Scared/Nervous

Greetings everyone. Tomorrow I go for my CAT scan (chest/abdomen) results,
along with brain MRI results. I had gone to see my family dr last Friday and
he said he had received a copy of the MRI and I said ohhh? Well I hadnt
called for results and actually wasnt to thrilled with finding out even
tomorrow.......... but here is what it says: (this is 30 days after 15
WBRT)

There is an are of abnormal signal in the right temporal lobe which may
contain some blood products as a small are of surrounding white matter
edema. Measures approx 1 x 1.3 cm in size on the flair images which is
smaller than on prior stud when it was 1.8 x 1.3 cm. On post-contrast there
is no significant enhancement. There is a rim of hemosiderin surrounding
the lesion. A secon lesion high in the left frontal lobe on the surface of
the brain also demonstrates very low signal intesity on the T2 and FLAIR
sequence suggesting some blood products. it measures 9 x 7 mm in size on
prior exam it was 1 x 1.3 cm in size. Both demonstrate minimal residual
white matter edema. Both lesions have decreased in size in comparison to
the prior study. Signal characteristics suggest there may be old blood
products within the lesions.

Geesh glad I understood all that (

So I guess the good part is they shrank............crappy part, they are
still there.

I am really nervous about all the results tomorrow and finding out what all
this means and where I go from here.......Really hoping the lungs and
abdomen are ok. I know there will still be lung nodules, but hopefully they
are unchanged since July (finished chemo in June)...........I think the
worst part of this malfuction (that is what I call cancer) is this waiting
and having to hear the news........and darn it sitting here crying as usual
ughhhhhhh.

God bless all of you and thanks for letting me spill out a
bit...............

In article <Ub72h.20999$Cq3.5640@tornado.ohiordc.rr.com>, "Angie" <angie@nospam.org>
wrote:

>
> I am really nervous about all the results tomorrow and finding out what all
> this means and where I go from here.......Really hoping the lungs and
> abdomen are ok. I know there will still be lung nodules, but hopefully they
> are unchanged since July (finished chemo in June)...........I think the
> worst part of this malfuction (that is what I call cancer) is this waiting
> and having to hear the news........and darn it sitting here crying as usual
> ughhhhhhh.
>
> God bless all of you and thanks for letting me spill out a
> bit...............

I know just how you feel. The week before my scans I am nervous and agitated. I
pace a lot. Then after the scans I am on edge until I see the Onc. It will be what it
is, and all the worrying won't change it. But I still worry. I pace a lot and can't
sit in one place for very long. The waiting is almost as bad as the disease.

--
Mia culpa, mia culpa, mia maxima culpa
Jimmy Buffet



Bob
in Carmel, CA

"Angie" <angie@nospam.org> wrote in message
news:Ub72h.20999$Cq3.5640@tornado.ohiordc.rr.com.. .
> Greetings everyone. Tomorrow I go for my CAT scan (chest/abdomen)
> results, along with brain MRI results. I had gone to see my family dr last
> Friday and he said he had received a copy of the MRI and I said ohhh? Well
> I hadnt called for results and actually wasnt to thrilled with finding out
> even tomorrow.......... but here is what it says: (this is 30 days after
> 15 WBRT)
>
> There is an are of abnormal signal in the right temporal lobe which may
> contain some blood products as a small are of surrounding white matter
> edema. Measures approx 1 x 1.3 cm in size on the flair images which is
> smaller than on prior stud when it was 1.8 x 1.3 cm. On post-contrast
> there is no significant enhancement. There is a rim of hemosiderin
> surrounding the lesion. A secon lesion high in the left frontal lobe on
> the surface of the brain also demonstrates very low signal intesity on the
> T2 and FLAIR sequence suggesting some blood products. it measures 9 x 7 mm
> in size on prior exam it was 1 x 1.3 cm in size. Both demonstrate minimal
> residual white matter edema. Both lesions have decreased in size in
> comparison to the prior study. Signal characteristics suggest there may
> be old blood products within the lesions.
>
> Geesh glad I understood all that (
>
> So I guess the good part is they shrank............crappy part, they are
> still there.
>
> I am really nervous about all the results tomorrow and finding out what
> all this means and where I go from here.......Really hoping the lungs and
> abdomen are ok. I know there will still be lung nodules, but hopefully
> they are unchanged since July (finished chemo in June)...........I think
> the worst part of this malfuction (that is what I call cancer) is this
> waiting and having to hear the news........and darn it sitting here crying
> as usual ughhhhhhh.
>
> God bless all of you and thanks for letting me spill out a
> bit...............
>
>
Let it out Angie and have a good cry. It's understandable that you are
worried and anxious. I hope that things aren't as bad as you fear that they
may be.

