 |  | | Moving backwards.. Discuss Moving backwards., on Health Forums.
| | 
06-02-2008, 10:13 PM
| | | Moving backwards. Last time I was at a1c of 6.1, if I recall correctly. This time, 7.1
Considering that I've all but stopped testing and have not been drastically
sticking to a diet (i.e. always counting carbs) it could be worse.
Even though I'm on medication for depression, the fact that I'd been eating
considerably less and still gaining weight frustrated me. I was tired of
always being h*ngry (obfuscated in a lame attempt to keep dr. loon from
replying).
Now my doctor is concerned about elevated white blood cell counts.
Apparently all of my tests to-date have had high counts. Today's high count
may have been because of a sinus infection, however. Because of that and
other symptoms (swollen glands, etc.) she suspect I may have CLL but is in
"wait and see" mode for now, going to have another battery of blood tests
next month. http://www.lls.org/all_page?item_id=7059&KNC-cll
CLL would certainly explain a lot of things, like the eczema, constant
tiredness, etc.
She upped my medication for the first time since diagnosis over a year ago.
Now it will be 500 mg metformin in the mornings and 1000 mg at night.
Strange, I had fasted since last night, and first thing this morning my BG
was 146. It's rarely that high except after a meal. Three hours later,
still fasting, it was about 128, I think. Still high, considering it had
been 12 hours since I'd had any kind of carbs.
My life just continues to suck more and more.
Bill "Frisbee" Hileman | 
06-02-2008, 10:13 PM
| | | Re: Moving backwards.
"Bill Hileman" <discgolfdad@gEEmail.com> wrote in message
news:OhZ0k.3433$%z2.830@bignews3.bellsouth.net...
> Last time I was at a1c of 6.1, if I recall correctly. This time, 7.1
>
> Considering that I've all but stopped testing and have not been
> drastically sticking to a diet (i.e. always counting carbs) it could be
> worse.
>
> Even though I'm on medication for depression, the fact that I'd been
> eating considerably less and still gaining weight frustrated me. I was
> tired of always being h*ngry (obfuscated in a lame attempt to keep dr.
> loon from replying).
>
> Now my doctor is concerned about elevated white blood cell counts.
> Apparently all of my tests to-date have had high counts. Today's high
> count may have been because of a sinus infection, however. Because of
> that and other symptoms (swollen glands, etc.) she suspect I may have CLL
> but is in "wait and see" mode for now, going to have another battery of
> blood tests next month.
>
> http://www.lls.org/all_page?item_id=7059&KNC-cll
>
> CLL would certainly explain a lot of things, like the eczema, constant
> tiredness, etc.
>
> She upped my medication for the first time since diagnosis over a year
> ago. Now it will be 500 mg metformin in the mornings and 1000 mg at night.
>
> Strange, I had fasted since last night, and first thing this morning my BG
> was 146. It's rarely that high except after a meal. Three hours later,
> still fasting, it was about 128, I think. Still high, considering it had
> been 12 hours since I'd had any kind of carbs.
>
> My life just continues to suck more and more.
Well, that just doesn't sound good! | 
06-03-2008, 12:02 AM
| | | Re: Moving backwards. Bill Hileman wrote:
> Last time I was at a1c of 6.1, if I recall correctly. This time, 7.1
>
> Considering that I've all but stopped testing and have not been drastically
> sticking to a diet (i.e. always counting carbs) it could be worse.
>
> Even though I'm on medication for depression, the fact that I'd been eating
> considerably less and still gaining weight frustrated me. I was tired of
> always being h*ngry (obfuscated in a lame attempt to keep dr. loon from
> replying).
>
> Now my doctor is concerned about elevated white blood cell counts.
> Apparently all of my tests to-date have had high counts. Today's high count
> may have been because of a sinus infection, however. Because of that and
> other symptoms (swollen glands, etc.) she suspect I may have CLL but is in
> "wait and see" mode for now, going to have another battery of blood tests
> next month.
>
> http://www.lls.org/all_page?item_id=7059&KNC-cll
>
> CLL would certainly explain a lot of things, like the eczema, constant
> tiredness, etc.
>
> She upped my medication for the first time since diagnosis over a year ago.
> Now it will be 500 mg metformin in the mornings and 1000 mg at night.
