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Provenge vs Prostvac
  1. #1
    Fen Guest

    Default Provenge vs Prostvac

    I would like to ask for help from this newsgroup. I now have the option of
    starting Provenge. Is there anyone in this group who has participated? I
    visited the red cross some months ago when I was being considered and was
    told that it would be necessary for me to have stents placed in my neck for
    the period of six weeks while my blood is being processed. A nurse would
    come to my home every other day to monitor my health. QOL is important and I
    have reservations of the procedure being used.

    I can also start the study called "Prostvac". It's new, but there is the
    added possibility of my receiving the placebo. The company making the
    product is Bavarian Nordic.

    Finally, I asked my urologist if I should consult with a oncologist. He
    responded, "You don't need to do that, I am doing what an oncologist does".
    I've talked to my GP, but he does not seem interested in getting involved.

    Has anyone been in the Provenge program?

    Many thanks for help.
    Fen...



  2. #2
    I.P. Freely Guest

    Default Re: Provenge vs Prostvac

    Fen wrote:
    > I now have the option of starting Provenge.


    Doesn't it add just 4 months, median?

    > QOL is important


    Isn't it a grueling process?

    > I asked my urologist if I should consult with a oncologist. He
    > responded, "You don't need to do that, I am doing what an oncologist does".


    Do you let your auto mechanic fix your computer?
    Is your mechanic so egotistical that he would insist on fixing your
    computer?

    I.P.

  3. #3
    Sue Mullen Guest

    Default Re: Provenge vs Prostvac

    My first thought here is to go for the Provenge because you will know
    you are getting the real drug. I don't know enough about Provenge to
    know what your QOL would be like.

    At this point I think you really need a medical oncologist who is an
    expert on your different options. Your GP and urologist are not experts
    in cancer treatments.

    OK, I think you are not in the US?? Why would you go to the Red Cross
    for information on Provenge? Maybe the Red Cross is differrent where you
    are, but at least here is the US I would not go to them for information
    on a cancer treatment, that is what an oncologist is for.

    Good luck!!

    sue



    On 10/29/2011 9:58 AM, Fen wrote:
    > I would like to ask for help from this newsgroup. I now have the option of
    > starting Provenge. Is there anyone in this group who has participated? I
    > visited the red cross some months ago when I was being considered and was
    > told that it would be necessary for me to have stents placed in my neck for
    > the period of six weeks while my blood is being processed. A nurse would
    > come to my home every other day to monitor my health. QOL is important and I
    > have reservations of the procedure being used.
    >
    > I can also start the study called "Prostvac". It's new, but there is the
    > added possibility of my receiving the placebo. The company making the
    > product is Bavarian Nordic.
    >
    > Finally, I asked my urologist if I should consult with a oncologist. He
    > responded, "You don't need to do that, I am doing what an oncologist does".
    > I've talked to my GP, but he does not seem interested in getting involved.
    >
    > Has anyone been in the Provenge program?
    >
    > Many thanks for help.
    > Fen...
    >
    >


  4. #4
    Alan Meyer Guest

    Default Re: Provenge vs Prostvac

    On 10/29/2011 09:58 AM, Fen wrote:
    > I would like to ask for help from this newsgroup. I now have the

    option of
    > starting Provenge. Is there anyone in this group who has participated? I
    > visited the red cross some months ago when I was being considered and was
    > told that it would be necessary for me to have stents placed in my

    neck for
    > the period of six weeks while my blood is being processed. A nurse would
    > come to my home every other day to monitor my health. QOL is

    important and I
    > have reservations of the procedure being used.
    >
    > I can also start the study called "Prostvac". It's new, but there is the
    > added possibility of my receiving the placebo. The company making the
    > product is Bavarian Nordic.
    >
    > Finally, I asked my urologist if I should consult with a oncologist. He
    > responded, "You don't need to do that, I am doing what an oncologist

    does".
    > I've talked to my GP, but he does not seem interested in getting

    involved.
    >
    > Has anyone been in the Provenge program?
    >
    > Many thanks for help.
    > Fen...


    Fen,

    As you know, I'm not even a trained nurse, much less a doctor,
    much less an oncologist. My opinions are strictly those of a
    layman. But, having said that, perhaps even some uneducated
    opinions might be of use to you and I will proceed.

