Update on liver situation

Well I had a second stent put in nearly two weeks ago, don"t remember if
i Had told you that. they still were not able to access the right duct
so they went in throught the existsing left stent or alongside it 'm not
sure which and looped some sort of curly stent with holes in it to the
right side and drained it out the left. I was scepsis ecolli type
infection from the 1st stent. I've been taking heavy antibiotics which
have really had me messed up and very tired, tomorrow praise God is the
last day of them and hopefully the infection won't come back. I been to
see 2 radiology oncologists, One my onc sent me to and the other my
surgeon sent me to. The first one has me temporarily marked and wants to
start right away 28 rounds and extra 5 if that goes well. he wants to
radiate the portal hepatic region as well as some that are near my aorta
which I think is retrperitoneal area and recommends erbitux with them.
the other one wants to do 25-26 rounds to only hepatic lymph node areas.
she says the aorta ones would cause me pain & nausia so doesn't want to
fool with them and says erbitux would just cause a bad painful rash and
would rather spare me that since I'll be pretty messed up with the
radiation alone.. but they are already causing me a great deal of back
pain now. Still trying to figure the best route. Onc says he's not sure
he'd do anything else at ths point. Easy for him to say.

--
"God has a plan for me. I don't know what that is, and I'm
not leaving until I find out."



BetsyB



"J W" <jonboy42@webtv.net> wrote in message
news:10571-462D5EE7-955@storefull-3257.bay.webtv.net...
> Well I had a second stent put in nearly two weeks ago, don"t remember if
> i Had told you that. they still were not able to access the right duct
> so they went in throught the existsing left stent or alongside it 'm not
> sure which and looped some sort of curly stent with holes in it to the
> right side and drained it out the left. I was scepsis ecolli type
> infection from the 1st stent. I've been taking heavy antibiotics which
> have really had me messed up and very tired, tomorrow praise God is the
> last day of them and hopefully the infection won't come back. I been to
> see 2 radiology oncologists, One my onc sent me to and the other my
> surgeon sent me to. The first one has me temporarily marked and wants to
> start right away 28 rounds and extra 5 if that goes well. he wants to
> radiate the portal hepatic region as well as some that are near my aorta
> which I think is retrperitoneal area and recommends erbitux with them.
> the other one wants to do 25-26 rounds to only hepatic lymph node areas.
> she says the aorta ones would cause me pain & nausia so doesn't want to
> fool with them and says erbitux would just cause a bad painful rash and
> would rather spare me that since I'll be pretty messed up with the
> radiation alone.. but they are already causing me a great deal of back
> pain now. Still trying to figure the best route. Onc says he's not sure
> he'd do anything else at ths point. Easy for him to say.
>
Holy crow! Jon that is the best news I have heard out of you in months. Did
the radiation make you ill when you had it before? The reason I am asking is
when I got my 37-38 doses I had no side effects other than being tired and
the burn mark on my back.

Betsy

"J W" <jonboy42@webtv.net> wrote in message
news:10571-462D5EE7-955@storefull-3257.bay.webtv.net...
> Well I had a second stent put in nearly two weeks ago, don"t remember if
> i Had told you that. they still were not able to access the right duct
> so they went in throught the existsing left stent or alongside it 'm not
> sure which and looped some sort of curly stent with holes in it to the
> right side and drained it out the left. I was scepsis ecolli type
> infection from the 1st stent. I've been taking heavy antibiotics which
> have really had me messed up and very tired, tomorrow praise God is the
> last day of them and hopefully the infection won't come back. I been to
> see 2 radiology oncologists, One my onc sent me to and the other my
> surgeon sent me to. The first one has me temporarily marked and wants to
> start right away 28 rounds and extra 5 if that goes well. he wants to
> radiate the portal hepatic region as well as some that are near my aorta
> which I think is retrperitoneal area and recommends erbitux with them.
> the other one wants to do 25-26 rounds to only hepatic lymph node areas.
> she says the aorta ones would cause me pain & nausia so doesn't want to
> fool with them and says erbitux would just cause a bad painful rash and
> would rather spare me that since I'll be pretty messed up with the
> radiation alone.. but they are already causing me a great deal of back
> pain now. Still trying to figure the best route. Onc says he's not sure
> he'd do anything else at ths point. Easy for him to say.
>
>
>
>

