SLE Genetic Studies

There are two studies that are being conducted right now that I have
participated in and I thought some of you with SLE may be interested
in. You can participate in both studies no matter where you live in
the US for sure, not sure about out of the country. All you have to
do is fill out some paperwork and they send you a kit to take to your
local lab and have some blood drawn. Both studies are totally free to
participate in, they pay for all lab work and postage.

The first one is conducted by the University of Minnesota. They are
studying the genetics of SLE. They are trying to identify and
understand the genetic factors that contribute to SLE. For more info
about the study visit: http://www.lupusstudy.org/index.php to enroll
in the study visit: https://www.lupusstudy.org/contact/contact_request.php
..

The second is the The Lupus Multiplex Registry and Repository (LMRR).
This is a long term research project sponsored by NIAMS a branch of
the National Institues of Health (NIH). The information collected is
used to:

Identify the genes involved in the development of lupus,
Determine these genes' role(s) in disease activity,
Study various aspects of the disease (such as autoantibodies),
Develop better treatment for patients who suffer from this serious
illness &
One day, find a cure or method of disease prevention.
This study pays a small fee for your time, I think it was $30. To
read more about this research project visit: http://lupus.omrf.org/ to
fill out the online interview visit: https://lupus.omrf.org/lara/ .

I hope some of you will consider participation in these studies. The
more we learn about what causes Lupus the faster we can find a cure!

PS I spoke with one of the study coordinators and she is interested in
talking w/ people in the UK about the second study. Anyone in the UK
interested can email her at: Amanda Crosbie [Amanda-
Crosbie@omrf.ouhsc.edu]