Chemo Cloud Brain

Hi:

I am looking for information on recovery from Chemo Cloud brain.
I went through chemo once a week for 2 hours at hackensack medical
center. I do not have right now what chemo they gave me, but it was much
less than the people in chairs around me.

I had radiation 5 days a weeks also.

I had my left lung removed after all this. The surgeon took it out, but
I was told before surgery it would only be a 20% loss, instead they took
out the whole lung, surprise surprise.

I am suffering from the chemo that has stopped many months ago.
I still cannot remember simple things and walk around in circles all the
time.

Information on this Chemo cloud brain would be most helpful.

Thanks,

Bill

NAVY CORPSMAN wrote:

> I am looking for information on recovery from Chemo Cloud brain.
> I went through chemo once a week for 2 hours at hackensack medical
> center. I do not have right now what chemo they gave me, but it was much
> less than the people in chairs around me.
>
> I had radiation 5 days a weeks also.
>
> I had my left lung removed after all this. The surgeon took it out, but
> I was told before surgery it would only be a 20% loss, instead they took
> out the whole lung, surprise surprise.
>
> I am suffering from the chemo that has stopped many months ago.
> I still cannot remember simple things and walk around in circles all the
> time.
>
> Information on this Chemo cloud brain would be most helpful.

Hello Bill,
How's it going?
There was a post on sci.med.diseases.cancer that, if I recall correctly,
said it can take 3 years for the brain to recover. I've been doing some
research this week to see if some books or web pages may be of assistance,
but have been interrupted by power outages.
Hang in there while I research the matter. I don't want to waste your time
and money, if some practical tips might assist you.

For instance, this is the information age. Helps to get rid of some from our
brains. (ie put some on paper, like important dates; but keep it in a handy
place where you're sure to check daily.

Losing your keys or favorite pen?; a place for everything, everything in
it's place. (ie pick an ideal spot and always put such important things
there, after use. Then you know where to look. (tell others "hands off" -
leave your special place alone).

I think there are untapped areas of our brains that we've never trained and
perhaps a combo of behavioural changes and retraining techniques can
mitigate the problems, in the 3 year interim.

Give it a try and let us know. If you have specific problems, you care to
share; one or the other here may have tips that work for them.

Hang in there, Bill.
And best wishes for the Holiday Season.
J

"J" <ercent@anon.inv> wrote in message
news:458D3322.B697BA2A@execulink.com...
> NAVY CORPSMAN wrote:
>
>> I am looking for information on recovery from Chemo Cloud brain.
>> I went through chemo once a week for 2 hours at hackensack medical
>> center. I do not have right now what chemo they gave me, but it was much
>> less than the people in chairs around me.
>>
>> I had radiation 5 days a weeks also.
>>
>> I had my left lung removed after all this. The surgeon took it out, but
>> I was told before surgery it would only be a 20% loss, instead they took
>> out the whole lung, surprise surprise.
>>
>> I am suffering from the chemo that has stopped many months ago.
>> I still cannot remember simple things and walk around in circles all the
>> time.
>>
>> Information on this Chemo cloud brain would be most helpful.
>
> Hello Bill,
> How's it going?
> There was a post on sci.med.diseases.cancer that, if I recall correctly,
> said it can take 3 years for the brain to recover. I've been doing some
> research this week to see if some books or web pages may be of assistance,
> but have been interrupted by power outages.
> Hang in there while I research the matter. I don't want to waste your
> time
> and money, if some practical tips might assist you.
>
> For instance, this is the information age. Helps to get rid of some from
> our
> brains. (ie put some on paper, like important dates; but keep it in a
> handy
> place where you're sure to check daily.
>
> Losing your keys or favorite pen?; a place for everything, everything in
> it's place. (ie pick an ideal spot and always put such important things
> there, after use. Then you know where to look. (tell others "hands off" -
> leave your special place alone).
>
> I think there are untapped areas of our brains that we've never trained
> and
> perhaps a combo of behavioural changes and retraining techniques can
> mitigate the problems, in the 3 year interim.
>
> Give it a try and let us know. If you have specific problems, you care to
> share; one or the other here may have tips that work for them.
>
> Hang in there, Bill.
> And best wishes for the Holiday Season.
> J
And always carry a calendar you can write on to any appts. It has saved my
skin more than once.
Best to you.

Betsy

--

"Life should NOT be a journey to the grave with the
intention of arriving safely in an attractive and well
preserved body, but rather to skid in sideways, chocolate in
one hand, Starbucks in the other, totally worn out and
screaming,

"WOO HOO what a ride!"

