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  #41  
Old 04-14-2008, 01:02 PM
kh
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Default Re: Radiation for bone mets, 1 month post treatment

On Apr 12, 2:28 pm, "I.P. Freely" <fuhgheddabou...@noway.nohow> wrote:

>
> Check out lucid dreaming. We don't need no steenkin' body to play
> football, and in our head we -- and especially you -- can beat any team
> in the NFL by ourself. I'm going to be thinking of you when I reach the
> ground you're plowing.


I don't think that you, Steve K, or most others reading this will get
HERE. With all the trials, vaccines, given the progress in medicine,
something will come up long before you need it.

The trick is to do what both of you have been doing, that is, keep to
a good diet and get plenty of exercise.

The PCa might be messing with me but I'll mess with it back. I'll
bet it was surprised when Inova unleashed their laser guided Trilogy
on it. Shriveled up and died in the beam.

Pretty soon, JHU will mix up a potion that'll have the PCa gagging and
choking.

I'll swing by the grocery store for more tofu, fry it up in hot
pepper oil, wash it down with my green tea, berry juice.

-kh


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  #42  
Old 04-15-2008, 05:32 PM
I.P. Freely
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Default Re: Radiation for bone mets, 1 month post treatment

kh wrote:

> I don't think that you, Steve K, or most others reading this will get
> HERE. With all the trials, vaccines, given the progress in medicine,
> something will come up long before you need it.


Cancer pts have been hearing that for decades. I'll believe it when I
recur next year but fix it with a pill and windsurf into my '90s.

I.P.
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  #43  
Old 04-15-2008, 06:49 PM
djperry42@sbcglobal.net
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Default Re: Radiation for bone mets, 1 month post treatment

On Apr 15, 10:03*am, "I.P. Freely" <fuhgheddabou...@noway.nohow>
wrote:
>
> Cancer pts have been hearing that for decades. I'll believe it when I
> recur next year but fix it with a pill and windsurf into my '90s.
>
> I.P.


Along with the permanent moonbase by 2000, controlled fusion reactors
providing unlimited energy also by 2000, cars driving themselves
guided by radio waves beamed from cables buried in our roadways "no
later than 1970" as promised in a 1955 GM Autorama auto show. Many,
if not all, of the rosy predictions in medicine come from those
applying for grants to continue their research. No money for the sour
apples.
Dave Perry

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  #44  
Old 04-16-2008, 03:37 AM
Dave Head
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Default Re: Radiation for bone mets, 1 month post treatment

On Tue, 15 Apr 2008 11:09:33 -0700 (PDT), djperry42@sbcglobal.net wrote:

>On Apr 15, 10:03*am, "I.P. Freely" <fuhgheddabou...@noway.nohow>
>wrote:
>>
>> Cancer pts have been hearing that for decades. I'll believe it when I
>> recur next year but fix it with a pill and windsurf into my '90s.
>>
>> I.P.

>
>Along with the permanent moonbase by 2000, controlled fusion reactors
>providing unlimited energy also by 2000, cars driving themselves
>guided by radio waves beamed from cables buried in our roadways "no
>later than 1970" as promised in a 1955 GM Autorama auto show. Many,
>if not all, of the rosy predictions in medicine come from those
>applying for grants to continue their research. No money for the sour
>apples.
>Dave Perry


Maybe this is the real thing:

http://www.wired.com/medtech/health/...anzius_therapy

or more snake oil...
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  #45  
Old 04-16-2008, 10:44 AM
kh
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Default Re: Radiation for bone mets, 1 month post treatment

On Apr 15, 1:03 pm, "I.P. Freely" <fuhgheddabou...@noway.nohow> wrote:


> Cancer pts have been hearing that for decades. I'll believe it when I
> recur next year but fix it with a pill and windsurf into my '90s.


There are certainly overly optimistic predictions as well as out right
frauds. That comes with this territory.

