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  #1  
Old 05-19-2008, 10:17 AM
Julie Bove
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Posts: n/a
Default Bad reaction to insulin? Hypo?

What a trip I have just been on! And not a good one at that.

First let me back up to yesterday because I'm not sure if it's related or
not. I had to do two injections because there wasn't enough in my first
pen. And I forgot to take the new pen out of the refrigerator when I was
supposed to. But it was a hot day so I figured it would warm up quickly.

I noticed that there was a spot of blood after the first shot. And the
second one hurt pretty badly but I thought perhaps this was just because the
insulin wasn't at room temp. Then a little while later, I felt a trickle
down my tummy. I lifted my shirt and saw blood dripping from the first
injection site. The second injection site had a large red welt on it, sort
of like a hive.

Now today, I thought it was all over. All looked normal. But then tonight
I noticed a large spot of blood on my white nightgown in the exact spot
where that first injection was. I don't know when that happened! I didn't
have the nightgown on when I injected. I put it on when I went to bed and
didn't change into clothes today because it was hot again and I was going to
be doing housework all day. I think if the spot had been there earlier,
Angela would have said something or I would have seen it. The spot didn't
feel wet though.

Now on to tonight. Ate dinner. Rice vermicelli pasta, peas, green beans
and chicken breast all mixed together. I had one cup total and deliberately
picked out less of the vermicelli, which was a good thing because it turned
out being totally tasteless.

My numbers today were... 179 when I woke up. 253 before lunch. 305 before
dinner. Then 220 at 9:50 when I did my insulin. I am not currently
testing after I eat because the nurse said at this point it serves no
purpose.

I upped my insulin tonight to 58 (from 50) units. Injected it and continued
on doing stuff on my computer. Then all of a sudden I realized I was going
to pass out. Am not sure what time this was. Didn't look at the clock.
Came over all hot and sweaty and very sick to my stomach and dizzy. Like a
hypo, but also like the reaction I had the last two times I accidentally ate
an allergen. I made all my meals from scratch today so I knew it wasn't an
allergen. I put my head down on the computer desk because that's all I
could do. I don't know how long I was that was for.

When I came to, I was still feeling super bad. The clock said it was 10:15.
I assumed I was having a hypo, so I fumbled around for my meter and managed
to test, but it was at 156. So... It didn't seem like a hypo unless maybe I
had a liver dump while I was out of it.

I was still really sick and managed to get into bed. But I couldn't stay
there. I began having severe cramps in the area where I did the injection
tonight and also in my legs. Both the fronts and backs of them. I had to
stand up to ease the cramping, but my legs were like rubber, forcing me back
to the bed. My stomach was so sick I thought I would lose it from one end
to the other. Staggered into the bathroom where I had sudden diarrhea.
Back to bed. Also felt like my tongue was totally dried out, but when I
felt it, it felt wet. Also felt like I was struggling to breathe.

Managed to wake up Angela. She got me some blue ice. She said I felt cold,
although I was covered in sweat. Used the blue ice on the cramping areas
and finally got to where I could lie down and rest. Don't remember falling
asleep, but I must have because before I knew it, it was 11:15.

Got up and felt better although am still somewhat shaky. Bit of a headache.
And now my hand/fingers are cramping. If I move my fingers, they sometimes
get pulled in towards the palms of my hands and I have to use my other hand
to pry them back up. Arms feel kind of crampy too.

Tested my BG and it was 80. Am eating two bean tacos because I don't want
to drop down any lower what with the way I feel and all.

I just don't know what to think. Has anyone had something like this happen
before? I am going to call the nurse in the morning. I was supposed to
anyway. I just hope I never feel this crappy again!


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  #2  
Old 05-19-2008, 10:17 AM
Alan S
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?

On Mon, 19 May 2008 06:42:49 GMT, "Julie Bove"
<juliebove@verizon.net> wrote:

>What a trip I have just been on! And not a good one at that.
>
>First let me back up to yesterday because I'm not sure if it's related or
>not. I had to do two injections because there wasn't enough in my first
>pen. And I forgot to take the new pen out of the refrigerator when I was
>supposed to. But it was a hot day so I figured it would warm up quickly.
>
>I noticed that there was a spot of blood after the first shot. And the
>second one hurt pretty badly but I thought perhaps this was just because the
>insulin wasn't at room temp. Then a little while later, I felt a trickle
>down my tummy. I lifted my shirt and saw blood dripping from the first
>injection site. The second injection site had a large red welt on it, sort
>of like a hive.
>
>Now today, I thought it was all over. All looked normal. But then tonight
>I noticed a large spot of blood on my white nightgown in the exact spot
>where that first injection was. I don't know when that happened! I didn't
>have the nightgown on when I injected. I put it on when I went to bed and
>didn't change into clothes today because it was hot again and I was going to
>be doing housework all day. I think if the spot had been there earlier,
>Angela would have said something or I would have seen it. The spot didn't
>feel wet though.
>
>Now on to tonight. Ate dinner. Rice vermicelli pasta, peas, green beans
>and chicken breast all mixed together. I had one cup total and deliberately
>picked out less of the vermicelli, which was a good thing because it turned
>out being totally tasteless.
>
>My numbers today were... 179 when I woke up. 253 before lunch. 305 before
>dinner. Then 220 at 9:50 when I did my insulin. I am not currently
>testing after I eat because the nurse said at this point it serves no
>purpose.
>
>I upped my insulin tonight to 58 (from 50) units. Injected it and continued
>on doing stuff on my computer. Then all of a sudden I realized I was going
>to pass out. Am not sure what time this was. Didn't look at the clock.
>Came over all hot and sweaty and very sick to my stomach and dizzy. Like a
>hypo, but also like the reaction I had the last two times I accidentally ate
>an allergen. I made all my meals from scratch today so I knew it wasn't an
>allergen. I put my head down on the computer desk because that's all I
>could do. I don't know how long I was that was for.
>
>When I came to, I was still feeling super bad. The clock said it was 10:15.
>I assumed I was having a hypo, so I fumbled around for my meter and managed
>to test, but it was at 156. So... It didn't seem like a hypo unless maybe I
>had a liver dump while I was out of it.
>
>I was still really sick and managed to get into bed. But I couldn't stay
>there. I began having severe cramps in the area where I did the injection
>tonight and also in my legs. Both the fronts and backs of them. I had to
>stand up to ease the cramping, but my legs were like rubber, forcing me back
>to the bed. My stomach was so sick I thought I would lose it from one end
>to the other. Staggered into the bathroom where I had sudden diarrhea.
>Back to bed. Also felt like my tongue was totally dried out, but when I
>felt it, it felt wet. Also felt like I was struggling to breathe.
>
>Managed to wake up Angela. She got me some blue ice. She said I felt cold,
>although I was covered in sweat. Used the blue ice on the cramping areas
>and finally got to where I could lie down and rest. Don't remember falling
>asleep, but I must have because before I knew it, it was 11:15.
>
>Got up and felt better although am still somewhat shaky. Bit of a headache.
>And now my hand/fingers are cramping. If I move my fingers, they sometimes
>get pulled in towards the palms of my hands and I have to use my other hand
>to pry them back up. Arms feel kind of crampy too.
>
>Tested my BG and it was 80. Am eating two bean tacos because I don't want
>to drop down any lower what with the way I feel and all.
>
>I just don't know what to think. Has anyone had something like this happen
>before? I am going to call the nurse in the morning. I was supposed to
>anyway. I just hope I never feel this crappy again!


