OT Totally 100% Sharing ;-)

I was just reading, and checking up on my blog. As I was checking out the
links, I thought you all might like to see the latest pictures I have of
Jim, Debbie, Ashton, and son Jimbo. I know I like to see faces of people
spoken of, plus the one with Jim gives you a bit of the mood of last weekend
with Ashley and the baby here. I especially like this picture because when
you view the large picture you can see the drop of drool on Ashton's chin.
I'm such a sucker for babies. lol

I know most people do not share openly like I do, but then most people are
not in the same position as I and my family are in, or are like us, well,
mainly me, who join in (and trust) the virtual family. But a virtual,
support group family has seen me through some really, really rough times in
the past ten years, and the odds are of that continuing. In fact, I found a
support group for prostate cancer, and it is very warm, and helpful to me,
as a wife. You all know Jim is not the most talkative in a group setting,
so I just barged right along, seeking whatever it might be that I needed,
having not a clue what it was that I needed. hahaha

Please do check out the new pictures, though, especially the one that has
Jim in it, even if it is just a side view, Precisely Tuesday
http://andlifegoesononedayonestepata...other-day.html
/
http://tinyurl.com/2of842 or the 1st entry after "Invisible mothers."



Ragdoll Billie on the Road to Remission
http://andlifegoesononedayonestepatatime.blogspot.com/
http://www.caringbridge.org/visit/billiewages

Striving for a world without Myasthenia Gravis
http://www.myasthenia.org/amg_whatismg.cfm

x-no-archive: yes

Billie wrote:
> I was just reading, and checking up on my blog. As I was checking out
> the links, I thought you all might like to see the latest pictures I
> have of Jim, Debbie, Ashton, and son Jimbo. I know I like to see faces
> of people spoken of, plus the one with Jim gives you a bit of the mood
> of last weekend with Ashley and the baby here. I especially like this
> picture because when you view the large picture you can see the drop of
> drool on Ashton's chin. I'm such a sucker for babies. lol
>
> I know most people do not share openly like I do, but then most people
> are not in the same position as I and my family are in, or are like us,
> well, mainly me, who join in (and trust) the virtual family. But a
> virtual, support group family has seen me through some really, really
> rough times in the past ten years, and the odds are of that continuing.
> In fact, I found a support group for prostate cancer, and it is very
> warm, and helpful to me, as a wife. You all know Jim is not the most
> talkative in a group setting, so I just barged right along, seeking
> whatever it might be that I needed, having not a clue what it was that I
> needed. hahaha
>
> Please do check out the new pictures, though, especially the one that
> has Jim in it, even if it is just a side view, Precisely Tuesday
> http://andlifegoesononedayonestepata...other-day.html


Billie, thanks so much for sharing your family pics and your thoughts
with us.

Loneliness and the stresses of dealing with a loved one's illness while
unable to do all you want to be able to do to help yourself and the
other has to be so very frustrating and scary.

It's a special gift of yours to be able to focus on the beauty to be
found in every day.

I wish you weren't being tested so very completely all the time, doll.

Susan

Billie wrote in message ...

>Please do check out the new pictures, though, especially the one that
has
>Jim in it, even if it is just a side view, Precisely Tuesday
>http://andlifegoesononedayonestepata...008/03/another
-day.html


Very nice Billie, and it goes to show that you're one of my favorite
people because my computer is old and take a long time to load urls,
but I do check your blog often. :-)

Cheri

Billie, they are lovely pics. I have all mine on Flickr and they aren't for
public viewing but if anyone here is interested in seeing my brood, please
email me at news_only@hotmail.com and I will send you a guest pass. I might
not get around to it until later as Jasmine needs a face x-ray this morning
after being hit by someone at school. With what I don't know but it pierced
her forehead (which required penicillin because of her heart problems) and
the doc wants to rule out a broken orbital bone.


