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  #1  
Old 10-19-2007, 09:30 PM
skeptic
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Default Anyone ever heard of ultrasonic heating to destroy prostate?

http://www.hifu.ca/

supposed to be non-invasive and only performed at their facility.
is this quackery?
it seems to make sense...

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  #2  
Old 10-19-2007, 10:30 PM
Steve Jordan
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Default Re: Anyone ever heard of ultrasonic heating to destroy prostate?

On October 19, "skeptic" wrote:

> http://www.hifu.ca/
>
> supposed to be non-invasive and only performed at their facility.
> is this quackery?


I understand that it is not yet approved in the USA. It is undergoing
clinical trials.

Search on high intensity focused ultrasound on the clinical trials site
at: http://www.clinicaltrials.gov/ct/action/GetStudy

An article by a well-known practitioner is on the PCRI website at:
http://www.prostate-cancer.org/educa...ectalHIFU.html

Regards,

Steve J
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  #3  
Old 10-19-2007, 11:32 PM
Alan Meyer
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Default Re: Anyone ever heard of ultrasonic heating to destroy prostate?


"skeptic" <ribrass@aol.com> wrote in message
news:1192824170.384318.291270@z24g2000prh.googlegr oups.com...
> http://www.hifu.ca/
>
> supposed to be non-invasive and only performed at their facility.
> is this quackery?
> it seems to make sense...


I think "less invasive than surgery" would be a more accurate
term than non-invasive. It may also be less invasive than
brachytherapy but more invasive (depending on how you
define the term) than external beam radiation.

As with all other definitive treatments, HIFU inflicts physical
damage on the prostate. Parts of the body, such as erectile
nerves and the urethra, that run through the body are also
affected. That's why, for example, the patient must use a
catheter for some period after treatment while the urethra
heals.

Although I dislike the upbeat, "let's sell you a HIFU", tone of
the website you refer to, to their credit, they do have a page
describing potential complications. See:

https://www.hifu.ca/patient/complications.php

You'll notice that even these upbeat salesfolks describe a
20% impotence rate for nerve sparing and a 66% impotence
rate for non-nerve sparing procedures. It might be wise
to consider those numbers as minimums. I believe it's
better to plan for the worst and hope for the best, than to
assume that all will be well because the doctor said it would
be.

However, having said all that, HIFU has much in its favor.
Some things that I like are that, unlike radiation or surgery,
it can be repeated if it doesn't work. It can also be used on
radiation patients if their treatment didn't work. And apparently,
it does not damage tissues far outside of the prostate - as
external beam radiation can.

Please do have a look at the PCRI site that Steve cited.
It's very good.

When I got cancer I naively thought I would read the literature
and determine what the best treatment was - then get that
treatment. But it turned out that the experts disagreed about
what the best treatment was, and every one of them involved
significant risks. So, like you, I had to make a decision based
to a considerable extent on on gut feelings about what I was
most afraid of, what doctor I liked best, and so on.

Whatever procedure you select, find the best doctor you can
to administer it to you. I've come to believe that the choice of
doctor is even more important than the choice of treatment
modality. Try to find someone who is a real specialist in
treating prostate cancer (the uro my HMO sent me to specialized
in female incontinence, but he was perfectly willing to take
out my prostate.) Try to find someone who does tens, or
even hundreds of procedures per year. Try to find someone
who answers all of your questions honestly, doesn't try to
sell you anything, and is patient and careful in answering
your questions.

Good luck.

Alan


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  #4  
Old 10-20-2007, 12:00 AM
MAS
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Default Re: Anyone ever heard of ultrasonic heating to destroy prostate?

Not approved treatment in USA at this time. When I considered treatment
plans in 2001, I considered going to France for treatment. Through a friend,
I met the man who helped develop the technique. To me it was only an option.

Gourd Dancer

"skeptic" <ribrass@aol.com> wrote in message
news:1192824170.384318.291270@z24g2000prh.googlegr oups.com...
> http://www.hifu.ca/
>
> supposed to be non-invasive and only performed at their facility.
> is this quackery?
> it seems to make sense...
>



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  #5  
Old 10-20-2007, 01:00 AM
Steve Kramer
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Default Re: Anyone ever heard of ultrasonic heating to destroy prostate?

"skeptic" <ribrass@aol.com> wrote in message
news:1192824170.384318.291270@z24g2000prh.googlegr oups.com...
> http://www.hifu.ca/
>
> supposed to be non-invasive and only performed at their facility.
> is this quackery?
> it seems to make sense...
>


I would not call it quackery, though it is not yet permitted in the U.S.
Canada Bob (below) studied it, but could not have it. Mike and Steve have
had it.

robert01942@hotmail.com Canada Bob

mikeg@swanbrook.demon.co.uk HIFU Mike or MikeHi

osievers@optusnet.com.au osievers


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  #6  
Old 10-20-2007, 02:00 AM
Steve Jordan
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Default Re: Anyone ever heard of ultrasonic heating to destroy prostate?

