Any similar experiences; advice?

My ex-husband and I were divorced in 2001. In the divorce, I was given full
custody of both of our children, the oldest having Type 1 Diabetes. During
the course of our marriage, my ex-husband did very little in caring for my
son's diabetes and after our divorce, he became even less involved. My
ex-husband only saw the kids 1-2 days every other weekend and so had little
time with him anyhow. In 2003, I remarried and moved out of state which
meant that my ex-husband's visitation with our children changed to a week at
Christmas and 8 weeks during the summer. Because of his lack of ability to
care for our son's diabetes, I forced him and his new wife into diabetes
training although this did little good because he hasn't put much of that
information into practice. Over the course of the last 5 summers, my son's
diabetes has not been managed well when with his father for
visits...something I have addressed without much success. Even my attorney
said that "until something bad happens there really isn't much you can do
about it." At the end of this year's summer visit, my ex-husband decided to
petition the court for custody of my oldest son (I truly believe as a way of
trying to get out of paying any child support). Since that time, I have
been in a legal battle to keep my son. Unfortunately, the court doesn't
care what type of a father this man has been in the past because he's never
actually done anything to hurt my children (anything that is physically
evident up to this point at least) and so my attorney believes we need to
attack this problem by focusing on his lack of care for our son's diabetes.
The problem I am running into is that no doctor has been willing to put in
writing an opinion as to why my son's hemoglobin A1c's are so much higher
after he returns from visiting with his father in the summer. They simply
"do not want to get involved." I am, therefore, trying to gather as much
medical information to share with our Guardian Ad Litem in the hopes that
this information will help sway her opinion as to where our son should live
and that she will then share this with the judge. What I need is any
information that might be useful in educating our G.A.L. about my son's
diabetes. In particular, I need something stated that shows what a
hemoglobin A1c is and what the "normal" ranges are for someone my son's age.
Though A1c levels are generally best under 7.0%, for someone my son's age,
good control is considered anything under 7.5%....the problem is that I need
documentation to prove that and am having a hard time coming up with
anything. I would greatly appreciate any help that can be given. Thank
you!





Lamentations 3:22-23 "The steadfast love of the LORD never ceases; His
mercies never come to an end; they are new every morning; great is God's
faithfulness."

How old is your son? I didn't see it mentioned.

Cheri


Greg wrote in message ...
>My ex-husband and I were divorced in 2001. In the divorce, I was
given full
>custody of both of our children, the oldest having Type 1 Diabetes.
During
>the course of our marriage, my ex-husband did very little in caring
for my
>son's diabetes and after our divorce, he became even less involved.
My
>ex-husband only saw the kids 1-2 days every other weekend and so had
little
>time with him anyhow. In 2003, I remarried and moved out of state
which
>meant that my ex-husband's visitation with our children changed to a
week at
>Christmas and 8 weeks during the summer. Because of his lack of
ability to
>care for our son's diabetes, I forced him and his new wife into
diabetes
>training although this did little good because he hasn't put much of
that
>information into practice. Over the course of the last 5 summers, my
son's
>diabetes has not been managed well when with his father for
>visits...something I have addressed without much success. Even my
attorney
>said that "until something bad happens there really isn't much you
can do
>about it." At the end of this year's summer visit, my ex-husband
decided to
>petition the court for custody of my oldest son (I truly believe as a
way of
>trying to get out of paying any child support). Since that time, I
have
>been in a legal battle to keep my son. Unfortunately, the court
doesn't
>care what type of a father this man has been in the past because he's
never
>actually done anything to hurt my children (anything that is
physically
>evident up to this point at least) and so my attorney believes we
need to
>attack this problem by focusing on his lack of care for our son's
diabetes.
>The problem I am running into is that no doctor has been willing to
put in
>writing an opinion as to why my son's hemoglobin A1c's are so much
higher
>after he returns from visiting with his father in the summer. They
simply
>"do not want to get involved." I am, therefore, trying to gather as
much
>medical information to share with our Guardian Ad Litem in the hopes
that
>this information will help sway her opinion as to where our son
should live
>and that she will then share this with the judge. What I need is any
>information that might be useful in educating our G.A.L. about my
son's
>diabetes. In particular, I need something stated that shows what a
>hemoglobin A1c is and what the "normal" ranges are for someone my
son's age.
> Though A1c levels are generally best under 7.0%, for someone my
son's age,
>good control is considered anything under 7.5%....the problem is that
I need
>documentation to prove that and am having a hard time coming up with
>anything. I would greatly appreciate any help that can be given.
Thank
>you!
>
>
>
>
>
>Lamentations 3:22-23 "The steadfast love of the LORD never ceases;
His
>mercies never come to an end; they are new every morning; great is
God's
>faithfulness."
>
>