Julie, you're scaring me. I know we spar at times - but I
care.

Please, please listen to the people here who have been
suggesting you find a doctor and nurse that will really look
at you properly. to test you properly, diagnose you
properly, and treat you properly.

It may cost a lot. But if you don't get this sorted, it's
going to cost a lot more to stay with the ones you are with.

You've been here longer than I. I just find it incredible
that you can write this and not see some of the problem:

"I am not currently testing after I eat because the nurse
said at this point it serves no purpose."

"My numbers today were... 179 when I woke up. 253 before
lunch. 305 before dinner. Then 220 at 9:50 when I did my
insulin."

"Tested my BG and it was 80. Am eating two bean tacos
because I don't want to drop down any lower what with the
way I feel and all."

Please get a qualified second opinion; a specialist who will
look at ALL of your symptoms and problems as a whole.

Don't keep telling us why you can't. Find a way you can.

Cheers, Alan, T2, Australia.
d&e, metformin 1500mg, ezetrol 10mg
Everything in Moderation - Except Laughter.
--
http://loraldiabetes.blogspot.com
Latest:What to Eat Until You Get Your Meter.

Angkor Wat
http://loraltravel.blogspot.com
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  #3  
Old 05-19-2008, 10:17 AM
Julie Bove
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?


"Alan S" <loralgtweightandcarbs@gmail.com> wrote in message
news:ss92341794i552odgr6nc9heet5frlvhvo@4ax.com...

> Julie, you're scaring me. I know we spar at times - but I
> care.
>
> Please, please listen to the people here who have been
> suggesting you find a doctor and nurse that will really look
> at you properly. to test you properly, diagnose you
> properly, and treat you properly.


It's not just a matter of money. There is only one other Endo. in this
area. My SIL has been to him and she says he is not good. I believe her.
I have not even called to see if he takes my insurance, because of what she
said. This Dr. I am seeing is highly recommended. The local hospital says
he is the best. He has a high rating at the rate a doc site.
>
> It may cost a lot. But if you don't get this sorted, it's
> going to cost a lot more to stay with the ones you are with.


There IS no other Endo. here.
>
> You've been here longer than I. I just find it incredible
> that you can write this and not see some of the problem:
>
> "I am not currently testing after I eat because the nurse
> said at this point it serves no purpose."
>
> "My numbers today were... 179 when I woke up. 253 before
> lunch. 305 before dinner. Then 220 at 9:50 when I did my
> insulin."
>
> "Tested my BG and it was 80. Am eating two bean tacos
> because I don't want to drop down any lower what with the
> way I feel and all."
>
> Please get a qualified second opinion; a specialist who will
> look at ALL of your symptoms and problems as a whole.


If there WAS one I would. There is not. The one I am seeing is not even in
this city.
>
> Don't keep telling us why you can't. Find a way you can.


Well, I can't just make a Dr. magically appear.

As for the testing, I believe what she says is right. When I was testing
before and after eating, there was little to no variation. Most of the time
the numbers were exactly the same, and if they weren't they were well within
the range of error of the meter. The only thing I am trying to do now is
get my fasting BG down to >150. That hasn't happened yet. The nurse agrees
that my numbers throughout the day are too high and she wants something done
about that, but... It seems standard protocol is to get the fasting numbers
down first.


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  #4  
Old 05-19-2008, 10:17 AM
Alan S
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?

On Mon, 19 May 2008 07:46:31 GMT, "Julie Bove"
<juliebove@verizon.net> wrote:

>There IS no other Endo. here.


How far is it to the nearest major city and how long does it
take to fly there? Or by train or bus or car?

Unless things have changed a lot, I thought US military and
dependants had access to cheap means of travel by air, rail
and bus - am I incorrect there?

I don't suggest you do anything I'm not prepared to do
myself.

My GP is local down the road; my periodontist is 140km round
trip, and my haemotologist is in Brisbane, 240km round trip
(I usually book a motel for the night). When an expat Aussie
CLL specialist (one of the world's top) came home for a
seminar three years ago I flew 2000km to Melbourne to hear
him speak at a 2 hour seminar. It was worth it for just one
small thing he said to me.

Sure, easy for me to say, I can afford that. Not really, but
I've changed the priorities in my life. But even if I
couldn't afford it I'd find a way. If planes cost too much
there are trains, buses.

For three or four visits a year is it really going to cost
that much?

Cheers, Alan, T2, Australia.
d&e, metformin 1500mg, ezetrol 10mg
Everything in Moderation - Except Laughter.
--
http://loraldiabetes.blogspot.com
Latest:What to Eat Until You Get Your Meter.

Angkor Wat
http://loraltravel.blogspot.com
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  #5  
Old 05-19-2008, 10:17 AM
Julie Bove
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?


"Alan S" <loralgtweightandcarbs@gmail.com> wrote in message
news:1qg234hs4q7c32hd50r8tqjgcd6e1av0vp@4ax.com...
> On Mon, 19 May 2008 07:46:31 GMT, "Julie Bove"
> <juliebove@verizon.net> wrote:
>
>>There IS no other Endo. here.

>
> How far is it to the nearest major city and how long does it
> take to fly there? Or by train or bus or car?
>
> Unless things have changed a lot, I thought US military and
> dependants had access to cheap means of travel by air, rail
> and bus - am I incorrect there?


Ha! No. We don't get any cheaper fare than the rest of the people. Years
ago they had something called a MAC (sp?) flight. This was prior to me
being married to a military person. I don't know a lot about it but I think
it only applied for you to fly from one military air facility to another.
You were given like 2 hours notice and there was no guarantee that you would
wind up where you wanted to go because that plane could be rerouted at any
time. I do not know if it was free or a cheap price. But that is no
longer.

I am not about to fly somewhere. That would be ridiculous, plus not
feasible. I can only drive for about 20 minutes at a time so that limits
where I can go. If I try to push it further, my legs cramp and I risk
having an accident. I can not take a bus because that involves a lot of
walking and I am disabled. We do not have a good bus system here.
>
> I don't suggest you do anything I'm not prepared to do
> myself.
>
> My GP is local down the road; my periodontist is 140km round
> trip, and my haemotologist is in Brisbane, 240km round trip
> (I usually book a motel for the night). When an expat Aussie
> CLL specialist (one of the world's top) came home for a
> seminar three years ago I flew 2000km to Melbourne to hear
> him speak at a 2 hour seminar. It was worth it for just one
> small thing he said to me.


I don't know what those distances mean. It takes about an hour (sometimes
less if the traffic is right) to get to my Endo. I get a ride there. It
would be very difficult for my to drive myself that far. I could easily get
to the one in Edmonds, but as I said, I have heard he is not good.

I can not stay the night someplace to go to a Dr. I have a child who is in
school. I have to be here to make her meals and such. And get her off to
school. If I went somewhere that would mean pulling her out of school to
take her with me. It's not as if my husband can just take off work to care
for her. They are short staffed enough the way it is. Plus, he would be
incapable of making a meal for her because he doesn't understand her food
allergies and the only thing he knows how to cook is eggs.
>
> Sure, easy for me to say, I can afford that. Not really, but
> I've changed the priorities in my life. But even if I
> couldn't afford it I'd find a way. If planes cost too much
> there are trains, buses.