Betsy gave some great advice

Here is the information you requested

http://news.bbc.co.uk/2/hi/health/6156961.stm

http://www.cancer.org/docroot/NWS/co...hemo-Brain.asp

http://www.msnbc.msn.com/id/15136453/


Some of the articles suggest it does go away or improve with time,

Alex

NAVY CORPSMAN schreef:
>
> I am suffering from the chemo that has stopped many months ago.
> I still cannot remember simple things and walk around in circles all
> the time.
>
> Information on this Chemo cloud brain would be most helpful.
>
> Thanks,
>
> Bill
It may go away in time, in my case it did for the most part. Don't
forget it's not only the chemo, but also all you have been through and
still go through.

Happy holidays,

Anne

In article <IvCdnTl_3dsZcOPYnZ2dnUVZ_sC3nZ2d@warpdrive.net> ,
NAVY CORPSMAN <Navy@navy.COM> wrote:

> Hi:
>
> I am looking for information on recovery from Chemo Cloud brain.
> I went through chemo once a week for 2 hours at hackensack medical
> center. I do not have right now what chemo they gave me, but it was much
> less than the people in chairs around me.
>

Doctors are just starting to admit that chemo brain is real. In my case
it did go away, but short term memory loss is still with me from Whole
Brain Radiation. It's kinda hard to tell which is which, but I think
most of my problems are from the WBR and not the chemo.

--
Dear Santa,
All I want for Chriatmas is your list of naughty girls

Bobert

With Ken, he did have some short-term memory loss, but it has returned.
I think it was him trying to adjust to the chemo after finishing
radiation.

"Bob" <null@null.null> wrote in message
news:null-5A68CC.12135024122006@newsclstr02.news.prodigy.com ...
> In article <IvCdnTl_3dsZcOPYnZ2dnUVZ_sC3nZ2d@warpdrive.net> ,
> NAVY CORPSMAN <Navy@navy.COM> wrote:
>
>> Hi:
>>
>> I am looking for information on recovery from Chemo Cloud brain.
>> I went through chemo once a week for 2 hours at hackensack medical
>> center. I do not have right now what chemo they gave me, but it was much
>> less than the people in chairs around me.
>>
>
> Doctors are just starting to admit that chemo brain is real. In my case
> it did go away, but short term memory loss is still with me from Whole
> Brain Radiation. It's kinda hard to tell which is which, but I think
> most of my problems are from the WBR and not the chemo.
>
> --
> Dear Santa,
> All I want for Chriatmas is your list of naughty girls
>
> Bobert

Bob,
I tend to agree with you on the WBR causing it. Could I also ask you, did
you have any troubles eating months afterwards? I finished mine in
September and am having an awful time with smells and food tastes. As long
as they keep me on Decadron I do fairly well. I am no longer taking it and
back to non eating. I wondered if the Keppra was causing it because I stay
nauseated also. So they are weaning me off the Keppra and I am taking
Lamictal now. Also my teeth hurt with cold foods or drinks. Have a blessed
Christmas

Angie

In article <458f187a$0$16660$4c368faf@roadrunner.com>,
"Angie" <angie@nospam.org> wrote:



Angie

> I tend to agree with you on the WBR causing it. Could I also ask you, did
> you have any troubles eating months afterwards?

Yes, but I had a "burned" esophagus that peaked about a week after RT
and then subsided slowly. Whole lot of swish and spit, and swish and
swallow going on.

>I finished mine in September and am having an awful time with smells
and food tastes.

Me too. It took weeks for me to eat chocolate, and about 4 months to get
back on coffee. For me those are 2 of the 5 food groups. The other 3
being pizza, quick and easy.

>As long
> as they keep me on Decadron I do fairly well. I am no longer taking it and
> back to non eating. I wondered if the Keppra was causing it because I stay
> nauseated also. So they are weaning me off the Keppra and I am taking
> Lamictal now.

My Doc was a little more conventional. He prescribed Compozine which
did nothing for me. I self medicated with marijuana which was better. CA
is a medical marijuana state.

>Also my teeth hurt with cold foods or drinks.

Thankfully I did not have that problem. My teeth were gone long before
I came down with cancer.

>Have a blessed Christmas

Thank you. Same to you and all your family and friends.

No, I didn't get what I asked Santa for, but got lotsa stuff. Spent the
holiday with family in San Diego (CA)

Bobert

--
Dear Santa,
All I want for Chriatmas is your list of naughty girls

Bobert