"Billie" <someone@swbell.net> wrote in message
news:H7Uzj.61251$Pv2.43827@newssvr23.news.prodigy. net...
>I was just reading, and checking up on my blog. As I was checking out the
>links, I thought you all might like to see the latest pictures I have of
>Jim, Debbie, Ashton, and son Jimbo. I know I like to see faces of people
>spoken of, plus the one with Jim gives you a bit of the mood of last
>weekend with Ashley and the baby here. I especially like this picture
>because when you view the large picture you can see the drop of drool on
>Ashton's chin. I'm such a sucker for babies. lol
>
> I know most people do not share openly like I do, but then most people are
> not in the same position as I and my family are in, or are like us, well,
> mainly me, who join in (and trust) the virtual family. But a virtual,
> support group family has seen me through some really, really rough times
> in the past ten years, and the odds are of that continuing. In fact, I
> found a support group for prostate cancer, and it is very warm, and
> helpful to me, as a wife. You all know Jim is not the most talkative in a
> group setting, so I just barged right along, seeking whatever it might be
> that I needed, having not a clue what it was that I needed. hahaha
>
> Please do check out the new pictures, though, especially the one that has
> Jim in it, even if it is just a side view, Precisely Tuesday
> http://andlifegoesononedayonestepata...other-day.html /
> http://tinyurl.com/2of842 or the 1st entry after "Invisible mothers."
>
>
>
> Ragdoll Billie on the Road to Remission
> http://andlifegoesononedayonestepatatime.blogspot.com/
> http://www.caringbridge.org/visit/billiewages
>
> Striving for a world without Myasthenia Gravis
> http://www.myasthenia.org/amg_whatismg.cfm
>

On Mar 6, 2:52 pm, "Ozgirl" <are_we_there_...@maccas.com> wrote:
> Billie, they are lovely pics. I have all mine on Flickr and they aren't for
> public viewing but if anyone here is interested in seeing my brood, please
> email me at news_o...@hotmail.com and I will send you a guest pass. I might
> not get around to it until later as Jasmine needs a face x-ray this morning
> after being hit by someone at school. With what I don't know but it pierced
> her forehead (which required penicillin because of her heart problems) and
> the doc wants to rule out a broken orbital bone.
>
> "Billie" <some...@swbell.net> wrote in message
>
> news:H7Uzj.61251$Pv2.43827@newssvr23.news.prodigy. net...
>
> >I was just reading, and checking up on my blog. As I was checking out the
> >links, I thought you all might like to see the latest pictures I have of
> >Jim, Debbie, Ashton, and son Jimbo. I know I like to see faces of people
> >spoken of, plus the one with Jim gives you a bit of the mood of last
> >weekend with Ashley and the baby here. I especially like this picture
> >because when you view the large picture you can see the drop of drool on
> >Ashton's chin. I'm such a sucker for babies. lol
>
> > I know most people do not share openly like I do, but then most people are
> > not in the same position as I and my family are in, or are like us, well,
> > mainly me, who join in (and trust) the virtual family. But a virtual,
> > support group family has seen me through some really, really rough times
> > in the past ten years, and the odds are of that continuing. In fact, I
> > found a support group for prostate cancer, and it is very warm, and
> > helpful to me, as a wife. You all know Jim is not the most talkative in a
> > group setting, so I just barged right along, seeking whatever it might be
> > that I needed, having not a clue what it was that I needed. hahaha
>
> > Please do check out the new pictures, though, especially the one that has
> > Jim in it, even if it is just a side view, Precisely Tuesday
> >http://andlifegoesononedayonestepata...03/another.../
> >http://tinyurl.com/2of842 or the 1st entry after "Invisible mothers."
>
> > Ragdoll Billie on the Road to Remission
> >http://andlifegoesononedayonestepatatime.blogspot.com/
> >http://www.caringbridge.org/visit/billiewages
>
> > Striving for a world without Myasthenia Gravis
> >http://www.myasthenia.org/amg_whatismg.cfm

OH MY LORD!!