The story does include vague predictions that something will come up
in the next ten or twenty years

Treatments that are available today such as radiation from a Varian
Trilogy, ADT, and taxotere offer us relief and years of life. This is
not a guarantee but it is a good bet.

Those treatments may give us 2, 3, or 4 years of quality life (more in
some cases). That time takes us to GVAX, PROVENGE, IL-6 antigen (CNTO)
or other treatment currently in clinical trial.

None of these are guaranteed cures either, but we are fighting for
each year.

All I'm saying is that I expect we'll win this fight.

-kh WE will win. WE.
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  #46  
Old 04-17-2008, 01:35 AM
Steve Kramer
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Default Re: Radiation for bone mets, 1 month post treatment

"kh" <tchtic@yahoo.com> wrote in message
news:86b35563-d5f1-4007-b3e0-db039e58c4f7@y21g2000hsf.googlegroups.com...

> I don't think that you, Steve K, or most others reading this will get
> HERE.


I think you're right about I.P. I hope you're right about me. But, my RT
failure was 2003. Based on current stats, I should be pushing up daisies by
2009. Admittedly, I haven't gone refractive yet, so I should have at least
two more years, but that's only 2010. By all accounts, I need to make it to
2013 to get the new ADT and that's conservative. Can I stretch it out
another three years? I very well might come up one short.


--
PSA 16 10/17/2000 @ 46
Biopsy 11/01/2000 G7 (3+4), T2c
RRP 12/15/2000 G7 (3+4), T3cN0M0 Neg margins
PSA <.1 <.1 <.1 .27 .37 .75 PSAD 0.19 years
EBRT 05-07/2002 @ 47
PSA .34 .22 .15 .21 .32 PSAD .056 years
Lupron 07/03 (1 mo) 8/03 and every 4 months there after
PSA .07 .05 .06 .09 .08 .132 .145 PSAD 1.4 years
Casodex added daily 07/06
PSA <0.04, <0.05, <0.04, <0.04, <0.1 2/12/08
Non Illegitimi Carborundum


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  #47  
Old 04-17-2008, 01:35 AM
Steve Kramer
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Default Re: Radiation for bone mets, 1 month post treatment

<djperry42@sbcglobal.net> wrote in message
news:6229d97c-43b4-4171-85ee-fbb9c7b8ffd0@a9g2000prl.googlegroups.com...
On Apr 15, 10:03 am, "I.P. Freely" <fuhgheddabou...@noway.nohow>
wrote:
>
> Cancer pts have been hearing that for decades. I'll believe it when I
> recur next year but fix it with a pill and windsurf into my '90s.
>
> I.P.


Along with the permanent moonbase by 2000, controlled fusion reactors
providing unlimited energy also by 2000, cars driving themselves
guided by radio waves beamed from cables buried in our roadways "no
later than 1970" as promised in a 1955 GM Autorama auto show. Many,
if not all, of the rosy predictions in medicine come from those
applying for grants to continue their research. No money for the sour
apples.
Dave Perry


In 1955 IBM predicted no more than 15 computers would ever be needed
worldwide. Sometimes people are wrong.


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  #48  
Old 04-17-2008, 12:52 PM
kh
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Posts: n/a
Default Re: Radiation for bone mets, 1 month post treatment

On Apr 16, 9:07 pm, "Steve Kramer" <skra...@cinci.rr.com> wrote:

> Admittedly, I haven't gone refractive yet, so I should have at least
> two more years, but that's only 2010. By all accounts, I need to make it to
> 2013 to get the new ADT and that's conservative.



JHU tells me they have many tricks in their bag now and more on the
way.

I went refractive LAST fall and this January bone mets decided to
show me who's boss. Well, between my primary care doc, Inova, and
JHU, we've got me walking and climbing stairs again.

Where you are, it's a matter of tracking your PSA, keeping your
insurance current, and working with your docs.

Keep watch, be ready to whack it down if it gets uppity.

