ARGHHHHHHH!!

I have had it!!

How many of you out there have thinning hair? Right in the front? That
you can see through in the light? Please someone say they have this
problem, too! Is it menopause, heredity, bad luck, what????

When I was young I had hair so thick that I didn't get it cut I got it
thinned! Both of my parents had thick hair when they died. (My mother
took Premarin until right before she died) I am thinking that if she
had been hormone free she might have had thinning hair as well. I
mean, I have to get this from some place! Why me? I hate it.

If any of you have this problem what do you do about it? Does it
bother you? I see women in the stores all the time with hardly any
hair on their entire heads....scary....right now mine is just right in
the front.

<pout>


Dana is not happy.
Do not meddle in the affairs of dragons,
for you are crunchy and taste good with ketchup.

Dana© wrote:
> I have had it!!
>
> How many of you out there have thinning hair? Right in the front? That
> you can see through in the light? Please someone say they have this
> problem, too! Is it menopause, heredity, bad luck, what????
>
> When I was young I had hair so thick that I didn't get it cut I got it
> thinned! Both of my parents had thick hair when they died. (My mother
> took Premarin until right before she died) I am thinking that if she
> had been hormone free she might have had thinning hair as well. I
> mean, I have to get this from some place! Why me? I hate it.
>
> If any of you have this problem what do you do about it? Does it
> bother you? I see women in the stores all the time with hardly any
> hair on their entire heads....scary....right now mine is just right in
> the front.
>
> <pout>


Kinda have the same problem ... but mine occurred in the years
leading up to a hypothyroid diagnosis - and i believe it's one
of the symptoms of hypothyroid. I do know that it stopped when
i began thyroid meds ... but in my case i hate to report that it
did not reverse, just stopped progressing. Then again i never
had very thick hair to begin with, so i'm obviously a different case!

Are you on thyroid or have you had it checked??






>
>
> Dana is not happy.
> Do not meddle in the affairs of dragons,
> for you are crunchy and taste good with ketchup.


--
pax,
ruth


Save trees AND money! Buy used books!
http://stores.ebay.com/Noir-and-More-Books-and-Trains

On Wed, 07 Mar 2007 09:50:18 -0500, nickelshrink
<nickelshrink@yahoo.com> wrote:

>Are you on thyroid or have you had it checked??


No, and I don't know. I am going to see my endo later this month and I
am going to ask him if that test was included in my last blood workup.
My hair has been thinning for a while, but it seems to have really
started thinning in the last few months.


Dana
Do not meddle in the affairs of dragons,
for you are crunchy and taste good with ketchup.

Dana© wrote:
> I have had it!!
>
> How many of you out there have thinning hair? Right in the front? That
> you can see through in the light? Please someone say they have this
> problem, too! Is it menopause, heredity, bad luck, what????

Yup, my hair has gotten quite thin. It's very fine, but until a
few years ago it was plentiful.

My first significant loss was over six years ago, about a month
or two after major surgery. It started coming out in handfuls,
or so it seemed. I also had a major skin peel at the time, with
skin coming off in huge flakes, almost as if I'd been sunburned.
The skin returned to normal, but the hair didn't grow back, and
it continues to get thinner, and yes, you can see through to my
scalp in bright light.

The same thing happened to my mom, at about the same age,
following surgery. Her hair continued to thin, too. She hated
it, tried wearing a wig but never felt comfortable with it, either.

What am I doing? Not much. I keep it short, about 2-3" on top.
Much longer, and the scalp actually shows more. I joke that
if it gets too bad, I'll just shave it off. I haven't gotten to
that point yet, but someday I just might. Me and Jean Luc....
One thing I notice is that hair loss is more noticeable in women
with dark or dyed-dark hair, so I just leave mine at the
near-white it has become.

I refuse to let it bother me as much as my mother's hair loss
bothered her. Whatever I do, it will not be a female equivalent
of a comb-over!

FurPaw

> When I was young I had hair so thick that I didn't get it cut I got it
> thinned! Both of my parents had thick hair when they died. (My mother
> took Premarin until right before she died) I am thinking that if she
> had been hormone free she might have had thinning hair as well. I
> mean, I have to get this from some place! Why me? I hate it.
>
> If any of you have this problem what do you do about it? Does it
> bother you? I see women in the stores all the time with hardly any
> hair on their entire heads....scary....right now mine is just right in
> the front.
>
> <pout>
>
>
> Dana is not happy.
> Do not meddle in the affairs of dragons,
> for you are crunchy and taste good with ketchup.


--
My family values don't involve depleted uranium.

To reply, unleash the dog.

"Dana©" <AneeBear@ownmail.com> wrote in message
news:h0jtu296gjqepr934i0q5h2q2544565g0a@4ax.com...
>I have had it!!
>
> How many of you out there have thinning hair? Right in the front?
> That
> you can see through in the light? Please someone say they have this
> problem, too! Is it menopause, heredity, bad luck, what????

Yes.

My guess is a combination of all of the above.