"Susan" <nevermind@nomail.com> wrote in message
news:63ak6sF26ikf7U1@mid.individual.net...
> x-no-archive: yes
>
> Billie wrote:
>> I was just reading, and checking up on my blog. As I was checking out
>> the links, I thought you all might like to see the latest pictures I have
>> of Jim, Debbie, Ashton, and son Jimbo. I know I like to see faces of
>> people spoken of, plus the one with Jim gives you a bit of the mood of
>> last weekend with Ashley and the baby here. I especially like this
>> picture because when you view the large picture you can see the drop of
>> drool on Ashton's chin. I'm such a sucker for babies. lol
>>
>> I know most people do not share openly like I do, but then most people
>> are not in the same position as I and my family are in, or are like us,
>> well, mainly me, who join in (and trust) the virtual family. But a
>> virtual, support group family has seen me through some really, really
>> rough times in the past ten years, and the odds are of that continuing.
>> In fact, I found a support group for prostate cancer, and it is very
>> warm, and helpful to me, as a wife. You all know Jim is not the most
>> talkative in a group setting, so I just barged right along, seeking
>> whatever it might be that I needed, having not a clue what it was that I
>> needed. hahaha
>>
>> Please do check out the new pictures, though, especially the one that has
>> Jim in it, even if it is just a side view, Precisely Tuesday
>> http://andlifegoesononedayonestepata...other-day.html
>
>
> Billie, thanks so much for sharing your family pics and your thoughts with
> us.
>
> Loneliness and the stresses of dealing with a loved one's illness while
> unable to do all you want to be able to do to help yourself and the other
> has to be so very frustrating and scary.
>
> It's a special gift of yours to be able to focus on the beauty to be found
> in every day.
>
> I wish you weren't being tested so very completely all the time, doll.
>
> Susan


LOL I was telling Jim about what I told Cheri in another thread about not
being able to be there for the last step, the last hand hold, the last kiss.
Slurp! And I couldn't remember exactly what I said, and I told him "Puke!"
and he burst out laughing!

I will probably be sharing more of my thoughts here between now and the
19th, that I do not want to put in my blog because there are some things I
do not especially want my kids to read, know, etc. In addition to coping
with their own feelings, they have the awesome task of also seeing after mom
and dad. My dil got to work today (surgical nurse) and found out she has
from the 19th to the 27th off from work. They were excited about that, both
by being able to be free to help out so freely, and also to be give me peace
of mind of him being taken care of.

Everyone is coming up to the plate to bat. I just have to really work on
myself about my feelings about not coming home from the hospital. I usually
am upbeat upon release, so I will just wait and cross that bridge at that
time, and remind myself I do not borrow trouble from tomorrow. Still,
though, I am human. *s*

Thank you for the sweet comment.

If I had my choice, I'd prefer not to be tested so frequently and
completely, too, but I have to look at it as to what God wants me to get
from the situation, and not "why me again."

Thanks, Susan


Ragdoll Billie on the Road to Remission
http://andlifegoesononedayonestepatatime.blogspot.com/
http://www.caringbridge.org/visit/billiewages

Striving for a world without Myasthenia Gravis
http://www.myasthenia.org/amg_whatismg.cfm

On Fri, 7 Mar 2008 07:52:32 +1100, "Ozgirl"
<are_we_there_yet@maccas.com> wrote:

>I might
>not get around to it until later as Jasmine needs a face x-ray this morning
>after being hit by someone at school. With what I don't know but it pierced
>her forehead (which required penicillin because of her heart problems) and
>the doc wants to rule out a broken orbital bone.

Ow! Hope it's nothing, Jan...

>> Please do check out the new pictures, though, especially the one that has
>> Jim in it, even if it is just a side view, Precisely Tuesday
>> http://andlifegoesononedayonestepata...other-day.html /
>> http://tinyurl.com/2of842 or the 1st entry after "Invisible mothers."

Cool Thanks, Billie...

Nicky.
T2 dx 05/04 + underactive thyroid
D&E, 100ug thyroxine
Last A1c 5.6% BMI 25

"Ozgirl" <are_we_there_yet@maccas.com> wrote in message
news:13t0m8om8lu12b2@news.supernews.com...
> Billie, they are lovely pics. I have all mine on Flickr and they aren't
> for public viewing but if anyone here is interested in seeing my brood,
> please email me at news_only@hotmail.com and I will send you a guest pass.
> I might not get around to it until later as Jasmine needs a face x-ray
> this morning after being hit by someone at school. With what I don't know
> but it pierced her forehead (which required penicillin because of her
> heart problems) and the doc wants to rule out a broken orbital bone.