On October 19, Alan Meyer wrote:

(ka-snip)

> Please do have a look at the PCRI site that Steve cited. It's very
> good.


Thanks. But this place is infested with Steves. I suggest that when
citing one of us, folks make it clear to whom they're referring by using
the initial of the last name. Eg: Steve J or Steve K.

(su-nip)

> Whatever procedure you select, find the best doctor you can to
> administer it to you. I've come to believe that the choice of doctor
> is even more important than the choice of treatment modality. Try to
> find someone who is a real specialist in treating prostate cancer
> (the uro my HMO sent me to specialized in female incontinence, but he
> was perfectly willing to take out my prostate.) Try to find someone
> who does tens, or even hundreds of procedures per year. Try to find
> someone who answers all of your questions honestly, doesn't try to
> sell you anything, and is patient and careful in answering your
> questions.


Alan is pretty demanding, isn't he? ;-)

I reckon that something less than one percent of men dxd with PCa ever
seek support anywhere; Us Too, online, anywhere. Perhaps they buy the MD
= Medical Deity mantra, which is demonstrably false.

My post-failed-cryo education began when I sought help from Dr. Strum on
P2P and read The Book that he wrote with co-author Donna Pogliano (wife
of a PCa patient).

End of rant.

Regards,

Steve J

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  #7  
Old 10-20-2007, 02:00 AM
Steve Jordan
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Default Re: Anyone ever heard of ultrasonic heating to destroy prostate?

On October 19, Steve Kramer wrote, re HIFU:

> Mike and Steve have had it.


I'm Steve J and I have not "had it."

To whom does Steve K refer?

Regards,

Steve J
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  #8  
Old 10-20-2007, 12:32 PM
Steve Kramer
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Default Re: Anyone ever heard of ultrasonic heating to destroy prostate?

"Steve Jordan" <mycroftscj1@cox.net> wrote in message
news:A2cSi.2866$bO2.604@newsfe10.phx...
> On October 19, Steve Kramer wrote, re HIFU:
>
>> Mike and Steve have had it.

>
> I'm Steve J and I have not "had it."
>
> To whom does Steve K refer?


Ha! Taken out of context, that would certainly be confusing. As a wise man
once put it, this newsgroup is infested with Steves.

I listed three people and their addresses, then referred to them by first
name. I probably should have appeneded, "respectively."

In any case, the "Steve" to which I referred was 'osievers'. He stopped in
about February 2006 and we haven't heard much from him since.




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  #9  
Old 10-20-2007, 01:00 PM
MikeHi
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Default Re: Anyone ever heard of ultrasonic heating to destroy prostate?

On Fri, 19 Oct 2007 17:34:41 -0700, Steve Jordan <mycroftscj1@cox.net>
wrote:

>On October 19, Steve Kramer wrote, re HIFU:
>
>> Mike and Steve have had it.

>
>I'm Steve J and I have not "had it."
>
>To whom does Steve K refer?
>
>Regards,
>
>Steve J



Hi I'm MikeHi, the Mike what has had it, as they say somewhere or
other.
Hi skeptic

I've posted on HIFU before, so look back for anything from me, MikeHi
and you'll get the unfolding HIFU story. So I'll try and keep this to
the point.

I can attest that for me HIFU has been effective, and never mind USA
testing and approvals, it works. It makes me ill to see it still
described as possible quackery.

I've had two HIFU operations at University College Hospital in London.
I was a fairly demanding patient I suppose as I am approaching 80 and
was diagnosed with Gleason 4+5. In fact I was the first G9 to undergo
the treatment - previously the UCHL team were operating trials on
younger guys with less than G7. So I suppose the team were taking a
risk as well as me. HIFU (High frequency ultrasound) is in its early
stages.

The prostate was 'done' in April 2006 - and proved to be totally
ablated. I had no pain after the operation. Biopsy then found G3+4 in
the left seminal vesicle. I was to be the first patient undergoing
this particular aspect of HIFU. The drug, radiation and HIFU experts
at UCH had a meeting to decide what, after the prostate, would be the
preferred further treatment. I was asked if I would agree to the HIFU
again and I said 'Yes' readily.

August this year my left seminal vesicle was HIFU'd by the same team.
All the usual side effects were possible including incontinence and
bowel stuff. I felt zero pain after the operation and I have in the
two months' since had zero side effects. The team felt confident they
had done a good job on the sem ves. I will know more surely when I get
results from an MRI scan I'm having in about a week's time, and PSA
tests also to come.