>
> When I was young I had hair so thick that I didn't get it cut I got
> it
> thinned! Both of my parents had thick hair when they died. (My
> mother
> took Premarin until right before she died) I am thinking that if she
> had been hormone free she might have had thinning hair as well. I
> mean, I have to get this from some place! Why me? I hate it.

I hate it too.

Mine started thining when I was dx hypERthyroid (Graves Disease) and
the antithyroid meds I took seemed to make it worse. I've been
euthyroid and off meds for about 5 years (couldn't say for sure
without wading through reams of paperwork) and even though it's not
falling out in handfuls anymore it hasn't thickened up either. :-(

Unlike Furry I have found mine is less noticable just after I have
dyed it (possibly because my scalp gets dyed too) and more noticable
when I have white roots showing. Now if only I could find a permanent
marker pen in just the right shade of golden brown.........! :-)

>
> If any of you have this problem what do you do about it? Does it
> bother you? I see women in the stores all the time with hardly any
> hair on their entire heads....scary....right now mine is just right
> in
> the front.
>
> <pout>

Yes it bothers me and yes it scares me that it may progress.

The only plus factor is that it only takes a fraction of the time it
used to to dry my hair now....small consolation I know but you have to
take those silver linings when and where you can find them.


--
Shirley
http://community.webshots.com/user/shirleycatuk


>
>
> Dana is not happy.
> Do not meddle in the affairs of dragons,
> for you are crunchy and taste good with ketchup.

Dana© <AneeBear@ownmail.com> wrote in
news:97ltu250s9it8d1d58b0qpfnoi4ua8po6v@4ax.com:

> On Wed, 07 Mar 2007 09:50:18 -0500, nickelshrink
> <nickelshrink@yahoo.com> wrote:
>
>>Are you on thyroid or have you had it checked??
>
>
> No, and I don't know. I am going to see my endo later this month and I
> am going to ask him if that test was included in my last blood workup.
> My hair has been thinning for a while, but it seems to have really
> started thinning in the last few months.
>
>
> Dana
> Do not meddle in the affairs of dragons,
> for you are crunchy and taste good with ketchup.

Mine's fairly thin, too, which I notice more when I use more conditioner
- it seems to make things worse. Lately I've been using Sunsilk Anti-
Flat, (both shampoo and occasionally conditioner) and it looks better.

If your loss seems to be accelerating, you probably should have the
thyroid checked.

Chak

--
No tyranny is so irksome as petty tyranny: the officious demands of
policemen, government clerks, and electromechanical gadgets.
--Edward Abbey

On Wed, 07 Mar 2007 18:39:11 GMT, Chakolate
<chakolateDeathToSpammers@gmail.com> wrote:

> Lately I've been using Sunsilk Anti-
>Flat, (both shampoo and occasionally conditioner) and it looks better.
>

I have been using that new Selsun Blue shampoo in the hair thickening
type and it helps alot. But, I have these Hollywood lights in my
bathroom over the sink and when I dry my hair, brush my teeth, etc it
seems to make my scalp shine. It's getting so bright lately I may
start wearing shades.

>If your loss seems to be accelerating, you probably should have the
>thyroid checked.

Indeed. I am going to do that next doc visit.


Dana

Do not meddle in the affairs of dragons,
for you are crunchy and taste good with ketchup.

On Wed, 07 Mar 2007 16:29:12 GMT, "Shirley" <shirleycatuk@google.com>
wrote:

>Unlike Furry I have found mine is less noticable just after I have
>dyed it (possibly because my scalp gets dyed too) and more noticable
>when I have white roots showing. Now if only I could find a permanent
>marker pen in just the right shade of golden brown.........! :-)

I dyed my hair for 40 years....I was dark auburn, actually Sparkling
Sherry from Clairol. I don't know if they even make that shade
anymore. Anyway, my hair is so gray now I don't have the energy to
cope with the touch ups.

And they do make a scalp spray the color of your hair to cover up the
shining through.


Dana
Do not meddle in the affairs of dragons,
for you are crunchy and taste good with ketchup.

On Wed, 07 Mar 2007 08:12:44 -0700, FurPaw <furrealpawdog@gmail.com>
wrote:

>I refuse to let it bother me as much as my mother's hair loss
>bothered her. Whatever I do, it will not be a female equivalent
>of a comb-over!


I have not let it bother me until yesterday....and, well, it bothered
me. I don't want to do a comb-over....ala Donald Trump. Wouldn't that
be cute?

I will admit to looking into Rogaine and some of those spray on things
that add volume to your hair or color your scalp the same color as
your hair....makes your scalp disappear. Hmmm....I wonder if that
works. I know.....color my gray hair pink,er ...I mean strawberry
blonde! LOL.

Dana
Do not meddle in the affairs of dragons,
for you are crunchy and taste good with ketchup.

On Wed, 07 Mar 2007 09:36:09 -0500, Dana© <AneeBear@ownmail.com>
wrote:

>I have had it!!
>
>How many of you out there have thinning hair? Right in the front? That
>you can see through in the light? Please someone say they have this
>problem, too! Is it menopause, heredity, bad luck, what????
>
Me too, but mine's hereditary. My father had a receding hairline that
started in his early twenties, all three of my sons have receding
hairlines. Mine isn't nearly as bad as theirs, thank goodness for
being a female.