-kh betting you'll be collecting stats in 2020.







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  #49  
Old 04-17-2008, 01:18 PM
I.P. Freely
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Default Re: Radiation for bone mets, 1 month post treatment

kh wrote:
> be ready to whack it down if it gets uppity.


Well, now, which is it? Are we supposed to whack it UP in the hopes it
WILL get "uppity", or whack it down if it DOES get uppity? I'm confused.

I.P.
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  #50  
Old 04-17-2008, 10:45 PM
kh
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Posts: n/a
Default Re: Radiation for bone mets, 1 month post treatment

On Apr 17, 8:59 am, "I.P. Freely" <fuhgheddabou...@noway.nohow> wrote:

> Well, now, which is it? Are we supposed to whack it UP in the hopes it
> WILL get "uppity", or whack it down if it DOES get uppity? I'm confused.


Yes, it depends on the meaning of "It".

I was referring to PSA but I did have a dream last night that involved
a comely older woman.

-kh ... then I woke up .... -sigh-

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  #51  
Old 05-08-2008, 12:19 AM
kh
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Posts: n/a
Default Re: Radiation for bone mets, 7 weeks post treatment


I'm doing a lot better. My back is still stiff. I've tried to touch
my toes. I can get about 6 inches away.

The strength in my legs is returning. The decadron had taken my muscle
tone. I'm getting it back slowly. I can walk a mile and have
started climbing stairs.

My stomach is still slightly sour but with the Zantac-150, it feels
almost normal.

I have a dark patch on my back. Radiation sun-burn. It doesn't hurt
like a regular sun burn, Inova says it will fade over 6 to 9 months.

I've started doing extra work for my job. Not as much as I did a few
years ago but more than a full day.

I'm feeling almost normal. This is the best I've felt in 4 or 5
months. I'm still taking a little narcotic pain killer and 5 mg of
pregnisone 2X day. I plan to stop the pain killer this weekend.

-kh






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  #52  
Old 05-08-2008, 12:19 AM
Steve Kramer
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Default Re: Radiation for bone mets, 7 weeks post treatment

"kh" <tchtic@yahoo.com> wrote in message
news:dab60c23-f9d6-4f8d-89de-78af3c02de60@p25g2000hsf.googlegroups.com...
>
> I'm doing a lot better. My back is still stiff. I've tried to touch
> my toes. I can get about 6 inches away.
>
> The strength in my legs is returning. The decadron had taken my muscle
> tone. I'm getting it back slowly. I can walk a mile and have
> started climbing stairs.
>
> My stomach is still slightly sour but with the Zantac-150, it feels
> almost normal.
>
> I have a dark patch on my back. Radiation sun-burn. It doesn't hurt
> like a regular sun burn, Inova says it will fade over 6 to 9 months.
>
> I've started doing extra work for my job. Not as much as I did a few
> years ago but more than a full day.
>
> I'm feeling almost normal. This is the best I've felt in 4 or 5
> months. I'm still taking a little narcotic pain killer and 5 mg of
> pregnisone 2X day. I plan to stop the pain killer this weekend.
>
> -kh
>

All great news, kh.



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  #53  
Old 05-09-2008, 12:16 PM
MikeHi@anon.co.uk
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Default Re: Radiation for bone mets, 7 weeks post treatment


>"kh" <tchtic@yahoo.com> wrote in message
>news:dab60c23-f9d6-4f8d-89de-78af3c02de60@p25g2000hsf.googlegroups.com...
>>
>> I'm doing a lot better. My back is still stiff. I've tried to touch
>> my toes. I can get about 6 inches away.
>>
>> The strength in my legs is returning. The decadron had taken my muscle
>> tone. I'm getting it back slowly. I can walk a mile and have
>> started climbing stairs.
>>
>> My stomach is still slightly sour but with the Zantac-150, it feels
>> almost normal.
>>
>> I have a dark patch on my back. Radiation sun-burn. It doesn't hurt
>> like a regular sun burn, Inova says it will fade over 6 to 9 months.
>>
>> I've started doing extra work for my job. Not as much as I did a few
>> years ago but more than a full day.
>>
>> I'm feeling almost normal. This is the best I've felt in 4 or 5
>> months. I'm still taking a little narcotic pain killer and 5 mg of
>> pregnisone 2X day. I plan to stop the pain killer this weekend.
>>
>> -kh
>>

>All great news, kh.


