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  #1  
Old 06-26-2008, 12:13 PM
New Jack Ruby
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Posts: n/a
Default Diabetic Neuropathy

Hello,

I am male, 39 yrs, Type 1 for 35 yrs. I have had little control for
most of my life. Recently, with the help of some new drugs
(metformin,januvia,synthroid) I have managed to bring my A1c down to
7.1. Probably the best control I've ever had.

I have been extremely lucky in my life so far to have remained pretty
much complication free, but for the past year or so I have been having
occasional bouts of neuropathy pain in a spot on the top of my right
foot. There doesn't seem to be any rhyme or reason as to when this
will attack, other than maybe at stressful times. I wouldn't really
call it "pain"...just an annoying feeling, like an itch that can't be
scratched. Keeps me awake at night for 2 or 3 days and eventually goes
away.

Just wondering if those of you here with a similar problem can offer
any advice. Has anyone undergone any treatment for this? Prescription
or otherwise? Any experience you feel like relating I would love to
hear. Thanks.
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  #2  
Old 06-26-2008, 12:13 PM
Julie Bove
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Posts: n/a
Default Re: Diabetic Neuropathy


"New Jack Ruby" <russstedman@gmail.com> wrote in message
news:cc32871e-47a4-4577-b81e-f4490b54ac18@b1g2000hsg.googlegroups.com...
> Hello,
>
> I am male, 39 yrs, Type 1 for 35 yrs. I have had little control for
> most of my life. Recently, with the help of some new drugs
> (metformin,januvia,synthroid) I have managed to bring my A1c down to
> 7.1. Probably the best control I've ever had.
>
> I have been extremely lucky in my life so far to have remained pretty
> much complication free, but for the past year or so I have been having
> occasional bouts of neuropathy pain in a spot on the top of my right
> foot. There doesn't seem to be any rhyme or reason as to when this
> will attack, other than maybe at stressful times. I wouldn't really
> call it "pain"...just an annoying feeling, like an itch that can't be
> scratched. Keeps me awake at night for 2 or 3 days and eventually goes
> away.
>
> Just wondering if those of you here with a similar problem can offer
> any advice. Has anyone undergone any treatment for this? Prescription
> or otherwise? Any experience you feel like relating I would love to
> hear. Thanks.


Prescription drugs did not help my neuropathy. I do take 2,000 mg of
Evening Primrose Oil twice daily and that helps.


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  #3  
Old 06-26-2008, 12:13 PM
Màck©®
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Posts: n/a
Default Re: Diabetic Neuropathy

On Wed, 25 Jun 2008 23:55:39 -0700 (PDT), New Jack Ruby
<russstedman@gmail.com> wrote:

>Hello,
>
>I am male, 39 yrs, Type 1 for 35 yrs. I have had little control for
>most of my life. Recently, with the help of some new drugs
>(metformin,januvia,synthroid) I have managed to bring my A1c down to
>7.1. Probably the best control I've ever had.
>
>I have been extremely lucky in my life so far to have remained pretty
>much complication free, but for the past year or so I have been having
>occasional bouts of neuropathy pain in a spot on the top of my right
>foot. There doesn't seem to be any rhyme or reason as to when this
>will attack, other than maybe at stressful times. I wouldn't really
>call it "pain"...just an annoying feeling, like an itch that can't be
>scratched. Keeps me awake at night for 2 or 3 days and eventually goes
>away.
>
>Just wondering if those of you here with a similar problem can offer
>any advice. Has anyone undergone any treatment for this? Prescription
>or otherwise? Any experience you feel like relating I would love to
>hear. Thanks.



are you using insulin?