This is well down on my list of worries, but it's one more reason that
I am not tempted to colour my greying hair.

Kathryn

>When I was young I had hair so thick that I didn't get it cut I got it
>thinned! Both of my parents had thick hair when they died. (My mother
>took Premarin until right before she died) I am thinking that if she
>had been hormone free she might have had thinning hair as well. I
>mean, I have to get this from some place! Why me? I hate it.
>
>If any of you have this problem what do you do about it? Does it
>bother you? I see women in the stores all the time with hardly any
>hair on their entire heads....scary....right now mine is just right in
>the front.
>
> <pout>
>
>
>Dana is not happy.
>Do not meddle in the affairs of dragons,
>for you are crunchy and taste good with ketchup.

"Dana©" <AneeBear@ownmail.com> wrote in message
news:h0jtu296gjqepr934i0q5h2q2544565g0a@4ax.com...
> I have had it!!
>
> How many of you out there have thinning hair? Right in the front? That
> you can see through in the light? Please someone say they have this
> problem, too! Is it menopause, heredity, bad luck, what????
----------------
Taxotere. (Chemo drug.) Only about 60% of my hair has grown back in the 2
years and 4 months since I finished taking it. I know how you feel, and
more.

Eva

On Mar 7, 9:36 am, Dana© <AneeB...@ownmail.com> wrote:
> I have had it!!
>
> How many of you out there have thinning hair? Right in the front? That
> you can see through in the light? Please someone say they have this
> problem, too! Is it menopause, heredity, bad luck, what????
>
> When I was young I had hair so thick that I didn't get it cut I got it
> thinned! Both of my parents had thick hair when they died. (My mother
> took Premarin until right before she died) I am thinking that if she
> had been hormone free she might have had thinning hair as well. I
> mean, I have to get this from some place! Why me? I hate it.
>
> If any of you have this problem what do you do about it? Does it
> bother you? I see women in the stores all the time with hardly any
> hair on their entire heads....scary....right now mine is just right in
> the front.
>
> <pout>

A friend's hair is like that - it's *much* thinner than when she was
younger & can see through to her scalp, but I think hers may be
herditary; her mother's hair was quite similar when she was in middle
age.

My hair is receding at my temples; & again, my mother's did, too.
Don't know if it just happens at a certain age, if it's related to
menopause, or if it's a combo (kick-strarted by meno, but would
eventually happen anyway sort of thing). OTOH, my hair grows quite
low down on the nape of my neck, which is a PITA when it's cut short -
sticks out funny; I've told my hairdresser that I wish I could just
move that nape hair up to my temples!

Cathy


>
> Dana is not happy.
> Do not meddle in the affairs of dragons,
> for you are crunchy and taste good with ketchup.

There was a time I looked like a Chemo patient and like you I always had
thick hair..and my twin brother isn't thinning at all. Mine was caused by an
Adrenal tumor. Since it has been removed my hair has come back but it is
pretty thin and fine now.
jacquie
"Dana©" <AneeBear@ownmail.com> wrote in message
news:h0jtu296gjqepr934i0q5h2q2544565g0a@4ax.com...
>I have had it!!
>
> How many of you out there have thinning hair? Right in the front? That
> you can see through in the light? Please someone say they have this
> problem, too! Is it menopause, heredity, bad luck, what????
>
> When I was young I had hair so thick that I didn't get it cut I got it
> thinned! Both of my parents had thick hair when they died. (My mother
> took Premarin until right before she died) I am thinking that if she
> had been hormone free she might have had thinning hair as well. I
> mean, I have to get this from some place! Why me? I hate it.
>
> If any of you have this problem what do you do about it? Does it
> bother you? I see women in the stores all the time with hardly any
> hair on their entire heads....scary....right now mine is just right in
> the front.
>
> <pout>
>
>
> Dana is not happy.
> Do not meddle in the affairs of dragons,
> for you are crunchy and taste good with ketchup.

Dana© <AneeBear@ownmail.com> wrote:

> On Wed, 07 Mar 2007 16:29:12 GMT, "Shirley" <shirleycatuk@google.com>
> wrote:
>
> >Unlike Furry I have found mine is less noticable just after I have
> >dyed it (possibly because my scalp gets dyed too) and more noticable
> >when I have white roots showing. Now if only I could find a permanent
> >marker pen in just the right shade of golden brown.........! :-)
>
> I dyed my hair for 40 years....I was dark auburn, actually Sparkling
> Sherry from Clairol. I don't know if they even make that shade
> anymore. Anyway, my hair is so gray now I don't have the energy to
> cope with the touch ups.
>

I have a bright white streak in my hair, right in the front, so dying
doesn't work real well unless I want to do it every two weeks. So I
just decided to consider my white streak cool. :-)

My hair is still really thick though. So far.

