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  #1  
Old 06-15-2008, 04:03 PM
colophony
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Default bad news

just got my blood test after 4 months without casodex. Psa up to 1,128.
19th of June oncologist visit. Wandering his next step.
Colophony


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  #2  
Old 06-15-2008, 04:03 PM
kh
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Default Re: bad news

On Jun 15, 6:32 am, "colophony" <colophony2...@yahoo.it> wrote:
> just got my blood test after 4 months without casodex. Psa up to 1,128.
> 19th of June oncologist visit. Wandering his next step.
> Colophony


Confirm that you're not writing in U.S. notation, 1,128 is 1.128 in
our style. I'd even round it to 1.1 or 1.13 to make the number less
confusing.

Trending up to 1.1 is not great news but you have many options.
Perhaps salvage radiation.


-kh
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  #3  
Old 06-15-2008, 04:03 PM
Steve Kramer
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Default Re: bad news

"colophony" <colophony2002@yahoo.it> wrote in message
news:5d65k.1577$lh5.1108@tornado.fastwebnet.it...
> just got my blood test after 4 months without casodex. Psa up to 1,128.
> 19th of June oncologist visit. Wandering his next step.
> Colophony



I suspect, he will put you on Casodex, just as mine did in 2006. I'm still
on it 2 years later.


--
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32 PSAD .056 years
Lupron 07/03 (1 mo) 8/03 and every 4 months there after
PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years
Casodex added daily 07/06
PSA <0.04, <0.05, <0.04, <0.04, <0.1 2/12/08
Non Illegitimi Carborundum


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  #4  
Old 06-15-2008, 04:03 PM
Dwight
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Default Re: bad news

On Jun 15, 4:37*am, "Steve Kramer" <skra...@cinci.rr.com> wrote:
> PSA 16 10/17/2000 @ 46
> Biopsy 11/01/2000 G7 (3+4), T2c
> RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
> PSA *<.1 *<.1 *<.1 *.27 *.37 *.75 * * * * * *PSAD 0.19 years
> EBRT 05-07/2002 @ 47
> PSA *.34 .22 .15 .21 .32 * * * * * * * * * * * PSAD .056 years
> Lupron 07/03 (1 mo) 8/03 and every 4 months there after
> PSA *.07 .05 .06 .09 .08 .132 .145 * * * PSAD 1.4 years
> Casodex added daily 07/06
> PSA <0.04, <0.05, <0.04, <0.04, <0.1 *2/12/08
> Non Illegitimi Carborundum


Steve,

So, this sounds like it had spread outside the capsule, even with the
negative margins. Do they know where it has spread to?
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  #5  
Old 06-15-2008, 04:03 PM
J
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Default Re: bad news

colophony wrote:

> just got my blood test after 4 months without casodex. Psa up to 1,128.
> 19th of June oncologist visit. Wandering his next step.
> Colophony


1.128 : or 1,128.000 ?

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  #6  
Old 06-15-2008, 04:03 PM
colophony
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Default Re: bad news

italian hospital lab says: quote PSA 1,128 ng/ml
unquote
Colophony
"kh" <tchtic@yahoo.com> ha scritto nel messaggio
news:12d6a886-90a9-48f3-b1c2-731345e93205@34g2000hsh.googlegroups.com...
> On Jun 15, 6:32 am, "colophony" <colophony2...@yahoo.it> wrote:
>> just got my blood test after 4 months without casodex. Psa up to 1,128.
>> 19th of June oncologist visit. Wandering his next step.
>> Colophony

>
> Confirm that you're not writing in U.S. notation, 1,128 is 1.128 in
> our style. I'd even round it to 1.1 or 1.13 to make the number less
> confusing.
>
> Trending up to 1.1 is not great news but you have many options.
> Perhaps salvage radiation.
>
>
> -kh



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  #7  
Old 06-15-2008, 04:03 PM
J
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Default Re: bad news

Steve Kramer wrote:

> "colophony" <colophony2002@yahoo.it> wrote in message
> news:5d65k.1577$lh5.1108@tornado.fastwebnet.it...
> > just got my blood test after 4 months without casodex. Psa up to 1,128.
> > 19th of June oncologist visit. Wandering his next step.
> > Colophony

>
> I suspect, he will put you on Casodex, just as mine did in 2006. I'm still
> on it 2 years later.


