[Default] On 10 Feb 2007 14:16:04 -0800, "amber.jean.j@gmail.com"
<amber.jean.j@gmail.com> Giggled into the madness of usenet:
>I just found this group. I have been searching the web for all the
>information on diabetes type 1.
>
>My name is Amber I am 16 and was told I have type 1 diabetes on Jan
>14.
>
>I haven't had a chance to read many of the topics here yet. There are
>a lot of them and it will take a while.
>
>Are there any new diabetes type 1s here?
>Amber
Hello Amber,
I've just read through all of your responses. I apologize for not
responding until now, I only work 3 days a week and do not always
check the newsgroup on those days because they are 13 hour work days.
That said, welcome to the group.
I was diagnosed when I was 8 years old, like you right after a flu.
Unlike you I did not have very attentive parents and when I was
finally taken to the ER the doctors warned I had almost died from DKA,
I spent 3 months in the diabetic pediatric ward at the local hospital
recovering, learning how to inject
insulin and test urine for glucose
because we didn't have blood testing kits yet.
I see you are posting through google groups, not the best way to post
to newsgroups because you cannot filter out the people and spam posts
you do not want to see. But we can address that at a later time when
you get a little more comfortable with the newsgroups.
This newsgroup ASD is basically an unmoderated group and that has a
couple of drawbacks, some times the discussions get out of hand and
comments are not appropriate for all age groups, that is not always
intentional. Another draw back is that we can't always get rid of
trouble makers. RK mentioned one such individual and when you read
his posts you will see why she recommended ignoring any posts from
him.
Also it helps to look at ASD as a family, a sometimes dysfunctional
family, that bickers a lot. But a family none the less.
Http://www.alt-support-diabetes.org and
http://www.diabetic-talk.org
are the 2 web sites started by members of this group. Some of the
information over laps. As it will with diabetic web sites. There is
a photo gallery of regular posters and instructions on how to access
the groups chat room.
Some other web sites not yet mentioned in posts to you are
http://www.childrenwithdiabetes.com and
http://www.insulin-pumpers.org
.. The pumpers web site is an actually pumping forum where you can
interact directly with other type 1s, most will be using insulin
pumps. You can also interact with some trusted doctors and nurses who
post to the forum.
Currently you are awaiting diabetes education classes. Please attend
them when scheduled. Before you go, start writing down in a separate
note book any and all questions that come to mind. The medical staff
teaching the classes will help you get them answered.
I see you are using small set doses of
levemir (long acting insulin)
and
novolog (fast acting). This is because at this point 1. you are
most likely going through the "honeymoon" phase where your body is
still making insulin but slowly stopping over time. and 2. your diet
and exercise routines haven't been tailored to your needs yet. As
these two things get worked out your insulin doses will increase and
as your knowledge increases you will be able to adjust your insulin
doses on your own to allow you more freedom in what you can eat.
For example, I had an ice cream sandwich today. I eat them rarely but
they are not forbidden to type 1s. I simply took the correct amount
of novolog my body requires to cover that food. In time you will
learn how to do this yourself. Portion control will always be a part
of how we eat but we as type 1 don't really have any forbidden foods.
You mentioned that you do not want anyone at school to know that you
are diabetic. That's fine, none of us need to run down the halls at
school or at work telling everyone we meet that we are diabetic. That
serves no purpose. But there are a few personalities who would enjoy
the attention. But sometimes you will need to let people know. If
you plan to have control of your Blood Glucose (BG) then you will find
that testing and taking insulin at school and later at work will
become necessary. But no one says you have to do so in the hallway or
in the cafeteria or at your class room desk. The school won't even
allow that anyway. But the school is required, by law, to give you
access to a location where you can test and inject insulin when you
need to, and if necessary they are required to provide you a sharps
container to dispose of the testing supplies and the syringes. You
can't simply through them in the trash while at school. Most schools
will make this location the school clinic, even when the school nurse
is not in. You and your parents should make an appointment to see the
school nurse and work out a "flexible" schedule for you. If you
participate in school activities and sports then they make extra
arrangements such as allowing you to test/inject in the coaches
office, have a couple of minutes on the bus before loading or after
unloading to test/inject. Talking it over with your parents will give
you ideas of when you will need to ask for privacy to take care of
this. As a young woman, privacy does become a primary issue for you.