>
> Strange, I had fasted since last night, and first thing this morning my BG
> was 146. It's rarely that high except after a meal. Three hours later,
> still fasting, it was about 128, I think. Still high, considering it had
> been 12 hours since I'd had any kind of carbs.
>
> My life just continues to suck more and more.
>
> Bill "Frisbee" Hileman
>
>
Bill, welcome back, it's been a while since we've seen you
i hope that the white blood cell count is high due to some innocent
infection, and nothing major
i will be thinking of you, please keep us up to date
--
kate
type 1 since 1987 www.diabetic-talk.org http://www.diabetes-support.org.uk/n...diagnosed.html | 
06-03-2008, 01:37 PM
| | | Re: Moving backwards. On Mon, 2 Jun 2008 17:08:08 -0400, "Bill Hileman"
<discgolfdad@gEEmail.com> wrote:
>My life just continues to suck more and more.
Sorry to hear that, Bill - hope the CCL count is from an innocuous
cause!
On the weight front - I lost 25Kg without EVER feeling hungry (in
fact, by not allowing myself to get hungry, eating as soon as I felt
peckish) on a low carb diet. If I got hungry, I got a liver dump; it
was important not to let that happen. If I added in carbs, I got the
starving hungry feeling that carbs bring - I was much better off
cutting all obvious carbs, and just eating plenty of green veg and
proteins.
I bet a liver dump was what you got after fasting, btw - an
overhelpful liver... the liver is capable of producing around 200g
glucose per day, comfortably more than the 120g your brain needs.
Nicky.
T2 dx 05/04 + underactive thyroid
D&E, 100ug thyroxine
Last A1c 5.6% BMI 25 | 
06-03-2008, 01:37 PM
| | | Re: Moving backwards. Bill Hileman wrote:
> Last time I was at a1c of 6.1, if I recall correctly. This time, 7.1
>
> Considering that I've all but stopped testing and have not been drastically
> sticking to a diet (i.e. always counting carbs) it could be worse.
>
> Even though I'm on medication for depression, the fact that I'd been eating
> considerably less and still gaining weight frustrated me. I was tired of
> always being h*ngry (obfuscated in a lame attempt to keep dr. loon from
> replying).
>
> Now my doctor is concerned about elevated white blood cell counts.
> Apparently all of my tests to-date have had high counts. Today's high count
> may have been because of a sinus infection, however. Because of that and
> other symptoms (swollen glands, etc.) she suspect I may have CLL but is in
> "wait and see" mode for now, going to have another battery of blood tests
> next month.
>
> http://www.lls.org/all_page?item_id=7059&KNC-cll
>
> CLL would certainly explain a lot of things, like the eczema, constant
> tiredness, etc.
>
> She upped my medication for the first time since diagnosis over a year ago.
> Now it will be 500 mg metformin in the mornings and 1000 mg at night.
>
> Strange, I had fasted since last night, and first thing this morning my BG
> was 146. It's rarely that high except after a meal. Three hours later,
> still fasting, it was about 128, I think. Still high, considering it had
> been 12 hours since I'd had any kind of carbs.
>
> My life just continues to suck more and more.
>
> Bill "Frisbee" Hileman
>
>
I can identify with your frustrations. I was having unbearable bouts of
near-suicidal depression. Oddly, they only lasted about 2 days every 6
weeks or so. I told my doc, and he said metformin depletes B vitamins,
and recommended a B vitamin complex. Cured me of the depression. May not
be a factor for you, but I'll bet some others here can identify.
Gary
T2
1000 mg metformin daily
A1C 6.0 | 
06-03-2008, 01:37 PM
| | | Re: Moving backwards. "Gary" <ganderson26@wi.rr.com> wrote in message
news:4845314e$0$4236$4c368faf@roadrunner.com...
> Bill Hileman wrote:
>> Last time I was at a1c of 6.1, if I recall correctly. This time, 7.1
>>
>> Considering that I've all but stopped testing and have not been
>> drastically sticking to a diet (i.e. always counting carbs) it could be
>> worse.
>>
>> Even though I'm on medication for depression, the fact that I'd been
>> eating considerably less and still gaining weight frustrated me. I was
>> tired of always being h*ngry (obfuscated in a lame attempt to keep dr.