Hi kh
I can't believe I'm reading this, not least:

>> I've started doing extra work for my job. Not as much as I did a few
>> years ago but more than a full day.


kh You make Phoenix arising look like a rank amateur. I don't put it
down to your drugs at all, rather to your ice cream. I used to take
some guiltily every night because I enjoy it - now I take it happily
for my health. Dunno if I'll be able to copy your indomitable
will-power though - no small thing in our treatment.

Wonderful news kh, and I know there'll be more to come.

My very kind regards
MikeHi
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  #54  
Old 05-10-2008, 12:01 AM
kh
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Default Re: Radiation for bone mets, 7 weeks post treatment

On May 9, 3:45 am, Mik...@anon.co.uk wrote:

> will-power though - no small thing in our treatment.


I don't think it's that, although I can be a butt-head.

I think it's 2 things, one is not really having other options. What
can I do but muddle through?

The other is, something that I.P. alludes to. We're men. You take
some woman who's been coddled and cared for all her life, lay hot
flashes, joint pain, whatever on her. It's not something she's used
to. She complains and rightfully so, waking up at night in a sweat,
joint pain like a knife, would bother anyone.

Well, maybe. Suppose I told you, hey Mike, lets shoot some hoops,
sure it's 90 degrees and humid but I got $100 that says my bro's can
take yours. Loser buys for everyone. That's snacks, brews,
whatever the guys want. You in?

You'd round up your best guys and come at us hard.

Maybe someone would have a knee scrape. Everyone would be dripping
sweat, dirty, and aching the next day. Rounds of drinks, pass over
those Frito-lays. We call that, having a good time.

As long as it doesn't involve a trip to the ER or setting bones, your
guys would be bugging you, hey, when can we do it again?

-kh
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  #55  
Old 05-11-2008, 12:33 PM
mikehi@anon.com
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Default Re: Radiation for bone mets, 7 weeks post treatment

On Fri, 9 May 2008 15:37:07 -0700 (PDT), kh <tchtic@yahoo.com> wrote:

>On May 9, 3:45 am, Mik...@anon.co.uk wrote:
>
>> will-power though - no small thing in our treatment.

>


kh replied:
>I don't think it's that, although I can be a butt-head.
>
>I think it's 2 things, one is not really having other options. What
>can I do but muddle through?
>
>The other is, something that I.P. alludes to. We're men. You take
>some woman who's been coddled and cared for all her life, lay hot
>flashes, joint pain, whatever on her. It's not something she's used
>to. She complains and rightfully so, waking up at night in a sweat,
>joint pain like a knife, would bother anyone.
>
>Well, maybe. Suppose I told you, hey Mike, lets shoot some hoops,
>sure it's 90 degrees and humid but I got $100 that says my bro's can
>take yours. Loser buys for everyone. That's snacks, brews,
>whatever the guys want. You in?
>
>You'd round up your best guys and come at us hard.
>
>Maybe someone would have a knee scrape. Everyone would be dripping
>sweat, dirty, and aching the next day. Rounds of drinks, pass over
>those Frito-lays. We call that, having a good time.
>
>As long as it doesn't involve a trip to the ER or setting bones, your
>guys would be bugging you, hey, when can we do it again?
>
>-kh


Hi kh

No way I'm going to lose $100 that easy! Up against you? Nahh. Not me.
You're an original kh. You're a tough guy - and you've always found
others - to follow, I'll bet. But there's something else to tough.
There's moral courage. Or call it bloody-minded will power; or what
you will. That makes tough. Your mates throwing the hoops might have
it; or not. You've got it, butt-head. Undoubtedly. Other guys have
got it here - advising other, never mentioning except as an oh- by-
the- way, stuff they're going and been through. Whatever, kh let's
keep hearing from you, I never miss it especially if i think I'm
feeling a bit 'poorly', oh dear me!
Viva!!