Again, not feasible here. There is a train from Edmonds that goes to
Canada. I can not fly somewhere. That would be just foolish. I suppose
if I had some sort of rare something or other and there were no other
specialist, then I would have no choice. But that is not the case.
>
> For three or four visits a year is it really going to cost
> that much?


If they don't take my insurance, yeah! Again... I am seeing the most
highly rated Endo. in the area. The protocol he has me on seems to be the
standard thing. I have spent hours on the Internet researching this. I can
not see that he is doing anything wrong or out of the norm. Could be there
is more testing that needs to be done. I can't say.

I did turn up that the reason I get the welt from the second injection is
likely that I reused the needle. Everything I have read has told me not to
do that. The nurse told me not to do it but said I *could* reuse it up to 4
times in the case of an emergency. Last time I had to do two shots, I
reused the needle with no problem. But it seems that was not the case here.
Most likely I bent the needle on the first shot, causing the bleeding. And
the bent needle then caused the swelling as it went in. At least that
problem is solved.




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  #6  
Old 05-19-2008, 10:17 AM
Ozgirl
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?

Well, if you are going to keep listening to a freaking nurse and not testing
after meals then I am afraid you are going to continue to know jackshit
about what your meals and insulin are doing to you. I personally wouldn't
give the nurse the time of day.

As to no other endo, where on earth do you live? I have 4 within 30 minutes
drive on a fast freeway and we are considered Sticksville.

I seriously believe you are still not making enough waves to get even half
decent care. I am always worried you are just not gonna turn up here one
day - seriously.

Did you raise your insulin by 8 units in one go?


Julie Bove wrote:
> What a trip I have just been on! And not a good one at that.
>
> First let me back up to yesterday because I'm not sure if it's
> related or not. I had to do two injections because there wasn't
> enough in my first pen. And I forgot to take the new pen out of the
> refrigerator when I was supposed to. But it was a hot day so I
> figured it would warm up quickly.
> I noticed that there was a spot of blood after the first shot. And
> the second one hurt pretty badly but I thought perhaps this was just
> because the insulin wasn't at room temp. Then a little while later,
> I felt a trickle down my tummy. I lifted my shirt and saw blood
> dripping from the first injection site. The second injection site
> had a large red welt on it, sort of like a hive.
>
> Now today, I thought it was all over. All looked normal. But then
> tonight I noticed a large spot of blood on my white nightgown in the
> exact spot where that first injection was. I don't know when that
> happened! I didn't have the nightgown on when I injected. I put it
> on when I went to bed and didn't change into clothes today because it
> was hot again and I was going to be doing housework all day. I think
> if the spot had been there earlier, Angela would have said something
> or I would have seen it. The spot didn't feel wet though.
>
> Now on to tonight. Ate dinner. Rice vermicelli pasta, peas, green
> beans and chicken breast all mixed together. I had one cup total and
> deliberately picked out less of the vermicelli, which was a good
> thing because it turned out being totally tasteless.
>
> My numbers today were... 179 when I woke up. 253 before lunch. 305
> before dinner. Then 220 at 9:50 when I did my insulin. I am not
> currently testing after I eat because the nurse said at this point it
> serves no purpose.
>
> I upped my insulin tonight to 58 (from 50) units. Injected it and
> continued on doing stuff on my computer. Then all of a sudden I
> realized I was going to pass out. Am not sure what time this was. Didn't
> look at the clock. Came over all hot and sweaty and very sick
> to my stomach and dizzy. Like a hypo, but also like the reaction I
> had the last two times I accidentally ate an allergen. I made all my
> meals from scratch today so I knew it wasn't an allergen. I put my
> head down on the computer desk because that's all I could do. I
> don't know how long I was that was for.
> When I came to, I was still feeling super bad. The clock said it was
> 10:15. I assumed I was having a hypo, so I fumbled around for my
> meter and managed to test, but it was at 156. So... It didn't seem
> like a hypo unless maybe I had a liver dump while I was out of it.
>
> I was still really sick and managed to get into bed. But I couldn't
> stay there. I began having severe cramps in the area where I did the
> injection tonight and also in my legs. Both the fronts and backs of
> them. I had to stand up to ease the cramping, but my legs were like
> rubber, forcing me back to the bed. My stomach was so sick I
> thought I would lose it from one end to the other. Staggered into
> the bathroom where I had sudden diarrhea. Back to bed. Also felt
> like my tongue was totally dried out, but when I felt it, it felt
> wet. Also felt like I was struggling to breathe.
> Managed to wake up Angela. She got me some blue ice. She said I
> felt cold, although I was covered in sweat. Used the blue ice on the
> cramping areas and finally got to where I could lie down and rest. Don't
> remember falling asleep, but I must have because before I knew
> it, it was 11:15.
> Got up and felt better although am still somewhat shaky. Bit of a
> headache. And now my hand/fingers are cramping. If I move my
> fingers, they sometimes get pulled in towards the palms of my hands
> and I have to use my other hand to pry them back up. Arms feel kind
> of crampy too.
> Tested my BG and it was 80. Am eating two bean tacos because I don't
> want to drop down any lower what with the way I feel and all.
>
> I just don't know what to think. Has anyone had something like this
> happen before? I am going to call the nurse in the morning. I was
> supposed to anyway. I just hope I never feel this crappy again!



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  #7  
Old 05-19-2008, 10:17 AM
Ozgirl
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?

Julie Bove wrote:
> "Alan S" <loralgtweightandcarbs@gmail.com> wrote in message
> news:ss92341794i552odgr6nc9heet5frlvhvo@4ax.com...
>
>> Julie, you're scaring me. I know we spar at times - but I
>> care.
>>
>> Please, please listen to the people here who have been
>> suggesting you find a doctor and nurse that will really look
>> at you properly. to test you properly, diagnose you
>> properly, and treat you properly.

>
> It's not just a matter of money. There is only one other Endo. in
> this area. My SIL has been to him and she says he is not good. I
> believe her. I have not even called to see if he takes my insurance,
> because of what she said. This Dr. I am seeing is highly
> recommended. The local hospital says he is the best. He has a high
> rating at the rate a doc site.
>>
>> It may cost a lot. But if you don't get this sorted, it's
>> going to cost a lot more to stay with the ones you are with.

>
> There IS no other Endo. here.
>>
>> You've been here longer than I. I just find it incredible
>> that you can write this and not see some of the problem:
>>
>> "I am not currently testing after I eat because the nurse
>> said at this point it serves no purpose."
>>
>> "My numbers today were... 179 when I woke up. 253 before
>> lunch. 305 before dinner. Then 220 at 9:50 when I did my
>> insulin."
>>
>> "Tested my BG and it was 80. Am eating two bean tacos
>> because I don't want to drop down any lower what with the
>> way I feel and all."
>>
>> Please get a qualified second opinion; a specialist who will
>> look at ALL of your symptoms and problems as a whole.

>
> If there WAS one I would. There is not. The one I am seeing is not
> even in this city.
>>
>> Don't keep telling us why you can't. Find a way you can.