On Aug 29, 12:43?pm, "Greg" <BayRidgeVe...@gmail.com> wrote:
> My ex-husband and I were divorced in 2001. In the divorce, I was given full
> custody of both of our children, the oldest having Type 1 Diabetes. During
> the course of our marriage, my ex-husband did very little in caring for my
> son's diabetes and after our divorce, he became even less involved. My
> ex-husband only saw the kids 1-2 days every other weekend and so had little
> time with him anyhow. In 2003, I remarried and moved out of state which
> meant that my ex-husband's visitation with our children changed to a week at
> Christmas and 8 weeks during the summer. Because of his lack of ability to
> care for our son's diabetes, I forced him and his new wife into diabetes
> training although this did little good because he hasn't put much of that
> information into practice. Over the course of the last 5 summers, my son's
> diabetes has not been managed well when with his father for
> visits...something I have addressed without much success. Even my attorney
> said that "until something bad happens there really isn't much you can do
> about it." At the end of this year's summer visit, my ex-husband decided to
> petition the court for custody of my oldest son (I truly believe as a way of
> trying to get out of paying any child support). Since that time, I have
> been in a legal battle to keep my son. Unfortunately, the court doesn't
> care what type of a father this man has been in the past because he's never
> actually done anything to hurt my children (anything that is physically
> evident up to this point at least) and so my attorney believes we need to
> attack this problem by focusing on his lack of care for our son's diabetes.
> The problem I am running into is that no doctor has been willing to put in
> writing an opinion as to why my son's hemoglobin A1c's are so much higher
> after he returns from visiting with his father in the summer. They simply
> "do not want to get involved." I am, therefore, trying to gather as much
> medical information to share with our Guardian Ad Litem in the hopes that
> this information will help sway her opinion as to where our son should live
> and that she will then share this with the judge. What I need is any
> information that might be useful in educating our G.A.L. about my son's
> diabetes. In particular, I need something stated that shows what a
> hemoglobin A1c is and what the "normal" ranges are for someone my son's age.
> Though A1c levels are generally best under 7.0%, for someone my son's age,
> good control is considered anything under 7.5%....the problem is that I need
> documentation to prove that and am having a hard time coming up with
> anything. I would greatly appreciate any help that can be given. Thank
> you!

Is Greg your new husband's name?

Is your doctor really unwilling to at least go on record as to what
your son's needs are? Is your doctor an endocrinologist that
specializes in diabetes? If not, you should probably have an endo at
least as a consultant on your son's medical team.

Type 1 diabetes is a very complicated disease, as you probably know
all too well because of your son. As far as his a1c recommended level
that really should come from the doctor. You can find lots of great
information from professional diabetes sites:

diabetes.org
jdrf.org
joslin.org

diabetes.org is the ADA's offical site and you'll find lots of
information about Type 1 diabetes and they even have a message board
specifically for parents of children with diabetes!!! Check it out.
You could talk with other parents and perhaps even some who might be
in the same situation as you with shared custody.

http://community.diabetes.org/n/pfx/...tag=adaparents

The ADA's statement on the site regarding a1c levels is this:

"The better your glucose control, the less likely you are to develop
complications of diabetes. An A1C in the sevens (7s), however, does
not represent good control. The ADA goal is less than 7 percent.
The
closer your A1C is to the normal range (less than 6 percent), the
lower
your chances of complications. However, you increase your risk of
hypoglycemia, especially if you have type 1 diabetes. Talk with your
health care provider about the best goal for you."

Best of luck.

Kurt

In alt.support.diabetes on Wed, 29 Aug 2007 15:43:17 -0400 in Msg.#
<PbmdnYWckNzIUUjbnZ2dnUVZ_rSinZ2d@comcast.com>, "Greg"
<BayRidgeVetrn@gmail.com> wrote:

[...]
> The problem I am running into is that no doctor has been willing to put in
> writing an opinion as to why my son's hemoglobin A1c's are so much higher
> after he returns from visiting with his father in the summer. They simply
> "do not want to get involved." I am, therefore, trying to gather as much
> medical information to share with our Guardian Ad Litem in the hopes that
> this information will help sway her opinion as to where our son should live
> and that she will then share this with the judge. What I need is any
> information that might be useful in educating our G.A.L. about my son's
> diabetes. In particular, I need something stated that shows what a
> hemoglobin A1c is and what the "normal" ranges are for someone my son's age.
> Though A1c levels are generally best under 7.0%, for someone my son's age,
> good control is considered anything under 7.5%....the problem is that I need
> documentation to prove that and am having a hard time coming up with
> anything. I would greatly appreciate any help that can be given. Thank
> you!

You would be able to find citations on what the relationship between glucose
& blood cells is in the hbA1C test, and you would be able to find citations
on what are good target ranges, etc. for hbA1C in books & on the web.

But, you really need your son's doctor to make a statement.

