From London Daily Telegraph
Timeline of the fight to get drugs to help people going blind
Patients at risk of going blind will have their sight saved under a
unique deal announced by the NHS drugs rationing watchdog.
Last Updated: 6:10PM BST 27 Aug 2008
August 2004 - Nice and Department of Health decide to appraise the
cost effectiveness of drugs, including
Lucentis, for wet-AMD.
April 2006 - Scope of the investigation is finalised.
June 2006 - Southampton University are commissioned by Nice to draw
together clinical and cost evidence.
January 2007 - Lucentis is licensed across Europe. Retired Labour MP
Alice Mahon who has wet-AMD campaigns for the drug and Private Members
Bill is tabled for funding.
April 2007 - Ex-serviceman Leslie Howard, 76, told he will have to go
blind in one eye before he can receive treatment in the second eye.
May 2007 - The Royal National Institute for the Blind launch an
advocacy service to help patients fight for the drug.
June 2007 - Preliminary Nice recommendations say only a fifth of
patients should be treated and only those who have got the condition
in both eyes with the better seeing eye to be treated.
- The Scottish version of Nice, the Scottish Medicines Consortium
approved Lucentis.
July 2007 - Nice receive unprecedented 20,000 protests over draft
guidance.
August 2008 - Due to volume of responses Nice delays issuing new
guidance while it trawls through them.
December 2007 - Single eye treatment overturned and dose capping
scheme mooted. Consultation.
April 2008 - Final draft guidance issued which includes dose capping
and says all patients should receive the drug whether they have
condition in first or second eye.
May 2008 - Derbyshire Primary Care Trust and Pfizer, maker of rival
drug
Macugen, appeal against the final draft guidance.
June 2008 - Welsh Assembly announced £5m of funding for wet-AMD
patients in Wales.
July 2008 - Many PCTs still refused to fund the drug and three
patients took legal action against Warwickshire PCT and won.
August 2008 - Final guidance issued