Where is everybody ? - Check in please.

atl...@webtv.net (maryanne LOAFHEAD kehoe) wrote:

> >From: nswex@nalid;non (J)
> >( ( ( maryanne ) ) )
> >First Christmas and New Year's
> >My aunt spent Christmas with adult kids and >grandkids. Quiet time at
>
> home on New Year's.
>
> >She says the nights are the worst. - You?
> >J
>
> It was a quiet Christmas and New Years. I did decorate the house and my
> next door neighbor invited me to have Christmas dinner with their
> family. They invited me for Thanksgiving but I was getting over the flu
> and had to decline. New Year's wss a quiet dinner at the neighborhood
> place then back home after midnight. A friend of mine opened up a sports
> bar and I also had a NYE invitation for that place as well as a private
> party, but I wasn't up to a loud atmosphere. *I still talk to Ken's mom
> at least once a week and will see her this spring.


And of course as a widder woman you have *plenty* of time to spin
fantasies about the mainland Chinese intelligence services "targeting"
you for "elimination" because of your anti - Beijing Olympics stance,
which you natter on k00kily about on your ridiculous blog:

http://gamesvision.blogspot.com/2008_01_01_archive.html


Anyways, I thought it was hilarious when your worthless green card
husband died, it was "just desserts" for your netKKKopping behaviours
over the years. Sometime G-d *is* just and bad things *do* happen to
bad people...

:-)


--
Best
Greg

"It sucks being a widow..."
Maryanne "Loafhead" Kehoe on her blog:
http://gamesvision.blogspot.com/2008_01_01_archive.html

"Janet Wilder" <kelliepoodle@yahoo.com> wrote in message
news:479175cb$0$4342$c3e8da3@news.astraweb.com...
| Figgertoes wrote:
| > J <nswex@nalid;non> wrote in news:478DEBF7.5D5ABDE8@execulink.com:
|
| >> oat cereal every morning?
| >> < http://www.robinhood.ca/product.deta...=87&prodcid=10 >
| >> http://www.calorie-count.com/calories/item/95023.html
| >> Cold water in a bowl, mix some oats in, skip the salt they mention, 2
| >> minutes on high in microwave,
| >> Let cool and eat. The more water and longer cooking, the smoother it
| >> becomes.
| >> Conversely, the less water, the thicker.
| >> I add water to cool it off and/or if it's too thick.
| >>
| >> (I'm not constipated and often have to dash.later, after eating this,
| > so
| >> always have a washroom in sight, until you know how it'll affect you).
| >>
| >> Good luck with the taste issues and thanks for sharing, Janet.
| >> It's nice to hear about your activities and upcoming travel plans.
| >> J
| >>
| > And watch it every second it's in the 'wave. It loves to bubble up &
| > jump out of the bowl. I keep opening/closing the door to let it bubble
| > back down. I didn't know this was good for constipation. It's my usual
| > breakfast at work. I add dried blueberries & nuts. Yum!
|
| Thanks for the advice, both of you. Unfortunately I can't eat cereal -
| hot or cold since losing half of my tongue and some of my saliva.
|
| Fig, you made me think about when my kids were small and I was a single,
| working mom. Every morning I'd put a bowl of farina and water in the
| microwave and every morning it would heat up and run over the bowl.
| You'd think I'd have learned to control it. My kids still laugh about it.
|

Quaker unprocessed bran is a great thing. Two teaspoons a day should do it.
It's the consistency of wheatgerm - so it's easily mixed in with other
things, like a yogurt or a beverage.

Anne wrote:

> "Janet Wilder" <kelliepoodle@yahoo.com> wrote in message
>
>
> | > J <nswex@nalid;non> wrote in news:478DEBF7.5D5ABDE8@execulink.com:
> |
> | >> oat cereal every morning?
> | >> < http://www.robinhood.ca/product.deta...=87&prodcid=10 >
> | >> http://www.calorie-count.com/calories/item/95023.html
> | >> Cold water in a bowl, mix some oats in, skip the salt they mention, 2
> | >> minutes on high in microwave,
> | >> Let cool and eat. The more water and longer cooking, the smoother it
> | >> becomes.
> | >> Conversely, the less water, the thicker.
> | >> I add water to cool it off and/or if it's too thick.
> | >>
> |
> | Thanks for the advice, both of you. Unfortunately I can't eat cereal -
> | hot or cold since losing half of my tongue and some of my saliva.
> |
> Quaker unprocessed bran is a great thing. Two teaspoons a day should do it.
> It's the consistency of wheatgerm - so it's easily mixed in with other
> things, like a yogurt or a beverage.