Jeez Jan that is rough ... hope Jasmine is OK

best to the both of you

Paul

"Billie" <someone@swbell.net> wrote in message
news:H7Uzj.61251$Pv2.43827@newssvr23.news.prodigy. net...
>I was just reading, and checking up on my blog. As I was checking out the
>links, I thought you all might like to see the latest pictures I have of
>Jim, Debbie, Ashton, and son Jimbo. I know I like to see faces of people
>spoken of, plus the one with Jim gives you a bit of the mood of last
>weekend with Ashley and the baby here. I especially like this picture
>because when you view the large picture you can see the drop of drool on
>Ashton's chin. I'm such a sucker for babies. lol
>
> I know most people do not share openly like I do, but then most people are
> not in the same position as I and my family are in, or are like us, well,
> mainly me, who join in (and trust) the virtual family. But a virtual,
> support group family has seen me through some really, really rough times
> in the past ten years, and the odds are of that continuing. In fact, I
> found a support group for prostate cancer, and it is very warm, and
> helpful to me, as a wife. You all know Jim is not the most talkative in a
> group setting, so I just barged right along, seeking whatever it might be
> that I needed, having not a clue what it was that I needed. hahaha
>
> Please do check out the new pictures, though, especially the one that has
> Jim in it, even if it is just a side view, Precisely Tuesday
> http://andlifegoesononedayonestepata...other-day.html /
> http://tinyurl.com/2of842 or the 1st entry after "Invisible mothers."

Hi Billie ... thanks for sharing the pictures. I continue
to admire your spirit as well as Jim's.

best wishes to you and your family.

including the cats of course ... I know cats
can be a little sensitive ... tell them they were
not merely "included" in my best wishes ... tell them
they were singled out :-")

cheers

Paul

"Ozgirl" <are_we_there_yet@maccas.com> wrote in message

I might
> not get around to it until later as Jasmine needs a face x-ray this
> morning after being hit by someone at school. With what I don't know but
> it pierced her forehead (which required penicillin because of her heart
> problems) and the doc wants to rule out a broken orbital bone.

Jasmine's face is ok, they ended up doing a CT scan, 3 attempts before she
lay still enough. Seems like the attack was "territorial". She was sitting
at a table in the school grounds, the table was one another girl has claimed
as her own. The kid who did it had nothing in her hands but the injuries as
well as the pierced forehead aren't really consistent with just using a
hand.

We will never know, neither child is capable of saying what happened and the
staff were dealing with another incident at the time. Bottom line is she is
ok and that's the main thing. Jasmine is territorial as well and no way she
would voluntarily give up sitting at a table without a fight

Ozgirl wrote:
> "Ozgirl" <are_we_there_yet@maccas.com> wrote in message
>
> I might
>> not get around to it until later as Jasmine needs a face x-ray this
>> morning after being hit by someone at school. With what I don't know but
>> it pierced her forehead (which required penicillin because of her heart
>> problems) and the doc wants to rule out a broken orbital bone.
>
> Jasmine's face is ok, they ended up doing a CT scan, 3 attempts before she
> lay still enough. Seems like the attack was "territorial". She was sitting
> at a table in the school grounds, the table was one another girl has claimed
> as her own. The kid who did it had nothing in her hands but the injuries as
> well as the pierced forehead aren't really consistent with just using a
> hand.
>
> We will never know, neither child is capable of saying what happened and the
> staff were dealing with another incident at the time. Bottom line is she is
> ok and that's the main thing. Jasmine is territorial as well and no way she
> would voluntarily give up sitting at a table without a fight
>
>
good to hear that Jasmine is alright! whew!

kate

Ozgirl wrote in message <13t1hg89i9706be@news.supernews.com>...

>We will never know, neither child is capable of saying what happened
and the
>staff were dealing with another incident at the time. Bottom line is
she is
>ok and that's the main thing. Jasmine is territorial as well and no
way she
>would voluntarily give up sitting at a table without a fight


Great news that she's OK Jan. :-)

Cheri

On Thu, 6 Mar 2008 09:31:28 -0600, "Billie" <someone@swbell.net>
wrote:

