Well, that wasn't a complete waste of time - not altogether, but still
disapointing.
My lad asked more questions than I did.
A Junior Onco - who has been far more honest with me than anyone else. He
reported all back to his boss - a Dr Graham, the chief Onco in Glasgow who
first saw me. 90+ minute interview today!
Basically:
They will now write to my Cardiologist to see if what I told them today is
true (GEEZ! Am I likely to LIE?) That I've had NO cardiac incidents since
1999, latest scans and Cardiograms show that the heart muscle itself has
decreased in volume (Enlarged heart syndrome has GONE) That coronary
arteries are actually clearing and that Aortic Valvular damage in the almost
fatal 1999 coronary has gotten no worse since 2000.
Diabetes control is very tight with numbers not going above 7 (UK no's) at 1
& 2 Hrs post prandial testing)
So WHY I'm still barred from Trials and so on is now being investigated.
(RESULT!) (Thankyou my favourite little laddie!)
Testosterone level for the possible admin of Depo-Provera to combat hot
flushes and night sweats is being investigated. (Thankyou Steve Jordan for
the PDF and all the encouragement - You are a real Pal!) The Onco couldn't
believe what he was reading! (Splutter-splutter!)
Radiation treatment for bone pain has been ruled OUT at the moment. Seems
that if
Morphine or it's analogues are keeping control at levels less than
60 mg MST and 20 mg for breakthrough, they ain't gonna do much to remedy
things (Currently on 10 mg MST and 10 mg breakthrough)
My Laddie kept pushing for information about the extent, aggressiveness and
severity of my cancer, but without a Biopsy - that was pretty much a moot
point. NO willingness to do an MRI or other scans, although I did manage to
convince this guy that I should have another Bone scan - scheduled now for
10th July - a week before my next Onco appointment. I'm VERY concerned about
pain in my pelvic area and fingers especially - that stop me playing the
organ effectively.
There was a LONG discussion about palliative care instituted by the Onco,
who is trained in Hospice. Fuck! Pretty Scary!
I'm a dedicated Christian with a very strong faith in my Redeemer. I'm not
scared of dying - we all have to die at some point, and right now, It
wouldn't bother me if the Father said - OK - Shuggie - Time's up! Come on up
and see us. I have no fear of death, BUT - I'm shit scared of dying in a lot
of pain.
The Onco today assured me that the doctors in Hospice will be generally -
"Sympathetic" to individual wishes. So that's eased my mind over final days.
Fuck! - I need to be cheered up now after all that morbid talk!
Think I'll take wee Tiger for a walk round our new golf course - and some
rotten shit stole his travel cart!
That's all to report - I think.
Bye now
HUGHIE
Good luck Hugh 
Linear Mode