The oats can be made drinkable.
J

J wrote in alt.support.cancer:

> Where is everybody ? - Check in please.
> Too sick to wade through the posts or set your filters or delete the
> garbage posts?
>
> Updates anybody?
>
> Newly diagnosed? - come on in. Munge your email address, if possible.
>
> Google readers: Set to "Latest message" and "Topic Summary"so that down
> the right side you should see some of the ongoing exchanges.
>
> J
>

carboplatin & taxol started december 14, 3rd dose is due this friday, scans
due mid-february

At the moment I think it's keeping me stable, which is not good, my
"stable" at the moment is persistent cough and persistent pain. If the
scans show it's not working they might try the MDX-010 or they might tell
me to go away. Won't know any more until the scans come back.

jacques wrote:

> J wrote in alt.support.cancer:
> > Updates anybody?
>
> carboplatin & taxol started december 14, 3rd dose is due this friday, scans
> due mid-february
>
> At the moment I think it's keeping me stable, which is not good, my
> "stable" at the moment is persistent cough and persistent pain. If the
> scans show it's not working they might try the MDX-010 or they might tell
> me to go away. Won't know any more until the scans come back.

Good to hear from you, jacques.
Can't they help you with the pain?
Pulled from the BC newsgroup -= joint and muscle pain - Vicodin or percodan
Neuropathy - something called Lyrica
Good luck. Hope you feel better and scans look good.
Keep in touch, as able, please.
J

maryanne kehoe wrote:

> It was a quiet Christmas and New Years. I did decorate the house and my
> next door neighbor invited me to have Christmas dinner with their
> family. They invited me for Thanksgiving but I was getting over the flu
> and had to decline. New Year's wss a quiet dinner at the neighborhood
> place then back home after midnight. A friend of mine opened up a sports
> bar and I also had a NYE invitation for that place as well as a private
> party, but I wasn't up to a loud atmosphere. I still talk to Ken's mom
> at least once a week and will see her this spring.

Lovely to hear you two keep in touch.
J

Alayne wrote:

> "J" <nswex@nalid;non> wrote in message
> news:47909C9F.3CB510F9@execulink.com...
> > Alayne wrote:
> >
> >>
> >> The major probs have been due to debts attached to the house and getting
> >> third parties to deliver paperwork to my solicitor. The brother is
> >> doddery
> >> and looking out for his own interests, he leant some money, attached a C1
> >> to
> >> the house and is now taking time working out what interest to charge,
> >> hmmm,
> >> nice family, all of em are as much use as a chocolate tea pot! Meanwhile
> >> my
> >> buyers were told 28 day completion, three months later they think
> >> something's up and are getting angsty. I've offered to meet and give
> >> them a
> >> reassuring Hug ;-)
> >>
> >> One thing that this does highlight, is the importance of sorting out
> >> affairs, it's a nightmare for survivors to sort when you are not aware of
> >> all the facts.
> >>
> >> Eeh, one day I'll get a peaceful life - probably end up bored to tears
> >> ;-)
> >>
> >> Warm Hugs
> >>
> >> Alayne
> >
> > How you keep your sense of humour is beyond me.
> > The old fart can't be billed by the estate (solicitor) for loss of
> > earnings
> > (interest on the sale price) and costs (solicitor on hold), loss of
> > property tax
> > rebate, electrical, heat (etc) to get his butt in gear?
> > J
> >
> Think I must have been born with a grin on my face J ;-) I still have my
> stressy moments when I think the sky is going to fall in, but after losing
> Tony it doesn't take me long to put things back in perspective.
>
> Already asked about forcing the issue with the old fart, but solicitor said
> the law is based on assuming that if you are owed money you will be
> naturally quick about it, and litigation is a long road.....
>
> Ho Hum

It will get sorted. Alayne things usually do
Hugs
J

"J" <nswex@nalid;non> wrote in message
news:478B5365.AE980992@execulink.com...
> Where is everybody ? - Check in please.
> Too sick to wade through the posts or set your filters or delete the
> garbage posts?
>
> Updates anybody?
>
> Newly diagnosed? - come on in. Munge your email address, if possible.
>
> Google readers: Set to "Latest message" and "Topic Summary"so that down
> the right side you should see some of the ongoing exchanges.
>
> J
>
Hi I,
Peter from N Wales UK lung cancer , still fighting for every day ,
I need to post to the group , so I will catch up with you all later .
Love and God Bless to all of the group , Peter

Peter Clarke wrote:

> "J" <nswex@nalid;non> wrote in message
> > Updates anybody?
> >
>
> Hi I,
> Peter from N Wales UK lung cancer , still fighting for every day ,
> I need to post to the group , so I will catch up with you all later .
> Love and God Bless to all of the group , Peter

How are you feeling, Peter?
I think of you often.
J - listening and caring.

Hi Friends,

Was there a message about Isi passing ? I worry I may have missed it as I
deleted all the spam-o-rama that now infests our group. I'll go hunt on
Google and see.