--
DonnaB shallotpeel

"I must take issue with the term 'a mere child,' for it has been my
invariable experience that the company of a mere child is infinitely
preferable to that of a mere adult." - Fran Lebowitz

Reposting the links so that they are "clickable"

www.diabetes.org
www.jdrf.org
www.joslin.org

http://community.diabetes.org/n/pfx/...tag=adaparents

Kurt

Greg wrote:
In particular, I need
:: something stated that shows what a hemoglobin A1c is and what the
:: "normal" ranges are for someone my son's age. Though A1c levels are
:: generally best under 7.0%, for someone my son's age, good control is
:: considered anything under 7.5%....the problem is that I need
:: documentation to prove that and am having a hard time coming up with
:: anything. I would greatly appreciate any help that can be given.
:: Thank you!
::

Have you googled? I've seen numbers on the web for kids. Also, if you know
your son's A1c is higher after his visits, then don't you have those test
results to use as evidence? You can always get a copy of any medical
information put into his file (in fact, you should have a complete copy of
his medical records). Before/after numbers taken by labs, after ordered by
your doctor, might be just as good as a statement...

On 29-Aug-2007, "Greg" <BayRidgeVetrn@gmail.com> wrote:

> would greatly appreciate any help that can be given. Thank
> you!

What jurisdiction are you in?...

How old is your son?

Will, T2

----== Posted via Newsfeeds.Com - Unlimited-Unrestricted-Secure Usenet News==----
http://www.newsfeeds.com The #1 Newsgroup Service in the World! 120,000+ Newsgroups
----= East and West-Coast Server Farms - Total Privacy via Encryption =----

I am so sorry for all these problems you are going through. How old is
your son, Is he old enough to decide where he wants to live.

I dont know how you can prove that the father was not treating his
diabetes. I hope the court rules in your favor, but it seems that more
and more fathers are getting custody of their children and I dont know
why. Most deadbeat fathers dont care.

Is your child old enough to be monitoring his own diabetes

I wish you the best of luck and would appre ciate your telling us what
happened at the trial.

It must be an awful feeling, I cant even imagine it.

I have been where you are only thing my husband never gave any support
and ran to another state to avoid it. His daughter now 33 never wants
to have anything to do with him. That was her decision.

Maybe your son will figure out who he really is, or maybe he has changed
and wants to be there for his son.

Loretta

Hi Kurt, this is Greg in NJ. This lady in the letter is a dear internet
friend of mine; we met in an internet chat room on AOL many yrs ago. I was
diagnosed with Juvenile diabetes in '73 when I was 11; and I'm happy to tell
you I'm still kicking after a successful kidney/pancreas transplant in '03.
I know all too well the dangers of this disease, eye problems, dialysis, I
truly hate this disease. Stephanie asked me to post her letter on
newsgroups I thought would be beneficial in reaching people with similar
experiences. She has no experience in setting up newsgroups, so I offered
to help her. I will try to set her Outlook Express news up remotely
sometime soon. In the meantime I'm forwarding the responses I get. Thanks
to all that may help...Greg, BayRidgeVetrn
"Kurt" <kurtwheeling1965@hotmail.com> wrote in message
news:1188418125.003697.236270@e9g2000prf.googlegro ups.com...
> On Aug 29, 12:43?pm, "Greg" <BayRidgeVe...@gmail.com> wrote:
>> My ex-husband and I were divorced in 2001. In the divorce, I was given
>> full
>> custody of both of our children, the oldest having Type 1 Diabetes.
>> During
>> the course of our marriage, my ex-husband did very little in caring for
>> my
>> son's diabetes and after our divorce, he became even less involved. My
>> ex-husband only saw the kids 1-2 days every other weekend and so had
>> little
>> time with him anyhow. In 2003, I remarried and moved out of state which
>> meant that my ex-husband's visitation with our children changed to a week
>> at
>> Christmas and 8 weeks during the summer. Because of his lack of ability
>> to
>> care for our son's diabetes, I forced him and his new wife into diabetes
>> training although this did little good because he hasn't put much of that
>> information into practice. Over the course of the last 5 summers, my
>> son's
>> diabetes has not been managed well when with his father for
>> visits...something I have addressed without much success. Even my
>> attorney
>> said that "until something bad happens there really isn't much you can do
>> about it." At the end of this year's summer visit, my ex-husband decided
>> to
>> petition the court for custody of my oldest son (I truly believe as a way
>> of
>> trying to get out of paying any child support). Since that time, I have
>> been in a legal battle to keep my son. Unfortunately, the court doesn't
>> care what type of a father this man has been in the past because he's
>> never
>> actually done anything to hurt my children (anything that is physically
>> evident up to this point at least) and so my attorney believes we need to
>> attack this problem by focusing on his lack of care for our son's
>> diabetes.
>> The problem I am running into is that no doctor has been willing to put
>> in
>> writing an opinion as to why my son's hemoglobin A1c's are so much higher
>> after he returns from visiting with his father in the summer. They
>> simply
>> "do not want to get involved." I am, therefore, trying to gather as much
>> medical information to share with our Guardian Ad Litem in the hopes that
>> this information will help sway her opinion as to where our son should
>> live
>> and that she will then share this with the judge. What I need is any
>> information that might be useful in educating our G.A.L. about my son's
>> diabetes. In particular, I need something stated that shows what a
>> hemoglobin A1c is and what the "normal" ranges are for someone my son's
>> age.
>> Though A1c levels are generally best under 7.0%, for someone my son's
>> age,
>> good control is considered anything under 7.5%....the problem is that I
>> need
>> documentation to prove that and am having a hard time coming up with
>> anything. I would greatly appreciate any help that can be given. Thank
>> you!
>
> Is Greg your new husband's name?
>
> Is your doctor really unwilling to at least go on record as to what
> your son's needs are? Is your doctor an endocrinologist that
> specializes in diabetes? If not, you should probably have an endo at
> least as a consultant on your son's medical team.
>
> Type 1 diabetes is a very complicated disease, as you probably know
> all too well because of your son. As far as his a1c recommended level
> that really should come from the doctor. You can find lots of great
> information from professional diabetes sites:
>
> diabetes.org
> jdrf.org
> joslin.org
>
> diabetes.org is the ADA's offical site and you'll find lots of
> information about Type 1 diabetes and they even have a message board
> specifically for parents of children with diabetes!!! Check it out.
> You could talk with other parents and perhaps even some who might be
> in the same situation as you with shared custody.
>
> http://community.diabetes.org/n/pfx/...tag=adaparents
>
> The ADA's statement on the site regarding a1c levels is this:
>
> "The better your glucose control, the less likely you are to develop
> complications of diabetes. An A1C in the sevens (7s), however, does
> not represent good control. The ADA goal is less than 7 percent.
> The
> closer your A1C is to the normal range (less than 6 percent), the
> lower
> your chances of complications. However, you increase your risk of
> hypoglycemia, especially if you have type 1 diabetes. Talk with your
> health care provider about the best goal for you."
>
> Best of luck.
>
> Kurt
>
>