--
Måck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org
http://diabetes.niddk.nih.gov/dm/pubs/type1and2/
http://www.pandora.com enter "Jason & Demarco"
http://www.ratbags.com/dechunging/


"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
....Theodore Roosevelt

(o ô)
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
....Bilbo Baggins


DISCLAIMER If you find a posting or message from me
offensive, inappropriate, or disruptive, please ignore it.
If you don't know how to ignore a posting, complain to
me and I will be only too happy to demonstrate...
..
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  #4  
Old 06-26-2008, 05:25 PM
Tiger_Lily
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Posts: n/a
Default Re: Diabetic Neuropathy

New Jack Ruby wrote:
> Hello,
>
> I am male, 39 yrs, Type 1 for 35 yrs. I have had little control for
> most of my life. Recently, with the help of some new drugs
> (metformin,januvia,synthroid) I have managed to bring my A1c down to
> 7.1. Probably the best control I've ever had.
>
> I have been extremely lucky in my life so far to have remained pretty
> much complication free, but for the past year or so I have been having
> occasional bouts of neuropathy pain in a spot on the top of my right
> foot. There doesn't seem to be any rhyme or reason as to when this
> will attack, other than maybe at stressful times. I wouldn't really
> call it "pain"...just an annoying feeling, like an itch that can't be
> scratched. Keeps me awake at night for 2 or 3 days and eventually goes
> away.
>
> Just wondering if those of you here with a similar problem can offer
> any advice. Has anyone undergone any treatment for this? Prescription
> or otherwise? Any experience you feel like relating I would love to
> hear. Thanks.

http://www.diabetic-talk.org/dpn.htm

the cocktail is outlined in that article

some people are saying that bentofamine as well is needed, i don't know
the recommended dose

--
kate
type 1 since 1987
www.diabetic-chat.org
www.diabetic-talk.org
http://www.diabetes-support.org.uk/n...diagnosed.html
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  #5  
Old 06-27-2008, 12:15 AM
Alan S
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Posts: n/a
Default Re: Diabetic Neuropathy

On Thu, 26 Jun 2008 07:44:58 -0400, Màck©®
<IAM@OneWithTheGoddess.org> wrote:

>On Wed, 25 Jun 2008 23:55:39 -0700 (PDT), New Jack Ruby
><russstedman@gmail.com> wrote:
>

<snip>
>>I am male, 39 yrs, Type 1 for 35 yrs.

<snip>
>
>are you using insulin?


I think you missed that sentence, Mack. He's a T1 dx at age
4.


Cheers, Alan, T2, Australia.
--
d&e, metformin 1500mg, ezetrol 10mg
Everything in Moderation - Except Laughter.
http://loraldiabetes.blogspot.com
http://www.flickr.com/photos/alan_s/
http://loraltravel.blogspot.com (On Indian Roads)


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  #6  
Old 06-27-2008, 11:29 AM
New Jack Ruby
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Posts: n/a
Default Re: Diabetic Neuropathy

On Jun 26, 6:44 am, Màck©® <I...@OneWithTheGoddess.org> wrote:

> are you using insulin?
>
> --
>

Oh yeah. A whole bunch!
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  #7  
Old 06-27-2008, 11:29 AM
New Jack Ruby
Guest
 
Posts: n/a
Default Re: Diabetic Neuropathy

On Jun 26, 10:00 am, Tiger_Lily <m...@privacy.net> wrote:
..
>
> http://www.diabetic-talk.org/dpn.htm


Thanks for this. I'm sure regulars to this ng have already discussed
this a million times. Does this ng have a faq somewhere?
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  #8  
Old 06-27-2008, 11:29 AM
Alan S
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Posts: n/a
Default Misc.Health.Diabetes and Diabetes Talk FAQs

Subject changed from "Diabetic Neuropathy"

On Thu, 26 Jun 2008 20:30:25 -0700 (PDT), New Jack Ruby

<russstedman@gmail.com> wrote:

>On Jun 26, 10:00 am, Tiger_Lily <m...@privacy.net> wrote:
>.
>>
>> http://www.diabetic-talk.org/dpn.htm

>
>Thanks for this. I'm sure regulars to this ng have already discussed
>this a million times. Does this ng have a faq somewhere?


It's actually the FAQ's for misc.health.diabetes, which
preceded alt.support.diabetes and still operates.
alt.support.diabetes was started as a less technical and
more supportive off-shoot, but has gradually expanded since
then.