Uncle Sally here. Been very busy with a computer programming project, and
trying to work on my second novel.

Health okay, but one of the four remaining teeth in my lower jaw (of which
only two had not already broken off) broke off and the consensus was it was
better to have them all out since the lack of saliva and post-radiation
changes left them distintegrating rapidly. So had oral surgery last Friday
with a very nice Thai Lady Oral Surgeon who had trained in Germany. Nitrous
made in painless, but she had to go in and do some work on "protrusions" in
the jaw bone that she felt might make the wound healing more difficult.

The consulting oral surgeon, professor at the Dental School in Chiang Mai,
was scheduled to take the teeth out, but he decided that I should first go
to Bangkok and spend a month getting daily 90 minute hyperbaric oxygen
treatments since he feared there could be problems with the wound healing
and potential bone necrosis. This knocked me for a loop, and it was several
days before I could see my Radiation Oncologist who wrote a letter to the
oral surgeon indicating that radiation to the front of the mouth (my SQCC
tumor was at the base of the tongue) was minimal, and that he okay'd the
extraction without hyperbaric therapy. Big sense of relief there for me,
since my whole life would have been interrupted for five weeks.

So now I can "look forward" (ha, ha, ha), in a few weeks, to a full lower
plate.

Well, I can honestly say the surgery was "peanuts" compared to the session I
had pre-radiation therapy 11 months ago when almost all my natural teeth
were removed in one session, and I had surgery on the gum flap where a
deeply impacted wisdom tooth was pulled out.

So, I've suspended my "heroic" work-outs at the gym, and am waiting
patiently for the body to heal and, as usual, continuing my soy-milk +
Nestle Nutren Optimum diet. Still no real appetite or sense of taste, but I
love my soy milk !

It's a good time of life for me, I feel healthy, am very productive. And I'm
very thankful for many things. Oddly, it doesn't disturb me that I have no
real "natural appetite," but it's sometimes socially awkward because other
people get concerned when you are not eating along with everyone else.

I wish you and your families the very best, and thanks, J., for inquiring
about me.

best, Uncle Sally

"Given the choice between two evils, I'd pick the one I hadn't tried before"
Mae West

"Uncle Sally" <uncleSally@auldUncleSally.com> wrote in message
news:zT3mj.71100$8C1.42808@fe01.news.easynews.com. ..
> Hi Friends,
>
> Was there a message about Isi passing ? I worry I may have missed it
> as I
> deleted all the spam-o-rama that now infests our group. I'll go hunt
> on
> Google and see.
>
> Uncle Sally here. Been very busy with a computer programming project,
> and
> trying to work on my second novel.
>
> Health okay, but one of the four remaining teeth in my lower jaw (of
> which
> only two had not already broken off) broke off and the consensus was
> it was
> better to have them all out since the lack of saliva and
> post-radiation
> changes left them distintegrating rapidly. So had oral surgery last
> Friday
> with a very nice Thai Lady Oral Surgeon who had trained in Germany.
> Nitrous
> made in painless, but she had to go in and do some work on
> "protrusions" in
> the jaw bone that she felt might make the wound healing more
> difficult.
>
> The consulting oral surgeon, professor at the Dental School in Chiang
> Mai,
> was scheduled to take the teeth out, but he decided that I should
> first go
> to Bangkok and spend a month getting daily 90 minute hyperbaric oxygen
> treatments since he feared there could be problems with the wound
> healing
> and potential bone necrosis. This knocked me for a loop, and it was
> several
> days before I could see my Radiation Oncologist who wrote a letter to
> the
> oral surgeon indicating that radiation to the front of the mouth (my
> SQCC
> tumor was at the base of the tongue) was minimal, and that he okay'd
> the
> extraction without hyperbaric therapy. Big sense of relief there for
> me,
> since my whole life would have been interrupted for five weeks.
>
> So now I can "look forward" (ha, ha, ha), in a few weeks, to a full
> lower
> plate.
>
> Well, I can honestly say the surgery was "peanuts" compared to the
> session I
> had pre-radiation therapy 11 months ago when almost all my natural
> teeth
> were removed in one session, and I had surgery on the gum flap where a
> deeply impacted wisdom tooth was pulled out.
>
> So, I've suspended my "heroic" work-outs at the gym, and am waiting
> patiently for the body to heal and, as usual, continuing my soy-milk +
> Nestle Nutren Optimum diet. Still no real appetite or sense of taste,
> but I
> love my soy milk !
>
> It's a good time of life for me, I feel healthy, am very productive.
> And I'm
> very thankful for many things. Oddly, it doesn't disturb me that I
> have no
> real "natural appetite," but it's sometimes socially awkward because
> other
> people get concerned when you are not eating along with everyone else.
>
> I wish you and your families the very best, and thanks, J., for
> inquiring
> about me.
>
> best, Uncle Sally
>
> "Given the choice between two evils, I'd pick the one I hadn't tried
> before"
> Mae West
>
Welcome back. Your absense has been noted and will be dealt with on
another day!!
Missed your notes. I, too will miss Isi. I am glad she got into her new
house and was settled in a bit befoire she passed.
Here's the note someone in her family left for us.