>
> Well, I can't just make a Dr. magically appear.


Doesn't this super doctor exist? When do you get to actually see him? You
are paying full price but only seeing a nurse? A high rating can mean bugger
all. Did you ask your SIL specifically why she doesn't like this other endo?
In my opinion a good endo is first of all one that actually sees you when
you come for an appt and secondly actually knows how to get your bg's into
shape.

> As for the testing, I believe what she says is right. When I was
> testing before and after eating, there was little to no variation. Most of
> the time the numbers were exactly the same, and if they
> weren't they were well within the range of error of the meter.


But were they as high as they are now? Things have changed, for one you are
now on insulin and any medical person who doesn't recommend more rather than
less testing under those circumstances needs to be shot.


The
> only thing I am trying to do now is get my fasting BG down to >150. That
> hasn't happened yet.


And may never happen, at least before you die from the high daytime bg's.
Surely you can see a problem with that kind of thinking?

The nurse agrees that my numbers
> throughout the day are too high and she wants something done about
> that, but... It seems standard protocol is to get the fasting
> numbers down first.


Seems? Whose protocol? Their personal protocol? You should post all this in
MHD and see if Dr Biggs happens to be wandering by.


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  #8  
Old 05-19-2008, 01:46 PM
krom
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?

Almost every city has ride services for the disabled and or elderly...in
minnesota we got like 4 diffrent types..all they ask is you call a day ahead
to let them know where you wish to go and when to pick you up.
All free...and in areas they dont service you can get cab vouchers from the
local human services office as long as the rides to and from a dr
appointment.

Call your local human services office and get some info.

KROM

"Julie Bove" <juliebove@verizon.net> wrote in message
news:r_bYj.469$ju1.42@trndny06...
>
> "Alan S" <loralgtweightandcarbs@gmail.com> wrote in message
> news:1qg234hs4q7c32hd50r8tqjgcd6e1av0vp@4ax.com...
>> On Mon, 19 May 2008 07:46:31 GMT, "Julie Bove"
>> <juliebove@verizon.net> wrote:
>>
>>>There IS no other Endo. here.

>>
>> How far is it to the nearest major city and how long does it
>> take to fly there? Or by train or bus or car?
>>
>> Unless things have changed a lot, I thought US military and
>> dependants had access to cheap means of travel by air, rail
>> and bus - am I incorrect there?

>
> Ha! No. We don't get any cheaper fare than the rest of the people.
> Years ago they had something called a MAC (sp?) flight. This was prior to
> me being married to a military person. I don't know a lot about it but I
> think it only applied for you to fly from one military air facility to
> another. You were given like 2 hours notice and there was no guarantee
> that you would wind up where you wanted to go because that plane could be
> rerouted at any time. I do not know if it was free or a cheap price. But
> that is no longer.
>
> I am not about to fly somewhere. That would be ridiculous, plus not
> feasible. I can only drive for about 20 minutes at a time so that limits
> where I can go. If I try to push it further, my legs cramp and I risk
> having an accident. I can not take a bus because that involves a lot of
> walking and I am disabled. We do not have a good bus system here.
>>
>> I don't suggest you do anything I'm not prepared to do
>> myself.
>>
>> My GP is local down the road; my periodontist is 140km round
>> trip, and my haemotologist is in Brisbane, 240km round trip
>> (I usually book a motel for the night). When an expat Aussie
>> CLL specialist (one of the world's top) came home for a
>> seminar three years ago I flew 2000km to Melbourne to hear
>> him speak at a 2 hour seminar. It was worth it for just one
>> small thing he said to me.

>
> I don't know what those distances mean. It takes about an hour (sometimes
> less if the traffic is right) to get to my Endo. I get a ride there. It
> would be very difficult for my to drive myself that far. I could easily
> get to the one in Edmonds, but as I said, I have heard he is not good.
>
> I can not stay the night someplace to go to a Dr. I have a child who is
> in school. I have to be here to make her meals and such. And get her off
> to school. If I went somewhere that would mean pulling her out of school
> to take her with me. It's not as if my husband can just take off work to
> care for her. They are short staffed enough the way it is. Plus, he
> would be incapable of making a meal for her because he doesn't understand
> her food allergies and the only thing he knows how to cook is eggs.
>>
>> Sure, easy for me to say, I can afford that. Not really, but
>> I've changed the priorities in my life. But even if I
>> couldn't afford it I'd find a way. If planes cost too much
>> there are trains, buses.

>
> Again, not feasible here. There is a train from Edmonds that goes to
> Canada. I can not fly somewhere. That would be just foolish. I suppose
> if I had some sort of rare something or other and there were no other
> specialist, then I would have no choice. But that is not the case.
>>
>> For three or four visits a year is it really going to cost
>> that much?

>
> If they don't take my insurance, yeah! Again... I am seeing the most
> highly rated Endo. in the area. The protocol he has me on seems to be the
> standard thing. I have spent hours on the Internet researching this. I
> can not see that he is doing anything wrong or out of the norm. Could be
> there is more testing that needs to be done. I can't say.
>
> I did turn up that the reason I get the welt from the second injection is
> likely that I reused the needle. Everything I have read has told me not
> to do that. The nurse told me not to do it but said I *could* reuse it up
> to 4 times in the case of an emergency. Last time I had to do two shots,
> I reused the needle with no problem. But it seems that was not the case
> here. Most likely I bent the needle on the first shot, causing the
> bleeding. And the bent needle then caused the swelling as it went in. At
> least that problem is solved.
>
>
>
>



Reply With Quote
  #9  
Old 05-19-2008, 03:55 PM
Julie Bove
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?


"Ozgirl" <are_we_there_yet@maccas.com> wrote in message
news:69d1ffF31hi4aU1@mid.individual.net...
> Well, if you are going to keep listening to a freaking nurse and not
> testing after meals then I am afraid you are going to continue to know
> jackshit about what your meals and insulin are doing to you. I personally
> wouldn't give the nurse the time of day.


As I said before... I was testing before and after and there was virtually
no change. I wasn't testing BEFORE my meals before. So I might as well
test only AFTER my meals now. There would be no difference. And I HAVE to
give the nurse the time of day because apparently she has been the one
assigned to me. The Dr. told me to have the other nurse help me, but I was
told he was not available when I called.
>
> As to no other endo, where on earth do you live? I have 4 within 30
> minutes drive on a fast freeway and we are considered Sticksville.


I am in Bothell, WA. My Endo. is in Everett. There are people who take the
ferry over from the islands to see him. That's how few we have here. Yes,
there are some in Seattle. In the downtown area. Far too far for me to
drive to. And I can't get a ride there. Could not afford a taxi to get
there because taxis are not common here and they cost a lot of money. Then
there's the insurance matter. Not only can I not afford to see a Dr. who
does not take my insurance, but it is next to impossible to get one to see
you without insurance.
>
> I seriously believe you are still not making enough waves to get even half
> decent care. I am always worried you are just not gonna turn up here one
> day - seriously.


I have been making waves.
>
> Did you raise your insulin by 8 units in one go?


