, water eat, sleep, nap, nap
>>> nap.
>>
>> I assume there are visits to the bathroom somewhere in there too? ;-)
>>
>> --
>> Nann
>> remove the Gator cheer to email me
>> Change everything. Love & forgive.
>>
>>
>
>

I have lab tests this week Donna (holiday here today) but I am pretty sure
it isn't this time - just the interstitial raising its ugly head (I am due
for a treatment on Wednesday next week but will go to the pharmacy tomorrow
for the med and do it early.) The urologist looked last week and said
everything looked good so I am going to hold him to it. I am drinking lots
of water and it looks okay so far. Trust me I am not having that in
Seattle! Not at all!

Thanks Donna. Good luck today.

Kelly
"Donna G." <DKGBeeker@webtv.net> wrote in message
news:16875-48969B9B-1687@storefull-3112.bay.webtv.net...
>
>
>
>
> Kelly, please don't let things go too long if there is any chance you
> might have another uti!
>
> .
> .
> .
> .
>
> Donna
> .
> .
> .
> .
> 1.) ANGELS EXIST, but some times, since they don't all have wings, we
> call them FRIENDS......
>
>
> 2.) J.K.M.A.
>