>> loon from replying).
>>
>> Now my doctor is concerned about elevated white blood cell counts.
>> Apparently all of my tests to-date have had high counts. Today's high
>> count may have been because of a sinus infection, however. Because of
>> that and other symptoms (swollen glands, etc.) she suspect I may have CLL
>> but is in "wait and see" mode for now, going to have another battery of
>> blood tests next month.
>>
>> http://www.lls.org/all_page?item_id=7059&KNC-cll
>>
>> CLL would certainly explain a lot of things, like the eczema, constant
>> tiredness, etc.
>>
>> She upped my medication for the first time since diagnosis over a year
>> ago. Now it will be 500 mg metformin in the mornings and 1000 mg at
>> night.
>>
>> Strange, I had fasted since last night, and first thing this morning my
>> BG was 146. It's rarely that high except after a meal. Three hours
>> later, still fasting, it was about 128, I think. Still high, considering
>> it had been 12 hours since I'd had any kind of carbs.
>>
>> My life just continues to suck more and more.
>>
>> Bill "Frisbee" Hileman
>>
>>
> I can identify with your frustrations. I was having unbearable bouts of
> near-suicidal depression. Oddly, they only lasted about 2 days every 6
> weeks or so. I told my doc, and he said metformin depletes B vitamins, and
> recommended a B vitamin complex. Cured me of the depression. May not be a
> factor for you, but I'll bet some others here can identify.
That could be, but the doc did specifically mention that my B12 seemed fine
in the blood tests. I realize that's only one B vitamin, though. Worth a
shot. FWIW, I had gotten suicidal a few weeks ago, but worked it out on my
own. I hadn't even told my wife about it, let alone my psych doc. I'm too
chicken to take my own life, and I love my kids way too much, so I don't
think there's any real danger there, but the depression still exists and
still sucks... life goes on, whether I want it to or not, heh. | 
06-03-2008, 01:37 PM
| | | Re: Moving backwards. "Nicky" <ukc802466929@btconnect.com> wrote in message
news:0vba44p4enb5r2o6fbov5hajmog5kvko9v@4ax.com...
> On Mon, 2 Jun 2008 17:08:08 -0400, "Bill Hileman"
> <discgolfdad@gEEmail.com> wrote:
>
>>My life just continues to suck more and more.
>
> Sorry to hear that, Bill - hope the CCL count is from an innocuous
> cause!
>
> On the weight front - I lost 25Kg without EVER feeling hungry (in
> fact, by not allowing myself to get hungry, eating as soon as I felt
> peckish) on a low carb diet. If I got hungry, I got a liver dump; it
> was important not to let that happen. If I added in carbs, I got the
> starving hungry feeling that carbs bring - I was much better off
> cutting all obvious carbs, and just eating plenty of green veg and
> proteins.
>
> I bet a liver dump was what you got after fasting, btw - an
> overhelpful liver... the liver is capable of producing around 200g
> glucose per day, comfortably more than the 120g your brain needs.
I suspect this is exactly why my doctor upped my evening dose of metformin
from 500 to 1000 mg.
It's getting harder and harder to keep track of all my meds these days.
I've been meaning to buy two of those daily dose (weekly) containers so I
can keep track of what all I have to take and when, and if or not I've taken
them (sometimes lately I can't even remember). | 
06-03-2008, 01:37 PM
| | | Re: Moving backwards. On Mon, 2 Jun 2008 17:08:08 -0400, "Bill Hileman"
<discgolfdad@gEEmail.com> wrote:
>Last time I was at a1c of 6.1, if I recall correctly. This time, 7.1
>
>Considering that I've all but stopped testing and have not been drastically
>sticking to a diet (i.e. always counting carbs) it could be worse.
>
>Even though I'm on medication for depression, the fact that I'd been eating
>considerably less and still gaining weight frustrated me. I was tired of
>always being h*ngry (obfuscated in a lame attempt to keep dr. loon from
>replying).
>
>Now my doctor is concerned about elevated white blood cell counts.
>Apparently all of my tests to-date have had high counts. Today's high count
>may have been because of a sinus infection, however. Because of that and
>other symptoms (swollen glands, etc.) she suspect I may have CLL but is in
>"wait and see" mode for now, going to have another battery of blood tests
>next month.
