For HF and more generally on PODS

HF wrote: /Big snip)

> When PSA reaches 0.4 I am to receive a
>> >combination ADT (Eligard) and Chemo (Taxotere). I have been wondering
>> >if I ought to proceed with this "doubly whammy" at that point - or
>> >not...............

MikeHi wroteMore snips)...:

>> May we also know please what was your PSA pre-op - and any side
>> effects at all in the 14 months? I'm a poor student compared to many
>> on this ng but I can't quite understand why you're going on ADT AND
>> chemo when you haven't had (it would appear from the low present
>> figure) *a PSA relapse?
>>
HF replied: - with my comments:
>Mike: PSA pre op:
>7/21/2006 6.000
>1/16/2007 10.240
>3/6/2007 12.400
>3/12/2007 13.100

>Side effects: tiredness, depression, incontinence (now 3 pads/24hrs),
>ED, spent last night in ER with lots of blood in urine - they say
>bladder infection - can't tell whether it is a side effect or not -
>Urologist appointment in next few days.

Best of luck sorting those HF.
>
>I will not start the treatment until I have PSA relapse.

I've got it, 13 now - but still waiting.Will explain later as part of
my record.

>The stack of
>papers I have read seem to suggest that hitting the PCa early may be a
>better option. One paper, also, is very intriguing (though it is only
>a small sample) in suggesting that chemotherapy PRECEEDING hormone
>therapy or coincidental with hormonal therapy is superior.

HF at this stage in your thinking have a listen to the pods at :
http://www.researchtopractice.net/podcast/feed/PCU.xml
An invaluable resource unimageinable only a year or so ago. I have
found them remarkable, a patient listening in to leading specialists
discussing in great depth how we could be treated.
'Treatment of PSA-Only' disease dated 26/11-07 I think is relevant to
you -and me - and the paper you quote. I often get lost in these
expert - and often fiercely disputed - discussions but valuable
information I'm sure has been sinking in to my sub-conscious for
further consideration.

>/snip snip....
>Of course, by the time I have progression there may be more attractive
>options. My doctor is involved in bringing a vaccine therapy trial
>online which I am anxious to look at.

I'm keeping beady eyes in those directions too. Lipitor + Celebrex as
good as ADT?? At present only the mice know, but...I hold that the
rate of research - genes and all - is exponential. Five years time
totally diferent discussions. Seven years silver bullet? Ten years for
sure.
You can quote me, source: MikeWho?
>
>Best wishes to everyone. My prayer going into RP was "Lord: help my
>docotors know more today than the knew yesterday."

They do HF. So my prayer would be: "Let them all agree for once."
Five years?
>
>By the way - I am starting to come out of the depression a bit - which
>has - in a way - been the toughest part of the entire ordeal for me.

You've got lots of good friends here HF all pulling for you and I'm
sure you're at an age where with your current PSA readings you'll one
day find you're sailing in much calmer seas. Stay undepressed, all
will be well.

Kind regards

Best wishes to all
MikeHi

snip
>
>

> >The stack of
> >papers I have read seem to suggest that hitting the PCa early may be a
> >better option. One paper, also, is very intriguing (though it is only
> >a small sample) in suggesting that chemotherapy PRECEEDING hormone
> >therapy or coincidental with hormonal therapy is superior.
>
> HF at this stage in your thinking have a listen to the pods at :http://www..researchtopractice.net/podcast/feed/PCU.xml
> An invaluable resource unimageinable only a year or so ago. I have
> found them remarkable, *a patient listening in to leading specialists
> discussing in great depth how we could be treated.
> 'Treatment of PSA-Only' disease dated 26/11-07 I think is relevant to
> you -and me - and the paper you quote. I often get lost in these
> expert - and often fiercely disputed - discussions but valuable
> information I'm sure has been sinking in to my sub-conscious for
> further consideration.
> > rate of research - genes and all - *is exponential. Five years time
> totally diferent discussions. Seven years silver bullet? Ten years for
> sure.
> You can quote me, source: MikeWho?
>
>
snip
>
> Kind regards
>
> Best wishes to all
> MikeHi

Mike I tried the pods and could not get audio to work - I did read
the .pdf excerpts and found it helpful - great resource to know
about..........(Maybe I am just too computer illiterate!)

On Mon, 19 May 2008 17:22:18 -0700 (PDT), H F <pete@gtek.biz> wrote:

..
>Mike I tried the pods and could not get audio to work - I did read
>the .pdf excerpts and found it helpful - great resource to know
>about..........(Maybe I am just too computer illiterate!)

