I'm Back!!

Hi guys:

I'm back after being offline for a few months.
GOOD NEWS!!
I won my Social Security Disability. I get a good check each month. Enough
to get a nice apartment for my wife and I. 900SQ Ft $367.00 HUD Pays the
ballance, Cable tv, HS internet, Phone and a bit left over each month. Plus
nearly $8.5K in back monies. In Dec I'll be traveling to see my Dad in MA.
His health isn't so good. It may be the last time we see each other. This
will be my Christmas Preasent to him.

On the cancer outlook. Aug 8th 2006 had 75% of my liver removed due to
cancer spread. and now I have cancer in my lymph nodes around the aorta
under my intestines and a spot behind my bladder. Doing another chemo not as
rough as florfox.
1 2 hr trip a week for 4 weeks with 2 weeks off doing this for 6 seccesions.
My dr. (A better one) thinks I can beat this.

More news latter it's late 2:01AM I have chemo later today.

Frank

Francis Sharkey wrote:

> I'm back after being offline for a few months.
> GOOD NEWS!!
> I won my Social Security Disability. I get a good check each month. Enough
> to get a nice apartment for my wife and I. 900SQ Ft $367.00 HUD Pays the
> ballance, Cable tv, HS internet, Phone and a bit left over each month. Plus
> nearly $8.5K in back monies. In Dec I'll be traveling to see my Dad in MA.
> His health isn't so good. It may be the last time we see each other. This
> will be my Christmas Preasent to him.
>
> On the cancer outlook. Aug 8th 2006 had 75% of my liver removed due to
> cancer spread. and now I have cancer in my lymph nodes around the aorta
> under my intestines and a spot behind my bladder. Doing another chemo not as
> rough as florfox.
> 1 2 hr trip a week for 4 weeks with 2 weeks off doing this for 6 seccesions.
> My dr. (A better one) thinks I can beat this.
>
> More news latter it's late 2:01AM I have chemo later today.
>
> Frank

Hallelujah! SSD came through for you.
It's so good to have you back, Frank.
Good luck with the new chemo.
Keep in touch and take care, Frank.
J

Francis Sharkey wrote:
> Hi guys:
>
> I'm back after being offline for a few months.
> GOOD NEWS!!
> I won my Social Security Disability. I get a good check each month.
> Enough to get a nice apartment for my wife and I. 900SQ Ft $367.00
> HUD Pays the ballance, Cable tv, HS internet, Phone and a bit left
> over each month. Plus nearly $8.5K in back monies. In Dec I'll be
> traveling to see my Dad in MA. His health isn't so good. It may be
> the last time we see each other. This will be my Christmas Preasent
> to him.
>
> On the cancer outlook. Aug 8th 2006 had 75% of my liver removed due to
> cancer spread. and now I have cancer in my lymph nodes around the
> aorta under my intestines and a spot behind my bladder. Doing another
> chemo not as rough as florfox.
> 1 2 hr trip a week for 4 weeks with 2 weeks off doing this for 6
> seccesions. My dr. (A better one) thinks I can beat this.
>
> More news latter it's late 2:01AM I have chemo later today.
>
> Frank

I'm going to SSD today. I hope I can share happiness with you! (Gosh, do
we need a break!)Congratulations on yours.

I'm still waiting on a surgery date and my mass is growing. Good luck to
you, Frank!

kili
--
http://www.caringbridge.org/visit/kilikini

Francis Sharkey wrote:
> Hi guys:
>
> I'm back after being offline for a few months.
> GOOD NEWS!!
> I won my Social Security Disability. I get a good check each month. Enough
> to get a nice apartment for my wife and I. 900SQ Ft $367.00 HUD Pays the
> ballance, Cable tv, HS internet, Phone and a bit left over each month. Plus
> nearly $8.5K in back monies. In Dec I'll be traveling to see my Dad in MA.
> His health isn't so good. It may be the last time we see each other. This
> will be my Christmas Preasent to him.
>
> On the cancer outlook. Aug 8th 2006 had 75% of my liver removed due to
> cancer spread. and now I have cancer in my lymph nodes around the aorta
> under my intestines and a spot behind my bladder. Doing another chemo not as
> rough as florfox.
> 1 2 hr trip a week for 4 weeks with 2 weeks off doing this for 6 seccesions.
> My dr. (A better one) thinks I can beat this.
>
> More news latter it's late 2:01AM I have chemo later today.
>
> Frank
>
>
>
Good news, Frank. My DH and his attorney fought with Social Security for
6 years before he got his award last October. We had to change venues
from Texas and give one of the kid's addresses in New Jersey. The NJ
judge had awarded it before we even came into the court room. It seems
that the Texas judge was very prejudiced against "Yankees". Even though
we had been Texas residents for years, all he saw was that DH taught in NYC.

I hope all goes well with your new chemo therapy. I'll keep you in my
prayers.