Yes. That is the protocol the Dr. gave. To go up to 60 units and then call
back. Obviously it wasn't going to be 60 because I am going by 8's. And
according to the protocol on the Lantus website itself, this is not so far
out of line. I believe it said if the fasting was >180 to increase by 8
units. My fasting was 179. So according to that I should have increased by
6 units. Made no never mind this morning because I awoke to 290. *sigh*


Reply With Quote
  #10  
Old 05-19-2008, 03:55 PM
Julie Bove
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?


"Ozgirl" <are_we_there_yet@maccas.com> wrote in message
news:69d1sgF31tm6gU1@mid.individual.net...

> Doesn't this super doctor exist? When do you get to actually see him? You
> are paying full price but only seeing a nurse? A high rating can mean
> bugger all. Did you ask your SIL specifically why she doesn't like this
> other endo? In my opinion a good endo is first of all one that actually
> sees you when you come for an appt and secondly actually knows how to get
> your bg's into shape.
>

My next appointment is not until July. SIL told me why. I am not going to
get into it here. He is the only Endo. in that city so it would be obvious
who he is and I am not going to badmouth him here.

>> As for the testing, I believe what she says is right. When I was
>> testing before and after eating, there was little to no variation. Most
>> of the time the numbers were exactly the same, and if they
>> weren't they were well within the range of error of the meter.

>
> But were they as high as they are now? Things have changed, for one you
> are now on insulin and any medical person who doesn't recommend more
> rather than less testing under those circumstances needs to be shot.


They were higher than they are now. I was getting 300's and 400's. Now I
am getting 200's and the occasional low 300. And I disagree with you about
being shot. That is just extreme and reactionary thinking. Nobody should
ever be shot!
>
>
> The
>> only thing I am trying to do now is get my fasting BG down to >150. That
>> hasn't happened yet.

>
> And may never happen, at least before you die from the high daytime bg's.
> Surely you can see a problem with that kind of thinking?


I do not think my readings are high enough to die from. And I have had type
1's here say it can take 3 months to get the insulin right.
>
> The nurse agrees that my numbers
>> throughout the day are too high and she wants something done about
>> that, but... It seems standard protocol is to get the fasting
>> numbers down first.

>
> Seems? Whose protocol? Their personal protocol? You should post all this
> in MHD and see if Dr Biggs happens to be wandering by.


The protocol I have seen posted time and time again about using Lantus.
Even on the Lantus website itself.


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  #11  
Old 05-19-2008, 03:55 PM
Julie Bove
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?


"krom" <thekromremoveremove@hotmail.com> wrote in message
news:g0rusl$fr1$1@aioe.org...
> Almost every city has ride services for the disabled and or elderly...in
> minnesota we got like 4 diffrent types..all they ask is you call a day
> ahead to let them know where you wish to go and when to pick you up.
> All free...and in areas they dont service you can get cab vouchers from
> the local human services office as long as the rides to and from a dr
> appointment.
>
> Call your local human services office and get some info.


Here you can get services if you are elderly and only to certain places. I
don't know about disabled. And the services are not necessarily free. My
friend's mom used to use one such and it was $50 per ride, round trip.


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  #12  
Old 05-19-2008, 06:33 PM
DarkSentinel
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?

"Julie Bove" <juliebove@verizon.net> wrote in message
news:Jj9Yj.1797$aJ1.1183@trndny03...
> What a trip I have just been on! And not a good one at that.
>
> First let me back up to yesterday because I'm not sure if it's related or
> not. I had to do two injections because there wasn't enough in my first
> pen. And I forgot to take the new pen out of the refrigerator when I was
> supposed to. But it was a hot day so I figured it would warm up quickly.
>
> I noticed that there was a spot of blood after the first shot. And the
> second one hurt pretty badly but I thought perhaps this was just because
> the insulin wasn't at room temp. Then a little while later, I felt a
> trickle down my tummy. I lifted my shirt and saw blood dripping from the
> first injection site. The second injection site had a large red welt on
> it, sort of like a hive.


Ok...the blood, while not normal per se, is not too unusual. It happens to
me now and then. If you happen to get a capillary just right, you'll get
some blood. Hurting/burning is not unusual sometimes either as Lantus has
hydrochloric acid in it. The welt I'm not sure about as I inject with a
syringe and not a pen.

> Now today, I thought it was all over. All looked normal. But then
> tonight I noticed a large spot of blood on my white nightgown in the exact
> spot where that first injection was. I don't know when that happened! I
> didn't have the nightgown on when I injected. I put it on when I went to
> bed and didn't change into clothes today because it was hot again and I
> was going to be doing housework all day. I think if the spot had been
> there earlier, Angela would have said something or I would have seen it.
> The spot didn't feel wet though.
>
> Now on to tonight. Ate dinner. Rice vermicelli pasta, peas, green beans
> and chicken breast all mixed together. I had one cup total and
> deliberately picked out less of the vermicelli, which was a good thing
> because it turned out being totally tasteless.
>
> My numbers today were... 179 when I woke up. 253 before lunch. 305
> before dinner. Then 220 at 9:50 when I did my insulin. I am not
> currently testing after I eat because the nurse said at this point it
> serves no purpose.


Here I would ask the nurse where she is getting her information. Post
prandial tests are EXTREMELY important.

> I upped my insulin tonight to 58 (from 50) units. Injected it and
> continued on doing stuff on my computer. Then all of a sudden I realized
> I was going to pass out. Am not sure what time this was. Didn't look at
> the clock. Came over all hot and sweaty and very sick to my stomach and
> dizzy. Like a hypo, but also like the reaction I had the last two times I
> accidentally ate an allergen. I made all my meals from scratch today so I
> knew it wasn't an allergen. I put my head down on the computer desk
> because that's all I could do. I don't know how long I was that was for.
>
> When I came to, I was still feeling super bad. The clock said it was
> 10:15. I assumed I was having a hypo, so I fumbled around for my meter
> and managed to test, but it was at 156. So... It didn't seem like a hypo
> unless maybe I had a liver dump while I was out of it.


This is entirely possible as your body has a defense mechanism that trigger
when you go hypo and trigger a dump. One thing to remember here Julie. There
WILL be some BG swings as you become acclimated to the Lantus. Also you get
the "neurological hypoglycemia". Though not actually hypo, your brain has
become accustomed to the higher numbers, and when you start trending towards
your new "normal" numbers, your brain needs time to adjust. If you go back
and read some of my previous posts when I was just starting on it, you will
see similar comments from me.

> I was still really sick and managed to get into bed. But I couldn't stay
> there. I began having severe cramps in the area where I did the injection
> tonight and also in my legs. Both the fronts and backs of them. I had to
> stand up to ease the cramping, but my legs were like rubber, forcing me
> back to the bed. My stomach was so sick I thought I would lose it from
> one end to the other. Staggered into the bathroom where I had sudden
> diarrhea. Back to bed. Also felt like my tongue was totally dried out,
> but when I felt it, it felt wet. Also felt like I was struggling to
> breathe.
>
> Managed to wake up Angela. She got me some blue ice. She said I felt
> cold, although I was covered in sweat. Used the blue ice on the cramping
> areas and finally got to where I could lie down and rest. Don't remember
> falling asleep, but I must have because before I knew it, it was 11:15.
>
> Got up and felt better although am still somewhat shaky. Bit of a
> headache. And now my hand/fingers are cramping. If I move my fingers,
> they sometimes get pulled in towards the palms of my hands and I have to
> use my other hand to pry them back up. Arms feel kind of crampy too.
>
> Tested my BG and it was 80. Am eating two bean tacos because I don't want
> to drop down any lower what with the way I feel and all.