    First of all let me share some thoughts about doctors. I would
    guess that your urologist has little or no experience with
    Provenge and certainly none with Prostvac. I hope he is a
    prostate cancer expert - though many urologists are expert only
    at the surgical treatment of prostate cancer and he may or may
    not keep up with all of the medical treatments.

    Unfortunately, most of the oncologists in the world are also not
    experts in prostate cancer treatment. An "oncologist" is a
    doctor with some expertise in treating all types of cancer, but
    most of them have only limited experience with each kind and it's
    easily possible to find oncologists who are not really prostate
    cancer experts. So it's difficult to know who to turn to.

    For Provenge, it might be possible for you to contact the
    manufacturer and ask if they know of any oncologists in your area
    with experience with Provenge. I don't know if that will work
    but it might be worth a shot.

    For Prostvac it should be possible to contact the closest
    clinical trial site and ask for an appointment to consult one of
    their oncologists about joining the trial. That should
    definitely work. Someone running a clinical trial that is
    looking to recruit patients will be interested in speaking to you
    and giving you their advice as to whether you would likely
    qualify for the trial, and what you can expect if you enter it.
    I would expect that a doctor on a Prostvac trial will also know
    something about Provenge.

    Now for the question of what to do.

    If it were me, I'd be tempted to try the Provenge, but I think
    I might be even more tempted to try the Prostvac. Here's why:

    1. It might be a little easier to take.

    I don't know if that's true. But it's not made from your own
    cells so, as far as I know, it doesn't have the issues you
    talked about regarding stents.

    The side effects of Provenge are said to be very mild. I
    don't know if it's true of Prostvac. That's something to
    inquire about from the clinical trial people.

    2. It might work better.

    Provenge is claimed to add an average of a few months of life.
    Prostvac is claimed, on their website, to add an average of
    8.5 months. See:


    http://www.bavarian-nordic.com/cance...reatments.aspx

    3. Clinical trial treatment can be especially good.

    I say that because I was in a clinical trial myself and I got
    what I thought was exceptionally good care. The people I
    dealt with were research people as well as doctors. The time
    spent with patients was higher than I was used to. The number
    of tests I received was very high (because they needed
    extensive pre- and post-treatment information to evaluate the
    trial outcome.) I felt that they really understood the
    specific characteristics of my disease better than the
    physicians I had seen before them.

    Your mileage may vary. I don't know if all trials are like
    mine was.

    4. There may be provisions for people whose disease progresses.

    Ask about the ratio of drug to placebo patients. Many trials
    give the experimental drug to two patients for every one that
    gets a placebo. That makes your odds 2:1 instead of of 1:1.

    Ask what happens if you're in the trial and your disease gets
    worse and worse. Will they tell you if you've got the
    placebo? The doctor himself should not know but there may be
    circumstances in which he can find out. Will they offer you
    the real drug?

    Whatever they do, you always have the option of dropping out.
    I wouldn't want to do that without thinking it carefully
    through and discussing it with the trial doctor. It can have
    a negative impact on the trial in some circumstances or if
    done precipitately. But it is an option.

    5. By participating in trials, we help those who come after us as
    well as ourselves.

    When you've got a terminal illness you know it's going to get
    you eventually, or something else will before it can. But by
    participating in a trial you turn that illness into something
    that benefits those who come after you. I think it's
    something to feel good about.

    I hope that helps.

    Alan


  5. #5
    Sue Mullen Guest

    Default Re: Provenge vs Prostvac



    On 10/30/2011 4:42 PM, Alan Meyer wrote:

    > Ask what happens if you're in the trial and your disease gets
    > worse and worse. Will they tell you if you've got the
    > placebo? The doctor himself should not know but there may be
    > circumstances in which he can find out. Will they offer you
    > the real drug?


    Alan, having been down that road with Kevin, I can tell you that you
    never will find out if you had the placebo or the real drug. The doctor
    does not know and has no way to find out. I think there might be someone
    in a deep, dark dungeon that knows, but they don't know how to
    communicate with the rest of the world.lol

    sue

  6. #6
    Steve Kramer Guest

    Default Re: Provenge vs Prostvac

    I cannot answer your question specifically for I do no know enough about
    either.

