Time for a roll call? - June/08

How are you doing out there?
Strange times we live in; flooding, heat waves, tornadoes, hailstones,
cold on the West Coast and more.
But the newsgroup's still here and I expect some of you are still lurking.

So update please .

And because of my earlier faux pas; Pam (Tanada) how's it going for you
and Rob?
And Elsie since you search the archives, I hope you'll update us as well.

Insert your name (and type of cancer) here and please update us.
J

"J" <xnswex@nalid;"no> wrote in message
news:484F9933.EB778B@execulink.com...
> How are you doing out there?
> Strange times we live in; flooding, heat waves, tornadoes, hailstones,
> cold on the West Coast and more.
> But the newsgroup's still here and I expect some of you are still lurking.
>
> So update please .
>
> And because of my earlier faux pas; Pam (Tanada) how's it going for you
> and Rob?
> And Elsie since you search the archives, I hope you'll update us as well.
>

For Rob, Glioblastoma Multiforme (stage 4 brain cancer)

Rob is doing ok, so far, though I noticed over the last few days that he
seems more distanced and vague than before. Maybe it is because I've been
dragging him around as I need him to be an exhibit at the various places I
need to get documentation from. My purse was stolen last Wednesday and
we've been spending the past week changing bank accounts, direct deposits,
charge cards, store cards and so forth. I'll never get back the lovely tote
bag/purse that Rob bought me a couple of years ago, but he did have me take
him to Wal-Mart where he bought me a new purse and replaced what he could of
what I had in it. I guess I was complacent and never thought about how
traumatic it is to have your property taken. We even had to have the locks
re-keyed as my house keys were in the purse as well. This has taken a lot
out of me, but, until today, I'd never realized that it took a lot out of
Rob as well.

We went to the annual Cancer survivors picnic on Sunday, June 1st and Rob
was one of the centers of attention. He had a great time and made the
rounds, sort of like a politician, though he says that this isn't one office
he'd ever imagined running for. I ended up with over a dozen ink pens from
the various gimme displays that were there. I gave the kids the candy that
I collected.

This weekend we'll be in Orlando Florida meeting with some internet friends
from our cat group, rec.pets.cats.anecdotes. They're good people and we're
all really excited about being a part of a mini-convention. It promises to
be fun for us all.

Pam S.

J <xnswex@nalid;"no> fell face-first on the keyboard. This was the
result: news:484F9933.EB778B@execulink.com:

> How are you doing out there?
> Strange times we live in; flooding, heat waves, tornadoes, hailstones,
> cold on the West Coast and more.
> But the newsgroup's still here and I expect some of you are still
> lurking.
>
> So update please .
>
> Insert your name (and type of cancer) here and please update us.

Marc here - Malignant paraganglioma in the jugular bulb, initially
diagnosed as Glumus Jugulare and spread to a bunch of lymph nodes, mastoid
bone and (I forget)

Radiation was completed May 7 - Energy levels pretty much back up to
normal, though I find every now and then (a couple of times a week), it'll
suddenly feel like I've just run a marathon and I need to sit down for a
while.

Taste buds are coming back - sort of. They seem to function at a greater or
lesser degree at random levels. Some days, food tastes *great* - Other
days, it's just bland, pasty cardboard that's fuel for the body and nothing
more.

Still funky patch of hairless skull at the back. 9th nerve still dead as a
doornail, though now there's a noticeable droop in the face, which sucks,
because for the first few months after surgery, you could only notice the
paralysis when I talked.

I get the occasional weird headache which I know is related to the surgery,
'cuz the pain is so localized/focused, but it's not severe - just annoying.

Other than that - Life is pretty good. Have a follow-up in Ottawa in a
couple more weeks to see how things are going, then an MRI in a couple more
months to establish a post surgery/post cancer baseline.


--
Marc Bissonnette
Looking for a new ISP? http://www.canadianisp.com
Largest ISP comparison site across Canada.

Hi J...still here and keeping busy. I went to a brain tumor foundation
support meeting (it's the second Tuesday of every month) and starting
next year, May has been designated Brain Tumor Awareness Month (whereas
before one week out of the year, usually in mid-May was designated Brain
Tumor Action Week.)

One of the participants in our group knows the nurse who works for the
surgeon that did Sen. Kennedy's op at Duke. She gave us an update and we
have sent Sen. Kennedy a package of materials that we hope will be
helpful in his recovery.

He was one of the signatories to making May Brain Tumor Action month and
this was way *before* he was diagnosed. It passed the Senate
unanimously, with no opposing vote.

Still hanging in there.

I Passed my 5 yr. mark last week(3 1/2 yr. NED). There are some on the ACOR
Small Cell list with a longer history, but most SCLCers don't survive the first
year. Last number I saw was 20% or so will survive 1 yr Dx

My Onc says "remarkable." Nobody (Onc & Rad Onc) thought I would make it past
the first year. Largely due to the mets in my brain. Guess I'm just too ornery
to die.