He just stopped Casodex in February.
I would expect a slight increase.
J

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  #8  
Old 06-15-2008, 04:03 PM
Steve Kramer
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Default Re: bad news


"Dwight" <nodamnspamok@yahoo.com> wrote in message
news:004c2eeb-9a61-462c-95fd-80ede332d9ae@v26g2000prm.googlegroups.com...



Steve,

So, this sounds like it had spread outside the capsule, even with the
negative margins. Do they know where it has spread to?


<< Yup, just like mine >>



--
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32 PSAD .056 years
Lupron 07/03 (1 mo) 8/03 and every 4 months there after
PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years
Casodex added daily 07/06
PSA <0.04, <0.05, <0.04, <0.04, <0.1 2/12/08
Non Illegitimi Carborundum


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  #9  
Old 06-15-2008, 10:14 PM
Steve Kramer
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Default Re: bad news

"J" <xnswex@nalid;"no> wrote in message
news:48552B03.E4266440@execulink.com...
> Steve Kramer wrote:
>
>> "colophony" <colophony2002@yahoo.it> wrote in message
>> news:5d65k.1577$lh5.1108@tornado.fastwebnet.it...
>> > just got my blood test after 4 months without casodex. Psa up to 1,128.
>> > 19th of June oncologist visit. Wandering his next step.
>> > Colophony

>>
>> I suspect, he will put you on Casodex, just as mine did in 2006. I'm
>> still
>> on it 2 years later.

>
> He just stopped Casodex in February.
> I would expect a slight increase.
> J
>


I think he stopped all ADT in February 2007; after which his PSA rose from
0.1 to 0.85.

I think he went back on Lupron February 2008; after which his PSA dropped to
0.090 then, by April, went up to 0.7 and is now 1.128 (expressed as we in
the US express it). .... I think....


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  #10  
Old 06-15-2008, 10:14 PM
J
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Default Re: bad news

Steve Kramer wrote:

> "J" <xnswex@nalid;"no> wrote in message
> > Steve Kramer wrote:
> >
> >> "colophony" <colophony2002@yahoo.it> wrote in message
> >> > just got my blood test after 4 months without casodex. Psa up to 1,128.
> >> > 19th of June oncologist visit. Wandering his next step.
> >> > Colophony
> >>
> >> I suspect, he will put you on Casodex, just as mine did in 2006. I'm
> >> still
> >> on it 2 years later.

> >
> > He just stopped Casodex in February.
> > I would expect a slight increase.
> > J
> >

>
> I think he stopped all ADT in February 2007; after which his PSA rose from
> 0.1 to 0.85.
>
> I think he went back on Lupron February 2008; after which his PSA dropped to
> 0.090 then, by April, went up to 0.7 and is now 1.128 (expressed as we in
> the US express it). .... I think....


-------- Original Message --------
Subject: oncologist advize
Date: Fri, 22 Feb 2008 13:50:59 +0100
From: "colophony" <colophony2002@yahoo.it>
Newsgroups: alt.support.cancer.prostate

yesterday I paid a visit to the oncologist showing my latest blood test and
MRI. (as a reminder PSA was 0.090). Doctor told me to cease with casodex and
to monitor PSA in april and June. I will see him again next June.
Colophony

-------- Original Message --------
Subject: PSA
Date: Tue, 21 Feb 2006 14:40:41 +0100
From: "colophony" <colophony2002@yahoo.it>
Organization: TIN.IT (http://www.tin.it)
Newsgroups: alt.support.cancer.prostate

one month after radical prostatectomy, my PSA is 0,07.
My doctor says it is OK: do you have something to add?
Colophony


He started Casodex, then Lupron when there wasn't even one doubling?