Start here, some of it is a little out of date, but as most
of it was way ahead of it's time and most of it is still way
ahead of the ADA that doesn't matter much:

http://www.faqs.org/faqs/diabetes/

Or:
Message-ID: <diabetes/faq/part1_1213938816@rtfm.mit.edu>
Message-ID: <diabetes/faq/part2_1213938816@rtfm.mit.edu>
Message-ID: <diabetes/faq/part3_1213938816@rtfm.mit.edu>
Message-ID: <diabetes/faq/part4_1213938816@rtfm.mit.edu>
Message-ID: <diabetes/faq/part5_1213938816@rtfm.mit.edu>

You will also find more very useful information on the
http://www.diabetic-talk.org site, especially on the sidebar
of their Newly Diagnosed page:
http://www.diabetic-talk.org/NewlyDiagnosed.htm

Click on any of these on that page:

Jennifer's Advice
Nutrition
Dawn Phenomenon
Testing
DPN/Cocktail
Meds
Glossary
Sick Days
Free Veggies

Cheers, Alan, T2, Australia.
--
d&e, metformin 1500mg, ezetrol 10mg
Everything in Moderation - Except Laughter.
http://loraldiabetes.blogspot.com
http://www.flickr.com/photos/alan_s/
http://loraltravel.blogspot.com (On Indian Roads)


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  #9  
Old 06-27-2008, 03:52 PM
Uncle Enrico
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Posts: n/a
Default Re: Diabetic Neuropathy

New Jack Ruby wrote:
> On Jun 26, 10:00 am, Tiger_Lily <m...@privacy.net> wrote:
> .
>> http://www.diabetic-talk.org/dpn.htm

>
> Thanks for this. I'm sure regulars to this ng have already discussed
> this a million times. Does this ng have a faq somewhere?


Supplements shown to reduce neuropathy pain in diabetics:
Alpha lipoic acid, benfotiamine, B6, B12, evening primrose oil or borage
oil, vitamin D3, vitamin C.

Blood sugar strategies: flattening out your blood glucose profile to
avoid sharp fluctuations. There appears to be evidence that fluctuations
are more problematic than sustained high numbers, though no one is
recommending sustained high numbers.

There is one recommendation that diabetics keep the standard deviation
of their blood glucose numbers less than 33% of their blood glucose average.

Here are the links to the above info:

http://www.medscape.com/viewarticle/565795_1

http://www.ncbi.nlm.nih.gov/pubmed/8...?dopt=Abstract

http://www.diabetesincontrol.com/res...ryarticle=5702

http://www.tga.gov.au/adr/aadrb/aadr0504.htm

http://www.ncbi.nlm.nih.gov/pubmed/16609090

http://www.diabeteshealth.com/read/2008/04/23/5161.html

http://www.diabetic-talk.org/dpn.htm

http://diabetesmonitor.com/m57.htm
If you want to calculate the standard deviation of your blood sugar
readings and compare it to your blood sugar average, the link below will
take you to an Excel spreadsheet to do that. You will need to expand the
columns a bit as the website has compressed them slightly:
http://tinyurl.com/6lz9tl
http://www.benfotiamine.org/FAQ.htm#faq10

http://dcf.evms.edu/research/nutrinerve.html

http://www.neuroeffex.com/

http://www.dlife.com/dLife/do/ShowCo...s_oct2006.html

http://www.dlife.com/dLife/do/ShowCo...us_012808.html

Lastly, here’s a link to a TENS like device I’ve found helpful with
neuropathy pain:
I bought the cheaper unit:

http://www.rebuildermedical.com/?gad...D=164676020511


PS Some other helpful remedies for neuropathy pain:

Exercise--walking, weight lifting, etc.
Massage
Lidoderm patches: requires an Rx and they're expensive. But, when all
else fails, these will work. Wash your hands after using. Keep hands
away from eyes, nose, mouth, etc.

Unfortunately, pain relievers will not alleviate neuropathy pain. This
was my experience and it's the advice that the medical people will give
you as well.