I wouldn't wish cancer on anybody, but I wish more could be as lucky as I was.
Good doctors, good friends and lots of support. It *does* make a difference.

All possible Love to the Group.

bobert

--

The 5 food groups:
Chocolate, Coffee, Pizza, Quick and Easy

Bob in Central California

Janet here in way-the-heck-south Texas where we have two seasons: warm
and hot. We are in the latter. We could use some rain, if you folks up
north can find a way to ship it down here.

I saw my ENT on Friday. It was a few days past the second anniversary of
my surgery in June 2006. Everything is looking great.

Janet,
SCC, Stage III of the left tongue. Hemi-glossectomy. 30 radiation
treatments and all kinds of horrid side-effects.

--
Janet Wilder
Bad spelling. Bad punctuation
Good Friends. Good Life

"The Bobert" <nobody@nowhere.nowhow> wrote in message
news:nobody-9CB311.16543111062008@newsclstr02.news.prodigy.com ...
> Still hanging in there.
>
> I Passed my 5 yr. mark last week(3 1/2 yr. NED). There are some on the
> ACOR
> Small Cell list with a longer history, but most SCLCers don't survive the
> first
> year. Last number I saw was 20% or so will survive 1 yr Dx
>
> My Onc says "remarkable." Nobody (Onc & Rad Onc) thought I would make it
> past
> the first year. Largely due to the mets in my brain. Guess I'm just too
> ornery
> to die.
>
> I wouldn't wish cancer on anybody, but I wish more could be as lucky as I
> was.
> Good doctors, good friends and lots of support. It *does* make a
> difference.
>
> All possible Love to the Group.
>
> bobert
>
Wonderful news, it seems like you have beaten the odds!

"Janet Wilder" <kelliepoodle@yahoo.com> wrote in message
news:48506a85$0$19914$c3e8da3@news.astraweb.com...
> Janet here in way-the-heck-south Texas where we have two seasons: warm and
> hot. We are in the latter. We could use some rain, if you folks up north
> can find a way to ship it down here.
>
> I saw my ENT on Friday. It was a few days past the second anniversary of
> my surgery in June 2006. Everything is looking great.
>
> Janet,
> SCC, Stage III of the left tongue. Hemi-glossectomy. 30 radiation
> treatments and all kinds of horrid side-effects.
>
> --
> Janet Wilder
> Bad spelling. Bad punctuation
> Good Friends. Good Life

Two years! It must be be beginning to feel like a bad memory.

"Marc Bissonnette" <dragnet\_@_/internalysis.com> wrote in message
news:Xns9ABAB9FED17C2dragnetinternalysisc@216.196. 97.131...
>J <xnswex@nalid;"no> fell face-first on the keyboard. This was the
> result: news:484F9933.EB778B@execulink.com:
>
>> How are you doing out there?
>> Strange times we live in; flooding, heat waves, tornadoes, hailstones,
>> cold on the West Coast and more.
>> But the newsgroup's still here and I expect some of you are still
>> lurking.
>>
>> So update please .
>>
>> Insert your name (and type of cancer) here and please update us.
>
> Marc here - Malignant paraganglioma in the jugular bulb, initially
> diagnosed as Glumus Jugulare and spread to a bunch of lymph nodes, mastoid
> bone and (I forget)
>
> Radiation was completed May 7 - Energy levels pretty much back up to
> normal, though I find every now and then (a couple of times a week), it'll
> suddenly feel like I've just run a marathon and I need to sit down for a
> while.
>
> Taste buds are coming back - sort of. They seem to function at a greater
> or
> lesser degree at random levels. Some days, food tastes *great* - Other
> days, it's just bland, pasty cardboard that's fuel for the body and
> nothing
> more.
>
> Still funky patch of hairless skull at the back. 9th nerve still dead as a
> doornail, though now there's a noticeable droop in the face, which sucks,
> because for the first few months after surgery, you could only notice the
> paralysis when I talked.
>
> I get the occasional weird headache which I know is related to the
> surgery,
> 'cuz the pain is so localized/focused, but it's not severe - just
> annoying.
>
> Other than that - Life is pretty good. Have a follow-up in Ottawa in a
> couple more weeks to see how things are going, then an MRI in a couple
> more
> months to establish a post surgery/post cancer baseline.
>
>
> --
> Marc Bissonnette
>
Sounds like you are over the worst of it!
Enjoy your summer.

Marc Bissonnette wrote:

> Marc here - Malignant paraganglioma in the jugular bulb, initially
> diagnosed as Glumus Jugulare and spread to a bunch of lymph nodes, mastoid
> bone and (I forget)
>
> Radiation was completed May 7 - Energy levels pretty much back up to
> normal, though I find every now and then (a couple of times a week), it'll
> suddenly feel like I've just run a marathon and I need to sit down for a
> while.
>
> Taste buds are coming back - sort of. They seem to function at a greater or
> lesser degree at random levels. Some days, food tastes *great* - Other
> days, it's just bland, pasty cardboard that's fuel for the body and nothing
> more.
>
> Still funky patch of hairless skull at the back. 9th nerve still dead as a
> doornail, though now there's a noticeable droop in the face, which sucks,
> because for the first few months after surgery, you could only notice the
> paralysis when I talked.
>
> I get the occasional weird headache which I know is related to the surgery,
> 'cuz the pain is so localized/focused, but it's not severe - just annoying.
>
> Other than that - Life is pretty good. Have a follow-up in Ottawa in a
> couple more weeks to see how things are going, then an MRI in a couple more
> months to establish a post surgery/post cancer baseline.

