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  #1  
Old 11-24-2006, 12:24 PM
Hainan
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Default What to do: Hospice-palliatic care: father says no?

Thx to the group
(special thanks to J but also here: special thanks to everybody who is
there)
we found out there is these specialized people
that are used to help father dealing with his uncurable cancer.

We contacted the people and they say:
we can only help if your father let us in.

So we (I admit kinda pushed) told father what we thaught was "the good
news" and father says: no need for those people to come...
Again, no reason given (father takes out his hearing aid: end of
discussion...)

What do I do now?

Thanks,

SK
How we try to deal with cancer in our family at:
http://www.metastaticlivercancer.org

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  #2  
Old 11-24-2006, 12:24 PM
J
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Default Re: What to do: Hospice-palliatic care: father says no?

Hainan wrote:

> Thx to the group
> (special thanks to J but also here: special thanks to everybody who is
> there)
> we found out there is these specialized people
> that are used to help father dealing with his uncurable cancer.
>
> We contacted the people and they say:
> we can only help if your father let us in.
>
> So we (I admit kinda pushed) told father what we thaught was "the good
> news" and father says: no need for those people to come...
> Again, no reason given (father takes out his hearing aid: end of
> discussion...)
>
> What do I do now?


Take it one step at a time.
You've collected information about hospice and presented it to him.
Does he know one goes to his home?

Is it covered by the healthcare system, in his country or are there costs?

If there's costs, does he have insurance or money (to cover the costs)?

We don't know what is in his mind.

His affairs should be put in order.
That means collecting his bank account information (accounts and account
balances).
His life insurance policies (and the value).
Is the home paid up? Or a mortgage? If so, where's the information?
Does he have a will? If so, where's a copy or who to contact? (lawyer who
has a copy)

His end of life care wishes There's a form here, that you or your mother
could use as a guideline, to discuss his wishes
http://www.agingwithdignity.org/5wishes.html
(there could be a form specific for his country, but the above one is a
start for discussing.. I think it's only $5. US). Your mother could ask
at a local hospital or doctor's if your country has such a form.

has he made arrangements for his care with a friend? If so, who, contact
information.
Is he still considering treatment? If so, which doctor, contact
information.
Does he have prepaid funeral and internment? Are these wishes written on
paper?

Other questions to ask him?
Who do we call if you start bleeding?
Who do we call if you have breathing problems or severe pain?
Do you want us to send you to hospital?

Have you made plans to end your life yourself? If so, will you leave us
instructions on where to find you?

Please do not answer these questions here, Hainan.

These are questions that I think your mother (or adult sibling) have to
sit down with him and talk with him about. Not all at the same time. It's
too much.

Start gathering information; put in file folders, and tell him that you
want him to be pain free and cared for.
A family member (or a close friend of his) will discuss these things with
him and take notes of his wishes and help him with the paperwork.

If he refuses, continualy, there's only so much anyone can do.
But have your mother (or someone nearby), continue trying, from time to
time, when his hearing aid is in.
(I say "nearby" because it's usually better to discuss these things, in
quiet, private places, when he's receptive to discussing some.
J

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  #3  
Old 11-27-2006, 04:41 PM
Mike Radcliffe
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Posts: n/a
Default Re: What to do: Hospice-palliatic care: father says no?

> Thx to the group
> (special thanks to J but also here: special thanks to everybody who is
> there)
> we found out there is these specialized people
> that are used to help father dealing with his uncurable cancer.
>
> We contacted the people and they say:
> we can only help if your father let us in.
>
> So we (I admit kinda pushed) told father what we thaught was "the good
> news" and father says: no need for those people to come...
> Again, no reason given (father takes out his hearing aid: end of
> discussion...)
>
> What do I do now?


As J says you can't force someone to have any kind of service or treatment
but you could try explaining to him that hospice/palliative care is about
helping people to get the most out of living by having specialist expertise
in symptom control that is generally not available from other nursing or
medical agencies. It is not a requirement of refferal that a patient has to
"deal with dying". Much more important is that he gets the most of the life
he has left and hospice can help with that.
MIKE


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  #4  
Old 11-27-2006, 04:41 PM
isabelaorosz@hotmail.com
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Default Re: What to do: Hospice-palliatic care: father says no?

Hainan, J has given you good advice. She is correct that Hospice will
not intervien without your father's consent. In the begining, my
Mother (who is under Hospice care now) was not too thrilled with the
idea of someone "coming into her house".
My sister and i invited the nurse and NA out various times so my mother
could get to know them and see that they were there to help her and us.
This did work for us, and now my mother has formed a friendship with
these two fantastic women.

I don't know what i would do without the friendship of these two women.
They are so wonderful with my Mom....maybe you could try this
approach? Be sure to explain to them what you want to do.

You and your family are in my thoughts..........

hugs......isabel


On Nov 23, 8:50 pm, "Hainan" <weeseekim...@yahoo.com> wrote:
> Thx to the group
> (special thanks to J but also here: special thanks to everybody who is
> there)
> we found out there is these specialized people
> that are used to help father dealing with his uncurable cancer.
>
> We contacted the people and they say:
> we can only help if your father let us in.
>
> So we (I admit kinda pushed) told father what we thaught was "the good
> news" and father says: no need for those people to come...
> Again, no reason given (father takes out his hearing aid: end of
> discussion...)
>
> What do I do now?
>
> Thanks,
>
> SK
> How we try to deal with cancer in our family at:http://www.metastaticlivercancer.org


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  #5  
Old 11-29-2006, 05:08 PM
Hainan
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Posts: n/a
Default Re: What to do: Hospice-palliatic care: father says no?

isabelaorosz@hotmail.com wrote:
> Hainan, J has given you good advice. She is correct that Hospice will
> not intervien without your father's consent. In the begining, my
> Mother (who is under Hospice care now) was not too thrilled with the
> idea of someone "coming into her house".


Thanks Isabel,

I think we especially me have been pushing things way too hard, due to
my limited time I was with my father. Even now I want to push things as
fast as possible. Maybe I just need to relax...

Hugs,


SK
How the pain is getting worse at:
http://www.metastaticlivercancer.org

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