    However, I do know enough to tell you that unless you have one extremely
    good urologist who is capable of learning everything he needs to know for
    both a urologist and a medical oncologist, then you need to move on. I am
    currently using a urologist and we have discussed the fact that when my
    cancer next rears its ugly head, I'm headed to a medical oncologist. He
    agreed. And he is very good.



    PSA OCT 2000 @ 46
    Biopsy NOV 2000 3+4=7, T2c
    RRP DEC 2000 3+4=7), T3cN0M0, SVI, Neg margins
    PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
    EBRT MAY - JULY 2002 @ 47
    PSA .34 .22 .15 .21 .32 PSAD 0.56 years
    Lupron started JULY 2003 @ 48
    PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.40 years
    Casodex added JUL 2006 @ 51
    PSA <0.1 since Next draw AUG 2012 @ 57
    Illegitimati non carborundum




    "Fen" wrote in message news:[email protected]..

    I would like to ask for help from this newsgroup. I now have the option of
    starting Provenge. Is there anyone in this group who has participated? I
    visited the red cross some months ago when I was being considered and was
    told that it would be necessary for me to have stents placed in my neck for
    the period of six weeks while my blood is being processed. A nurse would
    come to my home every other day to monitor my health. QOL is important and I
    have reservations of the procedure being used.

    I can also start the study called "Prostvac". It's new, but there is the
    added possibility of my receiving the placebo. The company making the
    product is Bavarian Nordic.

    Finally, I asked my urologist if I should consult with a oncologist. He
    responded, "You don't need to do that, I am doing what an oncologist does".
    I've talked to my GP, but he does not seem interested in getting involved.

    Has anyone been in the Provenge program?

    Many thanks for help.
    Fen...


  7. #7
    Fen Guest

    Default Re: Provenge vs Prostvac

    Six months ago I was told the Myrtle Beach Urology center had processed over
    30 men into a successful Provenge program. After an exam of my arteries I
    was told the only way it could be administered is via the accepted and
    normal method of a stents into the neck. I decided this was not for me.
    Dr. Neal Shore has quite a resume. Please see the attached. Fen...

    http://www.modernmedicine.com/modern....jsp?id=548048

    "Steve Kramer" wrote in message news:j8oj2f$gkm$[email protected]..

    I cannot answer your question specifically for I do no know enough about
    either.

    However, I do know enough to tell you that unless you have one extremely
    good urologist who is capable of learning everything he needs to know for
    both a urologist and a medical oncologist, then you need to move on. I am
    currently using a urologist and we have discussed the fact that when my
    cancer next rears its ugly head, I'm headed to a medical oncologist. He
    agreed. And he is very good.



    PSA OCT 2000 @ 46
    Biopsy NOV 2000 3+4=7, T2c
    RRP DEC 2000 3+4=7), T3cN0M0, SVI, Neg margins
    PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
    EBRT MAY - JULY 2002 @ 47
    PSA .34 .22 .15 .21 .32 PSAD 0.56 years
    Lupron started JULY 2003 @ 48
    PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.40 years
    Casodex added JUL 2006 @ 51
    PSA <0.1 since Next draw AUG 2012 @ 57
    Illegitimati non carborundum




    "Fen" wrote in message news:[email protected]..

    I would like to ask for help from this newsgroup. I now have the option of
    starting Provenge. Is there anyone in this group who has participated? I
    visited the red cross some months ago when I was being considered and was
    told that it would be necessary for me to have stents placed in my neck for
    the period of six weeks while my blood is being processed. A nurse would
    come to my home every other day to monitor my health. QOL is important and I
    have reservations of the procedure being used.

    I can also start the study called "Prostvac". It's new, but there is the
    added possibility of my receiving the placebo. The company making the
    product is Bavarian Nordic.

    Finally, I asked my urologist if I should consult with a oncologist. He
    responded, "You don't need to do that, I am doing what an oncologist does".
    I've talked to my GP, but he does not seem interested in getting involved.

    Has anyone been in the Provenge program?

    Many thanks for help.
    Fen...



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