Glad to hear things going relatively well, Marc.
Can't they do cosmetic surgery to lift the droopy side?
They do for strokes. Droopy eyelid; but I forgot to ask her if it's OHIP-
covered.
Thanks for your update.
J

maryanne kehoe wrote:

> Hi J...still here and keeping busy. I went to a brain tumor foundation
> support meeting (it's the second Tuesday of every month) and starting
> next year, May has been designated Brain Tumor Awareness Month (whereas
> before one week out of the year, usually in mid-May was designated Brain
> Tumor Action Week.)
>
> One of the participants in our group knows the nurse who works for the
> surgeon that did Sen. Kennedy's op at Duke. She gave us an update and we
> have sent Sen. Kennedy a package of materials that we hope will be
> helpful in his recovery.
>
> He was one of the signatories to making May Brain Tumor Action month and
> this was way *before* he was diagnosed. It passed the Senate
> unanimously, with no opposing vote.

Your volunteerism is appreciated, MaryAnne,
Thanks much.
J

Janet Wilder wrote:

> Janet here in way-the-heck-south Texas where we have two seasons: warm
> and hot. We are in the latter. We could use some rain, if you folks up
> north can find a way to ship it down here.
>
> I saw my ENT on Friday. It was a few days past the second anniversary of
> my surgery in June 2006. Everything is looking great.
>
> Janet,
> SCC, Stage III of the left tongue. Hemi-glossectomy. 30 radiation
> treatments and all kinds of horrid side-effects.

Thanks for helping around here, Janet and for joining roll call.
Good to hear things looking good at checkup.

Sorry; no can do with rain. Ours comes from SW winds (US) or Western Canada.

Your tornadoes bring rain but I don't think you want those either.
Oklahoma's above you too; and it's dry as well.
I'll have to go looking where there's water we can pull a plug out of. <g>
Take care,
J

atl...@webtv.net (maryanne kehoe) babbles:


> Hi J...still here and keeping busy.


Uh, doing *what*, one wonders...???


I went to a brain tumor foundation
> support meeting (it's the second Tuesday of every month) and starting
> next year, May has been designated Brain Tumor Awareness Month (whereas
> before one week out of the year, usually in mid-May was designated Brain
> Tumor Action Week.)
>
> One of the participants in our group knows the nurse who works for the
> surgeon that did Sen. Kennedy's op at Duke. She gave us an update and we
> have sent Sen. Kennedy a package of materials that we hope will be
> helpful in his recovery.


Wow, wonder what the Kennedy family would think about this pretty
obvious invasion of privacy...???

Do you think the Kennedys will put your LOAFHEADED portrait on the
wall up there at the manse in Hyannisport..???

In any case, thank you for the CHEAP name - dropping...par for the
course for you.

Of course we all remember when the news about Kennedy came out, on
alt.gossip.celebrities you were *right* quick to say that he
"deserved" the tumour because of what happened to Mary Jo Kopechne...


> He was one of the signatories to making May Brain Tumor Action month and
> this was way *before* he was diagnosed. It passed the Senate
> unanimously, with no opposing vote.


We vote *unanimously* that you are a drooling scumbag cretin...

Lol...

You never cease to amaze, my dear...

:-)


--
Best
Greg

J wrote:

> maryanne kehoe wrote:
> > Hi J...still here and keeping busy. I went to a brain tumor foundation
> > support meeting (it's the second Tuesday of every month) and starting
> > next year, May has been designated Brain Tumor Awareness Month (whereas
> > before one week out of the year, usually in mid-May was designated Brain
> > Tumor Action Week.)
>
> > One of the participants in our group knows the nurse who works for the
> > surgeon that did Sen. Kennedy's op at Duke. She gave us an update and we
> > have sent Sen. Kennedy a package of materials that we hope will be
> > helpful in his recovery.
>
> > He was one of the signatories to making May Brain Tumor Action month and
> > this was way *before* he was diagnosed. It passed the Senate
> > unanimously, with no opposing vote.
>
> Your volunteerism is appreciated, MaryAnne,
> Thanks much.
> J


That's not "volunteerism", you frigging moron, that's Loafie bragging
on herself, whilst trying to "associate" with someone rich and famous,
in this case it's Ted Kennedy. "Attending a meeting" is *not* the
same as *volunteering*, you DUMBASS...

When the news about Kennedy's tumour came out, she was quick to
condemn him, implying that this was karma for his supposedly causing
Mary Jo Kopechne's death...it's all archived on Google Groups, the
group is alt.gossip.celebrities. Look it up...