>
>http://www.lls.org/all_page?item_id=7059&KNC-cll
>
>CLL would certainly explain a lot of things, like the eczema, constant
>tiredness, etc.
>
G'day Bill
It may explain the tiredness, but don't jump in to assuming
it's CLL yet. CLL has nothing to do with eczema AFAIK.
Have you had a BMB or BMA yet? If that battery of tests
includes one make sure you have a long discussion first
about techniques and pain-deadening.
Have you any other indicators other than white count? It's a
bit premature to assume it this early.
If you have other questions on CLL, consider joining the
ACOR CLL list and asking there: http://listserv.acor.org/SCRIPTS/WA-...SUBED1=CLL&A=1
I was a list manager for it until the end of last year, but
I've resigned because I'm too well. However, it is an
invaluable source of information. There is also the CLL
Forum, which I understand is excellent but it was formed
more recently, so I have not been a member. http://www.cllforum.com/
>She upped my medication for the first time since diagnosis over a year ago.
>Now it will be 500 mg metformin in the mornings and 1000 mg at night.
>
>Strange, I had fasted since last night, and first thing this morning my BG
>was 146. It's rarely that high except after a meal. Three hours later,
>still fasting, it was about 128, I think. Still high, considering it had
>been 12 hours since I'd had any kind of carbs.
>
>My life just continues to suck more and more.
>
>Bill "Frisbee" Hileman
>
I feel for you Bill. But maybe my short story will offer a
little hope. I was first diagnosed with CLL in Feb 2002. And
I discovered the joy of W&W, "watch and wait". But it really
means wonder and worry, doesn't it?
Then I was diagnosed with the type 2 two months later. More
joy, well, actually, depression. Sound a little familiar?
But this was different. After two months of searching for a
solution for CLL I found that I could actually do something
about the type 2.
So, after I got rid of the black dog, I did. I lost the
weight, using this: http://loraldiabetes.blogspot.com/20...ting-plan.html
But that didn't sort out my BG's, just improved them a bit.
Then I was directed to Jennifer's advice and I followed it.
With dedication and motivation. And it worked. Then I
started reading a.s.d. as well as m.h.d. and discovered
Quentin and other past posters like Annette and Old Al - and
I read them and picked what I could do, and I did it.
I am not perfect, I am just a guy who decided enough was
enough. I don't go to extremes - read the sig - so I'm
satisfied with my not-quite-perfect but OK numbers and the
lifestyle I lead to maintain them.
And, here is the strange thing. Contrary to the suggestions
of my various haemotologists, my CLL numbers have almost all
come back into normal range. My WBC hasn't been outside
normal range since July '03 and of all the other indicators
only my lymphocytes keep going marginally over the top. My
immunoglobulins are in the toilet - but I've been three
times around the world since then without catching anything
other than an occasional sniffle.
I can't claim that my diet and lazy man's exercise has done
that; my haemotologists tell me it's serendipity - but they
also tell me to keep doing what I'm doing. But I wouldn't be
human if I didn't believe that following that regimen of a
BG-friendly way of eating fine-tuned by Quentin and other's
advice has something to do with it.
Maybe the Sword of Damocles will drop tomorrow, but as each
period between haemo visits passes (was 3 months, then 4
months, now six months) I'm less and less sure that it will.
However, "carpe diem" is now my personal motto.
You do what you wish. But I hope I've offered you something
to ponder and a little hope.
Cheers, Alan, T2, Australia.
--
d&e, metformin 1500mg, ezetrol 10mg
Everything in Moderation - Except Laughter. http://loraldiabetes.blogspot.com http://www.flickr.com/photos/alan_s/ http://loraltravel.blogspot.com
Latest: Bayon and Angkor Thom | 
06-03-2008, 03:25 PM
| | | Re: Moving backwards. "Alan S" <loralgtweightandcarbs@gmail.com> wrote in message
news:6oea445dr3ng1stcsjot7pk8rla3rdcq3s@4ax.com...
> On Mon, 2 Jun 2008 17:08:08 -0400, "Bill Hileman"
> <discgolfdad@gEEmail.com> wrote:
>
>>Last time I was at a1c of 6.1, if I recall correctly. This time, 7.1
>>
>>Considering that I've all but stopped testing and have not been
>>drastically
>>sticking to a diet (i.e. always counting carbs) it could be worse.