On Wed, 29 Aug 2007 15:43:17 -0400, "Greg"
<BayRidgeVetrn@gmail.com> wrote:

>My ex-husband and I were divorced in 2001. In the divorce, I was given full
>custody of both of our children, the oldest having Type 1 Diabetes. During
>the course of our marriage, my ex-husband did very little in caring for my
>son's diabetes and after our divorce, he became even less involved. My
>ex-husband only saw the kids 1-2 days every other weekend and so had little
>time with him anyhow. In 2003, I remarried and moved out of state which
>meant that my ex-husband's visitation with our children changed to a week at
>Christmas and 8 weeks during the summer. Because of his lack of ability to
>care for our son's diabetes, I forced him and his new wife into diabetes
>training although this did little good because he hasn't put much of that
>information into practice. Over the course of the last 5 summers, my son's
>diabetes has not been managed well when with his father for
>visits...something I have addressed without much success. Even my attorney
>said that "until something bad happens there really isn't much you can do
>about it." At the end of this year's summer visit, my ex-husband decided to
>petition the court for custody of my oldest son (I truly believe as a way of
>trying to get out of paying any child support). Since that time, I have
>been in a legal battle to keep my son. Unfortunately, the court doesn't
>care what type of a father this man has been in the past because he's never
>actually done anything to hurt my children (anything that is physically
>evident up to this point at least) and so my attorney believes we need to
>attack this problem by focusing on his lack of care for our son's diabetes.
>The problem I am running into is that no doctor has been willing to put in
>writing an opinion as to why my son's hemoglobin A1c's are so much higher
>after he returns from visiting with his father in the summer. They simply
>"do not want to get involved." I am, therefore, trying to gather as much
>medical information to share with our Guardian Ad Litem in the hopes that
>this information will help sway her opinion as to where our son should live
>and that she will then share this with the judge. What I need is any
>information that might be useful in educating our G.A.L. about my son's
>diabetes. In particular, I need something stated that shows what a
>hemoglobin A1c is and what the "normal" ranges are for someone my son's age.
> Though A1c levels are generally best under 7.0%, for someone my son's age,
>good control is considered anything under 7.5%....the problem is that I need
>documentation to prove that and am having a hard time coming up with
>anything. I would greatly appreciate any help that can be given. Thank
>you!

I agree with the others that you need to find a competent
doctor to advise you, preferably a diabetes specialist such
as an endocrinologist.

However, the following links may help you.