>I was just reading, and checking up on my blog. As I was checking out the
>links, I thought you all might like to see the latest pictures I have of
>Jim, Debbie, Ashton, and son Jimbo. I know I like to see faces of people
>spoken of, plus the one with Jim gives you a bit of the mood of last weekend
>with Ashley and the baby here. I especially like this picture because when
>you view the large picture you can see the drop of drool on Ashton's chin.
>I'm such a sucker for babies. lol
>
>I know most people do not share openly like I do, but then most people are
>not in the same position as I and my family are in, or are like us, well,
>mainly me, who join in (and trust) the virtual family. But a virtual,
>support group family has seen me through some really, really rough times in
>the past ten years, and the odds are of that continuing. In fact, I found a
>support group for prostate cancer, and it is very warm, and helpful to me,
>as a wife. You all know Jim is not the most talkative in a group setting,
>so I just barged right along, seeking whatever it might be that I needed,
>having not a clue what it was that I needed. hahaha
>
>Please do check out the new pictures, though, especially the one that has
>Jim in it, even if it is just a side view, Precisely Tuesday
>http://andlifegoesononedayonestepata...other-day.html
>/
> http://tinyurl.com/2of842 or the 1st entry after "Invisible mothers."
>

Just thought I'd give you a wave, while I was reading through
back-issues of asd I was following your story.

You really are an inspiration (though I bet you'd prefer not to be
<G>)

On Fri, 7 Mar 2008 15:37:19 +1100, "Ozgirl"
<are_we_there_yet@maccas.com> wrote:

>
>"Ozgirl" <are_we_there_yet@maccas.com> wrote in message
>
>I might
>> not get around to it until later as Jasmine needs a face x-ray this
>> morning after being hit by someone at school. With what I don't know but
>> it pierced her forehead (which required penicillin because of her heart
>> problems) and the doc wants to rule out a broken orbital bone.
>
>Jasmine's face is ok, they ended up doing a CT scan, 3 attempts before she
>lay still enough. Seems like the attack was "territorial". She was sitting
>at a table in the school grounds, the table was one another girl has claimed
>as her own. The kid who did it had nothing in her hands but the injuries as
>well as the pierced forehead aren't really consistent with just using a
>hand.

Yeeesh!

Memories of seeing one of the other kids at school running round in a
panic with a pair of compasses sticking out of his head . . .

"Trinkwasser" <spam@devnull.com.invalid> wrote in message
news:joa3t3trnd9knm7tk1tb91b2ufk8tu2g7m@4ax.com...
> On Thu, 6 Mar 2008 09:31:28 -0600, "Billie" <someone@swbell.net>
> wrote:
>
>>I was just reading, and checking up on my blog. As I was checking out the
>>links, I thought you all might like to see the latest pictures I have of
>>Jim, Debbie, Ashton, and son Jimbo. I know I like to see faces of people
>>spoken of, plus the one with Jim gives you a bit of the mood of last
>>weekend
>>with Ashley and the baby here. I especially like this picture because
>>when
>>you view the large picture you can see the drop of drool on Ashton's chin.
>>I'm such a sucker for babies. lol
>>
>>I know most people do not share openly like I do, but then most people are
>>not in the same position as I and my family are in, or are like us, well,
>>mainly me, who join in (and trust) the virtual family. But a virtual,
>>support group family has seen me through some really, really rough times
>>in
>>the past ten years, and the odds are of that continuing. In fact, I found
>>a
>>support group for prostate cancer, and it is very warm, and helpful to me,
>>as a wife. You all know Jim is not the most talkative in a group setting,
>>so I just barged right along, seeking whatever it might be that I needed,
>>having not a clue what it was that I needed. hahaha
>>
>>Please do check out the new pictures, though, especially the one that has
>>Jim in it, even if it is just a side view, Precisely Tuesday
>>http://andlifegoesononedayonestepata...other-day.html
>>/
>> http://tinyurl.com/2of842 or the 1st entry after "Invisible mothers."
>>
>
> Just thought I'd give you a wave, while I was reading through
> back-issues of asd I was following your story.
>
> You really are an inspiration (though I bet you'd prefer not to be
> <G>)


Waving back at you Trinkwasser (is that your name, or what?).
Thanks for the kind words, and you are sooo right, but we have to go with
the cards we are dealt with. No need trying to buck against them. They'll
win every time. It's better to try - and I do emphasize *try* - to keep an
upper hand on them, diabetes being one of them.