I know it feels like crap, but you want to avoid doing that Julie. You are
overcompensating and defeating the purpose of the insulin. You will spike,
and your numbers will stay higher, and you'll not acclimate to the normal
numbers. I went through that for a good month or more until my brain got
used to being in the normal range again. Going back to the post prandial
tests, THIS is WHY we test. You don't want to adjust your dose unless your
testing bears the hypos/spikes out.

> I just don't know what to think. Has anyone had something like this
> happen before? I am going to call the nurse in the morning. I was
> supposed to anyway. I just hope I never feel this crappy again!


It WILL get better. Just tough it out best you can. Trust me, I HAVE been
there.

--
T2 - Oct. '96 - Lantus, oral meds, diet
http://www.lockergnome.com/darksentinel
Undo the munge to reply by email

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  #13  
Old 05-19-2008, 06:33 PM
DarkSentinel
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?

"Julie Bove" <juliebove@verizon.net> wrote in message
news:r_bYj.469$ju1.42@trndny06...
>
> "Alan S" <loralgtweightandcarbs@gmail.com> wrote in message
> news:1qg234hs4q7c32hd50r8tqjgcd6e1av0vp@4ax.com...
>> On Mon, 19 May 2008 07:46:31 GMT, "Julie Bove"
>> <juliebove@verizon.net> wrote:
>>
>>>There IS no other Endo. here.

>>
>> How far is it to the nearest major city and how long does it
>> take to fly there? Or by train or bus or car?
>>
>> Unless things have changed a lot, I thought US military and
>> dependants had access to cheap means of travel by air, rail
>> and bus - am I incorrect there?

>
> Ha! No. We don't get any cheaper fare than the rest of the people.
> Years ago they had something called a MAC (sp?) flight. This was prior to
> me being married to a military person. I don't know a lot about it but I
> think it only applied for you to fly from one military air facility to
> another. You were given like 2 hours notice and there was no guarantee
> that you would wind up where you wanted to go because that plane could be
> rerouted at any time. I do not know if it was free or a cheap price. But
> that is no longer.
>
> I am not about to fly somewhere. That would be ridiculous, plus not
> feasible. I can only drive for about 20 minutes at a time so that limits
> where I can go. If I try to push it further, my legs cramp and I risk
> having an accident. I can not take a bus because that involves a lot of
> walking and I am disabled. We do not have a good bus system here.


Not going to comment on the other stuff, but will comment here as you say
you are disabled. In every area I have lived, there are special provisions
provided for transportation of the disabled. Every insurance I have heard of
makes provisions for that as well. Research your area, and see what is
available. There is no reason not to be able to get the care you need.

--
T2 - Oct. '96 - Lantus, oral meds, diet
http://www.lockergnome.com/darksentinel
Undo the munge to reply by email

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  #14  
Old 05-19-2008, 09:13 PM
Anon aka
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?


"Julie Bove" <juliebove@verizon.net> wrote in message
news:frgYj.3226$Zy1.1572@trndny05...
>
> "Ozgirl" <are_we_there_yet@maccas.com> wrote in message
> news:69d1sgF31tm6gU1@mid.individual.net...
>
>> Doesn't this super doctor exist? When do you get to actually see him? You
>> are paying full price but only seeing a nurse? A high rating can mean
>> bugger all. Did you ask your SIL specifically why she doesn't like this
>> other endo? In my opinion a good endo is first of all one that actually
>> sees you when you come for an appt and secondly actually knows how to get
>> your bg's into shape.
>>

> My next appointment is not until July. SIL told me why. I am not going
> to get into it here. He is the only Endo. in that city so it would be
> obvious who he is and I am not going to badmouth him here.
>
>>> As for the testing, I believe what she says is right. When I was
>>> testing before and after eating, there was little to no variation. Most
>>> of the time the numbers were exactly the same, and if they
>>> weren't they were well within the range of error of the meter.

>>
>> But were they as high as they are now? Things have changed, for one you
>> are now on insulin and any medical person who doesn't recommend more
>> rather than less testing under those circumstances needs to be shot.

>
> They were higher than they are now. I was getting 300's and 400's. Now I
> am getting 200's and the occasional low 300. And I disagree with you
> about being shot. That is just extreme and reactionary thinking. Nobody
> should ever be shot!
>>
>>
>> The
>>> only thing I am trying to do now is get my fasting BG down to >150. That
>>> hasn't happened yet.

>>
>> And may never happen, at least before you die from the high daytime bg's.
>> Surely you can see a problem with that kind of thinking?

>
> I do not think my readings are high enough to die from. And I have had
> type 1's here say it can take 3 months to get the insulin right.
>>


Are you testing for ketones? Most recommend testing for ketones anytime BG
exceeds 250. http://www.joslin.org/managing_your_diabetes_688.asp
They are right about taking time to get the insulin right but getting
numbers as high as yours is bad. If my doctor seen numbers like yours in my
log, she would take immediate action to correct them. Once when I over
indulged and was getting numbers in the 200's, she gave me such a chewing
out that put the fear of god in me.

Are there any diabetic groups in your area? I get a lot of advice from my
group and it is a good place to get doctor referrals.


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  #15  
Old 05-19-2008, 09:13 PM
Julie Bove
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?


"DarkSentinel" <darkmungesentinel@munge.charter.munge.net> wrote in message
news:QajYj.27$N06.25@newsfe07.lga...
> "Julie Bove" <juliebove@verizon.net> wrote in message
> news:r_bYj.469$ju1.42@trndny06...
>>
>> "Alan S" <loralgtweightandcarbs@gmail.com> wrote in message
>> news:1qg234hs4q7c32hd50r8tqjgcd6e1av0vp@4ax.com...
>>> On Mon, 19 May 2008 07:46:31 GMT, "Julie Bove"
>>> <juliebove@verizon.net> wrote:
>>>
>>>>There IS no other Endo. here.
>>>
>>> How far is it to the nearest major city and how long does it
>>> take to fly there? Or by train or bus or car?
>>>
>>> Unless things have changed a lot, I thought US military and
>>> dependants had access to cheap means of travel by air, rail
>>> and bus - am I incorrect there?

>>
>> Ha! No. We don't get any cheaper fare than the rest of the people.
>> Years ago they had something called a MAC (sp?) flight. This was prior
>> to me being married to a military person. I don't know a lot about it
>> but I think it only applied for you to fly from one military air facility
>> to another. You were given like 2 hours notice and there was no guarantee
>> that you would wind up where you wanted to go because that plane could be
>> rerouted at any time. I do not know if it was free or a cheap price.
>> But that is no longer.
>>
>> I am not about to fly somewhere. That would be ridiculous, plus not
>> feasible. I can only drive for about 20 minutes at a time so that limits
>> where I can go. If I try to push it further, my legs cramp and I risk
>> having an accident. I can not take a bus because that involves a lot of
>> walking and I am disabled. We do not have a good bus system here.

>
> Not going to comment on the other stuff, but will comment here as you say
> you are disabled. In every area I have lived, there are special provisions
> provided for transportation of the disabled. Every insurance I have heard
> of makes provisions for that as well. Research your area, and see what is
> available. There is no reason not to be able to get the care you need.