I went on several out of town trips with my schools. We went to DC
for a 3 day trip once and we went to St. Louise for a week long trip.
I went without my parents, but had the full support of the teachers
that went with us. I never had a problem with bringing my supplies,
testing BG and injecting insulin whenever I needed to. It actually
helped me make friends with a couple of the teachers I didn't know. I
did have to bring a letter from doctor and my parents explaining my
diabetes and which teachers had permission to help me in case of an
emergency involving my diabetes on top of the usual release form
giving the staff permission to take me to the hospital and sign for my
treatment in my parents absence. And a separate letter from my doctor
for my school records stating that in his opinion I was in good health
and in good control of my diabetes and was fully capable of taking
care of my diabetes myself.
We'll talk more about your legal rights verses school policies and
later when you have a job, company policies.
1 tool to help you get ready for your diabetes classes and to help you
with diet and adjusting insulin doses is a Carbohydrate (carb)
counting book. There are several on the market. I prefer the one put
out by
http://www.calorieking.com because you can buy it almost
anywhere, Barnes and noble, walmart, super K-mart etc. It literally
is pocket sized and will fit in your back pocket, purse etc. This is
from their web site but is completely accurate:
Is the most up-to-date book of food counts available
Contains unique food data that is not available elsewhere
Has 11,000 food listings
Includes 200 fast food chains and restaurants **(This is the big
seller for me because I do enjoy eating out at various places)**
Contains international foods, carnival foods and fair foods
Uses color coding to make it quick and easy to find what you’re
looking for
Is rated #1 by health professionals and consumers
Is used as a resource for numerous government studies on obesity
Is used by diabetes and other health educators
The web site sells the book for 8.00 plus shipping, but if you buy
from walmart or super K mart it will be marked down without shipping
so you save twice.
I paid less than 6.00 the last time I bought one. Plus you can use
the web site's tools as well.
That's a lot for now. No need to reply to every line or every post.
Simply quote the sections you want to comment on in your replies to
remind us of where we are in the conversation and make your comments
or ask your questions and the group and the individuals you are
addressing will answer you as best as we can.
Type 1 diabetes can by a pain in the tush at times. But it does not
have to prevent you from doing anything you want to do in life. Go to
google and do a search for "famous diabetics" and "diabetic athletes"
and you will see that diabetics come from every walk of life and
accomplish everything they want to. But it does take some effort at
times.
the following is a specific but partial troll warning list, these are
the people most recommended to be ignored because of their harmful and
misleading posts and frequently weird behavior:
known trolls and nut cases regularly harassing ASD: Ironjustice aka
the watch troll who thinks iron is the root cause of all illness, jai
maharaj aka jay stevens who pretends to be a psychic but is a troll
from the USA, rich murray who lies about aspartame being a poison in
order to promote the selling of stevia a banned plant based sweetener
and chung a known schizophrenic who did go to medical school but got
fired at his first job as a doctor and has been a troll ever since and
getting weirder by the day.
--
Mâck©® Deltec CoZmore Pumper
Type 1 since 1975
http://www.alt-support-diabetes.org http://www.diabetic-talk.org http://www.insulin-pumpers.org http://www.pandora.com enter "Jason & Demarco"
"To announce that there must be no criticism of the
President, or that we are to stand by the President
right or wrong, is not only unpatriotic and servile,
but is morally treasonable to the American public."
....Theodore Roosevelt
(o ô)
--ooO-(_)-Ooo--------------------
"I don't know half of you
half as well as I should like;
and I like less than half of you
half as well as you deserve."
....Bilbo Baggins
DISCLAIMER If you find a posting or message from me
offensive, inappropriate, or disruptive, please ignore it.
If you don't know how to ignore a posting, complain to
me and I will be only too happy to demonstrate...
..
Re: New diabetes type 1 