I think I advised you to have radiation some weeks ago, JW.
There is absolutely no evidence that adding chemotherapy of any description
will help.
And the course of radiation should be short and sweet.

betsyb wrote:

> "J W" <jonboy42@webtv.net> wrote in message
> news:10571-462D5EE7-955@storefull-3257.bay.webtv.net...
> > Well I had a second stent put in nearly two weeks ago, don"t remember if
> > i Had told you that. they still were not able to access the right duct
> > so they went in throught the existsing left stent or alongside it 'm not
> > sure which and looped some sort of curly stent with holes in it to the
> > right side and drained it out the left. I was scepsis ecolli type
> > infection from the 1st stent. I've been taking heavy antibiotics which
> > have really had me messed up and very tired, tomorrow praise God is the
> > last day of them and hopefully the infection won't come back. I been to
> > see 2 radiology oncologists, One my onc sent me to and the other my
> > surgeon sent me to. The first one has me temporarily marked and wants to
> > start right away 28 rounds and extra 5 if that goes well. he wants to
> > radiate the portal hepatic region as well as some that are near my aorta
> > which I think is retrperitoneal area and recommends erbitux with them.
> > the other one wants to do 25-26 rounds to only hepatic lymph node areas.
> > she says the aorta ones would cause me pain & nausia so doesn't want to
> > fool with them and says erbitux would just cause a bad painful rash and
> > would rather spare me that since I'll be pretty messed up with the
> > radiation alone.. but they are already causing me a great deal of back
> > pain now. Still trying to figure the best route. Onc says he's not sure
> > he'd do anything else at ths point. Easy for him to say.
> >
> Holy crow! Jon that is the best news I have heard out of you in months. Did
> the radiation make you ill when you had it before? The reason I am asking is
> when I got my 37-38 doses I had no side effects other than being tired and
> the burn mark on my back.
>
> Betsy

Well, that was for the tumor hanging down into your esophagus, right?
And they were trying for curative. John's would be palliative and his liver is
cirrhotic.
What type of machine did they use, please?
J

J W wrote:

> Well I had a second stent put in nearly two weeks ago, don"t remember if
> i Had told you that. they still were not able to access the right duct
> so they went in throught the existsing left stent or alongside it 'm not
> sure which and looped some sort of curly stent with holes in it to the
> right side and drained it out the left. I was scepsis ecolli type
> infection from the 1st stent. I've been taking heavy antibiotics which
> have really had me messed up and very tired, tomorrow praise God is the
> last day of them and hopefully the infection won't come back. I been to
> see 2 radiology oncologists, One my onc sent me to and the other my
> surgeon sent me to. The first one has me temporarily marked and wants to
> start right away 28 rounds and extra 5 if that goes well. he wants to
> radiate the portal hepatic region as well as some that are near my aorta
> which I think is retrperitoneal area and recommends erbitux with them.
> the other one wants to do 25-26 rounds to only hepatic lymph node areas.
> she says the aorta ones would cause me pain & nausia so doesn't want to
> fool with them and says erbitux would just cause a bad painful rash and
> would rather spare me that since I'll be pretty messed up with the
> radiation alone.. but they are already causing me a great deal of back
> pain now. Still trying to figure the best route. Onc says he's not sure
> he'd do anything else at ths point. Easy for him to say.

28 rounds of RT is unheard of here for palliation and i've been here for
many years, Jon.
(except two people who came here complaining later that their loved ones
were over-treated and died because of it). Actually the count just went up
recently, I think, with someone whose loved one had a gynaecological RT, and
another, whose name I shall not mention, who had whole brain RT, but the
doctors failed to tell her that her mother was dying and died 2 days later.
These were all in the US.

Sounds to me that you should ditch the one in a hurry to "milk" your
insurance and overtreat you, Jon. What did the other radiation oncologist
suggest, please? If it's more in line with what Steph just posted, sounds
reasonable to me.