Ragdoll Billie on the Road to Remission
http://andlifegoesononedayonestepatatime.blogspot.com/
http://www.caringbridge.org/visit/billiewages

Striving for a world without Myasthenia Gravis
http://www.myasthenia.org/amg_whatismg.cfm

"Trinkwasser" <spam@devnull.com.invalid> wrote in message
news:tua3t3hmgaquli9acre4f0d5ealgem61t2@4ax.com...
> On Fri, 7 Mar 2008 15:37:19 +1100, "Ozgirl"
> <are_we_there_yet@maccas.com> wrote:
>
>>
>>"Ozgirl" <are_we_there_yet@maccas.com> wrote in message
>>
>>I might
>>> not get around to it until later as Jasmine needs a face x-ray this
>>> morning after being hit by someone at school. With what I don't know but
>>> it pierced her forehead (which required penicillin because of her heart
>>> problems) and the doc wants to rule out a broken orbital bone.
>>
>>Jasmine's face is ok, they ended up doing a CT scan, 3 attempts before she
>>lay still enough. Seems like the attack was "territorial". She was sitting
>>at a table in the school grounds, the table was one another girl has
>>claimed
>>as her own. The kid who did it had nothing in her hands but the injuries
>>as
>>well as the pierced forehead aren't really consistent with just using a
>>hand.
>
> Yeeesh!
>
> Memories of seeing one of the other kids at school running round in a
> panic with a pair of compasses sticking out of his head . . .

lol I don't think they use compasses in special ed schools - thank God!

"Paul L" <kbtrans@qwest.net> wrote in message
news:itydnW4evaIM6E3anZ2dnUVZ_t6onZ2d@comcast.com. ..
>
> "Billie" <someone@swbell.net> wrote in message
> news:H7Uzj.61251$Pv2.43827@newssvr23.news.prodigy. net...
> Hi Billie ... thanks for sharing the pictures. I continue
> to admire your spirit as well as Jim's.
>
> best wishes to you and your family.
>
> including the cats of course ... I know cats
> can be a little sensitive ... tell them they were
> not merely "included" in my best wishes ... tell them
> they were singled out :-")
>
> cheers
>
> Paul
>

Oh, Paul, they really appreciated it, too. We talked about it this morning
during "our time." They said you must be a very nice man to think of them.
They send their warmest regards. Missie is going through some kind of
changes right now, and picking up some new personality traits she's never
shown in her 5.5 years. I'd tell you about them, but you and everyone else
would think we have gone off the deep end, and be sending the men in the
white coats after Jim and me. They really do gather round us every morning
during "our time" together. They are such cuties. Billie



Ragdoll Billie on the Road to Remission
http://andlifegoesononedayonestepatatime.blogspot.com/
http://www.caringbridge.org/visit/billiewages

Striving for a world without Myasthenia Gravis
http://www.myasthenia.org/amg_whatismg.cfm

On Fri, 7 Mar 2008 16:15:13 -0600, "Billie" <someone@swbell.net>
wrote:

>Waving back at you Trinkwasser (is that your name, or what?).

I'm very leary about using my real name or address on usenet, too damn
many spammers and nut jobs, I use different names and identities in
different groups, that way the archives can hold whatever I write but
(hopefully) it can't all be mined and used against me in the Real
World (I don't particularly fear governments, more the marketers)

The name comes from a joke character my late father invented many many
years ago - he was a great fan of the Goon Show, Henry Crun, Minnie
Bannister, Eccles and all

>Thanks for the kind words, and you are sooo right, but we have to go with
>the cards we are dealt with. No need trying to buck against them. They'll
>win every time. It's better to try - and I do emphasize *try* - to keep an
>upper hand on them, diabetes being one of them.

One place I worked there was someone with a degenerative disease which
may have been MG, I can't remember now except that it wasn't MS.

He was a real pain in the arse, used to spend his time poking his nose
into other people's jobs and half doing things, instead of
concentrating on his *own" job - then whine and complain about people
"picking on him" if they didn't let him get away with everything.

This was quite explicable when one of my older colleagues pointed out
he'd worked there before, long ago before he was ill - and was a total
arrogant pain then also <G>

You, my dear, are the exact opposite!