--
Janet Wilder
Bad spelling. Bad punctuation
Good Friends. Good Life

kilikini wrote:

> I'm going to SSD today. I hope I can share happiness with you! (Gosh, do
> we need a break!)Congratulations on yours.
>
> I'm still waiting on a surgery date and my mass is growing. Good luck to
> you, Frank!
>
> kili
> --
> http://www.caringbridge.org/visit/kilikini

Hey, hey, Look who's back here.

You've sure got enough on your plate (I can see from searching the archives).

Any chance they're consulting as to whether they should remove the gallstone?
That can be a cause of vomiting. And by the way, when they say "fertile", the
contraceptive pills are implicated in gall stones.. I had 2 (symptomatic)
large stones in my early twenties and sure didn't present the way you describe
on the other newsgroup. My friend thought she was having heart attacks, mine
presented pain in (referred to) other locations.

I'd sure like to be a "fly on the wall" at their deliberations to know what
their plans are for your surgery, Kili.
Or would it save them money, if SSD starts to cover you?

Good luck and let us know, Kili.

J

Francis Sharkey wrote:

> In Dec I'll be traveling to see my Dad in MA.
> His health isn't so good. It may be the last time we see each other. This
> will be my Christmas Preasent to him.

Sorry to hear about your Dad, Frank.
The chemo sessions (and weeks off) will work right in there for your travels.
Take care,
J

J wrote:
> kilikini wrote:
>
>> I'm going to SSD today. I hope I can share happiness with you!
>> (Gosh, do we need a break!)Congratulations on yours.
>>
>> I'm still waiting on a surgery date and my mass is growing. Good
>> luck to you, Frank!
>>
>> kili
>> --
>> http://www.caringbridge.org/visit/kilikini
>
> Hey, hey, Look who's back here.
>
> You've sure got enough on your plate (I can see from searching the
> archives).
>
> Any chance they're consulting as to whether they should remove the
> gallstone? That can be a cause of vomiting. And by the way, when they
> say "fertile", the contraceptive pills are implicated in gall
> stones.. I had 2 (symptomatic) large stones in my early twenties and
> sure didn't present the way you describe on the other newsgroup. My
> friend thought she was having heart attacks, mine presented pain in
> (referred to) other locations.
>
> I'd sure like to be a "fly on the wall" at their deliberations to
> know what their plans are for your surgery, Kili.
> Or would it save them money, if SSD starts to cover you?
>
> Good luck and let us know, Kili.
>
> J

Nope, they're not removing the gallstones; they said if the stones are not
bothering me, then they may never, and they're leaving it at that.

Pre-op is Monday, Tuesday is surgery day and I am absolutely terrified.
Beyond terrified. I wish you could be a fly-on-the-wall during my surgery.
Knowing you'd be there would be a huge comfort. As it is, I'll be all alone
during my hospital stay (and over Thanksgiving, too!). I'm hoping they just
dope me up and shove me out. :-)

kili
--
http://www.caringbridge.org/visit/kilikini

kilikini wrote:

> J wrote:
>
> > Any chance they're consulting as to whether they should remove the
> > gallstone? That can be a cause of vomiting.
>
> Nope, they're not removing the gallstones; they said if the stones are not
> bothering me, then they may never, and they're leaving it at that.

Yes, well ; it was unreasonable expectation (of me) anyway, since it would
require a GI surgeon and longer time under anesthetic.

> Pre-op is Monday, Tuesday is surgery day and I am absolutely terrified.
> Beyond terrified. I wish you could be a fly-on-the-wall during my surgery.
> Knowing you'd be there would be a huge comfort. As it is, I'll be all alone
> during my hospital stay (and over Thanksgiving, too!). I'm hoping they just
> dope me up and shove me out. :-)
>
> kili
> --
> http://www.caringbridge.org/visit/kilikini

I'm sorry you're going to be alone, Kili.
I've gone through surgeries alone, but none as extensive as yours.
I wish I could be there, before, during and after the surgery.
If it helps, imagine I'm there, because I will be; thinking of you, until we
hear of you or see your return.
I read about your surgeon. I'm confident in him and you're at one of the best
places, really, anywhere in the world.

They often say "6 weeks" and in my situation, for the worst one, I felt well
enough for light home tasks within 10 days. However, with the muscle things
they're doing for you, I would expect it'll take longer for you, and you may not
be able to sit at computer, for a while. So I'll try to be patient, while
you're recovering and do hope you'll have some help at home with eating and
bathing, unless they keep you in longer. I expect that'll be decided as you
recover.