Dear Everyone on this support line: I am sorry to have to tell you that
Isi passed away on November 2. She was in her new home overlooking the
view she so wanted - and had attained her dream. if only for a little
while. At her request - I brought the cats she so loved to the USA -
and
they are doing well. She is buried in the village in Bulgaria - also at
her request. I wish I could have told you all sooner but it took a very
long time for me to figure out what the enigmatic messages were and
where
and how to find you. You all were so dear to her - I can tell from the
posts I found and you helped her in ways we never could. God Bless you.

--
Message posted using
http://www.talkaboutsupport.com/grou...upport.cancer/
More information at http://www.talkaboutsupport.com/faq.html

Betsy

Uncle Sally wrote:

> Was there a message about Isi passing ? I worry I may have missed it as I
> deleted all the spam-o-rama that now infests our group. I'll go hunt on
> Google and see.
>
> Uncle Sally here. Been very busy with a computer programming project, and
> trying to work on my second novel.
>
> Health okay, but one of the four remaining teeth in my lower jaw (of which
> only two had not already broken off) broke off and the consensus was it was
> better to have them all out since the lack of saliva and post-radiation
> changes left them distintegrating rapidly. So had oral surgery last Friday
> with a very nice Thai Lady Oral Surgeon who had trained in Germany. Nitrous
> made in painless, but she had to go in and do some work on "protrusions" in
> the jaw bone that she felt might make the wound healing more difficult.
>
> The consulting oral surgeon, professor at the Dental School in Chiang Mai,
> was scheduled to take the teeth out, but he decided that I should first go
> to Bangkok and spend a month getting daily 90 minute hyperbaric oxygen
> treatments since he feared there could be problems with the wound healing
> and potential bone necrosis. This knocked me for a loop, and it was several
> days before I could see my Radiation Oncologist who wrote a letter to the
> oral surgeon indicating that radiation to the front of the mouth (my SQCC
> tumor was at the base of the tongue) was minimal, and that he okay'd the
> extraction without hyperbaric therapy. Big sense of relief there for me,
> since my whole life would have been interrupted for five weeks.
>
> So now I can "look forward" (ha, ha, ha), in a few weeks, to a full lower
> plate.
>
> Well, I can honestly say the surgery was "peanuts" compared to the session I
> had pre-radiation therapy 11 months ago when almost all my natural teeth
> were removed in one session, and I had surgery on the gum flap where a
> deeply impacted wisdom tooth was pulled out.
>
> So, I've suspended my "heroic" work-outs at the gym, and am waiting
> patiently for the body to heal and, as usual, continuing my soy-milk +
> Nestle Nutren Optimum diet. Still no real appetite or sense of taste, but I
> love my soy milk !
>
> It's a good time of life for me, I feel healthy, am very productive. And I'm
> very thankful for many things. Oddly, it doesn't disturb me that I have no
> real "natural appetite," but it's sometimes socially awkward because other
> people get concerned when you are not eating along with everyone else.
>
> I wish you and your families the very best, and thanks, J., for inquiring
> about me..>

My!You sure have been busy , US!
I hope you'll keep in touch.
Take care and stay well.
J

On Jan 15, 4:29*am, J <nswex@nalid;non> wrote:
> betsyb wrote:
> > "J" <nswex@nalid;non> wrote in message
> > > Where is everybody ? - Check in please.
> > > Updates anybody?


Hi J,

Becky here. We are on the downswing again, but I think there is
probably no going back. Hubby is sliding steadily. Hubby with Stage 4
NSCLC w/mets to brain 20+ lesions.

Beckys883 wrote:

> On Jan 15, 4:29 am, J <nswex@nalid;non> wrote:
> > betsyb wrote:
> > > Updates anybody?
>
> Hi J,
>
> Becky here. We are on the downswing again, but I think there is
> probably no going back. Hubby is sliding steadily. Hubby with Stage 4
> NSCLC w/mets to brain 20+ lesions.