In article <1173318578.844774.103250@v33g2000cwv.googlegroups .com>,
clfr@adelphia.net wrote:

> On Mar 7, 9:36 am, Dana© <AneeB...@ownmail.com> wrote:
> > I have had it!!
> >
> > How many of you out there have thinning hair? Right in the front? That
> > you can see through in the light? Please someone say they have this
> > problem, too! Is it menopause, heredity, bad luck, what????
> >
> > When I was young I had hair so thick that I didn't get it cut I got it
> > thinned! Both of my parents had thick hair when they died. (My mother
> > took Premarin until right before she died) I am thinking that if she
> > had been hormone free she might have had thinning hair as well. I
> > mean, I have to get this from some place! Why me? I hate it.
> >
> > If any of you have this problem what do you do about it? Does it
> > bother you? I see women in the stores all the time with hardly any
> > hair on their entire heads....scary....right now mine is just right in
> > the front.
> >
> > <pout>
>
> A friend's hair is like that - it's *much* thinner than when she was
> younger & can see through to her scalp, but I think hers may be
> herditary; her mother's hair was quite similar when she was in middle
> age.
>
> My hair is receding at my temples; & again, my mother's did, too.
> Don't know if it just happens at a certain age, if it's related to
> menopause, or if it's a combo (kick-strarted by meno, but would
> eventually happen anyway sort of thing). OTOH, my hair grows quite
> low down on the nape of my neck, which is a PITA when it's cut short -
> sticks out funny; I've told my hairdresser that I wish I could just
> move that nape hair up to my temples!

That reminds me of when I was in high school (60s, so men's hair was
long) and my mother described a certain man as looking like his hair was
sliding off the back of his head. Very apt, and it's stuck with me.

Priscilla

On Thu, 8 Mar 2007 09:14:43 -0700, emma_anne@mac.com (Emma Anne)
wrote:

>I have a bright white streak in my hair, right in the front, so dying
>doesn't work real well unless I want to do it every two weeks. So I
>just decided to consider my white streak cool. :-)

Wow, so do I! Well, it's white and the rest of the front of my hair is
a darker gray. The back is darkest of all. My streak is just off
center from where I am getting thin. I like it too. I wonder what
causes this? I don't have a scar there....that's what I have been told
causes it.
>
>My hair is still really thick though. So far.

Lucky you.


Dana

Do not meddle in the affairs of dragons,
for you are crunchy and taste good with ketchup.

"Dana©" <AneeBear@ownmail.com> wrote in message
news:e2kuu2lsi5d9lb5luel5l75jpnj3ouurj5@4ax.com...
> On Wed, 07 Mar 2007 16:29:12 GMT, "Shirley"
> <shirleycatuk@google.com>
> wrote:
>
>>Unlike Furry I have found mine is less noticable just after I have
>>dyed it (possibly because my scalp gets dyed too) and more noticable
>>when I have white roots showing. Now if only I could find a
>>permanent
>>marker pen in just the right shade of golden brown.........! :-)
>
> I dyed my hair for 40 years....I was dark auburn, actually Sparkling
> Sherry from Clairol. I don't know if they even make that shade
> anymore. Anyway, my hair is so gray now I don't have the energy to
> cope with the touch ups.

I've been so many different shades of brown I can't remember what my
original colour was. Underneath the dye my hair is white on top and
salt and pepper (white mixed with brown) round the sides and
back...looks odd so I continue to support Clairol. :-)

>
> And they do make a scalp spray the color of your hair to cover up
> the
> shining through.

I'll have to look for it in the shops. ;-)


--
Shirley
http://community.webshots.com/user/shirleycatuk

>
>
> Dana
> Do not meddle in the affairs of dragons,
> for you are crunchy and taste good with ketchup.

My Mom had a white streak too..and she never died it...until she decided to
go blonde...midlife crisis and a divorce
"Emma Anne" <emma_anne@mac.com> wrote in message
news:1hung9o.1odcc291jncm99N%emma_anne@mac.com...
> Dana© <AneeBear@ownmail.com> wrote:
>
>> On Wed, 07 Mar 2007 16:29:12 GMT, "Shirley" <shirleycatuk@google.com>
>> wrote:
>>
>> >Unlike Furry I have found mine is less noticable just after I have
>> >dyed it (possibly because my scalp gets dyed too) and more noticable
>> >when I have white roots showing. Now if only I could find a permanent
>> >marker pen in just the right shade of golden brown.........! :-)
>>
>> I dyed my hair for 40 years....I was dark auburn, actually Sparkling
>> Sherry from Clairol. I don't know if they even make that shade
>> anymore. Anyway, my hair is so gray now I don't have the energy to
>> cope with the touch ups.
>>
>
> I have a bright white streak in my hair, right in the front, so dying
> doesn't work real well unless I want to do it every two weeks. So I
> just decided to consider my white streak cool. :-)
>
> My hair is still really thick though. So far.