If Loafie were *really* intent on "volunteering", she'd get off of her
morbidly obese ass and go to do shit work at hospices, etc. Instead
she sits in front of her WebTV and brags on her "good work" - which in
actuality is doing *nothing*...which pretty much sums up the
"accomplishments" of her congenitally useless life.


--
Best
Greg

In article <94mdnaYwlLPPi8zVnZ2dnUVZ_gOdnZ2d@comcast.com>,
"xela56" <noaccount@nw.nl> wrote:

> Last number I saw was 20% or so will survive 1 yr Dx
> >
> > My Onc says "remarkable." Nobody (Onc & Rad Onc) thought I would make it
> > past
> > the first year. Largely due to the mets in my brain. Guess I'm just too
> > ornery
> > to die.
> >
> > I wouldn't wish cancer on anybody, but I wish more could be as lucky as I
> > was.
> > Good doctors, good friends and lots of support. It *does* make a
> > difference.
> >
> > All possible Love to the Group.
> >
> > bobert
> >
> Wonderful news, it seems like you have beaten the odds!

When I was first diagnosed, Barbara found a web page that said Small Cell is
usually considered "cured" at 6 yr. instead of 5 yr because it is so
"aggressive". I prefer to ignore the 6 and run with 5.

I condidered myself as having beat the odds at 1 yr, then 2 yr, 3yr, 4yr and now
here I am at 5yr.

Bring on the Big Six, I'm ready!


bobert

--

The 5 food groups:
Chocolate, Coffee, Pizza, Quick and Easy

Bob in Central California

In article <Xns9ABAB9FED17C2dragnetinternalysisc@216.196.97.1 31>,
Marc Bissonnette <dragnet\_@_/internalysis.com> wrote:

> Radiation was completed May 7 - Energy levels pretty much back up to
> normal, though I find every now and then (a couple of times a week), it'll
> suddenly feel like I've just run a marathon and I need to sit down for a
> while.
>
> Taste buds are coming back - sort of. They seem to function at a greater or
> lesser degree at random levels. Some days, food tastes *great* - Other
> days, it's just bland, pasty cardboard that's fuel for the body and nothing
> more.

It can only get better. It sounds like you are doing better than I did when I
had WBR. Keep up the good work.

bobert

--

The 5 food groups:
Chocolate, Coffee, Pizza, Quick and Easy

Bob in Central California

Thanks to your tireless and selfless volunteering activity, Greg, every
minute is a Loafhead Awareness Minute. You're doing the Loafhead Ongoing
Awareness Foundation (LOAF) proud.

On Jun 11, 5:21*am, J <xnswex@nalid;"no> wrote:
> How are you doing out there?
> Strange times we live in; flooding, heat waves, tornadoes, hailstones,
> cold on the West Coast and more.
> But the newsgroup's still here and I expect some of you are still lurking.
>
> So update please .
>
> And because of my earlier faux pas; Pam (Tanada) how's it going for you
> and Rob?
> And Elsie since you search the archives, I hope you'll update us as well.
>
> Insert your name (and type of cancer) here and please update us.
> J

Hi all,

LIfe is busy, so I'm checking in every couple of months or so.

I had rectal cancer in 2003 - involvement of 3 lymph nodes at the
time. Did the whole chemo - operation (complete with bag for 6
months) - more chemo thing.

I'm doing great! I'm hodling my breath for the 5 year mark... Just
had a CT scan that the lady on the message called "stable". I'll
probably cal the doc just to make sure that "stable" means what I
think.

The kids are growing up. My daughter graduated from High school this
year and will be going to college. My son is a Freshman in High
school.

My main worry these days are the gas prices :-) We're now biking to
work and the grocery store.

It's so nice to have mundane problems :-)

Elsie

Elsie here - rectal cancer

Hi all,

LIfe is busy, so I'm checking in every couple of months or so.

I had rectal cancer in 2003 - involvement of 3 lymph nodes at the
time. Did the whole chemo - operation (complete with bag for 6
months) - more chemo thing.

I'm doing great! I'm hodling my breath for the 5 year mark... Just
had a CT scan that the lady on the message called "stable". I'll
probably cal the doc just to make sure that "stable" means what I
think.

The kids are growing up. My daughter graduated from High school this
year and will be going to college. My son is a Freshman in High
school.

My main worry these days are the gas prices :-) We're now biking to
work and the grocery store.

It's so nice to have mundane problems :-)

Elsie

On Thu, 12 Jun 2008 17:29:03 -0400, doomella sat in thee Comfee Chaire,
and didst finally confess, after taking Muche Tea:

> Thanks to your tireless and selfless volunteering activity, Greg, every
> minute is a Loafhead Awareness Minute. You're doing the Loafhead Ongoing
> Awareness Foundation (LOAF) proud.