Know I'll be there in spirit, FWIW
Hugs Kili, deep breaths while you're driving there and getting ready for the
surgery and best wishes,
J

J wrote:
> kilikini wrote:
>
>> J wrote:
>>
>
> I'm sorry you're going to be alone, Kili.
> I've gone through surgeries alone, but none as extensive as yours.
> I wish I could be there, before, during and after the surgery.
> If it helps, imagine I'm there, because I will be; thinking of you,
> until we hear of you or see your return.
> I read about your surgeon. I'm confident in him and you're at one of
> the best places, really, anywhere in the world.
>
> They often say "6 weeks" and in my situation, for the worst one, I
> felt well enough for light home tasks within 10 days. However, with
> the muscle things they're doing for you, I would expect it'll take
> longer for you, and you may not be able to sit at computer, for a
> while. So I'll try to be patient, while you're recovering and do
> hope you'll have some help at home with eating and bathing, unless
> they keep you in longer. I expect that'll be decided as you recover.
>
> Know I'll be there in spirit, FWIW
> Hugs Kili, deep breaths while you're driving there and getting ready
> for the surgery and best wishes,
> J

You are such a saint, J. I'm a computer addict, so you know I'll do my best
to get back online ASAP and I'll let you know as soon as I'm functional.
Thank you for being there!

kili
--
http://www.caringbridge.org/visit/kilikini

kilikini wrote:

> J wrote:
> > Know I'll be there in spirit, FWIW
> > Hugs Kili, deep breaths while you're driving there and getting ready
> > for the surgery and best wishes,
> > J
>
> You are such a saint, J.

Well, that's a reach, but please remember I'll be thinking of you.
I did get my answers by Googling (expected time in hospital), so I'll watch out
for updates (elsewhere) from your husband or your friend Lois. (My thinking is
it will save your husband time by just updating one newsgroup, then the word
will spread, so I'll watch for his updates).

> I'm a computer addict, so you know I'll do my best
> to get back online ASAP and I'll let you know as soon as I'm functional.
> Thank you for being there!

I'm feeling very positive that they'll get it all out with the least amount of
damage.
Stay positive, Kili, I'm sure they'll take good care of you.
Oh, and do make sure they send you home with enough pain meds. (unless you have
a local doctor who can take over on that).
Hugs
J

"J" <ercent@anon.inv> wrote in message
news:455ED4F8.5FFBABE6@execulink.com...
>
> Well, that's a reach, but please remember I'll be thinking of you.
> I did get my answers by Googling (expected time in hospital), so I'll
> watch out
> for updates (elsewhere) from your husband or your friend Lois.

J, I just have to pop in here and state that any information I have about
Kili came from you. :-}

Obviously I was very sympathetic to her plight from the start and
particularly outraged that a very sick person without insurance had to jump
through so many hoops to get help in the US healthcare system. Thank
goodness, she is apparently getting the best of help now.

But you were the facilitator. I am SO impressed with all you do on this
newsgroup. Aside from the knowledge you seem to have and your willingness to
research in order to help individuals, you seem to be able to find the right
words of encouragement for any situation. Or, if necessary, to be quite
direct. You are without doubt, a very special person.

Lois

LT wrote:

> "J" <ercent@anon.inv> wrote in message
> >
> > re: Kili
> > I did get my answers by Googling (expected time in hospital), so I'll
> > watch out
> > for updates (elsewhere) from your husband or your friend Lois.
>
> J, I just have to pop in here and state that any information I have about
> Kili came from you. :-}

Oh, I thought you knew her from other (non cancer) newsgroups.
I think I've found your history, back when Catharine's time, if you're in
Australia..
So in our minds, you're cured (although I realize there are residual concerns if
you were ER+).
I (think) saw your treatment history.
And I see you're a wonderful contributor on the other newsgroup.

> Obviously I was very sympathetic to her plight from the start and
> particularly outraged that a very sick person without insurance had to jump
> through so many hoops to get help in the US healthcare system. Thank
> goodness, she is apparently getting the best of help now.

Absolutely. And I hope if/when she recovers, she'll find a way to "pay it
forward".
Contribute in her community, in one way or another, to help others.

> But you were the facilitator. I am SO impressed with all you do on this
> newsgroup. Aside from the knowledge you seem to have and your willingness to
> research in order to help individuals, you seem to be able to find the right
> words of encouragement for any situation. Or, if necessary, to be quite
> direct. You are without doubt, a very special person.
>
> Lois

Well, Lois, some don't want to hear it (understandably).
But it galls me as much as "altie" claims, when (some) oncologists make promises
they know they cannot keep. I won't go into details, but I have a feeling you
can recognize the situations I mean.

I do admire many of the contributors on the other newsgroup.
I hope they'll understand when I exclude them from the rollcalls.
We really don't know the treatments (complex decisions) for each type of your
type of cancer.
And i'm just one person (well with help from others, like Steph and Mike R, when
they have time), with my hands full with all the (other) types of cancer that
can show up here, so really can't support people from both newsgroups. I watch
for others, on other newsgroups, as well. It's a big job but someone has to do
it.
..
There's another reason why your type of cancer is best considered off topic here
and that's because of one poster on "your" newsgroup and the mess of her
(different newsgroup).
I do my best to protect this newsgroup (and the people who belong here) from
arguing, flames and crossposts, and people suing each other. Let's not talk more
about this (more). You can research her.

Thanks for clarifying. I'll continue to get my updates about Kili, the way I
have been and keep this newsgroup updated (and you'll get them from me and pass
it along, I assume).
Many hugs, Lois.
Take care and I wish you a long, healthy and happy life.
Thank you for your comments.
J