More info

Hi All:
My Blood test came back today. Very Low white cell. Dr. gave me a shot of
Neulastin? Spelled wrong I know It's a white Blood cell booster. So I'm off
of Chemo for 2 weeks. Either way I Won't be on Chemo when I go to visit my
dad the week of Dec 11th.

Aside from that I have been sick. Got Flu shot. And Got the flu. I thought
the shot was to prevent not give it to you. Anyhow I'm tired lost about 8
lbs down to 160Lbs am trying to get up to 170-180Lbs a good weight for me. I
can't afford to loose much more weight or my new Oncologist will toss me in
the hospital to gain some weight. Since I have had this cancer I loose
weight real easy. Before all of this ever happened loosing 10 lbs was really
hard. Now 2-3 days and POOFF!!

The thing is I'm eating aroung 2500Cal a day and still having a hard time
keeping my weight up or to gain anything.

Any suggestions on how gain weight. Without eating 2 gallons of ice cream a
week.

Frank

Francis Sharkey wrote:

> My Blood test came back today. Very Low white cell. Dr. gave me a shot of
> Neulastin? Spelled wrong I know It's a white Blood cell booster. So I'm off
> of Chemo for 2 weeks. Either way I Won't be on Chemo when I go to visit my
> dad the week of Dec 11th.
>
> Aside from that I have been sick. Got Flu shot. And Got the flu. I thought
> the shot was to prevent not give it to you. Anyhow I'm tired lost about 8
> lbs down to 160Lbs am trying to get up to 170-180Lbs a good weight for me. I
> can't afford to loose much more weight or my new Oncologist will toss me in
> the hospital to gain some weight. Since I have had this cancer I loose
> weight real easy. Before all of this ever happened loosing 10 lbs was really
> hard. Now 2-3 days and POOFF!!
>
> The thing is I'm eating aroung 2500Cal a day and still having a hard time
> keeping my weight up or to gain anything.
>
> Any suggestions on how gain weight. Without eating 2 gallons of ice cream a
> week.

Are you seeing our replies biut don't like them?
Frank, some people are suggesting Reece's peanut butter cups.
Honestly Frank, I don't know that there's much point in massaging the situation
(with Neulasta and trying to gain weight so you can get back on chemo, so you
can have side effects) since you've only got a bit of liver left and often when
cancer progresses, there's no way to keep the weight on.
I'll be here caring. Post anytime.
J

Francis Sharkey wrote:
> Hi All:
> My Blood test came back today. Very Low white cell. Dr. gave me a shot of
> Neulastin? Spelled wrong I know It's a white Blood cell booster. So I'm off
> of Chemo for 2 weeks. Either way I Won't be on Chemo when I go to visit my
> dad the week of Dec 11th.
>
> Aside from that I have been sick. Got Flu shot. And Got the flu. I thought
> the shot was to prevent not give it to you. Anyhow I'm tired lost about 8
> lbs down to 160Lbs am trying to get up to 170-180Lbs a good weight for me. I
> can't afford to loose much more weight or my new Oncologist will toss me in
> the hospital to gain some weight. Since I have had this cancer I loose
> weight real easy. Before all of this ever happened loosing 10 lbs was really
> hard. Now 2-3 days and POOFF!!
>
> The thing is I'm eating aroung 2500Cal a day and still having a hard time
> keeping my weight up or to gain anything.
>
> Any suggestions on how gain weight. Without eating 2 gallons of ice cream a
> week.
>
> Frank

I also just started with Neulasta. In my case, they aren't stopping
chemo, just requiring that I get Neulasta each disconnect day for the
rest of the treatment (ONLY THREE MORE!!!! I'm so excited to be this
close).
For keeping or gaining weight, you might try more frequent snacking.
Between anti-nausea (see my post on ginger) and the smaller amounts of
food at a time, you may be able to keep more down, and regain the
weight you want. Also, try exercising when possible. That helps keep
the weight as good weight, and also mitigates some of the effects of
chemo.
HTH.