Warm Hugs

Alayne

Angie wrote:
> I am really nervous about all the results tomorrow and finding out what all
> this means and where I go from here...

I know what you mean. I just had a CT and am scheduling a PET scan to be
done very soon. I thought everything was hunky-dory until it hit me that
a spot they can't identify around my right lung managed to shrink during
the time I was on chemo.

To find out what it all means, ask your doctor and listen carefully. Be
persistent if you aren't getting answers.

--
"...by March 2000, President Clinton informed Congress he could no longer
certify that 'North Korea is not seeking to develop or acquire the capability
to enrich uranium.'"
<http://www.pbs.org/newshour/bb/asia/northkorea/nuclear.html>

"clifto" <clifto@gmail.com> wrote in message
news:dslp14-qlv.ln1@remote.clifto.com...
> Angie wrote:
>> I am really nervous about all the results tomorrow and finding out what
>> all
>> this means and where I go from here...
>
> I know what you mean. I just had a CT and am scheduling a PET scan to be
> done very soon. I thought everything was hunky-dory until it hit me that
> a spot they can't identify around my right lung managed to shrink during
> the time I was on chemo.
>
> To find out what it all means, ask your doctor and listen carefully. Be
> persistent if you aren't getting answers.
>
> --
> "...by March 2000, President Clinton informed Congress he could no longer
> certify that 'North Korea is not seeking to develop or acquire the
> capability
> to enrich uranium.'"
> <http://www.pbs.org/newshour/bb/asia/northkorea/nuclear.html>



Thanks everyone for the kind words. I wish you all well too.
I got my results. The funny thing is, my oncologist laughed when I told him
the brain mri results made noooo sense, he said look here - in the margin he
had wrote HUH???? and he had another report from who we says is the best
"reader". He was very pleased with the results and the cat scan of chest
and abdomen shows nothing new and nothing changed. so for now he is calling
things stable and wants me back in mid January. I will be starting .75 mgs
of decadron 2x day to help with the headaches and he hopes to spark my
appetite and to relieve the teeth discomfort.....

God speed
Angie

Angie:

THAT IS WONDERFUL NEWS!!!

Mel
"Angie" <angie@nospam.org> wrote in message
news:B8s2h.22541$OE1.15682@tornado.ohiordc.rr.com. ..
>
> "clifto" <clifto@gmail.com> wrote in message
> news:dslp14-qlv.ln1@remote.clifto.com...
>> Angie wrote:
>>> I am really nervous about all the results tomorrow and finding out what
>>> all
>>> this means and where I go from here...
>>
>> I know what you mean. I just had a CT and am scheduling a PET scan to be
>> done very soon. I thought everything was hunky-dory until it hit me that
>> a spot they can't identify around my right lung managed to shrink during
>> the time I was on chemo.
>>
>> To find out what it all means, ask your doctor and listen carefully. Be
>> persistent if you aren't getting answers.
>>
>> --
>> "...by March 2000, President Clinton informed Congress he could no longer
>> certify that 'North Korea is not seeking to develop or acquire the
>> capability
>> to enrich uranium.'"
>> <http://www.pbs.org/newshour/bb/asia/northkorea/nuclear.html>
>
>
>
> Thanks everyone for the kind words. I wish you all well too.
> I got my results. The funny thing is, my oncologist laughed when I told
> him the brain mri results made noooo sense, he said look here - in the
> margin he had wrote HUH???? and he had another report from who we says is
> the best "reader". He was very pleased with the results and the cat scan
> of chest and abdomen shows nothing new and nothing changed. so for now he
> is calling things stable and wants me back in mid January. I will be
> starting .75 mgs of decadron 2x day to help with the headaches and he
> hopes to spark my appetite and to relieve the teeth discomfort.....
>
> God speed
> Angie
>
>

Angie wrote:

> I got my results. The funny thing is, my oncologist laughed when I told him
> the brain mri results made noooo sense, he said look here - in the margin he
> had wrote HUH???? and he had another report from who we says is the best
> "reader". He was very pleased with the results and the cat scan of chest
> and abdomen shows nothing new and nothing changed. so for now he is calling
> things stable and wants me back in mid January. I will be starting .75 mgs
> of decadron 2x day to help with the headaches and he hopes to spark my
> appetite and to relieve the teeth discomfort.....

oh I see, Angie. It didn't make sense to him either.
I'm glad he sorted that out for you and you've been reassured.