I'm sure you're in a hurry to get that back pain looked after, but please
talk about it here, before you make a hasty decision, Jon. Are there mets
to the spine? or mets in the liver, causing the pain, or just the same
regions causing trouble, as before?
J

J wrote:

> J W wrote:
>
>
> > the other one wants to do 25-26 rounds to only hepatic lymph node areas.
> > she says the aorta ones would cause me pain & nausia so doesn't want to
> What did the other radiation oncologist
> suggest, please?

Sorry, I missed this part, Jon.
Still sounds like too much.
What machines are they looking to use (and pay for with your insurance)?
J

--
"God has a plan for me. I don't know what that is, and I'm
not leaving until I find out."



BetsyB



"J" <nexsw@nvalid,anon> wrote in message
news:462DDDEB.317776BE@execulink.com...
> betsyb wrote:
>
>> "J W" <jonboy42@webtv.net> wrote in message
>> news:10571-462D5EE7-955@storefull-3257.bay.webtv.net...
>> > Well I had a second stent put in nearly two weeks ago, don"t remember
>> > if
>> > i Had told you that. they still were not able to access the right duct
>> > so they went in throught the existsing left stent or alongside it 'm
>> > not
>> > sure which and looped some sort of curly stent with holes in it to the
>> > right side and drained it out the left. I was scepsis ecolli type
>> > infection from the 1st stent. I've been taking heavy antibiotics which
>> > have really had me messed up and very tired, tomorrow praise God is
>> > the
>> > last day of them and hopefully the infection won't come back. I been to
>> > see 2 radiology oncologists, One my onc sent me to and the other my
>> > surgeon sent me to. The first one has me temporarily marked and wants
>> > to
>> > start right away 28 rounds and extra 5 if that goes well. he wants to
>> > radiate the portal hepatic region as well as some that are near my
>> > aorta
>> > which I think is retrperitoneal area and recommends erbitux with them.
>> > the other one wants to do 25-26 rounds to only hepatic lymph node
>> > areas.
>> > she says the aorta ones would cause me pain & nausia so doesn't want to
>> > fool with them and says erbitux would just cause a bad painful rash and
>> > would rather spare me that since I'll be pretty messed up with the
>> > radiation alone.. but they are already causing me a great deal of back
>> > pain now. Still trying to figure the best route. Onc says he's not sure
>> > he'd do anything else at ths point. Easy for him to say.
>> >
>> Holy crow! Jon that is the best news I have heard out of you in months.
>> Did
>> the radiation make you ill when you had it before? The reason I am asking
>> is
>> when I got my 37-38 doses I had no side effects other than being tired
>> and
>> the burn mark on my back.
>>
>> Betsy
>
> Well, that was for the tumor hanging down into your esophagus, right?
> And they were trying for curative. John's would be palliative and his
> liver is
> cirrhotic.
> What type of machine did they use, please?
> J
Be glad to tell you what kind of machine they used if I knew. The radiation
was for the tumor in my right upper lung and the 2 tumors hanging on the
back of the esophagus in front of the spine.
I understand what Jon was going for. I was commenting more on his attitude.
Thanks for monitoring

There is an unknown here. The 1st stent that was left side only was
overwhelmed or failed already almost 2 weeks ago. the ERCP doc had
trouble with the second one. Becuase of my infection and low blood
pressure the anesthesiologist refused to jst twilight me under as with
the 1st one he wanted full OR room and breathing tube. The ERCP doc was
enthusiastic goig in, said he felt he could buy me 6 more months, coming
outhe said it's probly plug up in two weeks. He tod us he go back in anf
do it again but tod my onc and primary doc he wouldn't so I'm coming up
on two weeks now and developed sharp pain in liver area last night. I
hope that I just pulled something lifting a case of water which I had no
business doing. So I'm worried that this stent may fail in the middle of
radiation.
The problem now is the original colon cancer has spred to my lymph nodes
lymphatic system, there are now some s,all spots showing in lungs too.
The lymph nodes are swollen around the main bile duct at the hepatic
portal and also some in the retroperitoneal aora area causing the mid
back pain. As far as I know (knock wod) no mets to bone or liver as of
yet and hopefully won't be.