---
CSM

"J" <ercent@anon.inv> wrote in message
news:45617730.93647A23@execulink.com...
> Francis Sharkey wrote:
>
>> My Blood test came back today. Very Low white cell. Dr. gave me a shot of
>> Neulastin? Spelled wrong I know It's a white Blood cell booster. So I'm
>> off
>> of Chemo for 2 weeks. Either way I Won't be on Chemo when I go to visit
>> my
>> dad the week of Dec 11th.
>>
>> Aside from that I have been sick. Got Flu shot. And Got the flu. I
>> thought
>> the shot was to prevent not give it to you. Anyhow I'm tired lost about 8
>> lbs down to 160Lbs am trying to get up to 170-180Lbs a good weight for
>> me. I
>> can't afford to loose much more weight or my new Oncologist will toss me
>> in
>> the hospital to gain some weight. Since I have had this cancer I loose
>> weight real easy. Before all of this ever happened loosing 10 lbs was
>> really
>> hard. Now 2-3 days and POOFF!!
>>
>> The thing is I'm eating aroung 2500Cal a day and still having a hard time
>> keeping my weight up or to gain anything.
>>
>> Any suggestions on how gain weight. Without eating 2 gallons of ice cream
>> a
>> week.
>
> Are you seeing our replies biut don't like them?
> Frank, some people are suggesting Reece's peanut butter cups.
> Honestly Frank, I don't know that there's much point in massaging the
> situation
> (with Neulasta and trying to gain weight so you can get back on chemo, so
> you
> can have side effects) since you've only got a bit of liver left and often
> when
> cancer progresses, there's no way to keep the weight on.
> I'll be here caring. Post anytime.
> J
>I'm not getiing sick. I can eat. But I use it up as energy. Nothing seeems
>to go to my waist.
Frank

"J" <ercent@anon.inv> wrote in message
news:45617730.93647A23@execulink.com...
> Francis Sharkey wrote:
>
>> My Blood test came back today. Very Low white cell. Dr. gave me a shot of
>> Neulastin? Spelled wrong I know It's a white Blood cell booster. So I'm
>> off
>> of Chemo for 2 weeks. Either way I Won't be on Chemo when I go to visit
>> my
>> dad the week of Dec 11th.
>>
>> Aside from that I have been sick. Got Flu shot. And Got the flu. I
>> thought
>> the shot was to prevent not give it to you. Anyhow I'm tired lost about 8
>> lbs down to 160Lbs am trying to get up to 170-180Lbs a good weight for
>> me. I
>> can't afford to loose much more weight or my new Oncologist will toss me
>> in
>> the hospital to gain some weight. Since I have had this cancer I loose
>> weight real easy. Before all of this ever happened loosing 10 lbs was
>> really
>> hard. Now 2-3 days and POOFF!!
>>
>> The thing is I'm eating aroung 2500Cal a day and still having a hard time
>> keeping my weight up or to gain anything.
>>
>> Any suggestions on how gain weight. Without eating 2 gallons of ice cream
>> a
>> week.
>
> Are you seeing our replies biut don't like them?
> Frank, some people are suggesting Reece's peanut butter cups.
> Honestly Frank, I don't know that there's much point in massaging the
> situation
> (with Neulasta and trying to gain weight so you can get back on chemo, so
> you
> can have side effects) since you've only got a bit of liver left and often
> when
> cancer progresses, there's no way to keep the weight on.
> I'll be here caring. Post anytime.
> J
>J:
My cancer is in 4 small lymph nodes and a small spot behind my bladder. MY
Oncologist thinks we can beat this. You. don't? I have a very agressive
healing ability. Currnetly I have nearly 70% of my liver back. Am waiting to
see my CEA test from last week. I also have Klinefeleter's syndrome XXXY
karyotype. I'm not an atipycle KS'er. I have 2 degrees 1 science, 1
engineering. I'm on HRT for the past 28yrs.
FRank

Have you tried Prosure?
http://www.prosure.com/
I have seen it used by some patients.