When my Husband was in his 30's he used to do the comb over..until my
daughter and I took a blow dryer to it and showed him how funny it looked
when the wind blew it up..from that day on he became a proud bald man
jacquie
"Priscilla H. Ballou" <vze23t8n@verizon.net> wrote in message
news:vze23t8n-DCF835.15222208032007@individual.net...
> In article <1173318578.844774.103250@v33g2000cwv.googlegroups .com>,
> clfr@adelphia.net wrote:
>
>> On Mar 7, 9:36 am, Dana© <AneeB...@ownmail.com> wrote:
>> > I have had it!!
>> >
>> > How many of you out there have thinning hair? Right in the front? That
>> > you can see through in the light? Please someone say they have this
>> > problem, too! Is it menopause, heredity, bad luck, what????
>> >
>> > When I was young I had hair so thick that I didn't get it cut I got it
>> > thinned! Both of my parents had thick hair when they died. (My mother
>> > took Premarin until right before she died) I am thinking that if she
>> > had been hormone free she might have had thinning hair as well. I
>> > mean, I have to get this from some place! Why me? I hate it.
>> >
>> > If any of you have this problem what do you do about it? Does it
>> > bother you? I see women in the stores all the time with hardly any
>> > hair on their entire heads....scary....right now mine is just right in
>> > the front.
>> >
>> > <pout>
>>
>> A friend's hair is like that - it's *much* thinner than when she was
>> younger & can see through to her scalp, but I think hers may be
>> herditary; her mother's hair was quite similar when she was in middle
>> age.
>>
>> My hair is receding at my temples; & again, my mother's did, too.
>> Don't know if it just happens at a certain age, if it's related to
>> menopause, or if it's a combo (kick-strarted by meno, but would
>> eventually happen anyway sort of thing). OTOH, my hair grows quite
>> low down on the nape of my neck, which is a PITA when it's cut short -
>> sticks out funny; I've told my hairdresser that I wish I could just
>> move that nape hair up to my temples!
>
> That reminds me of when I was in high school (60s, so men's hair was
> long) and my mother described a certain man as looking like his hair was
> sliding off the back of his head. Very apt, and it's stuck with me.
>
> Priscilla

jacquie <happikat@nospam.net> wrote:

> My Mom had a white streak too..and she never died it...until she decided to
> go blonde...midlife crisis and a divorce

Heh. I have such dark hair that it has never been an option to go
blond. But perhaps I will when the grey and white reach a certain
level. :-)

Her hair was a pretty dark brown...they had to add allot of chemical to get
through that orange barrier When I was in High School there was a girl
that had the white streak...

jacquie wrote:
> There was a time I looked like a Chemo patient and like you I always had
> thick hair..and my twin brother isn't thinning at all. Mine was caused by an
> Adrenal tumor. Since it has been removed my hair has come back but it is
> pretty thin and fine now.
> jacquie
>
jacquie, I had to respond - it's a little late, but hey that's my life's
story, always late! :-)
I see you mentioned you had an adrenal tumor, but had it removed. I have
an adrenal tumor myself. It was accidentally discovered a year ago when
I had a CT scan done for stomach problems. It turned out they found
nothing wrong with my stomach, but they found the adrenal tumor. Mine is
2cm. What type of tumor did you have? My doctors tell me "it's just
there" and "some people just get them" and I don't need it removed, they
say. For quite some time I thought it was Hyperaldosteronism because of
the high aldosterone hormone level I had from seeing the results of my
blood work, but my Endo says it's not that. I guess now my levels are
within the normal range. I don't know if from being on Spironolactone
caused my levels to be at the normal range or if they went "normal" on
their own. I was having CT scans every 6 months to evaluate the tumor,
but seeing it's been a year and it's stayed the same size, I now have to
only go once a year for the scan. I'm just curious what type of tumor
you had? I'm at lost to what type I have. I really don't buy into the
doctors saying "some people just get them".

They thought I had a aldostronism, because the first Cat scan didn't show a
tumor. My blood pressure was not under control, my potassium would go
dangerously low(2.4) My Dr would always call me and ask if I was having
chest pains after he saw how low my potassium was. I was on Spironolactone
....plus 6 to 8 K-Dur a day...not to mention an aggressive regime on trying
to get my BP down. About 5 years after diagnoses I had just turned 50...my
Internist sent me to a surgeon to set up a colonoscopy(Happy Birthday) the
surgeon was really interested in the Aldostronism. He asked when my last Cat
Scan was and I told him upon diagnoses...he said because the Aldostronism
,they said I had, was so rare( few Dr's see it in their lifetime) that I
should have had a yearly CS...to check for a tumor..so he sent me off to get
a CS...and there was a 2 cm mass on my adrenal gland. He told me I should
have the surgery because I am a diabetic and they just didn't know enough of
the long term affects of the high blood pressure and all the other meds I
had to take with Diabetes. At the time the studies on Diabetes and Heart
problems weren't around. The chances of the tumor being cancerous are very
slight...although my MIL had one that had been cancerous. So I decided to
have the surgery. It was a very invasive surgery.(although they now can do a
laparoscopic adrenalectomy )I have a huge scar that goes from the bottom of
my left ribcage up under my breasts all the way down to just below the
right side of my waist. To get to the adrenal gland they had to move all of
the other organs in front of it. There is another way to do the surgery..by
going through the back ....but my surgeon said he would be able to see
better from the front...also they had to be careful not to cut or nick the
main artery that goes into the kidney. I had allot of pain. I almost had a
heart attack the night after the surgery. My bad adrenal had been secreting
so much hormone, that my good one didn't do much of anything..so after the
bad one was removed the good one would take about 24 hours before it would
start working again...my Dr wrote instructions but I guess the nurses
thought they would have plenty of time to get the potassium...My potassium
bottomed out...I felt like there was a 400 pound anvil on my chest...they
didn't say any thing to me...but they told my daughter the next day that my
heart rate had gone dangerously low..a very scary experience. I was in the
hospital 6 days...and it took months before some of the pain went away. I
still get some pain and it has been almost 7 years. My Internist said that
after any gut surgery there is discomfort for a long time. One of the main
reasons for the surgery besides the Diabetes thing was because I couldn't
get my BP under control. I will have to take BP meds for the rest of my life
because it had been uncontrolled for so long that my veins and arteries have
stiffened. I now take pretty low doses of BP Meds and my last reading was
118/73...so it can be controlled with meds. I used to take 15 to 16 pills a
day...I now take 5..and three of those are for diabetes. I have no idea what
type of tumor I had ..all I know was it was benign I would say if you
aren't having any of the problems I was that just watching the tumor would
be fine...but of course that decision is between you and your Dr.
Jacquie