Group: alt.support.cancer Date: Tue, Apr 24, 2007, 6:48am From:
nexsw@nvalid (J) wrote:


Sounds to me that you should ditch the one in a hurry to "milk" your
insurance and overtreat you, Jon. What did the other radiation
oncologist suggest, please? If it's more in line with what Steph just
posted, sounds reasonable to me.

I'm sure you're in a hurry to get that back pain looked after, but
please talk about it here, before you make a hasty decision, Jon. Are
there mets to the spine? or mets in the liver, causing the pain, or just
the same regions causing trouble, as before?
J

I have not had radiation yet and have to find out what knd of machine
they'll be using, what type is best


Holy crow! Jon that is the best news I have heard out of you in months.
Did the radiation make you ill when you had it before? The reason I am
asking is when I got my 37-38 doses I had no side effects other than
being tired and the burn mark on my back.
Betsy
Well, that was for the tumor hanging down into your esophagus, right?
And they were trying for curative. John's would be palliative and his
liver is cirrhotic.
What type of machine did they use, please? J

"J W" <jonboy42@webtv.net> wrote in message
news:26148-462E08AF-932@storefull-3258.bay.webtv.net...
>I have not had radiation yet and have to find out what knd of machine
> they'll be using, what type is best
>

Any linear accelerator, or even a cobalt machine would be fine.

>
> Holy crow! Jon that is the best news I have heard out of you in months.
> Did the radiation make you ill when you had it before? The reason I am
> asking is when I got my 37-38 doses I had no side effects other than
> being tired and the burn mark on my back.
> Betsy
> Well, that was for the tumor hanging down into your esophagus, right?
> And they were trying for curative. John's would be palliative and his
> liver is cirrhotic.
> What type of machine did they use, please? J
>
>
>
>

Well I started getting bad pain in liver area two nights ago, they think
something may be wrong with the stents. I go for yet another ERCP
tomorrow to see what's going on. Can't seem to get these stents to last
so I may never get that radiation. I hope don't get another infection
from this ERCP. I don't think could tolerate another ten days of
antibiotics they were tolerable the few days in the hospital via IV but
they tore my stomach up once they sent me home with pill form and kept
me so out of it and weak I could barely talk for ten days. Just finished
them yesterday. Flagyl and levaquin (spelling)

J W wrote:

> Well I started getting bad pain in liver area two nights ago, they think
> something may be wrong with the stents. I go for yet another ERCP
> tomorrow to see what's going on. Can't seem to get these stents to last
> so I may never get that radiation. I hope don't get another infection
> from this ERCP. I don't think could tolerate another ten days of
> antibiotics they were tolerable the few days in the hospital via IV but
> they tore my stomach up once they sent me home with pill form and kept
> me so out of it and weak I could barely talk for ten days. Just finished
> them yesterday. Flagyl and levaquin (spelling)

Sending positive vibes for your procedure tomorrow.
As always, I'm, here, thinking of you Jon.
J

Went for 3rd ERCP in 4 weeks to see what was going on and causing pain
yesterdday, It appears that when I lifted the case of water, the long
curly stent that he had jerryrigged from my left liver side over into my
right side to help the right side drain cause he could not get one
direcctly into t right side. Well it appears my stupidity is lifting the
heavy case of water cause I was ashamed for my wife to allways be doing
this stuff caused the long curly stent to retract itself out ouf the
right side and curl up on the left which hurts lie crazy. He says for
now it's draining good so he lleft it alone. He sid he'd prolly do more
harm than good right now if he tried to fix it. He wants to go back in
in about 4 weeks and change them both out. So for now I have to find a
way to deal with the pain in the liver and hope if I start radiation
that nothing else goes wrong with the stents to interfere with the
radiation. This ERCP doc is supposely the best they have in our HMO but
I'm not impressed. I now all of a sudden appear to have diabetes. My
sugar was 165 2 weeks ago and over 300 this last tuesday. They checked
it yesterday afternoon at hospital and it was 135 but I had also been
fasting (nothing but sips of water since midnight before so it wan't a
fair test. I hope this is temporary, I can't give myself a shot every
day, I'm terrified of needles. Could this be related to the liver
problems and fix itself or will I have to take insulin when it's high?