-------- Original Message --------
Subject: Start HT
Date: Mon, 31 Jul 2006 12:12:53 +0200
From: "colophony" <colophony2002@yahoo.it>
Organization: TIN.IT (http://www.tin.it)
Newsgroups: alt.support.cancer.prostate

2 PSA in a row over 0,2 exactly 0,267 and a month later 0,369.
Uro says it's time for HT: Casodex 10 days than lupron evry 3 months.
RP 1/19/06
age 61
gleason 4+3.
Do you agree?
Thanks Colophony
----------------------------------------------------------------------
were lymph nodes involved, Steve?
Too many posts to wade through /cannot find path report.
J - thanks


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  #11  
Old 06-15-2008, 10:14 PM
Steve Jordan
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Default Re: bad news

On June 16, colophony wrote:

> just got my blood test after 4 months without casodex. Psa up to 1,128.
> 19th of June oncologist visit. Wandering his next step.


That is an increase of 1,127 ng/mL in only a few months. I believe that
that is not credible.

Either the report is misconstrued or the lab made an error, which can
and does happen.

I recommend (a) confirming that the lab actually means one thousand one
hundred and twenty-eight nanograms per milliliter and, if so, (b) that
the report actually applies to this patient.

Regards,

Steve J

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  #12  
Old 06-15-2008, 10:14 PM
Steve Kramer
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Default Re: bad news

"J" <xnswex@nalid;"no> wrote in message
news:48553848.4B445C14@execulink.com...
> Steve Kramer wrote:


> ----------------------------------------------------------------------
> were lymph nodes involved, Steve?
> Too many posts to wade through /cannot find path report.


I don't think he ever reported his path report, but then again I missed the
Casodex thing in 2/08. I also don't believe he had an initial indication of
the cow getting out of the barn, but his first PSAs were a definite
indication.


--
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32 PSAD .056 years
Lupron 07/03 (1 mo) 8/03 and every 4 months there after
PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years
Casodex added daily 07/06
PSA <0.04, <0.05, <0.04, <0.04, <0.1 2/12/08
Non Illegitimi Carborundum


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  #13  
Old 06-15-2008, 10:14 PM
Steve Kramer
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Default Re: bad news

"Steve Jordan" <mycroftscj1@cox.net> wrote in message
news:Q%a5k.2406$I76.451@newsfe11.phx...
> On June 16, colophony wrote:
>
>> just got my blood test after 4 months without casodex. Psa up to 1,128.
>> 19th of June oncologist visit. Wandering his next step.

>
> That is an increase of 1,127 ng/mL in only a few months. I believe that
> that is not credible.
>
> Either the report is misconstrued or the lab made an error, which can and
> does happen.
>
> I recommend (a) confirming that the lab actually means one thousand one
> hundred and twenty-eight nanograms per milliliter and, if so, (b) that the
> report actually applies to this patient.


Steve,

Colonophony has always expressed his PSA with a comma instead of a decimal.
When in Rome....


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  #14  
Old 06-15-2008, 10:14 PM
colophony
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Default Re: bad news

yes one lymphnode was involved and margin were not clear
Colophony
"J" <xnswex@nalid;"no> ha scritto nel messaggio
news:48553848.4B445C14@execulink.com...
> Steve Kramer wrote:
>
>> "J" <xnswex@nalid;"no> wrote in message
>> > Steve Kramer wrote:
>> >
>> >> "colophony" <colophony2002@yahoo.it> wrote in message
>> >> > just got my blood test after 4 months without casodex. Psa up to
>> >> > 1,128.
>> >> > 19th of June oncologist visit. Wandering his next step.
>> >> > Colophony
>> >>
>> >> I suspect, he will put you on Casodex, just as mine did in 2006. I'm
>> >> still
>> >> on it 2 years later.
>> >
>> > He just stopped Casodex in February.
>> > I would expect a slight increase.
>> > J
>> >

>>
>> I think he stopped all ADT in February 2007; after which his PSA rose
>> from
>> 0.1 to 0.85.
>>
>> I think he went back on Lupron February 2008; after which his PSA dropped
>> to
>> 0.090 then, by April, went up to 0.7 and is now 1.128 (expressed as we in
>> the US express it). .... I think....