For information from other parents, the ADA forum "Place for
Parents":
http://community.diabetes.org/n/pfx/...tag=adaparents

AMERICAN ASSOCIATION OF CLINICAL ENDOCRINOLOGISTS
MEDICAL GUIDELINES FOR CLINICAL PRACTICE FOR THE
MANAGEMENT OF DIABETES MELLITUS
http://www.aace.com/pub/pdf/guidelin...elines2007.pdf

This includes these guidelines, see section 4 on page 14:

"4. GLYCEMIC MANAGEMENT
4.1. Executive Summary
4.1.1. All Patients With Diabetes Mellitus
• Encourage patients to achieve glycemic levels as near
normal as possible without inducing clinically significant
hypoglycemia (grade A); glycemic targets include:
o HbA1c =6.5% (grade B)
o Fasting plasma glucose concentration <110 mg/dL (grade B)
o 2-hour postprandial glucose concentration <140 mg/dL
(grade B)
• Refer patients for comprehensive, ongoing education in
diabetes self-management skills and nutrition therapy (grade
A); education should:
o Be provided by a qualified health care professional
o Focus on all aspects of diabetes self-management relevant
to each patient’s treatment plan
o Promote behavioral changes to support effective and
consistent application of the prescribed diabetes treatment
plan and an overall healthy lifestyle
o Be continued as an ongoing intervention to accommodate
changes in the treatment plan and patient status
• Initiate self-monitoring of blood glucose levels (grade A)
4.1.2. Patients With Type 1 Diabetes Mellitus
• Initiate intensive insulin therapy (grade A) (Table 4.1
describes the pharmacokinetics of available insulin
preparations); regimen options include:
o Basal-bolus therapy, using a long-acting insulin analog in
combination with a rapid-acting insulin analog or inhaled
insulin at meals
o Continuous subcutaneous insulin infusion with an insulin
pump; insulin pump therapy is indicated for:
§ Patients who are unable to achieve acceptable control
using a regimen of multiple daily injections
§ Patients with histories of frequent hypoglycemia and/or
hypoglycemia unawareness
§ Patients who are pregnant
§ Patients with extreme insulin sensitivity (pump therapy
facilitates better precision than subcutaneous injections)
§ Patients with a history of dawn phenomenon (these patients
can program a higher basal rate for the early morning hours
to counteract the rise in blood glucose concentration)
§ Patients who require more intensive diabetes management
because of complications including neuropathy, nephropathy,
and retinopathy
§ Patients taking multiple daily injections who have
demonstrated willingness and ability to comply with
prescribed diabetes self-care behavior including frequent
glucose monitoring, carbohydrate counting, and insulin
adjustment
• Consider adding pramlintide to intensive insulin therapy
to enhance glycemic control and to assist with weight
management (grade D)"


Cheers, Alan, T2, Australia.
d&e, metformin 1500mg, ezetrol 10mg
Everything in Moderation - Except Laughter.
--
http://loraldiabetes.blogspot.com

On Aug 29, 1:52?pm, "Greg" <BayRidgeVe...@gmail.com> wrote:
> Hi Kurt, this is Greg in NJ. This lady in the letter is a dear internet
> friend of mine; we met in an internet chat room on AOL many yrs ago. I was
> diagnosed with Juvenile diabetes in '73 when I was 11; and I'm happy to tell
> you I'm still kicking after a successful kidney/pancreas transplant in '03.
> I know all too well the dangers of this disease, eye problems, dialysis, I
> truly hate this disease. Stephanie asked me to post her letter on
> newsgroups I thought would be beneficial in reaching people with similar
> experiences. She has no experience in setting up newsgroups, so I offered
> to help her. I will try to set her Outlook Express news up remotely
> sometime soon. In the meantime I'm forwarding the responses I get.

Thanks for clearing that up, Greg. Hopefully Stephanie can get her
questions answered...probably the best place is from a specialist and
the link I gave you for the ADA's parent message board.

Sounds like you've been through a lot with your own diabetes. You
have a great attitude about your diabetes and your positive take on
your kidney transplant in '03 is an inspiration to me. Thanks for
sharing. And don't be a stranger to the newsgroup...you no doubt have
a lot to add here.

Kurt

Alan S wrote:

> AMERICAN ASSOCIATION OF CLINICAL ENDOCRINOLOGISTS
> MEDICAL GUIDELINES FOR CLINICAL PRACTICE FOR THE
> MANAGEMENT OF DIABETES MELLITUS
> http://www.aace.com/pub/pdf/guidelin...elines2007.pdf

I strongly agree with Alan. I've been reading and rereading this
document, and while I don't agree with it 100%, the fact of the matter
is that it defines the state-of-the-art in treatment in the US by the
undisputed experts.

On the other hand... if said child is old enough to make his own
decision about which parent he prefers, he should do so - regardless of
whether it's absolutely the best thing for his health. Kids decide to
do lots of things... some of which are unhealthy and/or otherwise
stupid, and many which are a lot riskier than a couple decimal points on
the A1c.