"Francis Sharkey" <sharkeyfamily@adelphia.net> wrote in message
news:FtOdnVApAaSu4f_YnZ2dnUVZ_sednZ2d@adelphia.com ...
>
> "J" <ercent@anon.inv> wrote in message
> news:45617730.93647A23@execulink.com...
>> Francis Sharkey wrote:
>>
>>> My Blood test came back today. Very Low white cell. Dr. gave me a shot
>>> of
>>> Neulastin? Spelled wrong I know It's a white Blood cell booster. So I'm
>>> off
>>> of Chemo for 2 weeks. Either way I Won't be on Chemo when I go to visit
>>> my
>>> dad the week of Dec 11th.
>>>
>>> Aside from that I have been sick. Got Flu shot. And Got the flu. I
>>> thought
>>> the shot was to prevent not give it to you. Anyhow I'm tired lost about
>>> 8
>>> lbs down to 160Lbs am trying to get up to 170-180Lbs a good weight for
>>> me. I
>>> can't afford to loose much more weight or my new Oncologist will toss me
>>> in
>>> the hospital to gain some weight. Since I have had this cancer I loose
>>> weight real easy. Before all of this ever happened loosing 10 lbs was
>>> really
>>> hard. Now 2-3 days and POOFF!!
>>>
>>> The thing is I'm eating aroung 2500Cal a day and still having a hard
>>> time
>>> keeping my weight up or to gain anything.
>>>
>>> Any suggestions on how gain weight. Without eating 2 gallons of ice
>>> cream a
>>> week.
>>
>> Are you seeing our replies biut don't like them?
>> Frank, some people are suggesting Reece's peanut butter cups.
>> Honestly Frank, I don't know that there's much point in massaging the
>> situation
>> (with Neulasta and trying to gain weight so you can get back on chemo, so
>> you
>> can have side effects) since you've only got a bit of liver left and
>> often when
>> cancer progresses, there's no way to keep the weight on.
>> I'll be here caring. Post anytime.
>> J
>>J:
> My cancer is in 4 small lymph nodes and a small spot behind my bladder. MY
> Oncologist thinks we can beat this. You. don't? I have a very agressive
> healing ability. Currnetly I have nearly 70% of my liver back. Am waiting
> to see my CEA test from last week. I also have Klinefeleter's syndrome
> XXXY karyotype. I'm not an atipycle KS'er. I have 2 degrees 1 science, 1
> engineering. I'm on HRT for the past 28yrs.
> FRank
>

Francis Sharkey wrote:

> "J" <ercent@anon.inv> wrote in message
>
> > Francis Sharkey wrote:
> >
> >> My Blood test came back today. Very Low white cell. Dr. gave me a shot of
> >> Neulastin? Spelled wrong I know It's a white Blood cell booster. So I'm
> >> off
> >> of Chemo for 2 weeks. Either way I Won't be on Chemo when I go to visit
> >> my
> >> dad the week of Dec 11th.
> >>
> >> Aside from that I have been sick. Got Flu shot. And Got the flu. I
> >> thought
> >> the shot was to prevent not give it to you. Anyhow I'm tired lost about 8
> >> lbs down to 160Lbs am trying to get up to 170-180Lbs a good weight for
> >> me. I
> >> can't afford to loose much more weight or my new Oncologist will toss me
> >> in
> >> the hospital to gain some weight. Since I have had this cancer I loose
> >> weight real easy. Before all of this ever happened loosing 10 lbs was
> >> really
> >> hard. Now 2-3 days and POOFF!!
> >>
> >> The thing is I'm eating aroung 2500Cal a day and still having a hard time
> >> keeping my weight up or to gain anything.
> >>
> >> Any suggestions on how gain weight. Without eating 2 gallons of ice cream
> >> a
> >> week.
> >
> > Are you seeing our replies biut don't like them?
> > Frank, some people are suggesting Reece's peanut butter cups.
> > Honestly Frank, I don't know that there's much point in massaging the
> > situation
> > (with Neulasta and trying to gain weight so you can get back on chemo, so
> > you
> > can have side effects) since you've only got a bit of liver left and often
> > when
> > cancer progresses, there's no way to keep the weight on.
> > I'll be here caring. Post anytime.
> > J
> >J:
> My cancer is in 4 small lymph nodes and a small spot behind my bladder. MY
> Oncologist thinks we can beat this. You. don't? I have a very agressive
> healing ability. Currnetly I have nearly 70% of my liver back. Am waiting to
> see my CEA test from last week. I also have Klinefeleter's syndrome XXXY
> karyotype. I'm not an atipycle KS'er. I have 2 degrees 1 science, 1
> engineering. I'm on HRT for the past 28yrs.
> FRank

Frank, I have no doubt of your intelligence but there's some confusion happening
(conflicting information you're giving us).
On Thursday you posted "Aug 8th 2006 had 75% of my liver removed due to cancer
spread. and now I have cancer in my lymph nodes around the aorta under my
intestines and a spot behind my bladder."

Point 1: I don't think the liver regenerates that fast. (but I could be wrong -
the lver surgery was August 8).
The cancer clones (see below) left behind have been continuing to spread. Food
is energy that the cancer uses to grow. And no, it's not smart to stop eating.
It just explains why you can't gain weight. Sure, they can probably put you in
hospital and put you on IV feeding, but part of that weight gain, will be fluid,
not necessarily fat or muscle.