>
> -------- Original Message --------
> Subject: oncologist advize
> Date: Fri, 22 Feb 2008 13:50:59 +0100
> From: "colophony" <colophony2002@yahoo.it>
> Newsgroups: alt.support.cancer.prostate
>
> yesterday I paid a visit to the oncologist showing my latest blood test
> and
> MRI. (as a reminder PSA was 0.090). Doctor told me to cease with casodex
> and
> to monitor PSA in april and June. I will see him again next June.
> Colophony
>
> -------- Original Message --------
> Subject: PSA
> Date: Tue, 21 Feb 2006 14:40:41 +0100
> From: "colophony" <colophony2002@yahoo.it>
> Organization: TIN.IT (http://www.tin.it)
> Newsgroups: alt.support.cancer.prostate
>
> one month after radical prostatectomy, my PSA is 0,07.
> My doctor says it is OK: do you have something to add?
> Colophony
>
>
> He started Casodex, then Lupron when there wasn't even one doubling?
>
> -------- Original Message --------
> Subject: Start HT
> Date: Mon, 31 Jul 2006 12:12:53 +0200
> From: "colophony" <colophony2002@yahoo.it>
> Organization: TIN.IT (http://www.tin.it)
> Newsgroups: alt.support.cancer.prostate
>
> 2 PSA in a row over 0,2 exactly 0,267 and a month later 0,369.
> Uro says it's time for HT: Casodex 10 days than lupron evry 3 months.
> RP 1/19/06
> age 61
> gleason 4+3.
> Do you agree?
> Thanks Colophony
> ----------------------------------------------------------------------
> were lymph nodes involved, Steve?
> Too many posts to wade through /cannot find path report.
> J - thanks
>
>



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  #15  
Old 06-15-2008, 10:14 PM
Steve Jordan
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Default Re: bad news

On June 15, Steve K replied to me:

> Colonophony has always expressed his PSA with a comma instead of a
> decimal. When in Rome....


Tnx. My wetware failed again.

BTW: ColoNphony?? ;-)

Regards,

Steve J

Q: "What is your full name, Doctor Presume?"
A: "Dr. Livingstone I. Presume."
--from Choral Cantata "Knock Knock"
by P. D. Q. Bach, the son Papa Johann wouldn't acknowledge.
The Greater Hoople Area Philharmonic Orchestra & The OK Chorale
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  #16  
Old 06-15-2008, 10:14 PM
Heather
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Default Re: bad news


"Steve Jordan" <mycroftscj1@cox.net> wrote in message
news:HJb5k.511$sM4.366@newsfe17.phx...
> On June 15, Steve K replied to me:
>
>> Colonophony has always expressed his PSA with a comma instead of a
>> decimal. When in Rome....

>
> Tnx. My wetware failed again.
>
> BTW: ColoNphony?? ;-)


Yup, blame it on the Casodex, LOL!! Or his *clean living*.....8-))
>



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  #17  
Old 06-15-2008, 10:14 PM
kh
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Default Re: bad news

On Jun 15, 9:25 am, "colophony" <colophony2...@yahoo.it> wrote:
> italian hospital lab says: quote PSA 1,128 ng/ml
> unquote
> Colophony


Italian, good.

In the middle part of North America, we'd write it as 1.128 or
abbreviate it as PSA 1.1

As I said, 1.1 isn't the best news but you have many options. Your
medical oncologist will have several suggestions.

-kh
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  #18  
Old 06-16-2008, 03:29 AM
Steve Kramer
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Posts: n/a
Default Re: bad news

"Steve Jordan" <mycroftscj1@cox.net> wrote in message
news:HJb5k.511$sM4.366@newsfe17.phx...
> On June 15, Steve K replied to me:
>
>> Colonophony has always expressed his PSA with a comma instead of a
>> decimal. When in Rome....

>
> Tnx. My wetware failed again.
>
> BTW: ColoNphony?? ;-)


My keyboard is getting old and starting to make a lot of mistakes.


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  #19  
Old 06-16-2008, 07:28 AM
J
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Default Re: bad news

colophony wrote:

> yes one lymphnode was involved and margin were not clear
> Colophony


Thank you.
Now I understand the concern.
J

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  #20  
Old 06-16-2008, 03:02 PM
MikeHi@anon.com
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Default Re: bad news

On Sun, 15 Jun 2008 20:44:16 -0400, "Steve Kramer"
<skramer@cinci.rr.com> wrote:

>
>My keyboard is getting old and starting to make a lot of mistakes.


It's my fingers. You can always buy a new keyboard........(nice
smile).

MikeHi
>

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