That still does not put any Endocrinologists here.


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  #16  
Old 05-19-2008, 09:13 PM
Trinkwasser
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?

On Mon, 19 May 2008 06:42:49 GMT, "Julie Bove" <juliebove@verizon.net>
wrote:

>What a trip I have just been on! And not a good one at that.
>
>First let me back up to yesterday because I'm not sure if it's related or
>not. I had to do two injections because there wasn't enough in my first
>pen. And I forgot to take the new pen out of the refrigerator when I was
>supposed to. But it was a hot day so I figured it would warm up quickly.
>
>I noticed that there was a spot of blood after the first shot. And the
>second one hurt pretty badly but I thought perhaps this was just because the
>insulin wasn't at room temp. Then a little while later, I felt a trickle
>down my tummy. I lifted my shirt and saw blood dripping from the first
>injection site. The second injection site had a large red welt on it, sort
>of like a hive.
>
>Now today, I thought it was all over. All looked normal. But then tonight
>I noticed a large spot of blood on my white nightgown in the exact spot
>where that first injection was. I don't know when that happened! I didn't
>have the nightgown on when I injected. I put it on when I went to bed and
>didn't change into clothes today because it was hot again and I was going to
>be doing housework all day. I think if the spot had been there earlier,
>Angela would have said something or I would have seen it. The spot didn't
>feel wet though.
>
>Now on to tonight. Ate dinner. Rice vermicelli pasta, peas, green beans
>and chicken breast all mixed together. I had one cup total and deliberately
>picked out less of the vermicelli, which was a good thing because it turned
>out being totally tasteless.
>
>My numbers today were... 179 when I woke up. 253 before lunch. 305 before
>dinner. Then 220 at 9:50 when I did my insulin. I am not currently
>testing after I eat because the nurse said at this point it serves no
>purpose.
>
>I upped my insulin tonight to 58 (from 50) units. Injected it and continued
>on doing stuff on my computer. Then all of a sudden I realized I was going
>to pass out. Am not sure what time this was. Didn't look at the clock.
>Came over all hot and sweaty and very sick to my stomach and dizzy. Like a
>hypo, but also like the reaction I had the last two times I accidentally ate
>an allergen. I made all my meals from scratch today so I knew it wasn't an
>allergen. I put my head down on the computer desk because that's all I
>could do. I don't know how long I was that was for.
>
>When I came to, I was still feeling super bad. The clock said it was 10:15.
>I assumed I was having a hypo, so I fumbled around for my meter and managed
>to test, but it was at 156. So... It didn't seem like a hypo unless maybe I
>had a liver dump while I was out of it.
>
>I was still really sick and managed to get into bed. But I couldn't stay
>there. I began having severe cramps in the area where I did the injection
>tonight and also in my legs. Both the fronts and backs of them. I had to
>stand up to ease the cramping, but my legs were like rubber, forcing me back
>to the bed. My stomach was so sick I thought I would lose it from one end
>to the other. Staggered into the bathroom where I had sudden diarrhea.
>Back to bed. Also felt like my tongue was totally dried out, but when I
>felt it, it felt wet. Also felt like I was struggling to breathe.
>
>Managed to wake up Angela. She got me some blue ice. She said I felt cold,
>although I was covered in sweat. Used the blue ice on the cramping areas
>and finally got to where I could lie down and rest. Don't remember falling
>asleep, but I must have because before I knew it, it was 11:15.
>
>Got up and felt better although am still somewhat shaky. Bit of a headache.
>And now my hand/fingers are cramping. If I move my fingers, they sometimes
>get pulled in towards the palms of my hands and I have to use my other hand
>to pry them back up. Arms feel kind of crampy too.
>
>Tested my BG and it was 80. Am eating two bean tacos because I don't want
>to drop down any lower what with the way I feel and all.
>
>I just don't know what to think. Has anyone had something like this happen
>before? I am going to call the nurse in the morning. I was supposed to
>anyway. I just hope I never feel this crappy again!
>

SOME of that sounds like a form of food poisoning I've had once or
twice, comes on a few hours after eating, off the top of my head I
can't remember which particular bug.

I ended up lying on the bathroom floor soaked in sweat, trembling with
the cold and not knowing which end to point at the porcelain first.

Add that and the resultant dehydration to your current BG problems and
it's a *possible* reason, in which case the injection problem may have
been coincidental.

Took a few hours after emptying out to start feeling human again and
about a day before I was able to get out of the house.

I'm pretty sure on one occasion it was chicken-borne, the other time
it may have been prawns.

If it WAS food poisoning, add that and the dehydration and your
gastroparesis and it might well have been responsible for screwing
your BG.

In your situation I'd have seriously considered ER.
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  #17  
Old 05-19-2008, 09:13 PM
Julie Bove
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?


"Anon aka" <anon@yahoo.com> wrote in message
news:wuWdnTbo386jTazVnZ2dnUVZ_tninZ2d@giganews.com ...

>
> Are you testing for ketones? Most recommend testing for ketones anytime BG
> exceeds 250. http://www.joslin.org/managing_your_diabetes_688.asp
> They are right about taking time to get the insulin right but getting
> numbers as high as yours is bad. If my doctor seen numbers like yours in
> my log, she would take immediate action to correct them. Once when I over
> indulged and was getting numbers in the 200's, she gave me such a chewing
> out that put the fear of god in me.
>
> Are there any diabetic groups in your area? I get a lot of advice from my
> group and it is a good place to get doctor referrals.


The nurse said type 2's do not get ketones. She said we get something else,
similar. I did test for ketones before, on my own, and there never were
any.

Not any diabetic groups AFAIK. I was in one in CA and it was a gross waste
of my time. We were not allowed to speak freely and could only address the
topics given.


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  #18  
Old 05-19-2008, 09:13 PM
Julie Bove
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?


"DarkSentinel" <darkmungesentinel@munge.charter.munge.net> wrote in message
news:n3jYj.25$N06.15@newsfe07.lga...
> "Julie Bove" <juliebove@verizon.net> wrote in message
> news:Jj9Yj.1797$aJ1.1183@trndny03...
>> What a trip I have just been on! And not a good one at that.
>>
>> First let me back up to yesterday because I'm not sure if it's related or
>> not. I had to do two injections because there wasn't enough in my first
>> pen. And I forgot to take the new pen out of the refrigerator when I was
>> supposed to. But it was a hot day so I figured it would warm up quickly.
>>
>> I noticed that there was a spot of blood after the first shot. And the
>> second one hurt pretty badly but I thought perhaps this was just because
>> the insulin wasn't at room temp. Then a little while later, I felt a
>> trickle down my tummy. I lifted my shirt and saw blood dripping from the
>> first injection site. The second injection site had a large red welt on
>> it, sort of like a hive.