Point 2: Your cancer is progressing.

Point 3: That "spot" is ~1cm tumor (~1,000,000,000 cancer cells) shedding
clones as it grows.
(smaller then ~1 cm tumors can't be viewed on scans.)
You've probably got thousands or even billions of small tumors that cannot be
seen on scans. (all, at different times, spreading more cancer clones, as each
grows).

If your type (and stage) of cancer could be beat, nobody would ever die of
cancer.
Your oncologist is giving you false hope, probably because he does not want you
getting depressed about it.
And/or he knows your "health picture" and knows how to manage the situation,
since you and he have sorted out the pain meds (rather than you start over with
a new oncologist).

If you've only had one "line of treatment", a new chemo or chemo combo might
shrink the lymph nodes, if they're troublesome to you (but then you have to deal
with the side effects).
J

J:

You should check out the files on Klinefelters syndrome at the NIH. We heal
3-4 times faster than a normal Human beings. The healed liver was detected
via a high res CT scan on 11/02/06. Normally the liver would regenerate in a
normal person in 6 to 7 months. I'm on track for a 2.5 month rebuild.

Secondly He has told me he can't cure me. But, he is hopefull he can get me
into remission for a while. The longer the better. Hell, My klinefelter's
syndrome XXXY is known to kill people by age 42-45yrs. I have allways lived
with the knowledge that my KS was eventually going to kill me. The cancer
just made life a bit more difficult. More of a challange to live what time I
have left. However, If God want's me to be around for another 40yrs. I'll be
here.

I made a promiss to my wife when we got married (before my diagnosis) of 40
yrs of marrige. Now that was a vow infront of God. I believe he will keep my
promiss to my wife.

> Frank, I have no doubt of your intelligence but there's some confusion
> happening
> (conflicting information you're giving us).
> On Thursday you posted "Aug 8th 2006 had 75% of my liver removed due to
> cancer
> spread. and now I have cancer in my lymph nodes around the aorta under my
> intestines and a spot behind my bladder."
>
> Point 1: I don't think the liver regenerates that fast. (but I could be
> wrong -
> the lver surgery was August 8).
> The cancer clones (see below) left behind have been continuing to spread.
> Food
> is energy that the cancer uses to grow. And no, it's not smart to stop
> eating.
> It just explains why you can't gain weight. Sure, they can probably put
> you in
> hospital and put you on IV feeding, but part of that weight gain, will be
> fluid,
> not necessarily fat or muscle.
>
> Point 2: Your cancer is progressing.
>
> Point 3: That "spot" is ~1cm tumor (~1,000,000,000 cancer cells) shedding
> clones as it grows.
> (smaller then ~1 cm tumors can't be viewed on scans.)
> You've probably got thousands or even billions of small tumors that cannot
> be
> seen on scans. (all, at different times, spreading more cancer clones, as
> each
> grows).
>
> If your type (and stage) of cancer could be beat, nobody would ever die of
> cancer.
> Your oncologist is giving you false hope, probably because he does not
> want you
> getting depressed about it.
> And/or he knows your "health picture" and knows how to manage the
> situation,
> since you and he have sorted out the pain meds (rather than you start over
> with
> a new oncologist).
>
> If you've only had one "line of treatment", a new chemo or chemo combo
> might
> shrink the lymph nodes, if they're troublesome to you (but then you have
> to deal
> with the side effects).
> J
>
>
>

Francis Sharkey wrote:

> J:
>
> You should check out the files on Klinefelters syndrome at the NIH. We heal
> 3-4 times faster than a normal Human beings. The healed liver was detected
> via a high res CT scan on 11/02/06. Normally the liver would regenerate in a
> normal person in 6 to 7 months. I'm on track for a 2.5 month rebuild.
>
> Secondly He has told me he can't cure me. But, he is hopefull he can get me
> into remission for a while. The longer the better. Hell, My klinefelter's
> syndrome XXXY is known to kill people by age 42-45yrs. I have allways lived
> with the knowledge that my KS was eventually going to kill me. The cancer
> just made life a bit more difficult. More of a challange to live what time I
> have left. However, If God want's me to be around for another 40yrs. I'll be
> here.
>
> I made a promiss to my wife when we got married (before my diagnosis) of 40
> yrs of marrige. Now that was a vow infront of God. I believe he will keep my
> promiss to my wife.