MikeHi

P.S. We ain't got no Frito-lays this side of pond..
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  #56  
Old 05-11-2008, 12:33 PM
kh
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Default Re: Radiation for bone mets, 7 weeks post treatment

On May 11, 5:43 am, mik...@anon.com wrote:

>... You've got it, butt-head. Undoubtedly. Other guys have
> got it here - advising other, never mentioning except as an oh- by-
> the- way, stuff they're going and been through. Whatever, kh let's
> keep hearing from you, I never miss it especially if i think I'm
> feeling a bit 'poorly', oh dear me!
> Viva!!
>
> MikeHi
>
> P.S. We ain't got no Frito-lays this side of pond..


No Frito-Lays? Can that be?

Type "Frito-Lays" into google. I found this thread:

*************************************
Curry Flavored Potato Chips

by Steve
3/09/2006 06:34:00 PM

Lay's Curry Flavored Potato Chips
Frito-Lay Canada offering new Frito Lay Potato Chips in new flavors.

Curry (pictured) and Wasabi are the new flavors, and are offered in
Toronto and Vancouver only. The company is making an effort to sell
more potato chips to Asian consumers.

Also, notice the small cartoon graphic of a happy face at the upper-
left corner of the bag. This only seems to appear on the Curry and
Wasabi flavors. At first it looked like the Maruchan symbol, but it's
not. I don't recognize it as anyone else's brand. Anyone else know?

Frito Lay's Shrimp Chips is also expected later on.

28 Comments:

good god what a splendid taste idea!!! just wash down with
several gallons of cold lager and you're away!

WOW!!!!! , I tried these for the fist time while visiting Toronto from
Los Angeles for a wedding .discovered this blog while searching for a
retailer here in the LA area "Listen up Lays I want My Curry Chips".
And i want them now pls pls.

We went to see the Festival of lights in Vancouver, where the host had
a bag of these curry chips. Sweet baby Jebus they were killer! We all
went and bought a store out of them on our way back to the states.

If they stop making Curry chips, I will go to their headquarters and
kill myself on their front steps.

They make my otherwise miserable life worth living. All hail Curry
chips!!

But seriously, folks, these are truly the best chips I've ever had,
and I am quite paranoid that they're going to stop making them. I
figure that it's not likely to become popular . . .

**************************************

High fat, high carbs, high salt. What's not to like?

There is no way that I could play sports today. Walking for 10 minutes
causes me to breath hard. I can climb 3 flights of stairs. I can get
out of a chair without using my arms. I could not do any of this 2
months ago.

Here're more accomplishments. I slept through last night. That's 9:00
PM to 5:00 AM. About 1:00 AM I did get up, thought about going to pee
but didn't.

I woke up 100% dry this morning. I usually am dry but occasionally
there is a little "moisture" or slight "dampness". It's not enough
that I use pads but I don't sleep "commando" as a precaution.

The real accomplishment was that I last took Oxycodone Friday night.
I've been off the narcotic pain meds for a day and a half.

In my mind, getting off painkillers, working a full day, sleeping
through the night, climbing 3 flights of stairs is "like" playing
aggressive sports. It's a push but it's what us guys do.

A few months ago, when the PCa had my back in vise-grips, I suddenly
realized what I.P.'s reports of his windsurfing, gym, weight lifting,
really meant to me.

It was all about pushing myself a little more, not to destruction but
to dip into the pain and initiate the rebuilding and strengthening.

I don't know how far down the chemo will push me but I'll be pushing
back.

I don't have a choice.