Side effects: A catheter is left in a week after the procedure. No
problems with that. The prostate HIFU also left scarring in the lower
urinary tract. For several months I had difficulty peeing, and I had
sometimes to self-catheter to clear blockage. (This is not half so bad
as it sounds - although mine was more painful when I had developed a
more complete blockage. It was cleared by a dilation and a five
minutes op incision of the bladder). Also had some urge incontinence.
All this cleared up before the second HIFU. I have had some minor
leakages after the sem ves HIFU, but it seems to be stopping.

The good news accompanying the first report on the seminal vesicle
procedure (and news of my progress for those who have been following
the HIFU effect ) is that:
'Cystoscopy revealed no evidence of any stricture and a good prostatic
cavity." Dunno what the last means but the first seems to mean my
good peeing will continue and that the HIFU strictures from the
prostate HIFU were indeed temporary and 'easily dealt with' as I was
told they could be.

Other. My HIFU treatment have been with a top team. I believe Mark
Emberton the consultant Urologist leading the trials is probably the
most experienced practitioner in the UK. The HIFU system was using
the Sonablate 500 gear. I don't hold any shares but I know the UCL
team believe it to be the most accurate because it can be controlled
in real-time.

All I'm saying is, as usual in this Pca business, know your docs, and
find out as much as you can about what they're using.

I'll repeat what I said about a good URL in my original post:
excellent detail about HIFU on:
http://www.prostate-cancer.org/educa...ectalHIFU.html.
With plentiful pictures and diagrams. There you will read: "The
control and precision of HIFU allow the accomplished surgeon to
accurately target the tissue to be destroyed without injuring adjacent
tissue. HIFU destroys tissue by heat, rather than by cavitation or
mechanical shearing forces."
I was referred to Mark Emberton's list by my original urologist from
my local hospital, Marc Laniado. He's a young doc and I know other
docs at his hospital thinks he's a wiz. He knew of HIFU as he was
training in it as his speciality is non-invasive Pca treatments. I
mention him because I still like his HIFU description in his web site
http://www.drmarc.co.uk/. Here's his description of the advantage of
the type of HIFU used on me: 'The advantage of visually Directed HIFU
over conventional HIFU is that the surgeon uses real-time feedback to
adjust the amount of energy needed to ensure eradication of the
diseased tissue whilst protecting healthy tissues. The active
involvement of the surgeon in the planning and treatment achieves a
higher rate of success.'
It does look like, at the moment, as if this particular guinea-pig's
healthy issues haven't been touched by the procedures.' And the nasty
ones have! In which case, good on you Marc and Mark.
More to report after MRI - meanwhile my very best wishes to you
skeptic but you needn't really be sceptical -just sure whos's doing
you and what with. And take oncologist's advice, because for all I
know you may have details of your Pca which may make other treatments
preferable. We're all busy on homework here every day.
MikeHi


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  #10  
Old 10-20-2007, 04:00 PM
Steve Kramer
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Default Re: Anyone ever heard of ultrasonic heating to destroy prostate?


"MikeHi" <mike@anon.demon.uk> wrote in message
news:qopjh3lcgtv04s5fqn3842gc73q95nj4sl@4ax.com...

> Hi I'm MikeHi, the Mike what has had it, as they say somewhere or
> other.


> August this year my left seminal vesicle was HIFU'd by the same team.


Hi, Mike! So, how's the PSA now? I remember it being near 6 or 7 before
August.



--
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32 PSAD .056 years
Lupron 07/03 (1 mo) 8/03 and every 4 months there after
PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years
Casodex added daily 07/06
PSA <0.04, <0.05, <0.04, <0.04 10/11/07
Non Illegitimi Carborundum


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  #11  
Old 10-20-2007, 07:30 PM
MikeHi
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Default Re: Anyone ever heard of ultrasonic heating to destroy prostate?

On Sat, 20 Oct 2007 10:43:50 -0400, "Steve Kramer"
<skramer@cinci.rr.com> wrote:

>
>"MikeHi" <mike@anon.demon.uk> wrote in message
>news:qopjh3lcgtv04s5fqn3842gc73q95nj4sl@4ax.com.. .
>
>> Hi I'm MikeHi, the Mike what has had it, as they say somewhere or
>> other.

>
>> August this year my left seminal vesicle was HIFU'd by the same team.

>
>Hi, Mike! So, how's the PSA now? I remember it being near 6 or 7 before
>August.