It's good to remember Loafhead. It's even better to remember that she's
not a lone k00k in her home group, but one of many...<contemplates Kathy
Mosesian, Martha Vandella, Ice, and others>

--
__________________________________________________ ______________________
Hail Eris! Usenet Ruiner #5; Most Hated Usenetizen of All Time #13
Demon Prince of Absurdity; COOSN-029-06-71069; Official Chung Demon
Top Asshole #3; Lits Slut #16; AUK Psycho & Felon #21
Gutter Chix0r #17; BowTie's Spuriously Accused Pedo Photographer #4
Parrot & Zombie #2; Anonymous Psycho Criminal #18
"Lola Stonewall Riot" is not part of my email addy.
"If I were a Deep One...blub, blub, blub, blub, blub, blub, blub, blub,
bloody, bloody, blub..."
"For those of you without hope, we have rooms with color TV, cable and
air conditioning"

Barbara Woodhouse Memorial Dog Whistle
Trainer of PorchMonkey4Life
http://www.screedbomb.info/porchie/

"Hey Theophan, I need your help again. Will you please come assist me
again? aggreen is after me again. He has been after me for a year and
counting now. I want you to destroy his character for me. I can't do
it." -- Olympiada: Not too proud to beg for help when it comes to
character assassination, and Mistress of the Bleeding Obvious.
MID: <45E22F00.5070103@yahoo.com>

"I think we have taken care of the net.KKKopping in alt.gothic. Could
all the kookologists trim alt.gothic from their headers and leave us
alone now? It has gone on long enough. I can take care of myself in there
from here on out. Thanks. I know how to fight off trolls now. Thank you
for the education." -- Olympiada thinks she's had an education, and that
means it's time for those nice kookologists to go away and leave her
sandbox alone now, in MID: <45e330a8$0$16404$88260bb3@free.teranews.com>

"Who booby-traps a dead end? That's just not right." -- Cordelia

>> Are you the Peter J Ross that I've heard so much about?
>
> Probably. I'm the one who doesn't resort to forgery after losing an
> argument.

"You're the one with the extensive brain damage... okay I see. You're
gonna be easily to own them." -- PorchMonkey4Life: Not aware of too many
things. MID: <bf7xh.834$hH2.64@trnddc02>

At last! See Joxer The Mity Monkey on camera! Watch him freak out!!
http://www.youtube.com/watch?v=O_WuaENGqz0

"You're just mad that you got tard stomped again fagg0t. You throw
something incredibly lame out there and I ramming it right back down
your throat. And you wonder how I just did what I did to you. You wonder
how I can make something so lame that you tossed out there so gosh darn
amusing when I fling it back at ya.

"Here's the secret: Unlike you, I am *not* retarded. You're tardness
gets in your way every single time, fagboi.

"Are you still crying over your keyboard, c0ckslurper? Is your mouth
wide open and drool falling out. Is your chunky body convulsing as you
think about how you were once again made a fool of? Are yellow boogie
snots running out of your unnaturally large nose down your triple chins?

"Look at what I reduced you too, tard.. I thoroughly enjoy owning and
abusing you.. Thanks for being so tarded and so easy to beat." -- The
PorchMonkey4Life has gone on to re-define red as yellow, black as white,
and being run over by a truck as just a scratch. Message-ID:
<kX3Nh.525$vI1.380@trnddc02>

"And no, I did not have sex with my son. But if I did I certainly
wouldn't tell you. Something so beautiful and precious should be kept
private." -- Kathy L. Mosesian, or possibly not really her, confesses
she may be a liar and committer of incest with her own son, in MID:
<cfcd3f4660694e3afeaadaa2723e9ab1@msgid.frell.ther emailer.net>

The reporter asked Colin Powell (or George Bush), "What proof do you
have that Iraq has weapons of mass destruction?"
He replied, "We kept the receipts." -- Bill Hicks

Looney Maroon nominee for August 2006 Johnny D Wentzky foamed:
"You never asked someone who goes into areas of the internet that are
only for adults who has an underage id somehow or another if they are a
cop posing as an underage person online?
I guess lots of people just don't watch dateline or read stories much.
Why don;t you go to pervertedjustice,com and see what they do. They are
awash in their self-proclaimed glory after they lied to membners of the
public.
They are awash in their self-proclaimed glory after they posed as an
underage person and agreed to do all sorts of sex acts wioth adult
males, and they are adults posing as teenager themselves. They make
themsleves into liars by falsely impersonating underage persons and by
not fuilfilling the words they tell the victims online in their chats.
Why don't you read it where they tell these victims of their deceit
about how they have been with grown men and such? Why don't you read it
where they say, "That would be cool." after someone makes an advance
towards an adult who is posing as a teenager? And, where they agree to
meet the person, etc.
Lost control, didn't you?
Is that why you feel as if you need to lie so much now? I see where lots
of these false impersonation games are not sticking. They feel as if
they can lie and then order the victims to get counseling in the
gayblade, governmental, pro-choice tax leech counseling centers. They
are doing nothing more than usury and fraud in many cases." -- Wentzky
almost comes out of the closet as a pedo/ephebophile in MID:
<H%%Eg.28916$Uq1.22411@bignews6.bellsouth.net>