( ( ( Becky ) ) )
J

>From: nswex@nalid;non (J)
>Beckys883 wrote:
>**( ( ( Becky ) ) )
>J




Same here Becky, LOTS of (((hugs)))



Maryanne

On Jan 30, 9:59*pm, atl...@webtv.net (maryanne kehoe) wrote:
> >From: nswex@nalid;non (J)
> >Beckys883 wrote:
> >**( ( ( Becky ) ) )
> >J
>
> Same here Becky, LOTS of (((hugs)))
>
> Maryanne

Thanks Maryanne and J. I need all the hugs I can get. Family and
friends have been very helpful. He is not remebering many of them, and
even me the other day, but when he is confused I try to talk
soothingly with him and try to help him remember, if he doesn't then
we move on. He is very easy to change subjects on these days so if I
feel like he is getting too upset, I ask him if he needs to go to the
bathroom, wants water, anything of that nature. Usually this works and
I tell him we'll talk more when he is out.....he usually forgets what
we were talking about when he comes out. He got so upset one night
that I told him I just didn't know where something was but I told him
maybe our sone would and I would call him. He agreed. When our son
called me back I asked him where the panel for the fuel lines might
be, he said he would be here in a bit. By the time he got here I had
Craig talking about ordering pizza so Chris would have something to
eat.....
Hospice has been wonderful and they know when I call it is a real
emergency, so they call right back. That means alot to me.

Take care all,

(((Hugs back)))

Becky

Beckys883 wrote:

> On Jan 30, 9:59 pm, atl...@webtv.net (maryanne kehoe) wrote:
> > >From: nswex@nalid;non (J)
> > >Beckys883 wrote:
> > > ( ( ( Becky ) ) )
> > >J
> >
> > Same here Becky, LOTS of (((hugs)))
> >
> > Maryanne
>
> Thanks Maryanne and J. I need all the hugs I can get. Family and
> friends have been very helpful. He is not remebering many of them, and
> even me the other day, but when he is confused I try to talk
> soothingly with him and try to help him remember, if he doesn't then
> we move on. He is very easy to change subjects on these days so if I
> feel like he is getting too upset, I ask him if he needs to go to the
> bathroom, wants water, anything of that nature. Usually this works and
> I tell him we'll talk more when he is out.....he usually forgets what
> we were talking about when he comes out. He got so upset one night
> that I told him I just didn't know where something was but I told him
> maybe our sone would and I would call him. He agreed. When our son
> called me back I asked him where the panel for the fuel lines might
> be, he said he would be here in a bit. By the time he got here I had
> Craig talking about ordering pizza so Chris would have something to
> eat.....
> Hospice has been wonderful and they know when I call it is a real
> emergency, so they call right back. That means alot to me.
>
> Take care all,
>
> (((Hugs back)))
>
> Becky

Hello Becky,

Thanks for the hugs.

Smart diversionary tactics, you're using there.
Could be very useful for others reading.

I'm pleased to read that hospice is being so helpful.
I wish I could be there to give you a real hug and meet Craig.
Sounds like a fine man and wish things could have been different for him
and you.

We'll be here listening and caring.
Hugs
J

>I'm pleased to read that hospice is being so >helpful.


A friend of mine has been involved in hospice-related charity for
several years. The hospices really do good work. Some hospitals will
make referrals, as they did when I needed to admit Ken and didn't know a
location.

J---how are you doing?

maryanne kehoe wrote:

> >I'm pleased to read that hospice is being so >helpful.
>
> A friend of mine has been involved in hospice-related charity for
> several years. The hospices really do good work. Some hospitals will
> make referrals, as they did when I needed to admit Ken and didn't know a
> location.

Thanks luv, It's important people don't wait until the last week or weeks.
They can be so helpful earlier....
But if paperwork, needs assessment, getting to know the patient, the
caregivers and family members is left too late, there's bound to be
(situations of) feelings of dissatisfaction and (possibly) unnecessary
suffering I've seen some (complaints) on some forums (and leaving it too
late was the cause)..

> J---how are you doing?

Better, thanks.
I'll learn not to underestimate my arthritis med. I forgot to renew it.
It's been slow-going the past 5 days, but a light went on this morning and I
checked the medicine cabinet and found some leftovers (different brand). Now
I'm better
J

Loafie blabbled:

> >I'm pleased to read that hospice is being so >helpful.
>
> A friend of mine has been involved in hospice-related charity for
> several years. The hospices really do good work. Some hospitals will
> make referrals, as they did when I needed to admit Ken and didn't know a
> location.


Well, in the end "location" didn't matter because Kenny boi croaked,
lol...


> J---how are you doing?


"Oh look, Maryanne is SUCKING UP again..."


--
Best
Greg

Gregory Morrow wrote:

> Loafie blabbled:
>
> > >I'm pleased to read that hospice is being so >helpful.
> >
> > A friend of mine has been involved in hospice-related charity for
> > several years. The hospices really do good work. Some hospitals will
> > make referrals, as they did when I needed to admit Ken and didn't know a
> > location.
>
> Well, in the end "location" didn't matter because Kenny boi croaked,
> lol...

There must be a book somewhere on how to let go of (internet) **
relationships.
(** as defined as a constant need for attention from and to communicate with)
I would suggest you find it and use it. Your behavior serves no purpose but
make you look the fool.