>>
>>Even though I'm on medication for depression, the fact that I'd been
>>eating
>>considerably less and still gaining weight frustrated me. I was tired of
>>always being h*ngry (obfuscated in a lame attempt to keep dr. loon from
>>replying).
>>
>>Now my doctor is concerned about elevated white blood cell counts.
>>Apparently all of my tests to-date have had high counts. Today's high
>>count
>>may have been because of a sinus infection, however. Because of that and
>>other symptoms (swollen glands, etc.) she suspect I may have CLL but is in
>>"wait and see" mode for now, going to have another battery of blood tests
>>next month.
>>
>>http://www.lls.org/all_page?item_id=7059&KNC-cll
>>
>>CLL would certainly explain a lot of things, like the eczema, constant
>>tiredness, etc.
>>
> G'day Bill
>
> It may explain the tiredness, but don't jump in to assuming
> it's CLL yet. CLL has nothing to do with eczema AFAIK.
>
> Have you had a BMB or BMA yet? If that battery of tests
> includes one make sure you have a long discussion first
> about techniques and pain-deadening.
>
> Have you any other indicators other than white count? It's a
> bit premature to assume it this early.
>
> If you have other questions on CLL, consider joining the
> ACOR CLL list and asking there:
> http://listserv.acor.org/SCRIPTS/WA-...SUBED1=CLL&A=1
> I was a list manager for it until the end of last year, but
> I've resigned because I'm too well. However, it is an
> invaluable source of information. There is also the CLL
> Forum, which I understand is excellent but it was formed
> more recently, so I have not been a member.
> http://www.cllforum.com/
>
>>She upped my medication for the first time since diagnosis over a year
>>ago.
>>Now it will be 500 mg metformin in the mornings and 1000 mg at night.
>>
>>Strange, I had fasted since last night, and first thing this morning my BG
>>was 146. It's rarely that high except after a meal. Three hours later,
>>still fasting, it was about 128, I think. Still high, considering it had
>>been 12 hours since I'd had any kind of carbs.
>>
>>My life just continues to suck more and more.
>>
>>Bill "Frisbee" Hileman
>>
> I feel for you Bill. But maybe my short story will offer a
> little hope. I was first diagnosed with CLL in Feb 2002. And
> I discovered the joy of W&W, "watch and wait". But it really
> means wonder and worry, doesn't it?
>
> Then I was diagnosed with the type 2 two months later. More
> joy, well, actually, depression. Sound a little familiar?
> But this was different. After two months of searching for a
> solution for CLL I found that I could actually do something
> about the type 2.
>
> So, after I got rid of the black dog, I did. I lost the
> weight, using this:
> http://loraldiabetes.blogspot.com/20...ting-plan.html
> But that didn't sort out my BG's, just improved them a bit.
> Then I was directed to Jennifer's advice and I followed it.
> With dedication and motivation. And it worked. Then I
> started reading a.s.d. as well as m.h.d. and discovered
> Quentin and other past posters like Annette and Old Al - and
> I read them and picked what I could do, and I did it.
>
> I am not perfect, I am just a guy who decided enough was
> enough. I don't go to extremes - read the sig - so I'm
> satisfied with my not-quite-perfect but OK numbers and the
> lifestyle I lead to maintain them.
>
> And, here is the strange thing. Contrary to the suggestions
> of my various haemotologists, my CLL numbers have almost all
> come back into normal range. My WBC hasn't been outside
> normal range since July '03 and of all the other indicators
> only my lymphocytes keep going marginally over the top. My
> immunoglobulins are in the toilet - but I've been three
> times around the world since then without catching anything
> other than an occasional sniffle.
>
> I can't claim that my diet and lazy man's exercise has done
> that; my haemotologists tell me it's serendipity - but they
> also tell me to keep doing what I'm doing. But I wouldn't be
> human if I didn't believe that following that regimen of a
> BG-friendly way of eating fine-tuned by Quentin and other's
> advice has something to do with it.
>
> Maybe the Sword of Damocles will drop tomorrow, but as each
> period between haemo visits passes (was 3 months, then 4
> months, now six months) I'm less and less sure that it will.