I found it helpful to set up a standing fan blowing cool air on my feet
at night while in bed. If you can elevate the head of your bed so that
your feet are at a lower position, this can help.

Also, if you take fish oil, take it at night before bed. It helps you
get to sleep.

If you're having trouble sleeping, the following can be very useful and
found at health food stores and supplement outlets: (check with your doc.)

chamomile tea,
valerian root
L-Tryptophan

Remember that nerves heal slowly. If you can eliminate the underlying
cause of your neuropathy, you should be able to resolve the problem over
a period of a couple of years. If you start down the road to recovery,
you may experience an initial improvement that is rapid in the first
month or two, and then realize slow improvements over the next several
months.


Lately: 6/27/2008

I've found a link between the onset of neuropathy pain and a period
after eating in the late afternoon and evening at one to two hours post
meal. The pain will go on for 1 to 2 hours irrespective of my blood
sugar. Meals of meat with fat appear to be more pain inducing than
veggies. I began suspecting my statin dose to be implicated and stopped
taking it. Neuro symptoms were greatly reduced or disappeared following
cessation of the statin. I had recent good labs following 8 days of no
statins and then a resumption of half the dose for 4 days. I'm now going
without Simvastatin and hoping for good labs 3 months down the road.

I exercise 1-2 hours daily plus work with weights and do crucnches for
10 minutes a day. My BMI is 22. I eat low and slow carb with green
veggies and lean proteins.

Here's a reputable link re statin use and neuropathy pain:
http://www.tga.gov.au/adr/aadrb/aadr0504.htm

If you google statins and neuropathy you’ll find many more links.

Good luck!
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  #10  
Old 06-27-2008, 07:01 PM
Robert Miles
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Posts: n/a
Default Re: Diabetic Neuropathy


"New Jack Ruby" <russstedman@gmail.com> wrote in message
news:e846eb26-594d-45ea-9a75-ecc18f66d872@d1g2000hsg.googlegroups.com...
> On Jun 26, 10:00 am, Tiger_Lily <m...@privacy.net> wrote:
> .
>>
>> http://www.diabetic-talk.org/dpn.htm

>
> Thanks for this. I'm sure regulars to this ng have already discussed
> this a million times. Does this ng have a faq somewhere?


We normally use the one for newsgroup misc.health.diabetes
instead.

We have some information gathered, but don't call it a FAQ.

http://www.alt-support-diabetes.org/NewlyDiagnosed.htm


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  #11  
Old 07-01-2008, 03:02 PM
Màck©®
Guest
 
Posts: n/a
Default Re: Diabetic Neuropathy

On Fri, 27 Jun 2008 09:02:35 +1000, Alan S
<loralgtweightandcarbs@gmail.com> wrote:

>On Thu, 26 Jun 2008 07:44:58 -0400, Màck©®
><IAM@OneWithTheGoddess.org> wrote:
>
>>On Wed, 25 Jun 2008 23:55:39 -0700 (PDT), New Jack Ruby
>><russstedman@gmail.com> wrote:
>>

><snip>
>>>I am male, 39 yrs, Type 1 for 35 yrs.

><snip>
>>
>>are you using insulin?

>
>I think you missed that sentence, Mack. He's a T1 dx at age
>4.
>
>
>Cheers, Alan, T2, Australia.



no I didn't miss it.

There was a reason for my question as written.

--
Måck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org
http://www.diabetic-talk.org
http://www.insulin-pumpers.org
http://diabetes.niddk.nih.gov/dm/pubs/type1and2/
http://www.pandora.com enter "Jason & Demarco"
http://www.ratbags.com/dechunging/


"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
....Theodore Roosevelt

(o ô)
--ooO-(_)-Ooo--------------------

"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
....Bilbo Baggins


DISCLAIMER If you find a posting or message from me
offensive, inappropriate, or disruptive, please ignore it.
If you don't know how to ignore a posting, complain to
me and I will be only too happy to demonstrate...
..
Reply With Quote
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