Pete:
Much more fun to listen! You hear the strength of their convictions
and disputes - and agreements. Worth getting hold of a friend who's a
bit computer savvy because I'm sure there will be a simple solution to
the listening problem - that's what I find when I wheel my son in who
finds the clicks I missed.( I'm worse - semi computer- literate - I
use Agent and can't get rid of the '@anon' bit in my 'From', however
many hundreds of time i try). I still don't understand how after
decades of desktop computing the stuff's never got simpler to use.
Simply got more whizz-bangs many never use.

Apologies to all btw for double header to this post.

Kind regards

best wishes to all.
Your semi computer-literate
MikeHi

PS went to hospital this morning for three scans - urgent - I turned
up bright and breezy, they looked at my form and uttered: "You're at
the wrong hospitaL" Arrrrghhh....etc. Now scans weeks away. Thank
goodness you're there Pete, a shoulder to blab on.....Don't
worry...I'll be better when I've taken the pills ...(stifled screams,
obscenities etc) Semi-working up top too.

On May 20, 7:26�am, mik...@anon.com wrote:
> On Mon, 19 May 2008 17:22:18 -0700 (PDT), H F <p...@gtek.biz> wrote:
>
> .
>
> >Mike I tried the pods and could not get audio to work - I did read
> >the .pdf excerpts and found it helpful - great resource to know
> >about..........(Maybe I am just too computer illiterate!)
>
> Pete:
> Much more fun to listen! You hear the strength of their convictions
> and disputes - and agreements. Worth getting hold of a friend who's a
> bit computer savvy because I'm sure there will be a simple solution to
> the listening problem - that's what I find when I wheel my son in who
> finds the clicks I missed.( I'm worse - semi computer- literate - � I
> use Agent and can't get rid of the '@anon' bit in my 'From', however
> many hundreds of time i try). I still don't understand how after
> decades of desktop computing the stuff's never got simpler to use.
> Simply got more whizz-bangs many never use.
>
> Apologies to all btw for double header to this post.
>
> Kind regards
>
> best wishes to all.
> Your semi computer-literate
> MikeHi
>
> PS went to hospital this morning for three scans - urgent �- I turned
> up bright and breezy, they looked at my form and uttered: "You're at
> the wrong hospitaL" �Arrrrghhh....etc. Now scans weeks away. �Thank
> goodness you're there Pete, �a shoulder to blab on.....Don't
> worry...I'll be better when I've taken the pills ...(stifled screams,
> obscenities etc) Semi-working up top too.

I looked for the web addresses in that link and copied and pasted them
into my browser and they worked fine.
Here are three I listened to:
http://www.researchtopractice.net/podcast/feed/PCU.xml

http://www.researchtopractice.com/po...esHormTher.mp3

http://www.researchtopractice.net/po...3_Zelefsky.mp3

On Tue, 20 May 2008 12:26:59 +0100, mikehi@anon.com wrote:


>I use Agent and can't get rid of the '@anon' bit in my 'From', however
>many hundreds of time i try.

Hi Mike!

I use Agent 4.2. At least on this version you should do the following:
Tools / Options / Posting Messages / Personas - choose yours / Edit


All the best.

Just

snip
> PS went to hospital this morning for three scans - urgent *- I turned
> up bright and breezy, they looked at my form and uttered: "You're at
> the wrong hospitaL" *Arrrrghhh....etc. Now scans weeks away. *Thank
> goodness you're there Pete, *a shoulder to blab on.....Don't
> worry...I'll be better when I've taken the pills ...(stifled screams,
> obscenities etc) Semi-working up top too.

Well Mike - I do happen to have good shoulders.........that is just
the pits about your scans.......isn't it frustrating to run up against
getting the runaround with inaccurate info and instructions?

I tried to listen to the podcast again - turns out that a) I was not
patient enough (patience is not one of my strong suits) b) I needed to
download a software update. Thanks for making me stick with it.

My responses to posts may become a little more erattic - On Friday
morning we are embarking on a 31/2 week road trip. We will be spending
our 45th wedding anniversary at the Smoky Mountain National Park. I
will be able to check E-mail, however, with a few interruptions.

Please let me know the results of your scans when you have the
reports.

On Tue, 20 May 2008 11:08:35 -0700 (PDT), H F <pete@gtek.biz> wrote:

>snip
>> PS went to hospital this morning for three scans - urgent *- I turned
>> up bright and breezy, they looked at my form and uttered: "You're at
>> the wrong hospitaL" *Arrrrghhh....etc. Now scans weeks away. *Thank
>> goodness you're there Pete, *a shoulder to blab on.....Don't
>> worry...I'll be better when I've taken the pills ...(stifled screams,
>> obscenities etc) Semi-working up top too.
>
>Well Mike - I do happen to have good shoulders.........that is just
>the pits about your scans.......isn't it frustrating to run up against
>getting the runaround with inaccurate info and instructions?
>
>I tried to listen to the podcast again - turns out that a) I was not
>patient enough (patience is not one of my strong suits) b) I needed to
>download a software update. Thanks for making me stick with it.
>
>My responses to posts may become a little more erattic - On Friday
>morning we are embarking on a 31/2 week road trip. We will be spending
>our 45th wedding anniversary at the Smoky Mountain National Park. I
>will be able to check E-mail, however, with a few interruptions.
>
>Please let me know the results of your scans when you have the
>reports.

