Just had my RRProstatectomy last Tuesday. Questions.

Hello fellow travellers.



Just had my RRProstatectomy last Tuesday. It is so much better having read
the experiences of others before me and knowing what to expect, both
operation and recovery wise.

Everything has and continues to go along as predicted ...Every day is
getting better, less pain and easier movement.

On this Thursday morning I have the catheter removed and will arrive at the
Uro's office with plenty of absorbent pads. I hopefully have a favourable
pathology result of the removed prostate.



Question to others who had the deVincy RRP:

1) I have a constant pain in the area between the back of the testicles
and the anus (perineum?) Is this usual?

2) Whenever I open my bowls, about a tablespoon of urine escapes past the
catheter. Is this usual?



Good Luck on your journeys



John from Australia



2006-3.4

3/2007-6.3

7/2007-6.7

8/2007 Biopsy: (40%)of one core = Gleason pattern 3+3=6 adenocarcinoma,
Stage T1.

12/2007-5.8

15/1/2008- RRProstatectomy

"J. O' Connor" <spamkiller@nowhere.com> wrote in message
news:nAdlj.5794$421.5340@news-server.bigpond.net.au...

> 2) Whenever I open my bowls, about a tablespoon of urine escapes past
> the catheter. Is this usual?

Hi, John! Glad to hear everything is going well and as predicted.

I did not have RLRP, but I can tell you that this is normal. It's a tube,
not a seal. Don't force any flatulence or you'll have the same condition
sitting in your chair.




--
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32 PSAD .056 years
Lupron 07/03 (1 mo) 8/03 and every 4 months there after
PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years
Casodex added daily 07/06
PSA <0.04, <0.05, <0.04, <0.04 10/11/07
Non Illegitimi Carborundum

Hello John!
Up here on the other end of the planet (NY Catskill Mountains), I had the
same issues that you mention. I had my da Vinci on Oct 13 so I am just a bit
further along than you. Feel free to ask me questions, my information is
anecdotal but great for a comparison anyway.
Specifics:
RRP Oct 13, 2007 T1c Gleason 6 (3+3)
Catheter out 9 days Path report 70% prostate had cancer cells Gleason upped
to 7 (3+4) Cancer did not appear to have escaped the prostate and the
seminal vesicles removed.
Leaked allot for the first 2 months - started to be frustrated by it. Did my
Kegels... still leaked... Started to dry up about 4 weeks ago, pretty dry
now, use 2 pads per day, only damp after normal day wetter if active.
Sex is returning with help from Viagra. Not as hard as I want but at times
better than others.

I too had pain above the perineum. Especially when sitting next to the
computer asking and reading information from this great group. Not that they
are a pain in the ass, but that I spend lots of time sitting getting great
info and caring comments. Try sitting on a soft pillow. I would expect the
pain as normal considering you just had a part of that area carved out. I
have no tenderness there now. How bad is the pain? I was given pain killers
after the surgery but never had to use them. I expect some pain is normal. I
feel free to call the Dr.s office and ask questions. I don't expect the Dr
to answer them all, simple questions can be answered by the contact given.

Urine escaping the side of the catheter... I too had that leak. I took it
that the urine squeezed out the bladder when I squeezed hard. I was on stool
softeners to make that easier. I had a few instances when urine had blood in
it and even small clots. I called very worried and was told that is normal
and to drink lots of fluids to clear things up.

Again, feel free to ask questions, I might be able to ease your mind on some
issues.

Peter
"J. O' Connor" <spamkiller@nowhere.com> wrote in message
news:nAdlj.5794$421.5340@news-server.bigpond.net.au...
> Hello fellow travellers.
>
>
>
> Just had my RRProstatectomy last Tuesday. It is so much better having read
> the experiences of others before me and knowing what to expect, both
> operation and recovery wise.
>
> Everything has and continues to go along as predicted ...Every day is
> getting better, less pain and easier movement.
>
> On this Thursday morning I have the catheter removed and will arrive at
> the Uro's office with plenty of absorbent pads. I hopefully have a
> favourable pathology result of the removed prostate.
>
>
>
> Question to others who had the deVincy RRP:
>
> 1) I have a constant pain in the area between the back of the testicles
> and the anus (perineum?) Is this usual?
>
> 2) Whenever I open my bowls, about a tablespoon of urine escapes past
> the catheter. Is this usual?
>
>
>
> Good Luck on your journeys
>
>
>
> John from Australia
>
>
>
> 2006-3.4
>
> 3/2007-6.3
>
> 7/2007-6.7
>
> 8/2007 Biopsy: (40%)of one core = Gleason pattern 3+3=6 adenocarcinoma,
> Stage T1.
>
> 12/2007-5.8
>
> 15/1/2008- RRProstatectomy
>
>
>