> However, "carpe diem" is now my personal motto.
>
> You do what you wish. But I hope I've offered you something
> to ponder and a little hope.
Thanks, Alan. My doctor stated up front that she doesn't necessarily think
I have CLL but she said those "W&W" words. I realize that if it does turn
out that I do have it, it's not the end of the world, either. Just
depressing to get yet another diagnosis I didn't see coming. | 
06-03-2008, 11:39 PM
| | | Re: Moving backwards. "Bill Hileman" <discgolfdad@gEEmail.com> wrote:
> "Nicky" <ukc802466929@btconnect.com> wrote in message
> > On Mon, 2 Jun 2008 17:08:08 -0400, "Bill Hileman"
> > [ . . . ]
> It's getting harder and harder to keep track of all my meds these days.
> I've been meaning to buy two of those daily dose (weekly) containers so I
> can keep track of what all I have to take and when, and if or not I've
> taken them (sometimes lately I can't even remember).
I take 13 in the morning and 13 at night. I have the bottles set out on
three shelves. One marked "AM", one marked "PM" and one marked "AM/PM". I
work my way across from right to left, putting them in a small bowl. When I
reach the end of the line I take them! The bowl goes on "AM" or "PM",
depending on which is next.
HTH
Take care.
--
Nick. Support severely wounded and disabled Veterans and their families!
I've known US vets who served as far back as the Spanish American War. They
are all my heroes! Thank a Veteran and Support Our Troops. You are not
forgotten. Thanks ! ! ~Semper Fi~ | 
06-03-2008, 11:39 PM
| | | Re: Moving backwards.
"Nick Cramer" <n_cramerSPAM@pacbell.net> wrote in message
news:20080603175337.221$ID@newsreader.com...
> "Bill Hileman" <discgolfdad@gEEmail.com> wrote:
>> "Nicky" <ukc802466929@btconnect.com> wrote in message
>> > On Mon, 2 Jun 2008 17:08:08 -0400, "Bill Hileman"
>> > [ . . . ]
>> It's getting harder and harder to keep track of all my meds these days.
>> I've been meaning to buy two of those daily dose (weekly) containers so I
>> can keep track of what all I have to take and when, and if or not I've
>> taken them (sometimes lately I can't even remember).
>
> I take 13 in the morning and 13 at night. I have the bottles set out on
> three shelves. One marked "AM", one marked "PM" and one marked "AM/PM". I
> work my way across from right to left, putting them in a small bowl. When
> I
> reach the end of the line I take them! The bowl goes on "AM" or "PM",
> depending on which is next.
>
> HTH
>
> Take care.
>
I have oversized containers to put them in. Have slots for breakfast,
lunch, dinner and bed. Used to do two weeks up at a time, but that was
taking 2 hours each week and invariably one of my Drs. would change a med
and I'd have to go through with tweezers picking stuff out. So now just a
week at a time. | 
06-04-2008, 03:27 PM
| | | Re: Moving backwards. On Jun 3, 8:24*am, "Bill Hileman" <discgolf...@gEEmail.com> wrote:
> It's getting harder and harder to keep track of all my meds these days.
> I've been meaning to buy two of those daily dose (weekly) containers so I
> can keep track of what all I have to take and when, and if or not I've taken
> them (sometimes lately I can't even remember).- Hide quoted text -
>
> - Show quoted text -
Hi Bill, I found those containers a must when I got out of the
hospital last year and was on a lot of meds. I would do a weeks worth
of portioning and it saved a lot of time fumbling with multiple
bottles.
Now, that I'm down to 5 pills a day, one being an aspirin, I don't
really need the containers so much, but still find it easier than
opening 5 pill bottles a day.
John C. | 
06-04-2008, 03:27 PM
| | | Re: Moving backwards. On Jun 3, 8:27*am, "Bill Hileman" <discgolf...@gEEmail.com> wrote:
> FWIW, I had gotten suicidal a few weeks ago, but worked it out on my
> own. *I hadn't even told my wife about it, let alone my psych doc. *I'm too
> chicken to take my own life, and I love my kids way too much, so I don't
> think there's any real danger there, but the depression still exists and
> still sucks... life goes on, whether I want it to or not, heh.- Hide quoted text -
Bill, I had similar thoughts and feelings after my heart attack last
year. I finally saw a therapist and psychiatrist who put me on Lexapro. I wasn't thrilled with taking yet another med, but felt so
crappy at times, that I figured why not give it a try.