"Kath" <kath*VOID*@*VOID*.com> wrote in message
news:12vs7q4pml6h301@corp.supernews.com...
> jacquie wrote:
>> There was a time I looked like a Chemo patient and like you I always had
>> thick hair..and my twin brother isn't thinning at all. Mine was caused by
>> an Adrenal tumor. Since it has been removed my hair has come back but it
>> is pretty thin and fine now.
>> jacquie
>>
> jacquie, I had to respond - it's a little late, but hey that's my life's
> story, always late! :-)
> I see you mentioned you had an adrenal tumor, but had it removed. I have
> an adrenal tumor myself. It was accidentally discovered a year ago when I
> had a CT scan done for stomach problems. It turned out they found nothing
> wrong with my stomach, but they found the adrenal tumor. Mine is 2cm. What
> type of tumor did you have? My doctors tell me "it's just there" and "some
> people just get them" and I don't need it removed, they say. For quite
> some time I thought it was Hyperaldosteronism because of the high
> aldosterone hormone level I had from seeing the results of my blood work,
> but my Endo says it's not that. I guess now my levels are within the
> normal range. I don't know if from being on Spironolactone caused my
> levels to be at the normal range or if they went "normal" on their own. I
> was having CT scans every 6 months to evaluate the tumor, but seeing it's
> been a year and it's stayed the same size, I now have to only go once a
> year for the scan. I'm just curious what type of tumor you had? I'm at
> lost to what type I have. I really don't buy into the doctors saying "some
> people just get them".

jacquie wrote:
> They thought I had a aldostronism, because the first Cat scan didn't show a
> tumor. My blood pressure was not under control, my potassium would go
> dangerously low(2.4) My Dr would always call me and ask if I was having
> chest pains after he saw how low my potassium was. I was on Spironolactone
> ...plus 6 to 8 K-Dur a day...not to mention an aggressive regime on trying
> to get my BP down. About 5 years after diagnoses I had just turned 50...my
> Internist sent me to a surgeon to set up a colonoscopy(Happy Birthday) the
> surgeon was really interested in the Aldostronism. He asked when my last Cat
> Scan was and I told him upon diagnoses...he said because the Aldostronism
> ,they said I had, was so rare( few Dr's see it in their lifetime) that I
> should have had a yearly CS...to check for a tumor..so he sent me off to get
> a CS...and there was a 2 cm mass on my adrenal gland. He told me I should
> have the surgery because I am a diabetic and they just didn't know enough of
> the long term affects of the high blood pressure and all the other meds I
> had to take with Diabetes. At the time the studies on Diabetes and Heart
> problems weren't around. The chances of the tumor being cancerous are very
> slight...although my MIL had one that had been cancerous. So I decided to
> have the surgery. It was a very invasive surgery.(although they now can do a
> laparoscopic adrenalectomy )I have a huge scar that goes from the bottom of
> my left ribcage up under my breasts all the way down to just below the
> right side of my waist. To get to the adrenal gland they had to move all of
> the other organs in front of it. There is another way to do the surgery..by
> going through the back ....but my surgeon said he would be able to see
> better from the front...also they had to be careful not to cut or nick the
> main artery that goes into the kidney. I had allot of pain. I almost had a
> heart attack the night after the surgery. My bad adrenal had been secreting
> so much hormone, that my good one didn't do much of anything..so after the
> bad one was removed the good one would take about 24 hours before it would
> start working again...my Dr wrote instructions but I guess the nurses
> thought they would have plenty of time to get the potassium...My potassium
> bottomed out...I felt like there was a 400 pound anvil on my chest...they
> didn't say any thing to me...but they told my daughter the next day that my
> heart rate had gone dangerously low..a very scary experience. I was in the
> hospital 6 days...and it took months before some of the pain went away. I
> still get some pain and it has been almost 7 years. My Internist said that
> after any gut surgery there is discomfort for a long time. One of the main
> reasons for the surgery besides the Diabetes thing was because I couldn't
> get my BP under control. I will have to take BP meds for the rest of my life
> because it had been uncontrolled for so long that my veins and arteries have
> stiffened. I now take pretty low doses of BP Meds and my last reading was
> 118/73...so it can be controlled with meds. I used to take 15 to 16 pills a
> day...I now take 5..and three of those are for diabetes. I have no idea what
> type of tumor I had ..all I know was it was benign I would say if you
> aren't having any of the problems I was that just watching the tumor would
> be fine...but of course that decision is between you and your Dr.
> Jacquie
>
>
Hi Jacquie