If he *wants* to live with his father - you opposing that is going to
have much longer term repurcussions on the kid's health (and your
relationship with the kid) than slightly elevated bg readings for a few
years.

No matter what you do, some day you have to turn over care of his
diabetes to someone else - you have to figure out what improves that the
most for the long term. If it were me, I'd be much more concerned about
the child deciding that good bg control kept him from his father and
internalizing *that* for the next couple decades.

--
http://www.ornery-geeks.org/consulting/

Greg, it is good of you to help her. Can you ask her to tell us if the child
is seeing an endocrinologist. If not, I strongly advise it. Also how old is
the boy? For example. My kids have a 16 year old type 1 friend, diagnosed
aged 4 and when we first met him at age 9 he was already working out his own
food and insulin plans. He has stayed here in my house very regularly since
aged 9. I am really an observer in his care, he manages very well. I keep
ketostix in both bathrooms and I am aware of signs of hypo and DKA etc but
truly, this kid does his own thing. He knows how to eat.

If your friend's son knows how he should be treating this diabetes then he
is either eating under sufferance when he is at his dad's house or choosing
not to eat right while away from home. I know this doesn't help with the
custody thing but the boy's A1c's over summer could be in his court. He may
(or not) be calling the shots as to how he is eating and medicating. Just a
thing to think about.

"Greg" <BayRidgeVetrn@gmail.com> wrote in message
news:ON2dnUurqr41QUjbnZ2dnUVZ_uuqnZ2d@comcast.com. ..
> Hi Kurt, this is Greg in NJ. This lady in the letter is a dear internet
> friend of mine; we met in an internet chat room on AOL many yrs ago. I
> was diagnosed with Juvenile diabetes in '73 when I was 11; and I'm happy
> to tell you I'm still kicking after a successful kidney/pancreas
> transplant in '03. I know all too well the dangers of this disease, eye
> problems, dialysis, I truly hate this disease. Stephanie asked me to post
> her letter on newsgroups I thought would be beneficial in reaching people
> with similar experiences. She has no experience in setting up newsgroups,
> so I offered to help her. I will try to set her Outlook Express news up
> remotely sometime soon. In the meantime I'm forwarding the responses I
> get. Thanks to all that may help...Greg, BayRidgeVetrn
> "Kurt" <kurtwheeling1965@hotmail.com> wrote in message
> news:1188418125.003697.236270@e9g2000prf.googlegro ups.com...
>> On Aug 29, 12:43?pm, "Greg" <BayRidgeVe...@gmail.com> wrote:
>>> My ex-husband and I were divorced in 2001. In the divorce, I was given
>>> full
>>> custody of both of our children, the oldest having Type 1 Diabetes.
>>> During
>>> the course of our marriage, my ex-husband did very little in caring for
>>> my
>>> son's diabetes and after our divorce, he became even less involved. My
>>> ex-husband only saw the kids 1-2 days every other weekend and so had
>>> little
>>> time with him anyhow. In 2003, I remarried and moved out of state which
>>> meant that my ex-husband's visitation with our children changed to a
>>> week at
>>> Christmas and 8 weeks during the summer. Because of his lack of ability
>>> to
>>> care for our son's diabetes, I forced him and his new wife into diabetes
>>> training although this did little good because he hasn't put much of
>>> that
>>> information into practice. Over the course of the last 5 summers, my
>>> son's
>>> diabetes has not been managed well when with his father for
>>> visits...something I have addressed without much success. Even my
>>> attorney
>>> said that "until something bad happens there really isn't much you can
>>> do
>>> about it." At the end of this year's summer visit, my ex-husband
>>> decided to
>>> petition the court for custody of my oldest son (I truly believe as a
>>> way of
>>> trying to get out of paying any child support). Since that time, I have
>>> been in a legal battle to keep my son. Unfortunately, the court doesn't
>>> care what type of a father this man has been in the past because he's
>>> never
>>> actually done anything to hurt my children (anything that is physically
>>> evident up to this point at least) and so my attorney believes we need
>>> to
>>> attack this problem by focusing on his lack of care for our son's
>>> diabetes.
>>> The problem I am running into is that no doctor has been willing to put
>>> in
>>> writing an opinion as to why my son's hemoglobin A1c's are so much
>>> higher
>>> after he returns from visiting with his father in the summer. They
>>> simply
>>> "do not want to get involved." I am, therefore, trying to gather as
>>> much
>>> medical information to share with our Guardian Ad Litem in the hopes
>>> that
>>> this information will help sway her opinion as to where our son should
>>> live
>>> and that she will then share this with the judge. What I need is any
>>> information that might be useful in educating our G.A.L. about my son's
>>> diabetes. In particular, I need something stated that shows what a
>>> hemoglobin A1c is and what the "normal" ranges are for someone my son's
>>> age.
>>> Though A1c levels are generally best under 7.0%, for someone my son's
>>> age,
>>> good control is considered anything under 7.5%....the problem is that I
>>> need
>>> documentation to prove that and am having a hard time coming up with
>>> anything. I would greatly appreciate any help that can be given. Thank
>>> you!
>>
>> Is Greg your new husband's name?
>>
>> Is your doctor really unwilling to at least go on record as to what
>> your son's needs are? Is your doctor an endocrinologist that
>> specializes in diabetes? If not, you should probably have an endo at
>> least as a consultant on your son's medical team.
>>
>> Type 1 diabetes is a very complicated disease, as you probably know
>> all too well because of your son. As far as his a1c recommended level
>> that really should come from the doctor. You can find lots of great
>> information from professional diabetes sites:
>>
>> diabetes.org
>> jdrf.org
>> joslin.org
>>
>> diabetes.org is the ADA's offical site and you'll find lots of
>> information about Type 1 diabetes and they even have a message board
>> specifically for parents of children with diabetes!!! Check it out.
>> You could talk with other parents and perhaps even some who might be
>> in the same situation as you with shared custody.
>>
>> http://community.diabetes.org/n/pfx/...tag=adaparents
>>
>> The ADA's statement on the site regarding a1c levels is this:
>>
>> "The better your glucose control, the less likely you are to develop
>> complications of diabetes. An A1C in the sevens (7s), however, does
>> not represent good control. The ADA goal is less than 7 percent.
>> The
>> closer your A1C is to the normal range (less than 6 percent), the
>> lower
>> your chances of complications. However, you increase your risk of
>> hypoglycemia, especially if you have type 1 diabetes. Talk with your
>> health care provider about the best goal for you."
>>
>> Best of luck.
>>
>> Kurt
>>
>>
>