I was on the Lexapro for 7 months and it made a big difference (along
with returning to work). I'm now depression free, off the med and
living my life again rather than just struggling through each day.
Before, when I opened my eyes in the morning, my first though would be
"Oh God, no. Not another day". What a horrible, horrible way to feel.
John C. | 
06-04-2008, 03:27 PM
| | | Re: Moving backwards. On Jun 3, 9:57*am, "Bill Hileman" <discgolf...@gEEmail.com> wrote:
> "Alan S" <loralgtweightandca...@gmail.com> wrote in message
>
> news:6oea445dr3ng1stcsjot7pk8rla3rdcq3s@4ax.com...
>
>
>
>
>
> > On Mon, 2 Jun 2008 17:08:08 -0400, "Bill Hileman"
> > <discgolf...@gEEmail.com> wrote:
>
> >>Last time I was at a1c of 6.1, if I recall correctly. *This time, 7.1
>
> >>Considering that I've all but stopped testing and have not been
> >>drastically
> >>sticking to a diet (i.e. always counting carbs) it could be worse.
>
> >>Even though I'm on medication for depression, the fact that I'd been
> >>eating
> >>considerably less and still gaining weight frustrated me. *I was tiredof
> >>always being h*ngry (obfuscated in a lame attempt to keep dr. loon from
> >>replying).
>
> >>Now my doctor is concerned about elevated white blood cell counts.
> >>Apparently all of my tests to-date have had high counts. *Today's high
> >>count
> >>may have been because of a sinus infection, however. *Because of that and
> >>other symptoms (swollen glands, etc.) she suspect I may have CLL but is in
> >>"wait and see" mode for now, going to have another battery of blood tests
> >>next month.
>
> >>http://www.lls.org/all_page?item_id=7059&KNC-cll
>
> >>CLL would certainly explain a lot of things, like the eczema, constant
> >>tiredness, etc.
>
> > G'day Bill
>
> > It may explain the tiredness, but don't jump in to assuming
> > it's CLL yet. CLL has nothing to do with eczema AFAIK.
>
> > Have you had a BMB or BMA yet? If that battery of tests
> > includes one make sure you have a long discussion first
> > about techniques and pain-deadening.
>
> > Have you any other indicators other than white count? It's a
> > bit premature to assume it this early.
>
> > If you have other questions on CLL, consider joining the
> > ACOR CLL list and asking there:
> >http://listserv.acor.org/SCRIPTS/WA-...SUBED1=CLL&A=1
> > I was a list manager for it until the end of last year, but
> > I've resigned because I'm too well. *However, it is an
> > invaluable source of information. There is also the CLL
> > Forum, which I understand is excellent but it was formed
> > more recently, so I have not been a member.
> >http://www.cllforum.com/
>
> >>She upped my medication for the first time since diagnosis over a year
> >>ago.
> >>Now it will be 500 mg metformin in the mornings and 1000 mg at night.
>
> >>Strange, I had fasted since last night, and first thing this morning my BG
> >>was 146. *It's rarely that high except after a meal. *Three hours later,
> >>still fasting, it was about 128, I think. *Still high, considering it had
> >>been 12 hours since I'd had any kind of carbs.
>
> >>My life just continues to suck more and more.
>
> >>Bill "Frisbee" Hileman
>
> > I feel for you Bill. But maybe my short story will offer a
> > little hope. I was first diagnosed with CLL in Feb 2002. And
> > I discovered the joy of W&W, "watch and wait". But it really
> > means wonder and worry, doesn't it?
>
> > Then I was diagnosed with the type 2 two months later. More
> > joy, well, actually, depression. Sound a little familiar?
> > But this was different. After two months of searching for a
> > solution for CLL I found that I could actually do something
> > about the type 2.
>
> > So, after I got rid of the black dog, I did. I lost the
> > weight, using this:
> >http://loraldiabetes.blogspot.com/20...ooking-and-eat...
> > But that didn't sort out my BG's, just improved them a bit.
> > Then I was directed to Jennifer's advice and I followed it.