To Whom It May Concern: Michael J. Cranston attorney kook is a dogfucker

Elsie wrote:

> Elsie here - rectal cancer
>
> Hi all,
>
> LIfe is busy, so I'm checking in every couple of months or so.
>
> I had rectal cancer in 2003 - involvement of 3 lymph nodes at the
> time. Did the whole chemo - operation (complete with bag for 6
> months) - more chemo thing.
>
> I'm doing great! I'm hodling my breath for the 5 year mark... Just
> had a CT scan that the lady on the message called "stable". I'll
> probably cal the doc just to make sure that "stable" means what I
> think.
>
> The kids are growing up. My daughter graduated from High school this
> year and will be going to college. My son is a Freshman in High
> school.
>
> My main worry these days are the gas prices :-) We're now biking to
> work and the grocery store.
>
> It's so nice to have mundane problems :-)
>
> Elsie

Stable...hrmmmph !
They're too scared to say the word "cured"?
Good to hear from you again, Elsie.

All my best to you and your family.
J

The Bobert wrote:

> When I was first diagnosed, Barbara found a web page that said Small Cell is
> usually considered "cured" at 6 yr. instead of 5 yr because it is so
> "aggressive". I prefer to ignore the 6 and run with 5.
>
> I condidered myself as having beat the odds at 1 yr, then 2 yr, 3yr, 4yr and now
> here I am at 5yr.
>
> Bring on the Big Six, I'm ready!
>
> bobert

Yeppers - I've been a bit of holdout as well, because there was /were recurrences in
the brain.
But why wait for the other shoe to drop - it might not.
So on with life, hopefully a a fun and healthy one.
Best,
J

tanadashoes wrote:

> For Rob, Glioblastoma Multiforme (stage 4 brain cancer)
>
> Rob is doing ok, so far, though I noticed over the last few days that he
> seems more distanced and vague than before. Maybe it is because I've been
> dragging him around as I need him to be an exhibit at the various places I
> need to get documentation from. My purse was stolen last Wednesday and
> we've been spending the past week changing bank accounts, direct deposits,
> charge cards, store cards and so forth. I'll never get back the lovely tote
> bag/purse that Rob bought me a couple of years ago, but he did have me take
> him to Wal-Mart where he bought me a new purse and replaced what he could of
> what I had in it. I guess I was complacent and never thought about how
> traumatic it is to have your property taken. We even had to have the locks
> re-keyed as my house keys were in the purse as well. This has taken a lot
> out of me, but, until today, I'd never realized that it took a lot out of
> Rob as well.
>
> We went to the annual Cancer survivors picnic on Sunday, June 1st and Rob
> was one of the centers of attention. He had a great time and made the
> rounds, sort of like a politician, though he says that this isn't one office
> he'd ever imagined running for. I ended up with over a dozen ink pens from
> the various gimme displays that were there. I gave the kids the candy that
> I collected.
>
> This weekend we'll be in Orlando Florida meeting with some internet friends
> from our cat group, rec.pets.cats.anecdotes. They're good people and we're
> all really excited about being a part of a mini-convention. It promises to
> be fun for us all.
>
> Pam S.

Golly, that's a major stressor - theft of your purse. Sorry that happened, Pam

Your description of Rob makes me smile - dragging around an exhibit, then his
walking around like a politician.
My guess is he's reliving and savouring those times and feeling more important
than the President.
And that he is. That he is.
Thanks for update Pam.

If Kili will be there (Florida meet), please give her a hug from me.
J

"J" <xnswex@nalid;"no> wrote in message
news:48523A6C.C795F8F2@execulink.com...
>
> Golly, that's a major stressor - theft of your purse. Sorry that happened,
> Pam
>
> Your description of Rob makes me smile - dragging around an exhibit, then
> his
> walking around like a politician.
> My guess is he's reliving and savouring those times and feeling more
> important
> than the President.
> And that he is. That he is.
> Thanks for update Pam.
>
> If Kili will be there (Florida meet), please give her a hug from me.
> J
>

Done. Kili is a sweetheart and a joy to talk to. Her attitude about her
cancer is amazing and I was thrilled not only to have a chance to meet her,
but to give her a big hug. I admire her greatly.

Pam S.

"xela56" <noaccount@nw.nl> wrote in alt.support.cancer:

>> I wouldn't wish cancer on anybody

I would, on the spammers in this newsgroup ... I have a cure, come to my
website, etc bs.