On Wed, 29 Aug 2007 15:43:17 -0400, "Greg" <BayRidgeVetrn@gmail.com>
wrote:

>hemoglobin A1c is and what the "normal" ranges are for someone my son's age.
> Though A1c levels are generally best under 7.0%, for someone my son's age,
>good control is considered anything under 7.5%....the problem is that I need
>documentation to prove that and am having a hard time coming up with
>anything. I would greatly appreciate any help that can be given. Thank
>you!
>

see your son's doctor for what you need. Quotes from the web or this
group won't cut it in court.

and start teaching your child to take care of their own diabetes and
stop blaming the ex alone for what you have both failed to do.


>
>
>
>
>Lamentations 3:22-23 "The steadfast love of the LORD never ceases; His
>mercies never come to an end; they are new every morning; great is God's
>faithfulness." that explains 9-11.

--
Måck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org
http://www.pandora.com enter "Jason & Demarco"



"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
....Theodore Roosevelt

(o ô)
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
....Bilbo Baggins


DISCLAIMER If you find a posting or message from me
offensive, inappropriate, or disruptive, please ignore it.
If you don't know how to ignore a posting, complain to
me and I will be only too happy to demonstrate...
..
>

"Måck©®" <trolls@renotworthsaving.net> wrote in message
news:ehacd3hkhomjutcot091cnngdgll8vl3sj@4ax.com...
> On Wed, 29 Aug 2007 15:43:17 -0400, "Greg" <BayRidgeVetrn@gmail.com>
> wrote:
>
>>hemoglobin A1c is and what the "normal" ranges are for someone my son's
>>age.
>> Though A1c levels are generally best under 7.0%, for someone my son's
>> age,
>>good control is considered anything under 7.5%....the problem is that I
>>need
>>documentation to prove that and am having a hard time coming up with
>>anything. I would greatly appreciate any help that can be given. Thank
>>you!
>>
>
> see your son's doctor for what you need. Quotes from the web or this
> group won't cut it in court.
>
> and start teaching your child to take care of their own diabetes and
> stop blaming the ex alone for what you have both failed to do.
>
>
>>
>>
>>
>>
>>Lamentations 3:22-23 "The steadfast love of the LORD never ceases; His
>>mercies never come to an end; they are new every morning; great is God's
>>faithfulness." that explains 9-11.
>
> --
> Måck©® Deltec CoZmore Pumper
> Type 1 since 1975
> http://www.alt-support-diabetes.org
> http://www.diabetic-talk.org
> http://www.insulin-pumpers.org
> http://www.pandora.com enter "Jason & Demarco"
>
>
>
> "To announce that there must be no criticism of the
> President, or that we are to stand by the President
> right or wrong, is not only unpatriotic and servile,
> but is morally treasonable to the American public."
> ...Theodore Roosevelt
>
> (o ô)
> --ooO-(_)-Ooo--------------------
>
> "I don't know half of you
> half as well as I should like;
> and I like less than half of you
> half as well as you deserve."
> ....Bilbo Baggins
>
>
> DISCLAIMER If you find a posting or message from me
> offensive, inappropriate, or disruptive, please ignore it.
> If you don't know how to ignore a posting, complain to
> me and I will be only too happy to demonstrate...