A reminder/tip for new readers: put Gregory Morrow in your newsreader (ignore
post) filters, for obvious reasons.
J

J drunkenly babbled:

> Gregory Morrow wrote:
>
> > Loafie blabbled:
> >
> > > >I'm pleased to read that hospice is being so >helpful.
> > >
> > > A friend of mine has been involved in hospice-related charity for
> > > several years. The hospices really do good work. Some hospitals will
> > > make referrals, as they did when I needed to admit Ken and didn't know
a
> > > location.
> >
> > Well, in the end "location" didn't matter because Kenny boi croaked,
> > lol...
>
> There must be a book somewhere on how to let go of (internet) **
> relationships.
> (** as defined as a constant need for attention from and to communicate
with)
> I would suggest you find it and use it. Your behavior serves no purpose
but
> make you look the fool.
>
> A reminder/tip for new readers: put Gregory Morrow in your newsreader
(ignore
> post) filters, for obvious reasons.


Madame, mayhaps your old claws will seize up because of your extreme
arthritis - or even alcoholism...

In any case kindly lay off of the gin...we thank you...!!!


Best
Greg

" I find Greg Morrow lowbrow, witless, and obnoxious. For him to claim that
we are some
kind of comedy team turns my stomach."
- "cybercat" to me on rec.food.cooking

jacques wrote:

> jacques wrote in alt.support.cancer: December 6,2007
>
> plenty of
> neuropathy in the legs and fingers, having trouble walking (and typing) but
> other than that not too bad. hopefully can have a couple of beers at xmas.
>
> Tue, 22 Jan 2008
> carboplatin & taxol started december 14, 3rd dose is due this friday, scans
> due mid-february
>
> At the moment I think it's keeping me stable, which is not good, my
> "stable" at the moment is persistent cough and persistent pain. If the
> scans show it's not working they might try the MDX-010 or they might tell
> me to go away. Won't know any more until the scans come back.

How are you doing, Jacques? I miss hearing from you.
Neuropathy still a problem?
I was reading about Tramadol today
http://en.wikipedia.org/wiki/Tramadol (wondering if it could help your
neuropathy)

How were the scans - changed treatment?
Please updaae when possible.
J - thinking of you

J <nswex@nalid;no> wrote in alt.support.cancer:

> How are you doing, Jacques? I miss hearing from you.
> Neuropathy still a problem?
> I was reading about Tramadol today
> http://en.wikipedia.org/wiki/Tramadol (wondering if it could help your
> neuropathy)
>
> How were the scans - changed treatment?
> Please updaae when possible.
> J - thinking of you

hi, still doing carbo/taxol, last dose is this friday, mets have shrunk but
they have to take me off it because hands and feet are going numb. I'll have
a 3 month break then they'll reasses, last time i had a 3 month break it
wasn't good. We'll see. Thanks for asking.

jacques wrote:

> J <nswex@nalid;no> wrote in alt.support.cancer:
> > How are you doing, Jacques? I miss hearing from you.
> > Neuropathy still a problem?
> > I was reading about Tramadol today
> > http://en.wikipedia.org/wiki/Tramadol (wondering if it could help your
> > neuropathy)
> >
> > How were the scans - changed treatment?
>
>
> hi, still doing carbo/taxol, last dose is this friday, mets have shrunk but
> they have to take me off it because hands and feet are going numb. I'll have
> a 3 month break then they'll reasses, last time i had a 3 month break it
> wasn't good. We'll see. Thanks for asking.

Hello jacques,
Thanks for checking in. Difficult situation.
At some point, chemotherapy does more harm than good.

Neuropathy from chemo, is cumulative.
It's difficult to treat and (the treatments) can have unacceptable side effects.

They're keeping your quality of life in mind.

Drop us a line, from time - time; as able.
I'll be here caring and listening.
J

Hello Jacques and J and anyone else. My name is Betsy. Two and a half
months ago I was finishing up my last chemo treatment when I went into
Seizures coming home from my Onc appt. I do not remember any of the next
6 weeks. I spent this time in a nursing home after being discharged from
my local hospital. I had to relearn to walk to get rid of the swelling
in my legs from inactivity.
The seizures were brought on by losing 70 lbs, chemo or just plain run
down.
The suckers have a lot of nerve calling it a nursing home. That it
isn't. It's a cash generator for Docs and the owners. I was released by
popular demand 2 weeks ago. They couldn't kill me so I had to go.