-kh


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  #57  
Old 05-11-2008, 09:20 PM
Heather
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Posts: n/a
Default OT...was Radiation for bone mets, 7 weeks post treatment


"kh" <tchtic@yahoo.com> wrote in message
news:464dbcc8-8c23-45bb-a48c-3c0704ea818a@8g2000hse.googlegroups.com...
> On May 11, 5:43 am, mik...@anon.com wrote:
>
>> MikeHi
>>
>> P.S. We ain't got no Frito-lays this side of pond..

>
> No Frito-Lays? Can that be?
>
> Type "Frito-Lays" into google. I found this thread:
>
> *************************************
> Curry Flavored Potato Chips
>
> by Steve
> 3/09/2006 06:34:00 PM
>
> Lay's Curry Flavored Potato Chips
> Frito-Lay Canada offering new Frito Lay Potato Chips in new flavors.
>
> Curry (pictured) and Wasabi are the new flavors, and are offered in
> Toronto and Vancouver only. The company is making an effort to sell
> more potato chips to Asian consumers.


Yuck, gross!! Only in Canada, eh? Well, in case you didn't notice when
you were up here for that wedding, those two cities have the largest
East Indian population, hence the curry flavour. Also the largest
Chinese populations as well.

Btw....you will confuse the hell out of UK Mike.....over there potato
chips are called *crisps*. Brit Chips are those ones that go with your
hamburger (called French Fries in the US). Up here they are just chips
and fries respectively. The wonders of speaking English, grin. Of
course, ours is culled from both.....ergo, it is the best. 8-))

Heather
>



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  #58  
Old 05-12-2008, 06:58 PM
mikehi@anon.com
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Posts: n/a
Default Re: OT...was Radiation for bone mets, 7 weeks post treatment

On Sun, 11 May 2008 14:23:07 -0400, "Heather" <no.one@home.invalid>
wrote:

>
>"kh" <tchtic@yahoo.com> wrote in message
>news:464dbcc8-8c23-45bb-a48c-3c0704ea818a@8g2000hse.googlegroups.com...
>> On May 11, 5:43 am, mik...@anon.com wrote:
>>
>>> MikeHi wrote:
>>>
>>> P.S. We ain't got no Frito-lays this side of pond..


kh replied:
>>
>> No Frito-Lays? Can that be?
>>
>> Type "Frito-Lays" into google. I found this thread:
>>
>> *************************************
>> Curry Flavored Potato Chips
>>
>> by Steve
>> 3/09/2006 06:34:00 PM
>>
>> Lay's Curry Flavored Potato Chips
>> Frito-Lay Canada offering new Frito Lay Potato Chips in new flavors.
>>
>> Curry (pictured) and Wasabi are the new flavors, and are offered in
>> Toronto and Vancouver only. The company is making an effort to sell
>> more potato chips to Asian consumers.

>

Heather wrote:
>Yuck, gross!! Only in Canada, eh? Well, in case you didn't notice when
>you were up here for that wedding, those two cities have the largest
>East Indian population, hence the curry flavour. Also the largest
>Chinese populations as well.
>
>Btw....you will confuse the hell out of UK Mike.....over there potato
>chips are called *crisps*. Brit Chips are those ones that go with your
>hamburger (called French Fries in the US). Up here they are just chips
>and fries respectively. The wonders of speaking English, grin. Of
>course, ours is culled from both.....ergo, it is the best. 8-))
>
>Heather
>>

>

Ah! so they don't have to grow the curry inside the potato....Phew, I
can sleep now. The best chips are made by the Belgians. That's why
the French call Belgians 'les pommes frites". But no 'Yucks and
'gross' to kh's prized Frito-Lays, if you don't mind Heather. Agreed
they might sound a bit that way, but the part they play in keeping the
ng's standard bearer flying the flag high. brooks no cissy turning up
of noses!

Best of best wishes to all especially Frito-Lay eaters.

MikeHi
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