God bless you all for your prayers and kind thoughts
I had sepsis (ecoli type blood infection) from the first liver stent
and they had me on some very strong antibiotics that have had me just
completely drained physicay but mentally I was wide awake and thou I was
a walking zombie who you could barely understand if I spoke, I could not
and still can't sleep for more tan an hour or two here and there. I'm
going to get with my doc for a sleep aid. The antibiotics are finished
now but I'm eating pain pills like M&Ms, They do the same thing. They
numb the body but not the brain so you look and feel like the dawn of
the dead but you can't lay down and sleep cause your mind is stil
completly alert. I've even started doing this weird thing with my hands
like that old guy that owns thw power plant on the simpsons, where he
cups his hands under his chin and gooes "excellent" I hope that's the
drugs nd not me cracking up.

--
"God has a plan for me. I don't know what that is, and I'm
not leaving until I find out."



BetsyB



"J W" <jonboy42@webtv.net> wrote in message
news:21128-46320E0A-304@storefull-3253.bay.webtv.net...
> Went for 3rd ERCP in 4 weeks to see what was going on and causing pain
> yesterdday, It appears that when I lifted the case of water, the long
> curly stent that he had jerryrigged from my left liver side over into my
> right side to help the right side drain cause he could not get one
> direcctly into t right side. Well it appears my stupidity is lifting the
> heavy case of water cause I was ashamed for my wife to allways be doing
> this stuff caused the long curly stent to retract itself out ouf the
> right side and curl up on the left which hurts lie crazy. He says for
> now it's draining good so he lleft it alone. He sid he'd prolly do more
> harm than good right now if he tried to fix it. He wants to go back in
> in about 4 weeks and change them both out. So for now I have to find a
> way to deal with the pain in the liver and hope if I start radiation
> that nothing else goes wrong with the stents to interfere with the
> radiation. This ERCP doc is supposely the best they have in our HMO but
> I'm not impressed. I now all of a sudden appear to have diabetes. My
> sugar was 165 2 weeks ago and over 300 this last tuesday. They checked
> it yesterday afternoon at hospital and it was 135 but I had also been
> fasting (nothing but sips of water since midnight before so it wan't a
> fair test. I hope this is temporary, I can't give myself a shot every
> day, I'm terrified of needles. Could this be related to the liver
> problems and fix itself or will I have to take insulin when it's high?
>
> God bless you all for your prayers and kind thoughts
> I had sepsis (ecoli type blood infection) from the first liver stent
> and they had me on some very strong antibiotics that have had me just
> completely drained physicay but mentally I was wide awake and thou I was
> a walking zombie who you could barely understand if I spoke, I could not
> and still can't sleep for more tan an hour or two here and there. I'm
> going to get with my doc for a sleep aid. The antibiotics are finished
> now but I'm eating pain pills like M&Ms, They do the same thing. They
> numb the body but not the brain so you look and feel like the dawn of
> the dead but you can't lay down and sleep cause your mind is stil
> completly alert. I've even started doing this weird thing with my hands
> like that old guy that owns thw power plant on the simpsons, where he
> cups his hands under his chin and gooes "excellent" I hope that's the
> drugs nd not me cracking up.

I understand you wanting to moving the water for your wife. That is a tough
situation to be in. I have just had gallbladder suregerery recently and had
the same problem with my husband. Just tuff to sit and watch. Actually I am
in better condition than he is. It was really hard but not worth the chance.
But we found those cases of water come apart real easy and 4 bottles at a
time is more manageable?
Hope yout stints stay put and you get the radiation you surely need, soon.