J <xnswex@nalid;"no> wrote in alt.support.cancer:

> Insert your name (and type of cancer) here and please update us.

melanoma. Still doing carboplatin & taxol for lung tumours, started mid-
December. The tumours are all down to almost gone, the largest is 14mm,
down from a high of 70mm in December. Many previous tumours are no longer
noticable. Unfortunately the chemo side-effects are brutal as far as
nerve damage goes. I wish my oncologist hadn't forced me to wait 3 months
between september & december to start treatment. In those 3 months the
tumours grew 600% in size, which means now I have to be on taxol for
about a year before they're unmeasurable. And I'm now having a great deal
of trouble walking. So now, even though the tumours are almost gone from
my lungs, the onc is threatening to cut off the chemo, even thoguh it was
him making me wait 3 months that made them grow, hence me having to be on
the chemo for so long to get rid of them. But still, apparently I don't
have quality of life, so they're threatening to cut my chemo off so I'll
have no life at all, even though the largest tumour is 14mm.

Such is the logic of health professionals:
1) deny treatment and almost kill someone;
2) as a "last resort" give them some compassionate treatment;
3) because you 1) denied treatment, the 2) compassionate treatment has to
be long and very extensive, thus damaging the health of the individual.
4) because you denied treatment for so long, the length of the treatment
you eventually allowed damages the person's quality of life, so you
threatent to deny treatment again.

Brilliant huh?

tanadashoes wrote:

> "J" <xnswex@nalid;"no> wrote in message
> > If Kili will be there (Florida meet), please give her a hug from me.
>
>
> Done. Kili is a sweetheart and a joy to talk to. Her attitude about her
> cancer is amazing and I was thrilled not only to have a chance to meet her,
> but to give her a big hug. I admire her greatly.

Thanks Pam.
Yes and Yes about Kili. [Note for readers: not cancer but rare aggressive tumor
in her chest - extensive surgery & recon; not to mention getting to the right
surgeon and other complications]

Everything go smoothly at home while you were gone?
J

jacques wrote:

> melanoma. Still doing carboplatin & taxol for lung tumours, started mid-
> December. The tumours are all down to almost gone, the largest is 14mm,
> down from a high of 70mm in December. Many previous tumours are no longer
> noticable. Unfortunately the chemo side-effects are brutal as far as
> nerve damage goes. I wish my oncologist hadn't forced me to wait 3 months
> between september & december to start treatment. In those 3 months the
> tumours grew 600% in size, which means now I have to be on taxol for
> about a year before they're unmeasurable. And I'm now having a great deal
> of trouble walking. So now, even though the tumours are almost gone from
> my lungs, the onc is threatening to cut off the chemo, even thoguh it was
> him making me wait 3 months that made them grow, hence me having to be on
> the chemo for so long to get rid of them. But still, apparently I don't
> have quality of life, so they're threatening to cut my chemo off so I'll
> have no life at all, even though the largest tumour is 14mm.
>
> Such is the logic of health professionals:
> 1) deny treatment and almost kill someone;
> 2) as a "last resort" give them some compassionate treatment;
> 3) because you 1) denied treatment, the 2) compassionate treatment has to
> be long and very extensive, thus damaging the health of the individual.
> 4) because you denied treatment for so long, the length of the treatment
> you eventually allowed damages the person's quality of life, so you
> threatent to deny treatment again.
>
> Brilliant huh?

Hello Jacques,

I wish I could spend some time with you, for a number of reasons, but you
live too far away.
Anger is an energy; that alone could take us a good part of the day, sharing
our musical tastes.
And I can get wordy; very wordy.

If you want logic, I'll have to bore (or depress you) you with some facts,
one of which is that just because (known) tumors disappear from view, does
not mean they're gone. And just because others don't show up on scans,
doesn't mean they aren't there, spreading. If you'd like to hear more, just
say the word.

Yesterday a doctor used the words "fix the problems" about me. I had to
remind her that I'm not curable; but there's ways to improve my situation.
That worked, so now we're on the same page.

You lead the way; anything you wish to say or discuss.
Meantime, I'm here; listening and caring very much about you.

J

Marc Bissonnette wrote:

> Marc here - Malignant paraganglioma in the jugular bulb, initially
> diagnosed as Glumus Jugulare and spread to a bunch of lymph nodes, mastoid
> bone and (I forget)
>
> Radiation was completed May 7 - Energy levels pretty much back up to
> normal, though I find every now and then (a couple of times a week), it'll
> suddenly feel like I've just run a marathon and I need to sit down for a
> while.
>
> Taste buds are coming back - sort of. They seem to function at a greater or
> lesser degree at random levels. Some days, food tastes *great* - Other
> days, it's just bland, pasty cardboard that's fuel for the body and nothing
> more.
>
> Still funky patch of hairless skull at the back. 9th nerve still dead as a
> doornail, though now there's a noticeable droop in the face, which sucks,
> because for the first few months after surgery, you could only notice the
> paralysis when I talked.
>
> I get the occasional weird headache which I know is related to the surgery,
> 'cuz the pain is so localized/focused, but it's not severe - just annoying.
>
> Other than that - Life is pretty good. Have a follow-up in Ottawa in a
> couple more weeks to see how things are going, then an MRI in a couple more
> months to establish a post surgery/post cancer baseline.

What's happening up there, Marc?
Busy working on the bells project?
Or practising the fiddle or the violin ? How's that going?
Or huddling around the wood stove?
It sure is cold(er) down this way these days.
Oops, I just realized you might be in Ottawa this week.