They thought I had aldosteronism at first as well because they had
already found the tumor, so they had to do A LOT of other tests. My
primary doctor sent me to an Endocrinologist and he did the 24 hour
urinary test and then, if I remember right, they took about 7 viles of
blood. You know I was scared because I kept thinking this tumor was
cancerous. I was completely shocked when my primary doctor told me about
the 2cm mass on my left adrenal. My potassium was also dangerously low.
I think mine was 2.4 as well. So then the Endo doctor put me on
potassium pills for about a month and at the same time he put me on
Spironolactone. The doctors also kept asking me if I were having chest
pains, which I wasn't. My BP is still out of control (145/100 and
sometimes higher and sometimes lower 135/90). I try very hard to keep it
down, but nothing is working. I'm still on the Spiro (50mg. - I can't
handle anything higher than that - we've tried). I am also on Thyazide
12.5mg. So I am only on 2 pills a day. I really like my surgeon though -
too bad he isn't a "regular" doctor I can see. He seems concerned and
he's the one that thinks I have aldosteronism. He also thinks the tumor
should be removed, but then he says he can't do anything about it unless
my other doctors give the ok. I only wish my BP was under control like
yours is. My Endo doctor put me on Linospril, but I took it for only one
day because I ended up with a horrible rash on both arms, so he took me
off of it right away. The Linospril worked too! It dropped my BP down to
115/73. I was amazed, but unfortunately, I'm allergic to it. Yes, my
surgeon did talk to me about a laparoscopic adrenalectomy - he said "We
can do that now", but again, I can't have it done unless my other
doctors say it's time for surgery.

I had my first colonoscopy last August (YAY! saying this sarcastically).
I was only 45. I was having stomach problems - that is why I had to have
it. Everything came back normal and no polyps were found, so I was
diagnosed as having IBS.

If you want to email me, my email address is
bmw.girl.61@gmail.com

I'm glad I'm not really alone with this adrenal tumor thing. I thought I
was the only one that was dealing with something like this and you too
have dealt with it, but thank the lord, yours was removed!