"J" <xnswex@nalid;"no> wrote in message
news:483296B3.748D680F@execulink.com...
> jacques wrote:
>
>> J <nswex@nalid;no> wrote in alt.support.cancer:
>> > How are you doing, Jacques? I miss hearing from you.
>> > Neuropathy still a problem?
>> > I was reading about Tramadol today
>> > http://en.wikipedia.org/wiki/Tramadol (wondering if it could help
>> > your
>> > neuropathy)
>> >
>> > How were the scans - changed treatment?
>>
>>
>> hi, still doing carbo/taxol, last dose is this friday, mets have
>> shrunk but
>> they have to take me off it because hands and feet are going numb.
>> I'll have
>> a 3 month break then they'll reasses, last time i had a 3 month break
>> it
>> wasn't good. We'll see. Thanks for asking.
>
> Hello jacques,
> Thanks for checking in. Difficult situation.
> At some point, chemotherapy does more harm than good.
>
> Neuropathy from chemo, is cumulative.
> It's difficult to treat and (the treatments) can have unacceptable
> side effects.
>
> They're keeping your quality of life in mind.
>
> Drop us a line, from time - time; as able.
> I'll be here caring and listening.
> J
>

betsy959 wrote:

> Hello Jacques and J and anyone else. My name is Betsy. Two and a half
> months ago I was finishing up my last chemo treatment when I went into
> Seizures coming home from my Onc appt. I do not remember any of the next
> 6 weeks. I spent this time in a nursing home after being discharged from
> my local hospital. I had to relearn to walk to get rid of the swelling
> in my legs from inactivity.
> The seizures were brought on by losing 70 lbs, chemo or just plain run
> down.
> The suckers have a lot of nerve calling it a nursing home. That it
> isn't. It's a cash generator for Docs and the owners. I was released by
> popular demand 2 weeks ago. They couldn't kill me so I had to go.

It's great to hear from you again, Betsy.
I was so worried about your absence.

Are you on seizure medicine or busy catching up on foods and nutrition?
Please let us know how things go, as you are able.
Hugs
J

"J" <xnswex@nalid;"no> wrote in message
news:4839FC78.EC41B84D@execulink.com...
> betsy959 wrote:
>
>> Hello Jacques and J and anyone else. My name is Betsy. Two and a half
>> months ago I was finishing up my last chemo treatment when I went
>> into
>> Seizures coming home from my Onc appt. I do not remember any of the
>> next
>> 6 weeks. I spent this time in a nursing home after being discharged
>> from
>> my local hospital. I had to relearn to walk to get rid of the
>> swelling
>> in my legs from inactivity.
>> The seizures were brought on by losing 70 lbs, chemo or just plain
>> run
>> down.
>> The suckers have a lot of nerve calling it a nursing home. That it
>> isn't. It's a cash generator for Docs and the owners. I was released
>> by
>> popular demand 2 weeks ago. They couldn't kill me so I had to go.
>
> It's great to hear from you again, Betsy.
> I was so worried about your absence.
>
> Are you on seizure medicine or busy catching up on foods and
> nutrition?
> Please let us know how things go, as you are able.
> Hugs
> J
>

Very busy trying to recall how to use the computer, et al. Yes to both.
Dilantin and eating everything in sight. Pulled muscle in my right leg
is giving me more trouble than dancing down the steps with a walker.

"betsy959" <betsy959@optonline.net> wrote in message
news:4839e253$0$15157$607ed4bc@cv.net...
| Hello Jacques and J and anyone else. My name is Betsy. Two and a half
| months ago I was finishing up my last chemo treatment when I went into
| Seizures coming home from my Onc appt. I do not remember any of the next
| 6 weeks. I spent this time in a nursing home after being discharged from
| my local hospital. I had to relearn to walk to get rid of the swelling
| in my legs from inactivity.
| The seizures were brought on by losing 70 lbs, chemo or just plain run
| down.
| The suckers have a lot of nerve calling it a nursing home. That it
| isn't. It's a cash generator for Docs and the owners. I was released by
| popular demand 2 weeks ago. They couldn't kill me so I had to go.
|


It's nice to hear from you once more,Betsy.
I'm sorry to hear of the bad time you have
been through and I wish you a full recovery.
Old Bill.

betsy959 wrote:

> "J" <xnswex@nalid;"no> wrote in message
> news:4839FC78.EC41B84D@execulink.com...
> > betsy959 wrote:
> >
> >> Hello Jacques and J and anyone else. My name is Betsy. Two and a half
> >> months ago I was finishing up my last chemo treatment when I went
> >> into
> >> Seizures coming home from my Onc appt. I do not remember any of the
> >> next
> >> 6 weeks. I spent this time in a nursing home after being discharged
> >> from
> >> my local hospital. I had to relearn to walk to get rid of the
> >> swelling
> >> in my legs from inactivity.
> >> The seizures were brought on by losing 70 lbs, chemo or just plain
> >> run
> >> down.
> >> The suckers have a lot of nerve calling it a nursing home. That it
> >> isn't. It's a cash generator for Docs and the owners. I was released
> >> by
> >> popular demand 2 weeks ago. They couldn't kill me so I had to go.
> >
> > It's great to hear from you again, Betsy.
> > I was so worried about your absence.
> >
> > Are you on seizure medicine or busy catching up on foods and
> > nutrition?
> > Please let us know how things go, as you are able.
> > Hugs
> > J
> >
>
> Very busy trying to recall how to use the computer, et al. Yes to both.
> Dilantin and eating everything in sight. Pulled muscle in my right leg
> is giving me more trouble than dancing down the steps with a walker.