>
> Ok...the blood, while not normal per se, is not too unusual. It happens to
> me now and then. If you happen to get a capillary just right, you'll get
> some blood. Hurting/burning is not unusual sometimes either as Lantus has
> hydrochloric acid in it. The welt I'm not sure about as I inject with a
> syringe and not a pen.
>
>> Now today, I thought it was all over. All looked normal. But then
>> tonight I noticed a large spot of blood on my white nightgown in the
>> exact spot where that first injection was. I don't know when that
>> happened! I didn't have the nightgown on when I injected. I put it on
>> when I went to bed and didn't change into clothes today because it was
>> hot again and I was going to be doing housework all day. I think if the
>> spot had been there earlier, Angela would have said something or I would
>> have seen it. The spot didn't feel wet though.
>>
>> Now on to tonight. Ate dinner. Rice vermicelli pasta, peas, green beans
>> and chicken breast all mixed together. I had one cup total and
>> deliberately picked out less of the vermicelli, which was a good thing
>> because it turned out being totally tasteless.
>>
>> My numbers today were... 179 when I woke up. 253 before lunch. 305
>> before dinner. Then 220 at 9:50 when I did my insulin. I am not
>> currently testing after I eat because the nurse said at this point it
>> serves no purpose.

>
> Here I would ask the nurse where she is getting her information. Post
> prandial tests are EXTREMELY important.
>
>> I upped my insulin tonight to 58 (from 50) units. Injected it and
>> continued on doing stuff on my computer. Then all of a sudden I realized
>> I was going to pass out. Am not sure what time this was. Didn't look at
>> the clock. Came over all hot and sweaty and very sick to my stomach and
>> dizzy. Like a hypo, but also like the reaction I had the last two times
>> I accidentally ate an allergen. I made all my meals from scratch today
>> so I knew it wasn't an allergen. I put my head down on the computer desk
>> because that's all I could do. I don't know how long I was that was for.
>>
>> When I came to, I was still feeling super bad. The clock said it was
>> 10:15. I assumed I was having a hypo, so I fumbled around for my meter
>> and managed to test, but it was at 156. So... It didn't seem like a hypo
>> unless maybe I had a liver dump while I was out of it.

>
> This is entirely possible as your body has a defense mechanism that
> trigger when you go hypo and trigger a dump. One thing to remember here
> Julie. There WILL be some BG swings as you become acclimated to the
> Lantus. Also you get the "neurological hypoglycemia". Though not actually
> hypo, your brain has become accustomed to the higher numbers, and when you
> start trending towards your new "normal" numbers, your brain needs time to
> adjust. If you go back and read some of my previous posts when I was just
> starting on it, you will see similar comments from me.
>

This was much more pronounced than anything I've ever had before. I don't
recall ever feeling this sick. Not even with a hypo. And so far I haven't
had any psychological hypos.

>> I was still really sick and managed to get into bed. But I couldn't stay
>> there. I began having severe cramps in the area where I did the
>> injection tonight and also in my legs. Both the fronts and backs of
>> them. I had to stand up to ease the cramping, but my legs were like
>> rubber, forcing me back to the bed. My stomach was so sick I thought I
>> would lose it from one end to the other. Staggered into the bathroom
>> where I had sudden diarrhea. Back to bed. Also felt like my tongue was
>> totally dried out, but when I felt it, it felt wet. Also felt like I was
>> struggling to breathe.
>>
>> Managed to wake up Angela. She got me some blue ice. She said I felt
>> cold, although I was covered in sweat. Used the blue ice on the cramping
>> areas and finally got to where I could lie down and rest. Don't remember
>> falling asleep, but I must have because before I knew it, it was 11:15.
>>
>> Got up and felt better although am still somewhat shaky. Bit of a
>> headache. And now my hand/fingers are cramping. If I move my fingers,
>> they sometimes get pulled in towards the palms of my hands and I have to
>> use my other hand to pry them back up. Arms feel kind of crampy too.
>>
>> Tested my BG and it was 80. Am eating two bean tacos because I don't
>> want to drop down any lower what with the way I feel and all.

>
> I know it feels like crap, but you want to avoid doing that Julie. You are
> overcompensating and defeating the purpose of the insulin. You will spike,
> and your numbers will stay higher, and you'll not acclimate to the normal
> numbers. I went through that for a good month or more until my brain got
> used to being in the normal range again. Going back to the post prandial
> tests, THIS is WHY we test. You don't want to adjust your dose unless your
> testing bears the hypos/spikes out.


At this point, I do not have enough strips to do both. Not with every meal.
I only have 6 per day and I wasted about 6 of them yesterday. I just HATE
this new contour meter. If the strip doesn't fill up enough, you get an
error.
>
>> I just don't know what to think. Has anyone had something like this
>> happen before? I am going to call the nurse in the morning. I was
>> supposed to anyway. I just hope I never feel this crappy again!

>
> It WILL get better. Just tough it out best you can. Trust me, I HAVE been
> there.


Thanks!


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  #19  
Old 05-19-2008, 09:13 PM
Julie Bove
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?


"Trinkwasser" <spam@devnull.com.invalid> wrote in message
news:jrj334h81vntohi5ih5eiv41tedn0b0mo2@4ax.com...

>
> I ended up lying on the bathroom floor soaked in sweat, trembling with
> the cold and not knowing which end to point at the porcelain first.


I'm sure it wasn't that. And the rest of my family ate the same as I did.
They didn't have the problem. This came on about 4 hours after dinner.
>
> Add that and the resultant dehydration to your current BG problems and
> it's a *possible* reason, in which case the injection problem may have
> been coincidental.


Could be.
>
> Took a few hours after emptying out to start feeling human again and
> about a day before I was able to get out of the house.


I feel pretty good now. All things considered.
>
> I'm pretty sure on one occasion it was chicken-borne, the other time
> it may have been prawns.
>
> If it WAS food poisoning, add that and the dehydration and your
> gastroparesis and it might well have been responsible for screwing
> your BG.


Maybe.
>
> In your situation I'd have seriously considered ER.


It did cross my mind. But seeing as how I didn't test as an actual hypo, I
didn't figure they would do much.


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</
  #20  
Old 05-19-2008, 09:13 PM
Anon aka
Guest
 
Posts: n/a
Default Re: Bad reaction to insulin? Hypo?


"Julie Bove" <juliebove@verizon.net> wrote in message
news:hokYj.764$H91.420@trndny09...
>
> "Anon aka" <anon@yahoo.com> wrote in message
> news:wuWdnTbo386jTazVnZ2dnUVZ_tninZ2d@giganews.com ...
>
>>
>> Are you testing for ketones? Most recommend testing for ketones anytime
>> BG exceeds 250. http://www.joslin.org/managing_your_diabetes_688.asp
>> They are right about taking time to get the insulin right but getting
>> numbers as high as yours is bad. If my doctor seen numbers like yours in
>> my log, she would take immediate action to correct them. Once when I over
>> indulged and was getting numbers in the 200's, she gave me such a chewing
>> out that put the fear of god in me.
>>
>> Are there any diabetic groups in your area? I get a lot of advice from my
>> group and it is a good place to get doctor referrals.

>
> The nurse said type 2's do not get ketones. She said we get something
> else, similar. I did test for ketones before, on my own, and there never
> were any.
>
> Not any diabetic groups AFAIK. I was in one in CA and it was a gross
> waste of my time. We were not allowed to speak freely and could only
> address the topics given.

Our group is half social club and half diabetic group. They usually have a
guest speaker that gives a talk on different diabetic topics. There is a
question/answer round.

I've made some good friends there and it is a good place to meet lonesome
widows. :-)


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