Betsy

J W wrote:

> Went for 3rd ERCP in 4 weeks to see what was going on and causing pain
> yesterdday, It appears that when I lifted the case of water, the long
> curly stent that he had jerryrigged from my left liver side over into my
> right side to help the right side drain cause he could not get one
> direcctly into t right side. Well it appears my stupidity is lifting the
> heavy case of water cause I was ashamed for my wife to allways be doing
> this stuff caused the long curly stent to retract itself out ouf the
> right side and curl up on the left which hurts lie crazy. He says for
> now it's draining good so he lleft it alone. He sid he'd prolly do more
> harm than good right now if he tried to fix it. He wants to go back in
> in about 4 weeks and change them both out. So for now I have to find a
> way to deal with the pain in the liver and hope if I start radiation
> that nothing else goes wrong with the stents to interfere with the
> radiation. This ERCP doc is supposely the best they have in our HMO but
> I'm not impressed. I now all of a sudden appear to have diabetes. My
> sugar was 165 2 weeks ago and over 300 this last tuesday. They checked
> it yesterday afternoon at hospital and it was 135 but I had also been
> fasting (nothing but sips of water since midnight before so it wan't a
> fair test. I hope this is temporary, I can't give myself a shot every
> day, I'm terrified of needles. Could this be related to the liver
> problems and fix itself or will I have to take insulin when it's high?
>
> God bless you all for your prayers and kind thoughts
> I had sepsis (ecoli type blood infection) from the first liver stent
> and they had me on some very strong antibiotics that have had me just
> completely drained physicay but mentally I was wide awake and thou I was
> a walking zombie who you could barely understand if I spoke, I could not
> and still can't sleep for more tan an hour or two here and there. I'm
> going to get with my doc for a sleep aid. The antibiotics are finished
> now but I'm eating pain pills like M&Ms, They do the same thing. They
> numb the body but not the brain so you look and feel like the dawn of
> the dead but you can't lay down and sleep cause your mind is stil
> completly alert. I've even started doing this weird thing with my hands
> like that old guy that owns thw power plant on the simpsons, where he
> cups his hands under his chin and gooes "excellent" I hope that's the
> drugs nd not me cracking up.

Eat a small meal every 3 or 4 hours. Low fat peanut butter on brown whole
(grain) wheat (crackers or bread)
I think insulin shots are for Type 1 diabetes.
Type 2 is diet and/or meds....metformin and/or glyburide and I think they
have a warning about the liver.

The liver stores a multitude of substances, including glucose in the form of
glycogen
Read more here about the liver http://en.wikipedia.org/wiki/Liver

What do you need bottled water for please? A lot of people buy it around
here, but I drink tap.
J

On Apr 27, 5:51 pm, jonbo...@webtv.net (J W) wrote:
> Went for 3rd ERCP in 4 weeks to see what was going on and causing pain
> yesterdday, It appears that when I lifted the case of water, the long
> curly stent that he had jerryrigged from my left liver side over into my
> right side to help the right side drain cause he could not get one
> direcctly into t right side. Well it appears my stupidity is lifting the
> heavy case of water cause I was ashamed for my wife to allways be doing
> this stuff caused the long curly stent to retract itself out ouf the
> right side and curl up on the left which hurts lie crazy. He says for
> now it's draining good so he lleft it alone. He sid he'd prolly do more
> harm than good right now if he tried to fix it. He wants to go back in
> in about 4 weeks and change them both out. So for now I have to find a
> way to deal with the pain in the liver and hope if I start radiation
> that nothing else goes wrong with the stents to interfere with the
> radiation. This ERCP doc is supposely the best they have in our HMO but
> I'm not impressed. I now all of a sudden appear to have diabetes. My
> sugar was 165 2 weeks ago and over 300 this last tuesday. They checked
> it yesterday afternoon at hospital and it was 135 but I had also been
> fasting (nothing but sips of water since midnight before so it wan't a
> fair test. I hope this is temporary, I can't give myself a shot every
> day, I'm terrified of needles. Could this be related to the liver
> problems and fix itself or will I have to take insulin when it's high?
>
> God bless you all for your prayers and kind thoughts
> I had sepsis (ecoli type blood infection) from the first liver stent
> and they had me on some very strong antibiotics that have had me just
> completely drained physicay but mentally I was wide awake and thou I was
> a walking zombie who you could barely understand if I spoke, I could not
> and still can't sleep for more tan an hour or two here and there. I'm
> going to get with my doc for a sleep aid. The antibiotics are finished
> now but I'm eating pain pills like M&Ms, They do the same thing. They
> numb the body but not the brain so you look and feel like the dawn of
> the dead but you can't lay down and sleep cause your mind is stil
> completly alert. I've even started doing this weird thing with my hands
> like that old guy that owns thw power plant on the simpsons, where he
> cups his hands under his chin and gooes "excellent" I hope that's the
> drugs nd not me cracking up.


