Ping a A. G. (padre de Nicolas, bebe con teratoma)

J <nexsw@nvalid,anon> wrote in news:461A7A0B.DB414982@execulink.com:

> Most people have had great things to say about ACOR but a few
> (different groups), mentioned problems, one said "too depressing" and
> the other was Socks. Apparently they did not like his signature,
> which, I think was political and some survey which he couldn't be
> bothered with filling out, so he unsubscribed.
>
Well, if he was just using Socks, I don't know how they would have thought
political, just odd. LOL But maybe he was still Socks the Whitehouse Cat
then. Now THERE'S a political statement for you! He never mentioned to
me. You'd think they'd give terminal cancer patients some latitude, but we
weren't there, so we don't know.

I subscribed to an ACOR list called Facing Forward, a grief support group.
I admit I never got involved, just read some, but it was very strange
indeed. Some nice people, yes, but there was one woman who had lost a
young son who dominated. It looked like that's what she mainly did in life,
write on the site. They recently asked her to leave due to some
infraction, sending a personal email or something similar. I asked for
digest mode (once a day email) & for some reason every post was repeated
many, many, many times, so many that I had trouble following. I asked the
moderator about that & she said that was their way.

People tend to post very long there, like a diary. Then people responded
with diaries of their own & then everyone copied everything that had come
before. Not a lot of meaningful interaction. Not my cuppa.

Fig

Figgertoes wrote:

> J <nexsw@nvalid,anon> wrote in news:
>
> > Most people have had great things to say about ACOR but a few
> > (different groups), mentioned problems, one said "too depressing" and
> > the other was Socks. Apparently they did not like his signature,
> > which, I think was political and some survey which he couldn't be
> > bothered with filling out, so he unsubscribed.
> >
> Well, if he was just using Socks, I don't know how they would have thought
> political, just odd. LOL But maybe he was still Socks the Whitehouse Cat
> then. Now THERE'S a political statement for you! He never mentioned to
> me. You'd think they'd give terminal cancer patients some latitude, but we
> weren't there, so we don't know.
>

Sounds like there was someone similar on his list.
the thread is called The ACO*R mailing lists I munged this one.
October 2004, if you want some chuckles.
J

J <nexsw@nvalid,anon> wrote in news:461A990E.7CC4F603@execulink.com:

> Figgertoes wrote:
>
>> J <nexsw@nvalid,anon> wrote in news:
>>
>> > Most people have had great things to say about ACOR but a few
>> > (different groups), mentioned problems, one said "too depressing"
>> > and the other was Socks. Apparently they did not like his
>> > signature, which, I think was political and some survey which he
>> > couldn't be bothered with filling out, so he unsubscribed.
>> >
>> Well, if he was just using Socks, I don't know how they would have
>> thought political, just odd. LOL But maybe he was still Socks the
>> Whitehouse Cat then. Now THERE'S a political statement for you! He
>> never mentioned to me. You'd think they'd give terminal cancer
>> patients some latitude, but we weren't there, so we don't know.
>>
>
> Sounds like there was someone similar on his list.
> the thread is called The ACO*R mailing lists I munged this one.
> October 2004, if you want some chuckles.
> J
>
>
J,

Thanks for that. I don't think I hit that one back when I was reading
old posts. It was just like having him here in the room. Their list,
their rules - yep, that was Socks! Not bending himself, yet total
respect for others' rights. I think he was the most consistent person I
have ever known.

It's obvious he got a kick out of you & that you knew him well.


Fig

Siento el retraso en contestar...no news, good news, efectivamente.

Nicolás tiene ya tres años y medio. Hemos tenido un invierno un poco movido, con una bronquitis rebelde que no ha acabado de curar, pero ya está mejor.

Por lo demás, crece muy bien y sin más complicaciones.

Gracias por preguntar,

Á.G.


Mi dirección es plumaveloz at gmail dot com por si me quieres escribir.





"Una" <una@att.net> escribió en el mensaje news:ev3f18$306$1@doliolum.localnet...
> Angel,
>
> Soy madre de un bebe tambien como Nicolas nacido con una teratoma. A
> mi la gente en alt.support.cancer te recuerdan. Ojala que "no news"
> es "good news". Disculpe me mal escrito.
>
> Como estais Uds?
>
> Una
>
>

"Una" <una@att.net> escribió en el mensaje news:ev3f18$306$1@doliolum.localnet...
> Angel,
>
> Soy madre de un bebe tambien como Nicolas nacido con una teratoma. A
> mi la gente en alt.support.cancer te recuerdan. Ojala que "no news"
> es "good news". Disculpe me mal escrito.
>
> Como estais Uds?
>
> Una
>
>

Hi to everyone:

I just leave for a couple of years, and look what I find... I big long discussion. Where is all the help you have given me and all the other? Where are those cheerfull words I had many times heard?