That's very kind of you HF - but they were scans for something
different from my Pca so not for this ng - was just getting my
frustration out and btw it was my fault - I hadn't read the small
print well enough and just went to the hospital I normally attended.
But that only made it more... 'Arrrrgghhhh'!
Stay away from your emails is my suggestion and enjoy your anniversary
and Smoky Mountain to the full.
Good about the podcasts (I have same impatience problem with computers
-which is why I posted two of the same headers for this thread!)

To Just:
Many thanks for taking the time for Agent advice. (I've got same
version) Yup. I do all that. Lots of times!I can't get the
instructions for the boxes to line up. However, as Winnie said to his
old school, ""Never, never, never, never give up." One bright day
'Anon' will disappear into its black hole. Thanks again.

On Mon, 19 May 2008 11:38:15 +0100, mikehi@anon.com wrote:


>HF at this stage in your thinking have a listen to the pods at :
>http://www.researchtopractice.net/podcast/feed/PCU.xml
>An invaluable resource unimageinable only a year or so ago. I have
>found them remarkable, a patient listening in to leading specialists
>discussing in great depth how we could be treated.
>'Treatment of PSA-Only' disease dated 26/11-07 I think is relevant to
>you -and me - and the paper you quote. I often get lost in these
>expert - and often fiercely disputed - discussions but valuable
>information I'm sure has been sinking in to my sub-conscious for
>further consideration.

>Best wishes to all
>MikeHi


Just listened to the interview with Scardino.

This podcast is a great source of information. Thanks for the link.

Just

On Tue, 20 May 2008 20:12:09 +0100, mikehi@anon.com wrote:


>To Just:
>Many thanks for taking the time for Agent advice. (I've got same
>version) Yup. I do all that. Lots of times!I can't get the
>instructions for the boxes to line up. However, as Winnie said to his
>old school, ""Never, never, never, never give up." One bright day
>'Anon' will disappear into its black hole. Thanks again.


Well... I changed my persona to here@anon.com following the
instructions I sent you.

Let's see if it comes out that way.

Just

On Tue, 20 May 2008 20:19:40 +0100, Just <here@there.there.there.com>
wrote:

>On Mon, 19 May 2008 11:38:15 +0100, mikehi@anon.com wrote:
>
>
>>HF at this stage in your thinking have a listen to the pods at :
>>http://www.researchtopractice.net/podcast/feed/PCU.xml
>>An invaluable resource unimageinable only a year or so ago. I have
>>found them remarkable, a patient listening in to leading specialists
>>discussing in great depth how we could be treated.
>>'Treatment of PSA-Only' disease dated 26/11-07 I think is relevant to
>>you -and me - and the paper you quote. I often get lost in these
>>expert - and often fiercely disputed - discussions but valuable
>>information I'm sure has been sinking in to my sub-conscious for
>>further consideration.
>
>>Best wishes to all
>>MikeHi
>
>
>Just listened to the interview with Scardino.
>
>This podcast is a great source of information. Thanks for the link.
>
>Just

Just
Great you're finding it valuable. Each podcast I find pure theatre as
well as info not available anywhere else i know of for patients.

reAgent. Don't want you to be frustrated by my lack of savvy. But I
think I'm doing it right. I only fill in two boxes. My persona as
MikeHi. And my address as MikeHi@anon.com. As the latter is being
tagged on to my persona when i post, I try to delete it. I am then
told there must be an address. And sure enough when I go to Post, that
format shows my persona as MikeHi but the box from 'From' is not
MikeHi but the dreaded ..MikeHi@anon.com. There MUST be a simple
solution -everybody else -including you have found it -
so...??????WHAT do I do??? I feel the programmers are playing an evil
game with me and enjoying it

Kind regards
Best wishes to everybody!
MikeHi

On Wed, 21 May 2008 17:55:14 +0100, mikehi@anon.com wrote:

>reAgent. Don't want you to be frustrated by my lack of savvy. But I
>think I'm doing it right. I only fill in two boxes. My persona as
>MikeHi. And my address as MikeHi@anon.com. As the latter is being
>tagged on to my persona when i post, I try to delete it. I am then
>told there must be an address. And sure enough when I go to Post, that
>format shows my persona as MikeHi but the box from 'From' is not
>MikeHi but the dreaded ..MikeHi@anon.com. There MUST be a simple
>solution -everybody else -including you have found it -

When you are told that there must be an address, why don't you write a
different / fake address and see what happens...



Just