Happy to read that your feeling somewhat better than you were, you
have been so very brave throughout this crisis.
I do know that the liver and problems with it can affect blood sugar
levels, hopefully when your body has recovered from the antibiotic
assault it will level out, I don't know enough to say. Are there any
other pain killers you could try?

God bless you,

isi

I drinkbottled water becaus ethe tapwater here is disgusting, the
chlorine levels are high. I drink distilled water at home because My doc
told me it would help flush my liver

J W wrote:

> Went for 3rd ERCP in 4 weeks to see what was going on and causing pain
> yesterdday, It appears that when I lifted the case of water, the long
> curly stent that he had jerryrigged from my left liver side over into my
> right side to help the right side drain cause he could not get one
> direcctly into t right side. Well it appears my stupidity is lifting the
> heavy case of water cause I was ashamed for my wife to allways be doing
> this stuff caused the long curly stent to retract itself out ouf the
> right side and curl up on the left which hurts lie crazy. He says for
> now it's draining good so he lleft it alone. He sid he'd prolly do more
> harm than good right now if he tried to fix it. He wants to go back in
> in about 4 weeks and change them both out. So for now I have to find a
> way to deal with the pain in the liver and hope if I start radiation
> that nothing else goes wrong with the stents to interfere with the
> radiation. This ERCP doc is supposely the best they have in our HMO but
> I'm not impressed. I now all of a sudden appear to have diabetes. My
> sugar was 165 2 weeks ago and over 300 this last tuesday. They checked
> it yesterday afternoon at hospital and it was 135 but I had also been
> fasting (nothing but sips of water since midnight before so it wan't a
> fair test. I hope this is temporary, I can't give myself a shot every
> day, I'm terrified of needles. Could this be related to the liver
> problems and fix itself or will I have to take insulin when it's high?

300 sounds high, but I don't know what units they're using where you are.
Here the normals are 3.6 - 6.9 mmol/L and they pitch a fit if we're over 10
mmol/L.
They also measure something called the A1C

Anyway, I hope your pain lessens, Jon and the infection's gone so you can
move on to the radiation therapy as soon as possible.
Take care,
J

On Apr 27, 6:18 pm, jonbo...@webtv.net (J W) wrote:
> I drinkbottled water becaus ethe tapwater here is disgusting, the
> chlorine levels are high. I drink distilled water at home because My doc
> told me it would help flush my liver

Has the doctor told you that you have diabetes?

http://www.endocrineweb.com/diabetes/diagnosis.html for more
information.

One blood test is not enough to make the diagnosis.
Sorry to hear about your troubles and hope tthings will be
manageable.

Alex

No doc was hesitant to start any insulin yet. Says it could be elated to
liver problems or perhaps swollen liver pressing on panccreas. She
checked me yesterday and was over 190. I think th USA range is 99-115 or
something like that. it only hit the 300 once. it's been 165,135, 195
since not sure what to make of it yet



Re: Update on liver situation

Group: alt.support.cancer Date: Sat, Apr 28, 2007, 3:24am (EDT-3) From:
usenetgirl@gmail.com (Alex)

Has the doctor told you that you have diabetes?
http://www.endocrineweb.com/diabetes/diagnosis.html for more
information.
One blood test is not enough to make the diagnosis. Sorry to hear about
your troubles and hope tthings will be manageable.
Alex

J W wrote:

> No doc was hesitant to start any insulin yet. Says it could be elated to
> liver problems or perhaps swollen liver pressing on panccreas. She
> checked me yesterday and was over 190. I think th USA range is 99-115 or
> something like that. it only hit the 300 once. it's been 165,135, 195
> since not sure what to make of it yet

The "gold standard" for diagnosing diabetes is an elevated blood sugar level
after an overnight fast (not eating anything after midnight). A value above
140 mg/dl on at least two occasions typically means a person has diabetes.
Normal people have fasting sugar levels that generally run between 70-110
mg/dl. (that's from the US webpage)

I suppose she figures yours is not that bad, considering your situation.

J