Oncogene dx

Well I got my score=12=low risk--from what I read, you want below 18.
I meet with the medical oncologist tomorrow--of course I did run the
numbers on adjuvant.com, and they vary if I put in my current age=49
vs. my age in 3 weeks=50--are there really radical body changes
occurring over the next 3 weeks? I understand it's an actuarial
calculation.

I have developed a common but under-recognized problem post-op:
axillary web syndrome, some superficial lymphophlebitis--it causes
these tight cords that tether you. It started day 10, and when I spoke
to the nurse, she was clueless, referred me to the head of the
lymphedema unit--who is a nutritionist who has lymphedema, but had
never heard of axillary web syndrome. Ultimately, I found a great PT,
who is employed by the same hospital, and there is a bit of a turf
battle, but she met with me the next day (yesterday), worked on my ROM
exercises--I had gotten them from the PT's my office works with and
off the web--and it's feeling a lot better. Motrin helps.
So, it looks like radiation, then tamoxifen.
What a roller coaster ride so far: you crest a hill, and then
there's another one...
The wedding is swiftly approaching, my daughter is getting very
nervous, but I've been told by the PT that I don't have lymphedema,
wear the prettier dress with the cap sleeves.
Hard to imagine that it has been less than 4 weeks since the
mammogram....
Judy

"judy.n" <judy.nudelman@gmail.com> wrote in message
news:960fe3e7-57c9-4e0c-86a9-94786f34d5d7@s50g2000hsb.googlegroups.com...
> Well I got my score=12=low risk--from what I read, you want below 18.
> I meet with the medical oncologist tomorrow--of course I did run the
> numbers on adjuvant.com, and they vary if I put in my current age=49
> vs. my age in 3 weeks=50--are there really radical body changes
> occurring over the next 3 weeks? I understand it's an actuarial
> calculation.

LOL! Don't they take days into account? Hours??
>
> I have developed a common but under-recognized problem post-op:
> axillary web syndrome, some superficial lymphophlebitis--it causes
> these tight cords that tether you. It started day 10, and when I spoke
> to the nurse, she was clueless, referred me to the head of the
> lymphedema unit--who is a nutritionist who has lymphedema, but had
> never heard of axillary web syndrome. Ultimately, I found a great PT,
> who is employed by the same hospital, and there is a bit of a turf
> battle, but she met with me the next day (yesterday), worked on my ROM
> exercises--I had gotten them from the PT's my office works with and
> off the web--and it's feeling a lot better. Motrin helps.

Good. Whatever works is good.

> So, it looks like radiation, then tamoxifen.
> What a roller coaster ride so far: you crest a hill, and then
> there's another one...

No, Judy, it's a series of successes.

> The wedding is swiftly approaching, my daughter is getting very
> nervous, but I've been told by the PT that I don't have lymphedema,
> wear the prettier dress with the cap sleeves.

Wouldn't matter anyway, all eyes will be oin your daughter. And should be!

Now MY problem is much worse, I've lost weight (deliberately and slowly) and
my upper arms are flapping about, wrinkedly. In a couple of months we're
going on a cruise and I need some nice evening wear which will hide them.
Cap sleeves just won't work! Day wear is no problem, we're going to the
Arctic so big jumpers and anything which covers all will be fine ...

> Hard to imagine that it has been less than 4 weeks since the
> mammogram....

Actually it DOES seem less than that. It seems to me that everything is
going normally for you - in every way. Hurrah!

And keep it up!

Hugs,

Mary

Wonderful news about your low score and best of luck with the wedding. I
have never heard of axillary web syndrome, it sounds alot like frozen
shoulder, From what I read it is self limiting.

Alex
"judy.n" <judy.nudelman@gmail.com> wrote in message
news:960fe3e7-57c9-4e0c-86a9-94786f34d5d7@s50g2000hsb.googlegroups.com...
> Well I got my score=12=low risk--from what I read, you want below 18.
> I meet with the medical oncologist tomorrow--of course I did run the
> numbers on adjuvant.com, and they vary if I put in my current age=49
> vs. my age in 3 weeks=50--are there really radical body changes
> occurring over the next 3 weeks? I understand it's an actuarial
> calculation.
>
> I have developed a common but under-recognized problem post-op:
> axillary web syndrome, some superficial lymphophlebitis--it causes
> these tight cords that tether you. It started day 10, and when I spoke
> to the nurse, she was clueless, referred me to the head of the
> lymphedema unit--who is a nutritionist who has lymphedema, but had
> never heard of axillary web syndrome. Ultimately, I found a great PT,
> who is employed by the same hospital, and there is a bit of a turf
> battle, but she met with me the next day (yesterday), worked on my ROM
> exercises--I had gotten them from the PT's my office works with and
> off the web--and it's feeling a lot better. Motrin helps.
> So, it looks like radiation, then tamoxifen.
> What a roller coaster ride so far: you crest a hill, and then
> there's another one...
> The wedding is swiftly approaching, my daughter is getting very
> nervous, but I've been told by the PT that I don't have lymphedema,
> wear the prettier dress with the cap sleeves.
> Hard to imagine that it has been less than 4 weeks since the
> mammogram....
> Judy