We'll see how it goes. Please keep in touch, Frank.
Take care and I hope you had a wonderful Thanksgiving.
Ceebrate it differently in your family?
J

For example to get tothis reply I had tu cut through some 17 diifferent
podting. can we eddit a post we reply to it ma it'd a littl harder to finf
the ohter corrospondants.

"J" <ercent@anon.inv> wrote in message
news:4562C92C.F151A396@execulink.com...
> Francis Sharkey wrote:
>
>> "J" <ercent@anon.inv> wrote in message
>>
>> > Francis Sharkey wrote:
>> >
>> >> My Blood test came back today. Very Low white cell. Dr. gave me a shot
>> >> of
>> >> Neulastin? Spelled wrong I know It's a white Blood cell booster. So
>> >> I'm
>> >> off
>> >> of Chemo for 2 weeks. Either way I Won't be on Chemo when I go to
>> >> visit
>> >> my
>> >> dad the week of Dec 11th.
>> >>
>> >> Aside from that I have been sick. Got Flu shot. And Got the flu. I
>> >> thought
>> >> the shot was to prevent not give it to you. Anyhow I'm tired lost
>> >> about 8
>> >> lbs down to 160Lbs am trying to get up to 170-180Lbs a good weight for
>> >> me. I
>> >> can't afford to loose much more weight or my new Oncologist will toss
>> >> me
>> >> in
>> >> the hospital to gain some weight. Since I have had this cancer I loose
>> >> weight real easy. Before all of this ever happened loosing 10 lbs was
>> >> really
>> >> hard. Now 2-3 days and POOFF!!
>> >>
>> >> The thing is I'm eating aroung 2500Cal a day and still having a hard
>> >> time
>> >> keeping my weight up or to gain anything.
>> >>
>> >> Any suggestions on how gain weight. Without eating 2 gallons of ice
>> >> cream
>> >> a
>> >> week.
>> >
>> > Are you seeing our replies biut don't like them?
>> > Frank, some people are suggesting Reece's peanut butter cups.
>> > Honestly Frank, I don't know that there's much point in massaging the
>> > situation
>> > (with Neulasta and trying to gain weight so you can get back on chemo,
>> > so
>> > you
>> > can have side effects) since you've only got a bit of liver left and
>> > often
>> > when
>> > cancer progresses, there's no way to keep the weight on.
>> > I'll be here caring. Post anytime.
>> > J
>> >J:
>> My cancer is in 4 small lymph nodes and a small spot behind my bladder.
>> MY
>> Oncologist thinks we can beat this. You. don't? I have a very agressive
>> healing ability. Currnetly I have nearly 70% of my liver back. Am waiting
>> to
>> see my CEA test from last week. I also have Klinefeleter's syndrome XXXY
>> karyotype. I'm not an atipycle KS'er. I have 2 degrees 1 science, 1
>> engineering. I'm on HRT for the past 28yrs.
>> FRank
>
> Frank, I have no doubt of your intelligence but there's some confusion
> happening
> (conflicting information you're giving us).
> On Thursday you posted "Aug 8th 2006 had 75% of my liver removed due to
> cancer
> spread. and now I have cancer in my lymph nodes around the aorta under my
> intestines and a spot behind my bladder."
>
> Point 1: I don't think the liver regenerates that fast. (but I could be
> wrong -
> the lver surgery was August 8).
> The cancer clones (see below) left behind have been continuing to spread.
> Food
> is energy that the cancer uses to grow. And no, it's not smart to stop
> eating.
> It just explains why you can't gain weight. Sure, they can probably put
> you in
> hospital and put you on IV feeding, but part of that weight gain, will be
> fluid,
> not necessarily fat or muscle.
>
> Point 2: Your cancer is progressing.
>
> Point 3: That "spot" is ~1cm tumor (~1,000,000,000 cancer cells) shedding
> clones as it grows.
> (smaller then ~1 cm tumors can't be viewed on scans.)
> You've probably got thousands or even billions of small tumors that cannot
> be
> seen on scans. (all, at different times, spreading more cancer clones, as
> each
> grows).
>
> If your type (and stage) of cancer could be beat, nobody would ever die of
> cancer.
> Your oncologist is giving you false hope, probably because he does not
> want you
> getting depressed about it.
> And/or he knows your "health picture" and knows how to manage the
> situation,
> since you and he have sorted out the pain meds (rather than you start over
> with
> a new oncologist).
>
> If you've only had one "line of treatment", a new chemo or chemo combo
> might
> shrink the lymph nodes, if they're troublesome to you (but then you have
> to deal
> with the side effects).
> J
>
>
>