Best

"Trinkwasser" <spam@devnull.com.invalid> wrote in message
news:v098t31vf7tj351c955jacah2n3ecv7ffq@4ax.com...
> On Fri, 7 Mar 2008 16:15:13 -0600, "Billie" <someone@swbell.net>
> wrote:
>
>>Waving back at you Trinkwasser (is that your name, or what?).
>
> I'm very leary about using my real name or address on usenet, too damn
> many spammers and nut jobs, I use different names and identities in
> different groups, that way the archives can hold whatever I write but
> (hopefully) it can't all be mined and used against me in the Real
> World (I don't particularly fear governments, more the marketers)
>
> The name comes from a joke character my late father invented many many
> years ago - he was a great fan of the Goon Show, Henry Crun, Minnie
> Bannister, Eccles and all
>
>>Thanks for the kind words, and you are sooo right, but we have to go with
>>the cards we are dealt with. No need trying to buck against them.
>>They'll
>>win every time. It's better to try - and I do emphasize *try* - to keep
>>an
>>upper hand on them, diabetes being one of them.
>
> One place I worked there was someone with a degenerative disease which
> may have been MG, I can't remember now except that it wasn't MS.
>
> He was a real pain in the arse, used to spend his time poking his nose
> into other people's jobs and half doing things, instead of
> concentrating on his *own" job - then whine and complain about people
> "picking on him" if they didn't let him get away with everything.
>
> This was quite explicable when one of my older colleagues pointed out
> he'd worked there before, long ago before he was ill - and was a total
> arrogant pain then also <G>
>
> You, my dear, are the exact opposite!
>
> Best


Trinkwasser, I apologize profusely for it taking so long to reply to you, as
I am just now finding this even if I did have the thread highlighted. I'm
soooo good at losing things, even just lying in bed all the time, I can lose
more than you'd ever imagine! lol

With owning my own domains and big in Web Ring from the mid 90's and onward,
I never thought about using anything else. Figured if anyone wanted me, I
was easy enough to find. The only thing ever to come to my home has been
domain connected, and it was because I was due to renew some. I lost my
ability to keep them going since getting worse, but am keeping them current
for the day I get better from this disease, and whatever else is wrong with
me. It is not ALL myasthenia, and I've got a big hill before me.

Thank you for the kind words.


Ragdoll Billie on the Road to Remission
http://andlifegoesononedayonestepatatime.blogspot.com/
http://www.caringbridge.org/visit/billiewages

Striving for a world without Myasthenia Gravis
http://www.myasthenia.org/amg_whatismg.cfm

On Thu, 13 Mar 2008 14:34:49 -0500, "Billie" <someone@swbell.net>
wrote:

>
>Trinkwasser, I apologize profusely for it taking so long to reply to you, as
>I am just now finding this even if I did have the thread highlighted. I'm
>soooo good at losing things, even just lying in bed all the time, I can lose
>more than you'd ever imagine! lol

Entirely NO need for apologies. The other day I could remember every
PIN number I'd ever had, except for the current one. I had to go into
the bank and take money out over the counter.

Then as I was going out the door I remembered the right number. And
I'm supposedly fit healthy and sane (for certain values of the above)
so I'd be entirely surprised if you *didn't* lose things <G>


>With owning my own domains and big in Web Ring from the mid 90's and onward,
>I never thought about using anything else. Figured if anyone wanted me, I
>was easy enough to find. The only thing ever to come to my home has been
>domain connected, and it was because I was due to renew some. I lost my
>ability to keep them going since getting worse, but am keeping them current
>for the day I get better from this disease, and whatever else is wrong with
>me. It is not ALL myasthenia, and I've got a big hill before me.
>
>Thank you for the kind words.

I've trialled all kinds of things over the years, now I use different
usernames on one of my domains so I can [a] sort the mail as it comes
in and [b] see which name has escaped.

The main spam-collecting account gets hundreds a week and virtually no
genuine mails, usually I just download the headers, sort them by
username and delete off the server everything except what I want to
download, this works about as well as any auntomated system I've yet
used.

If I don't get to write to you again here's hoping all goes well with
your upcoming hospital visits.

My uncle was wheelchair-bound for about 20 years (nothing to do with
diabetes or any other disease, he lost an argument with the ground
just after his horse lost an argument with a hedge) they used to have
a nurse come in daily to help out with stuff that his wife couldn't
handle on her own, and he had various cranes and hoists to get him in
and out of his chair, bed, shower, etc. Could you get someone to help
out at home like that until you're both fit enough to cope again? Made
a great difference in terms of quality of life.

Much luck to you both!