I hope the decadron helps.
Let him know if you have any troubles; I suppose it could be lowered a bit, if
required.
Take care and hugs
J

>"Angie" wrote :
> >"clifto" wrote :
>>> Angie wrote:
>>> I am really nervous about all the results tomorrow and finding out what
>>> all
>>> this means and where I go from here...
>>
<Snipped>
> Thanks everyone for the kind words. I wish you all well too.
> I got my results. The funny thing is, my oncologist laughed when I told
> him the brain mri results made noooo sense, he said look here - in the
> margin he had wrote HUH???? and he had another report from who we says is
> the best "reader". He was very pleased with the results and the cat scan
> of chest and abdomen shows nothing new and nothing changed. so for now he
> is calling things stable and wants me back in mid January. I will be
> starting .75 mgs of decadron 2x day to help with the headaches and he
> hopes to spark my appetite and to relieve the teeth discomfort.....
>
Yee-ha! Angie! If you like lemonade, I've stumbled on this Mango Lemonade
made by Bolthouse Farms. I found it at Costco very cheap. Very tasty.
I'm drinking some now as a "cheers" to your stable report!
Marsha

Bobert wrote:

> I know just how you feel. The week before my scans I am nervous and agitated. I
> pace a lot. Then after the scans I am on edge until I see the Onc. It will be what it
> is, and all the worrying won't change it. But I still worry. I pace a lot and can't
> sit in one place for very long. The waiting is almost as bad as the disease.

Hi Bob,
Angie might benefit from that treatment you had the 2nd time, if her brain tumours start
growing again (depends what else is happening at that time).
Suggest you post it to her so she or her husband can look into whether insurance covers
it and the closest place, and save the information.
J

"J" <ercent@anon.inv> wrote in message
news:454C56F8.A5DA61E9@execulink.com...
> Bobert wrote:
>
>> I know just how you feel. The week before my scans I am nervous and
>> agitated. I
>> pace a lot. Then after the scans I am on edge until I see the Onc. It
>> will be what it
>> is, and all the worrying won't change it. But I still worry. I pace a lot
>> and can't
>> sit in one place for very long. The waiting is almost as bad as the
>> disease.
>
> Hi Bob,
> Angie might benefit from that treatment you had the 2nd time, if her brain
> tumours start
> growing again (depends what else is happening at that time).
> Suggest you post it to her so she or her husband can look into whether
> insurance covers
> it and the closest place, and save the information.
> J
>

Yes Bob - I would like that info please.

Angie

Angie wrote:

> "J" <ercent@anon.inv> wrote in message
>
> > Angie might benefit from that treatment you had the 2nd time, if her brain
> > tumours start
> > growing again (depends what else is happening at that time).
> > Suggest you post it to her so she or her husband can look into whether
> > insurance covers
> > it and the closest place, and save the information.
> Yes Bob - I would like that info please.
>

Hi Angie,
He calls it cyberknife and these are the websites that he posts.
<http://www.stanfordhospital.com/clinicsmedServices/COE/cyberknife/overview>
<http://www.accuray.com/>

The reason I mentioned it, is that I don't know if it's safe to have a 2nd whole
brain radiation.
Hugs
J

"J" <ercent@anon.inv> wrote in message
news:454E6CC9.29AAC66@execulink.com...
> Angie wrote:
>
>> "J" <ercent@anon.inv> wrote in message
>>
>> > Angie might benefit from that treatment you had the 2nd time, if her
>> > brain
>> > tumours start
>> > growing again (depends what else is happening at that time).
>> > Suggest you post it to her so she or her husband can look into whether
>> > insurance covers
>> > it and the closest place, and save the information.
>> Yes Bob - I would like that info please.
>>
>
> Hi Angie,
> He calls it cyberknife and these are the websites that he posts.
> <http://www.stanfordhospital.com/clinicsmedServices/COE/cyberknife/overview>
> <http://www.accuray.com/>
>
> The reason I mentioned it, is that I don't know if it's safe to have a 2nd
> whole
> brain radiation.
> Hugs
> J
>
Doc said it is a one shot deal - cannot do a 2nd round...............I was
also told in my case I will probably not have any hair regrowth and if so,
it will be very little. I am feeling better with the addition of decadron
again. At least I have some energy and the headaches have eased off a bit.
However the eating has not gotten much better.

I see one of the locations for cyber knife is here in Ohio at Cleveland
Clinic........thanks for the info !!!!!!!!!!!