On Tue, 22 Jan 2008 03:40:03 GMT, "J. O' Connor"
<spamkiller@nowhere.com> wrote:

>Hello fellow travellers.
>
>
>
>Just had my RRProstatectomy last Tuesday. It is so much better having read
>the experiences of others before me and knowing what to expect, both
>operation and recovery wise.
>
>Everything has and continues to go along as predicted ...Every day is
>getting better, less pain and easier movement.
>
>On this Thursday morning I have the catheter removed and will arrive at the
>Uro's office with plenty of absorbent pads. I hopefully have a favourable
>pathology result of the removed prostate.
>
>
>
>Question to others who had the deVincy RRP:
>
>1) I have a constant pain in the area between the back of the testicles
>and the anus (perineum?) Is this usual?
>
>2) Whenever I open my bowls, about a tablespoon of urine escapes past the
>catheter. Is this usual?
>
>
>
>Good Luck on your journeys
>
>
>
>John from Australia
>
>
>
>2006-3.4
>
>3/2007-6.3
>
>7/2007-6.7
>
>8/2007 Biopsy: (40%)of one core = Gleason pattern 3+3=6 adenocarcinoma,
>Stage T1.
>
>12/2007-5.8
>
>15/1/2008- RRProstatectomy
>
>

John,

Answers to your questions based on my experiences:

1) Yes but slight in magnitude and not constant

2) No, but my catheter did begin to leak after 10 days of three mile
walks.

Best wishes for a speedy recovery mate!

--
PSA @ 45 yrs. = 4.7 02/06/2007
Biopsy 03/16/2007 G7(3+4),T1c
RLRP 06/12/2007 G7(3+4),T2cN0M0 Neg margins
PSA 07/16/2007 = <0.1
PSA 09/12/2007 = <0.1
PSA 12/18/2007 = <0.1

Hello John.

You will feel better and better.

The guys and ladies here will guide you.

I had an open RP 3 years ago and when I went to have my cath removed (11
days)...the nurse said that this was one appointment that nobody ever
missed. :-)

I needed a pad to go home.

Also, the one question I can answer is that the urine coming out around
the cath happens.

The other question...I believe that pain happens and is not so unusual.

Best of everything,

Ron B.

Chicago

"Ron B" <Gimel@webtv.net> wrote in message
news:17657-47963C9D-737@storefull-3313.bay.webtv.net...
> Hello John.
>
> You will feel better and better.
>
> The guys and ladies here will guide you.
>
> I had an open RP 3 years ago and when I went to have my cath removed (11
> days)...the nurse said that this was one appointment that nobody ever
> missed. :-)
>
> I needed a pad to go home.
>
> Also, the one question I can answer is that the urine coming out around
> the cath happens.
>
> The other question...I believe that pain happens and is not so unusual.
>
> Best of everything,
>
> Ron B.
>
> Chicago
----------------------------------------------------
Thank you Steve, Peter, Paul and Ron for replying to my somewhat petty
concerns.
Again...It is extremely comforting to have you all to lean on, exchange and
learn from your experiences.
Regards,
John

There is nothing petty about this. Don't feel that any of your concerns are
not valid. If by our own experiences or by the research that has been done
that we can help you, I am sure it gives the respondents a spin of good
karma. I am sure that we all have questions and
concerns, I have received much help from the caring individuals here. We are
going through a difficult path together and this group helps each of us
along the journey.
Peter
"J. O' Connor" <spamkiller@nowhere.com> wrote in message
newsivlj.6014$421.1979@news-server.bigpond.net.au...
> "Ron B" <Gimel@webtv.net> wrote in message
> news:17657-47963C9D-737@storefull-3313.bay.webtv.net...
>> Hello John.
>>
>> You will feel better and better.
>>
>> The guys and ladies here will guide you.
>>
>> I had an open RP 3 years ago and when I went to have my cath removed (11
>> days)...the nurse said that this was one appointment that nobody ever
>> missed. :-)
>>
>> I needed a pad to go home.
>>
>> Also, the one question I can answer is that the urine coming out around
>> the cath happens.
>>
>> The other question...I believe that pain happens and is not so unusual.
>>
>> Best of everything,
>>
>> Ron B.
>>
>> Chicago
> ----------------------------------------------------
> Thank you Steve, Peter, Paul and Ron for replying to my somewhat petty
> concerns.
> Again...It is extremely comforting to have you all to lean on, exchange
> and learn from your experiences.
> Regards,
> John
>

John,

I had my DaVinci surgery four days ago. I went home virtually pain free but
developed the ache above the perineum that you and Peter mentioned,
especially when sitting. The hospital sent me home with an inflatable donut
which I finally blew up this morning. I now use it whenever I'm sitting.
There is no pain then and only a very mild ache when I walk around. This is
a similar solution to Peter's pillow. Having little to no pressure in the
area works well for me.