Plese, put apart all those rules and let´s help one each other again. :-)

Anyway, sorry about not showing up. Nicolás is doing great. Since last chemo dosis on january 2005, we have not had any remarkable incident. He is growing quickly and going to school, what he attends from that date. Has many friends and some little problems at school, I believe that mainly due to his age (born on november) that on his treatment.

Anyway, you can find me on plumaveloz at gmail dot com and I will try to visit the group more often.

Regards,

Á.G.

Á.G. wrote:

> I just leave for a couple of years, and look what I find... I big long discussion. Where is all the help you have given me and all the other? Where are those cheerfull words I had many times heard?
>
> Anyway, sorry about not showing up. Nicolás is doing great. Since last chemo dosis on january 2005, we have not had any remarkable incident. He is growing quickly and going to school, what he attends from that date. Has many friends and some little problems at school, I believe that mainly due to his age (born on november) that on his treatment.
>
> Anyway, you can find me on plumaveloz at gmail dot com and I will try to visit the group more often.

Thanks Á.G.

I'm still here supporting and providing information which hopefully helps patients.

It's great to hear that all goes well Nicolás .

Be well.
J - uncrossposted

"J" <nexsw@nvalid,anon> escribió en el mensaje news:462546AD.61AC977F@execulink.com...
>
> It's great to hear that all goes well Nicolás .
>
> Be well.
> J - uncrossposted
>


Still no contact from Una. Any idea how to get him/her?

Regards,

Á.G.

Á.G. wrote:

> "J" <nexsw@nvalid,anon> escribió en el mensaje
> > It's great to hear that all goes well Nicolás .
> >
> > Be well.
> > J - uncrossposted
> Anyway, you can find me on plumaveloz at gmail dot com
>
> Still no contact from Una. Any idea how to get him/her?
>
> Regards,
>
> Á.G.

Sorry Á.G.,
I don't know if her email address is munged (or not). It looks like it is.
So I'm replying to you, in case she missed your other messages.
She's here posting.
I did hear that some emails were stalled (big time) through blackberries..so maybe she
emailed you, and it's taking time to get through to you. Just a theory...

If we don't get a reply here, I'll "ping her" with your info.
J

"J" <nexsw@nvalid,anon> escribió en el mensaje news:462882BB.BABB4D26@execulink.com...
>
> Sorry Á.G.,
> I don't know if her email address is munged (or not). It looks like it is.
> So I'm replying to you, in case she missed your other messages.
> She's here posting.
> I did hear that some emails were stalled (big time) through blackberries..so maybe she
> emailed you, and it's taking time to get through to you. Just a theory...
>
> If we don't get a reply here, I'll "ping her" with your info.
> J
>
>

I have also written to her email, but haven´t got yet response. Thank you for your help, J,

Á.G.

Angel,

Sorry about the delay in replying. I keep saving it for last,
then don't get that far before something takes me away from the
computer. Glad to make contact! Will followup off list.

Una

J <nexsw@nvalid,anon> wrote:
>I don't know if her email address is munged (or not). It looks like it is.

Does it?

Una

"Una" <una@att.net> escribió en el mensaje news:f0bu6g$5d5$1@doliolum.localnet...
> Angel,
>
> Sorry about the delay in replying. I keep saving it for last,
> then don't get that far before something takes me away from the
> computer. Glad to make contact! Will followup off list.
>
> Una
>

Una,

Even realizing you don´f feel very confortable on this newsgroup, I suggest you to openly talk on this list . What we could exchange may help others.

Anyways, If you prefer a one on one chatter, my email is plumaveloz at gmail dot com. I show up often on Microsoft messenger at plumaveloz hotmail com or on Skype as plumaveloz. Amaze and worry me that you couldn´t find me at "first touch".

Looking for your response,

Á.G.

Angel, recently you posted in es.charla.enfermedad.cancer that you
could be found at plumaveloz at gmail dot es, which bounced. And
some of your other accounts that I found and tried also bounced.
After a time I decided to try the lazy method and simply ping you.
And, see, it worked!

Una