Hello Betsy,
It's good to hear that your appetite is good.
Have you tried a tensor bandage for the muscle?
The goal is to stabilize the muscle so it causes less pain but not so tight
that it could cause a clot.
It also keeps the muscle warmed up, but not for use all day and night. It'll
atrophy.
Play it by ear and do not cover the knee or keeecap.

I could tell you some light exercises to do while sitting to help strengthen
the muscle (no wrap at that time).
BUT, first check with your onc if calcium levels are in (or out of range)
and whether there's signs of bone mets.
Too dangerous to do exercises if a fracture could occur.

Try the tensor bandage and see how it goes?
J

"betsy959" <betsy959@optonline.net> wrote in message
news:483abab5$0$25060$607ed4bc@cv.net...
>
> "J" <xnswex@nalid;"no> wrote in message
> news:4839FC78.EC41B84D@execulink.com...
>> betsy959 wrote:
>>
>>> Hello Jacques and J and anyone else. My name is Betsy. Two and a
>>> half
>>> months ago I was finishing up my last chemo treatment when I went
>>> into
>>> Seizures coming home from my Onc appt. I do not remember any of the
>>> next
>>> 6 weeks. I spent this time in a nursing home after being discharged
>>> from
>>> my local hospital. I had to relearn to walk to get rid of the
>>> swelling
>>> in my legs from inactivity.
>>> The seizures were brought on by losing 70 lbs, chemo or just plain
>>> run
>>> down.
>>> The suckers have a lot of nerve calling it a nursing home. That it
>>> isn't. It's a cash generator for Docs and the owners. I was released
>>> by
>>> popular demand 2 weeks ago. They couldn't kill me so I had to go.
>>
>> It's great to hear from you again, Betsy.
>> I was so worried about your absence.
>>
>> Are you on seizure medicine or busy catching up on foods and
>> nutrition?
>> Please let us know how things go, as you are able.
>> Hugs
>> J
>>
>
> Very busy trying to recall how to use the computer, et al. Yes to
> both. Dilantin and eating everything in sight. Pulled muscle in my
> right leg is giving me more trouble than dancing down the steps with a
> walker.
>
I forgot the third possible cause of the seizures was my low blood
pressure. both numbers are below 100 and quite frankly I think it scared
them silly.

betsy959 wrote:

> "betsy959" <betsy959@optonline.net> wrote in message
> >
> > "J" <xnswex@nalid;"no> wrote in message
>
> >> betsy959 wrote:
> >>
> >>> Hello Jacques and J and anyone else. My name is Betsy. Two and a
> >>> half
> >>> months ago I was finishing up my last chemo treatment when I went
> >>> into
> >>> Seizures coming home from my Onc appt. I do not remember any of the
> >>> next
> >>> 6 weeks. I spent this time in a nursing home after being discharged
> >>> from
> >>> my local hospital. I had to relearn to walk to get rid of the
> >>> swelling
> >>> in my legs from inactivity.
> >>> The seizures were brought on by losing 70 lbs, chemo or just plain
> >>> run
> >>> down.
> >>> The suckers have a lot of nerve calling it a nursing home. That it
> >>> isn't. It's a cash generator for Docs and the owners. I was released
> >>> by
> >>> popular demand 2 weeks ago. They couldn't kill me so I had to go.
> >>
> >> It's great to hear from you again, Betsy.
> >> I was so worried about your absence.
> >>
> >> Are you on seizure medicine or busy catching up on foods and
> >> nutrition?
> >> Please let us know how things go, as you are able.
> >> Hugs
> >> J
> >>
> >
> > Very busy trying to recall how to use the computer, et al. Yes to
> > both. Dilantin and eating everything in sight. Pulled muscle in my
> > right leg is giving me more trouble than dancing down the steps with a
> > walker.
> >
> I forgot the third possible cause of the seizures was my low blood
> pressure. both numbers are below 100 and quite frankly I think it scared
> them silly.

Darned scarey losing track of 6 weeks.

I'm sorry, I don't know for sure what could have caused it.
I imagine loss of weight like that could have caused both.
My blood pressure goes low ehen I skip a meal.
Hypoglycemia is mentioned http://en.wikipedia.org/wiki/Seizure
Is it possible you were in a diabetic coma?
I'm just happy to know that you're improving now, Betsy.
Hugs
J