Hi Steve.
My last PSa's 26th February 4.9
5th July 6.0
HIFU on seminal vesicle the new repository of the nasty stuff, was
August 21st.

I'm having a blood test this Monday, and should know the result by
the end of the week- so should be able to give you an answer by 26th
October.

This test however will be only two months after the op. The UCH team I
believe would regard the PSA after three months as a more accurate
test - giving more adequate time for all the nether regions to settle
down. But everybody here will understand my impatience to get some new
figure - even though I will have to understand it may not be a good
answer. This allows me the luxury of believing it, if it looks good,
and being quite sure it will improve, if it isn't!

More to the point I think will be Monday week, when i'll learn from
my consultant the result of the MRI test on the seminal vesicle which
I had a month ago.

Very best wishes
Mike
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  #12  
Old 10-20-2007, 10:43 PM
Steve Kramer
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Posts: n/a
Default Re: Anyone ever heard of ultrasonic heating to destroy prostate?


"MikeHi" <mike@anon.demon.uk> wrote in message
news:qrekh3l7i391v15n4j4a86mbogabt9qhva@4ax.com...

> Hi Steve.
> My last PSa's 26th February 4.9
> 5th July 6.0
> HIFU on seminal vesicle the new repository of the nasty stuff, was
> August 21st.
>
> I'm having a blood test this Monday, and should know the result by
> the end of the week- so should be able to give you an answer by 26th
> October.
>
> This test however will be only two months after the op. The UCH team I
> believe would regard the PSA after three months as a more accurate
> test - giving more adequate time for all the nether regions to settle
> down. But everybody here will understand my impatience to get some new
> figure - even though I will have to understand it may not be a good
> answer. This allows me the luxury of believing it, if it looks good,
> and being quite sure it will improve, if it isn't!
>
> More to the point I think will be Monday week, when i'll learn from
> my consultant the result of the MRI test on the seminal vesicle which
> I had a month ago.


Glad to hear that with HIFU, your run isn't as bad as it would sound if
another treatment had been tried.

Do you still have a radiation option if the PSA continues upward?
Hopefully, just a hypothetical question.



--
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32 PSAD .056 years
Lupron 07/03 (1 mo) 8/03 and every 4 months there after
PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years
Casodex added daily 07/06
PSA <0.04, <0.05, <0.04, <0.04 10/11/07
Non Illegitimi Carborundum


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  #13  
Old 10-21-2007, 11:31 AM
MikeHi
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Default Re: Anyone ever heard of ultrasonic heating to destroy prostate?

On Sat, 20 Oct 2007 16:32:29 -0400, "Steve Kramer"
<skramer@cinci.rr.com> wrote:

>
>"MikeHi" <mike@anon.demon.uk> wrote in message
>news:qrekh3l7i391v15n4j4a86mbogabt9qhva@4ax.com.. .
>
>> Hi Steve.
>> My last PSa's 26th February 4.9
>> 5th July 6.0
>> HIFU on seminal vesicle the new repository of the nasty stuff, was
>> August 21st.
>>
>> I'm having a blood test this Monday, and should know the result by
>> the end of the week- so should be able to give you an answer by 26th
>> October.
>>
>> This test however will be only two months after the op. The UCH team I
>> believe would regard the PSA after three months as a more accurate
>> test - giving more adequate time for all the nether regions to settle
>> down. But everybody here will understand my impatience to get some new
>> figure - even though I will have to understand it may not be a good
>> answer. This allows me the luxury of believing it, if it looks good,
>> and being quite sure it will improve, if it isn't!
>>
>> More to the point I think will be Monday week, when i'll learn from
>> my consultant the result of the MRI test on the seminal vesicle which
>> I had a month ago.

>
>Glad to hear that with HIFU, your run isn't as bad as it would sound if
>another treatment had been tried.
>
>Do you still have a radiation option if the PSA continues upward?
>Hopefully, just a hypothetical question.



Hi Steve. .

Yes. That's what they told me when I agreed to HIFU2- agreed,
hopefully hypothetical!, and the early prognosis suggests it should
not be necessary for the sem ves.

The reality is I suppose the micro-metastasis craftily hiding away
which it seems is a likelihood at some time - but let's stay upbeat
with all the bits of good news and don't worry about the bad which may
never happen!


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  #14  
Old 10-21-2007, 12:31 PM
Steve Kramer
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Default Re: Anyone ever heard of ultrasonic heating to destroy prostate?

"MikeHi" <mike@anon.demon.uk> wrote in message
news:9f9mh3hse8t00dpk8afo8k3299f2kukv5e@4ax.com...

> but let's stay upbeat
> with all the bits of good news and don't worry about the bad which may
> never happen!


Excellent words to live by.




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