I don't have the leak around the catheter that you discussed but the
hospital nurse told me to expect some leakage. I wish my catheter was
coming out this Thursday but I'll have to wait until the following Monday!
Best wishes on your recovery.

Jim

"J. O' Connor" <spamkiller@nowhere.com> wrote in message
news:nAdlj.5794$421.5340@news-server.bigpond.net.au...
> Hello fellow travellers.
>
>
>
> Just had my RRProstatectomy last Tuesday. It is so much better having read
> the experiences of others before me and knowing what to expect, both
> operation and recovery wise.
>
> Everything has and continues to go along as predicted ...Every day is
> getting better, less pain and easier movement.
>
> On this Thursday morning I have the catheter removed and will arrive at
> the Uro's office with plenty of absorbent pads. I hopefully have a
> favourable pathology result of the removed prostate.
>
>
>
> Question to others who had the deVincy RRP:
>
> 1) I have a constant pain in the area between the back of the testicles
> and the anus (perineum?) Is this usual?
>
> 2) Whenever I open my bowls, about a tablespoon of urine escapes past
> the catheter. Is this usual?
>
>
>
> Good Luck on your journeys
>
>
>
> John from Australia
>
>
>
> 2006-3.4
>
> 3/2007-6.3
>
> 7/2007-6.7
>
> 8/2007 Biopsy: (40%)of one core = Gleason pattern 3+3=6 adenocarcinoma,
> Stage T1.
>
> 12/2007-5.8
>
> 15/1/2008- RRProstatectomy
>
>
>

Great news! Time may seem to go slower when you have a tube where it is not
wanted but this too will pass. Keep us posted!
"Jim" <jdhand@chartermi.net> wrote in message
news:iy9nj.52$PP6.12@newsfe06.lga...
> John,
>
> I had my DaVinci surgery four days ago. I went home virtually pain free
> but developed the ache above the perineum that you and Peter mentioned,
> especially when sitting. The hospital sent me home with an inflatable
> donut which I finally blew up this morning. I now use it whenever I'm
> sitting. There is no pain then and only a very mild ache when I walk
> around. This is a similar solution to Peter's pillow. Having little to
> no pressure in the area works well for me.
>
> I don't have the leak around the catheter that you discussed but the
> hospital nurse told me to expect some leakage. I wish my catheter was
> coming out this Thursday but I'll have to wait until the following Monday!
> Best wishes on your recovery.
>
> Jim
>
> "J. O' Connor" <spamkiller@nowhere.com> wrote in message
> news:nAdlj.5794$421.5340@news-server.bigpond.net.au...
>> Hello fellow travellers.
>>
>>
>>
>> Just had my RRProstatectomy last Tuesday. It is so much better having
>> read the experiences of others before me and knowing what to expect, both
>> operation and recovery wise.
>>
>> Everything has and continues to go along as predicted ...Every day is
>> getting better, less pain and easier movement.
>>
>> On this Thursday morning I have the catheter removed and will arrive at
>> the Uro's office with plenty of absorbent pads. I hopefully have a
>> favourable pathology result of the removed prostate.
>>
>>
>>
>> Question to others who had the deVincy RRP:
>>
>> 1) I have a constant pain in the area between the back of the
>> testicles and the anus (perineum?) Is this usual?
>>
>> 2) Whenever I open my bowls, about a tablespoon of urine escapes past
>> the catheter. Is this usual?
>>
>>
>>
>> Good Luck on your journeys
>>
>>
>>
>> John from Australia
>>
>>
>>
>> 2006-3.4
>>
>> 3/2007-6.3
>>
>> 7/2007-6.7
>>
>> 8/2007 Biopsy: (40%)of one core = Gleason pattern 3+3=6 adenocarcinoma,
>> Stage T1.
>>
>> 12/2007-5.8
>>
>> 15/1/2008- RRProstatectomy
>>
>>
>>
>
>