Well said!

Don

In article <ehacd3hkhomjutcot091cnngdgll8vl3sj@4ax.com>,
Måck©® <trolls@renotworthsaving.net> wrote:

> and start teaching your child to take care of their own diabetes and
> stop blaming the ex alone for what you have both failed to do.

Good point. How old is the OP's diabetic son?

Priscilla, T2

Greg wrote:
> My ex-husband and I were divorced in 2001. In the divorce, I was
> given full
> custody of both of our children, the oldest having Type 1 Diabetes.
> During
> the course of our marriage, my ex-husband did very little in caring
> for my
> son's diabetes and after our divorce, he became even less involved. My
> ex-husband only saw the kids 1-2 days every other weekend and so had
> little
> time with him anyhow. In 2003, I remarried and moved out of state which
> meant that my ex-husband's visitation with our children changed to a
> week at
> Christmas and 8 weeks during the summer. Because of his lack of
> ability to
> care for our son's diabetes, I forced him and his new wife into diabetes
> training although this did little good because he hasn't put much of that
> information into practice. Over the course of the last 5 summers, my
> son's
> diabetes has not been managed well when with his father for
> visits...something I have addressed without much success. Even my
> attorney
> said that "until something bad happens there really isn't much you can do
> about it." At the end of this year's summer visit, my ex-husband
> decided to
> petition the court for custody of my oldest son (I truly believe as a
> way of
> trying to get out of paying any child support). Since that time, I have
> been in a legal battle to keep my son. Unfortunately, the court doesn't
> care what type of a father this man has been in the past because he's
> never
> actually done anything to hurt my children (anything that is physically
> evident up to this point at least) and so my attorney believes we need to
> attack this problem by focusing on his lack of care for our son's
> diabetes.
> The problem I am running into is that no doctor has been willing to
> put in
> writing an opinion as to why my son's hemoglobin A1c's are so much higher
> after he returns from visiting with his father in the summer. They
> simply
> "do not want to get involved." I am, therefore, trying to gather as much
> medical information to share with our Guardian Ad Litem in the hopes that
> this information will help sway her opinion as to where our son should
> live
> and that she will then share this with the judge. What I need is any
> information that might be useful in educating our G.A.L. about my son's
> diabetes. In particular, I need something stated that shows what a
> hemoglobin A1c is and what the "normal" ranges are for someone my
> son's age.
> Though A1c levels are generally best under 7.0%, for someone my son's
> age,
> good control is considered anything under 7.5%....the problem is that
> I need
> documentation to prove that and am having a hard time coming up with
> anything. I would greatly appreciate any help that can be given. Thank
> you!
>
>
>
>
>
> Lamentations 3:22-23 "The steadfast love of the LORD never ceases; His
> mercies never come to an end; they are new every morning; great is God's
> faithfulness."
>
>
1) Your lawyer is an ass of CURSE you could have petitioned the court
2) again, no professional will sign such a statement without getting
paid for it. If they did sign such a statement, they could face hours
in Voir Dir, deposition, and court. You need an expert witness, and you
need to pay them.

You MIGHT be able to get a free or cheap witness from the ADA, the
Juvenile Diabetes foundation, or a disability group. You can also
either bring in PS and charge him with abuse, or ask for a court
appointed guardian ad litem to check the facts without bias

ted rosenberg wrote:
> <snip>
> You MIGHT be able to get a free or cheap witness from the ADA, the
> Juvenile Diabetes foundation, or a disability group. You can also
> either bring in PS and charge him with abuse, or ask for a court
> appointed guardian ad litem to check the facts without bias

CPS not PS - Child Protective Services

On Fri, 31 Aug 2007 12:52:53 -0400, "Priscilla H. Ballou"
<vze23t8n@verizon.net> wrote:

>In article <ehacd3hkhomjutcot091cnngdgll8vl3sj@4ax.com>,
> Måck©® <trolls@renotworthsaving.net> wrote:
>
>> and start teaching your child to take care of their own diabetes and
>> stop blaming the ex alone for what you have both failed to do.
>
>Good point. How old is the OP's diabetic son?
>
>Priscilla, T2


I learned at 8 years old how to inject my insulin and how to eat
correctly (based on what they knew at that time). A 5 year (3 years
younger than myself) taught me to inject in my arm without having to
have help. Kids can learn a lot more than most parents are smart
enough to realize.

she should also send the kid to a diabetes camp if at all possible.

--
Måck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org
http://www.pandora.com enter "Jason & Demarco"



"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
....Theodore Roosevelt

(o ô)
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
....Bilbo Baggins


DISCLAIMER If you find a posting or message from me
offensive, inappropriate, or disruptive, please ignore it.
If you don't know how to ignore a posting, complain to
me and I will be only too happy to demonstrate...
..