I'm pretty sure OHIP would pay for cosmetic surgery.
Save that mask - it might be helpful.
I also have other suggestions before you go for (such) a consult.
Please keep in touch and let us know how things are going up your way.
J

J <xnswex@nalid;"no> fell face-first on the keyboard. This was the
result: news:4858F7DB.949A7EC5@execulink.com:

> Marc Bissonnette wrote:
>
>> Marc here - Malignant paraganglioma in the jugular bulb, initially
>> diagnosed as Glumus Jugulare and spread to a bunch of lymph nodes,
>> mastoid bone and (I forget)
>>
>> Radiation was completed May 7 - Energy levels pretty much back up to
>> normal, though I find every now and then (a couple of times a week),
>> it'll suddenly feel like I've just run a marathon and I need to sit
>> down for a while.
>>
>> Taste buds are coming back - sort of. They seem to function at a
>> greater or lesser degree at random levels. Some days, food tastes
>> *great* - Other days, it's just bland, pasty cardboard that's fuel
>> for the body and nothing more.
>>
>> Still funky patch of hairless skull at the back. 9th nerve still dead
>> as a doornail, though now there's a noticeable droop in the face,
>> which sucks, because for the first few months after surgery, you
>> could only notice the paralysis when I talked.
>>
>> I get the occasional weird headache which I know is related to the
>> surgery, 'cuz the pain is so localized/focused, but it's not severe -
>> just annoying.
>>
>> Other than that - Life is pretty good. Have a follow-up in Ottawa in
>> a couple more weeks to see how things are going, then an MRI in a
>> couple more months to establish a post surgery/post cancer baseline.
>
> What's happening up there, Marc?
> Busy working on the bells project?
> Or practising the fiddle or the violin ? How's that going?
> Or huddling around the wood stove?
> It sure is cold(er) down this way these days.
> Oops, I just realized you might be in Ottawa this week.

Colder ? Wow, I think the last two days are the only ones the AC hasn't
fired up on

No, haven't started the bells project - That's a long-term thing/dream

Haven't found a fiddle teacher, yet, either Music store in Pembroke has
15 teachers - none of them do violin or fiddle.

> I'm pretty sure OHIP would pay for cosmetic surgery.

Yeah, but does cosmetic cover the nerve itself ? That's what I really want
- the side of the face to be functional again - even 50% - The eye droop is
really causing vision issues, which kinda sucks :/

> Save that mask - it might be helpful.
> I also have other suggestions before you go for (such) a consult.
> Please keep in touch and let us know how things are going up your way.

Will do - I check the group twice a day

--
Marc Bissonnette
Looking for a new ISP? http://www.canadianisp.com
Largest ISP comparison site across Canada.

"J" <xnswex@nalid;"no> wrote in message
news:4858EFF9.7E7A661C@execulink.com...
>
> Everything go smoothly at home while you were gone?
> J
>

Actually better than I hoped. Our critter sitter is perfect. Tanada hid,
usually in a stack of laundry, only coming out for food, water, and litter
box. The dog actually let Jason let him out of the house for business
purposes. The dog is not comfortable with males and often hides from them.
The other cats let us know that the wait staff was adequate and that they
really want us to give them the good stuff like the wait staff did. Most of
them have finally forgiven me for taking the humans away, but a few are
still pretty miffed at me. For those who don't know, we have eight indoor
cats, feed three strays and have a dog, named Speedy the wonder chicken.
Each of them has a different opinion on the way we should conduct business
around here, but they all agree that if anything doesn't suit them, I am to
blame.

Pam S.

"J" <xnswex@nalid;"no> wrote in message
news:484F9933.EB778B@execulink.com...
> How are you doing out there?
> Strange times we live in; flooding, heat waves, tornadoes, hailstones,
> cold on the West Coast and more.
> But the newsgroup's still here and I expect some of you are still
> lurking.
>
> So update please .
>
> And because of my earlier faux pas; Pam (Tanada) how's it going for
> you
> and Rob?
> And Elsie since you search the archives, I hope you'll update us as
> well.
>
> Insert your name (and type of cancer) here and please update us.
> J
>

I went to the Rad Oncologist today. No rad. at this time. She thinks
it's too soon. I will visit with her every 2 months. Tumors are too
small and causing no problems. She also has the ct scan right there.
I also made arrangements to get this port flushed. Nee an RX for that
and they don't let me write my own. YET!
Other than being anemic, I am fine. Bring on the spinach!


Betsy

betsy959 wrote:

> I went to the Rad Oncologist today. No rad. at this time. She thinks
> it's too soon. I will visit with her every 2 months. Tumors are too
> small and causing no problems. She also has the ct scan right there.
> I also made arrangements to get this port flushed. Nee an RX for that
> and they don't let me write my own. YET!
> Other than being anemic, I am fine. Bring on the spinach!
>
> Betsy

Sounds good to me, Be