> > With dedication and motivation. And it worked. Then I
> > started reading a.s.d. as well as m.h.d. and discovered
> > Quentin and other past posters like Annette and Old Al - and
> > I read them and picked what I could do, and I did it.
>
> > I am not perfect, I am just a guy who decided enough was
> > enough. I don't go to extremes - read the sig - so I'm
> > satisfied with my not-quite-perfect but OK numbers and the
> > lifestyle I lead to maintain them.
>
> > And, here is the strange thing. Contrary to the suggestions
> > of my various haemotologists, my CLL numbers have almost all
> > come back into normal range. My WBC hasn't been outside
> > normal range since July '03 and of all the other indicators
> > only my lymphocytes keep going marginally over the top. My
> > immunoglobulins are in the toilet - but I've been three
> > times around the world since then without catching anything
> > other than an occasional sniffle.
>
> > I can't claim that my diet and lazy man's exercise has done
> > that; my haemotologists tell me it's serendipity - but they
> > also tell me to keep doing what I'm doing. But I wouldn't be
> > human if I didn't believe that following that regimen of a
> > BG-friendly way of eating fine-tuned by Quentin and other's
> > advice has something to do with it.
>
> > Maybe the Sword of Damocles will drop tomorrow, but as each
> > period between haemo visits passes (was 3 months, then 4
> > months, now six months) I'm less and less sure that it will.
> > However, "carpe diem" is now my personal motto.
>
> > You do what you wish. But I hope I've offered you something
> > to ponder and a little hope.
>
> Thanks, Alan. *My doctor stated up front that she doesn't necessarily think
> I have CLL but she said those "W&W" words. *I realize that if it does turn
> out that I do have it, it's not the end of the world, either. *Just
> depressing to get yet another diagnosis I didn't see coming.- Hide quoted text -
>
> - Show quoted text -
That's the thing though. You didn't get the Dx and you might not.
Worry about it when you have something to worry about. I just spent a
week and a half worrying about the results of a prostate biopsy even
though I knew my PSA numbers were normal and I have no family history.
What a waste. Biopsy was negative and I ran a week and a half worth of
"what if" scenarios through my head. If I could change one (more)
thing about myself, it would be to stop worrying. I find it the most
useless and annoying of human emotions.
John C. | 
06-04-2008, 08:04 PM
| | | Re: Moving backwards. On Mon, 2 Jun 2008 17:08:08 -0400, "Bill Hileman"
<discgolfdad@gEEmail.com> wrote:
>Last time I was at a1c of 6.1, if I recall correctly. This time, 7.1
>
>Considering that I've all but stopped testing and have not been drastically
>sticking to a diet (i.e. always counting carbs) it could be worse.
Well at least you know what you were doing wrong <G>
>Even though I'm on medication for depression, the fact that I'd been eating
>considerably less and still gaining weight frustrated me. I was tired of
>always being h*ngry (obfuscated in a lame attempt to keep dr. loon from
>replying).
SSRI? They can be notorious for that. Different meds may be less so
(someome once wrote that SSRIs tend to produce weight gain or loss,
depending on which you least want)
>Now my doctor is concerned about elevated white blood cell counts.
>Apparently all of my tests to-date have had high counts. Today's high count
>may have been because of a sinus infection, however. Because of that and
>other symptoms (swollen glands, etc.) she suspect I may have CLL but is in
>"wait and see" mode for now, going to have another battery of blood tests
>next month.
>
>http://www.lls.org/all_page?item_id=7059&KNC-cll
>
>CLL would certainly explain a lot of things, like the eczema, constant
>tiredness, etc.
OTOH so would high BG, added to a minor but persistent infection.
>She upped my medication for the first time since diagnosis over a year ago.
>Now it will be 500 mg metformin in the mornings and 1000 mg at night.
Still not a lot though, barely a therapeutic dose for some,
considering how your A1c has gone up she might have increased it to
2500 mg or thereabouts
>Strange, I had fasted since last night, and first thing this morning my BG
>was 146. It's rarely that high except after a meal. Three hours later,
>still fasting, it was about 128, I think. Still high, considering it had
>been 12 hours since I'd had any kind of carbs.
Liver dump probably
>My life just continues to suck more and more.
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