Kathy

The aldostronism they thought I had had first does not have a tumor...it was
years later that the surgeon decided to do another CatScan and saw the tumor
there. I was first diagnosed with high blood pressure at 33...no one thought
to check for aldostronism even though I was pretty young to have such high
blood pressure...the low potassium should have been a clue to but they
blamed it on the diuretic I was on..so just kept adding K-Dur.....I wasn't
diagnosed until my 40's..when my Primary care Dr said he couldn't understand
why my blood pressure wouldn't get under control..so he sent me to an Endo
who did all the tests...he also said I had other symptoms of adrenal
problems...flat face and new stretch marks on my abdomen and a fatty hump
between the back of the neck and back....I thought the flatter face was just
me...it was funny after the surgery I looked at photos and could see the
difference. I would say another reason he thought I needed the surgery was
because he was a surgeon and surgeons love to cut I am glad I had the
surgery because of the blood pressure and low potassium problems. I was
lucky that I would feel palpitations when my potassium was low...some people
don't feel anything ...it was scary. I remember going in for a Breast Biopsy
and they said they could put me under with anesthesia because by Potassium
was 2.5...this was six in the morning and the second time I had been
scheduled because the first time my Dr slipped on his step coming to work
and broke his ankle(we lived in Alaska at the time) So when they told me
they would have to reschedule again..I asked if they could do it with a
local...the tumor was pretty deep but the surgeon said he was willing to try
if I was...it wasn't too bad. I am allergic to all over the counter pain
pills except for Tylenol. We found out two years ago I have an allergy to
Ace Inhibitors(which is for High blood pressure)...but given to Diabetics
for Kidney protection. I had been taking them with no problem but my Dr put
me on a different one and I broke out in a rash that started at by ankles
and moved almost up to my neck. My Dr said I was lucky it didn't get into my
throat ...it was a serum rash...its where the antibodies actually attack
your blood. So they no longer will let me take any Ace Inhibitors at all.
I think if this tumor really bothers you plus the side affects you might
want to talk to your Dr again. Tell him what your surgeon said. Living with
high blood pressure can be scary because you're always wondering if a stroke
is just around the corner. At least your potassium seems to be controlled
with your meds...unfortunately mine was not. If you have any questions you
can always OT..Ping me I'm glad I could help with your questions
jacquie
"Kath" <kath*VOID*@*VOID*.com> wrote in message
news:12vuh245uvjqq70@corp.supernews.com...
> jacquie wrote:
>> They thought I had a aldostronism, because the first Cat scan didn't show
>> a
>> tumor. My blood pressure was not under control, my potassium would go
>> dangerously low(2.4) My Dr would always call me and ask if I was having
>> chest pains after he saw how low my potassium was. I was on
>> Spironolactone
>> ...plus 6 to 8 K-Dur a day...not to mention an aggressive regime on
>> trying
>> to get my BP down. About 5 years after diagnoses I had just turned
>> 50...my
>> Internist sent me to a surgeon to set up a colonoscopy(Happy Birthday)
>> the
>> surgeon was really interested in the Aldostronism. He asked when my last
>> Cat
>> Scan was and I told him upon diagnoses...he said because the Aldostronism
>> ,they said I had, was so rare( few Dr's see it in their lifetime) that I
>> should have had a yearly CS...to check for a tumor..so he sent me off to
>> get
>> a CS...and there was a 2 cm mass on my adrenal gland. He told me I should
>> have the surgery because I am a diabetic and they just didn't know enough
>> of
>> the long term affects of the high blood pressure and all the other meds
>> I
>> had to take with Diabetes. At the time the studies on Diabetes and Heart
>> problems weren't around. The chances of the tumor being cancerous are
>> very
>> slight...although my MIL had one that had been cancerous. So I decided to
>> have the surgery. It was a very invasive surgery.(although they now can
>> do a
>> laparoscopic adrenalectomy )I have a huge scar that goes from the bottom
>> of
>> my left ribcage up under my breasts all the way down to just below the
>> right side of my waist. To get to the adrenal gland they had to move all
>> of
>> the other organs in front of it. There is another way to do the
>> surgery..by
>> going through the back ....but my surgeon said he would be able to see
>> better from the front...also they had to be careful not to cut or nick
>> the
>> main artery that goes into the kidney. I had allot of pain. I almost had
>> a
>> heart attack the night after the surgery. My bad adrenal had been
>> secreting
>> so much hormone, that my good one didn't do much of anything..so after
>> the
>> bad one was removed the good one would take about 24 hours before it
>> would
>> start working again...my Dr wrote instructions but I guess the nurses
>> thought they would have plenty of time to get the potassium...My
>> potassium
>> bottomed out...I felt like there was a 400 pound anvil on my chest...they
>> didn't say any thing to me...but they told my daughter the next day that
>> my
>> heart rate had gone dangerously low..a very scary experience. I was in
>> the
>> hospital 6 days...and it took months before some of the pain went away. I
>> still get some pain and it has been almost 7 years. My Internist said
>> that
>> after any gut surgery there is discomfort for a long time. One of the
>> main
>> reasons for the surgery besides the Diabetes thing was because I couldn't
>> get my BP under control. I will have to take BP meds for the rest of my
>> life
>> because it had been uncontrolled for so long that my veins and arteries
>> have
>> stiffened. I now take pretty low doses of BP Meds and my last reading was
>> 118/73...so it can be controlled with meds. I used to take 15 to 16 pills
>> a
>> day...I now take 5..and three of those are for diabetes. I have no idea
>> what
>> type of tumor I had ..all I know was it was benign I would say if you
>> aren't having any of the problems I was that just watching the tumor
>> would
>> be fine...but of course that decision is between you and your Dr.
>> Jacquie
>>
>>
> Hi Jacquie
>
> They thought I had aldosteronism at first as well because they had already
> found the tumor, so they had to do A LOT of other tests. My primary doctor
> sent me to an Endocrinologist and he did the 24 hour urinary test and
> then, if I remember right, they took about 7 viles of blood. You know I
> was scared because I kept thinking this tumor was cancerous. I was
> completely shocked when my primary doctor told me about the 2cm mass on my
> left adrenal. My potassium was also dangerously low. I think mine was 2.4
> as well. So then the Endo doctor put me on potassium pills for about a
> month and at the same time he put me on Spironolactone. The doctors also
> kept asking me if I were having chest pains, which I wasn't. My BP is
> still out of control (145/100 and sometimes higher and sometimes lower
> 135/90). I try very hard to keep it down, but nothing is working. I'm
> still on the Spiro (50mg. - I can't handle anything higher than that -
> we've tried). I am also on Thyazide 12.5mg. So I am only on 2 pills a day.
> I really like my surgeon though - too bad he isn't a "regular" doctor I
> can see. He seems concerned and he's the one that thinks I have
> aldosteronism. He also thinks the tumor should be removed, but then he
> says he can't do anything about it unless my other doctors give the ok. I
> only wish my BP was under control like yours is. My Endo doctor put me on
> Linospril, but I took it for only one day because I ended up with a
> horrible rash on both arms, so he took me off of it right away. The
> Linospril worked too! It dropped my BP down to 115/73. I was amazed, but
> unfortunately, I'm allergic to it. Yes, my surgeon did talk to me about a
> laparoscopic adrenalectomy - he said "We can do that now", but again, I
> can't have it done unless my other doctors say it's time for surgery.
>
> I had my first colonoscopy last August (YAY! saying this sarcastically). I
> was only 45. I was having stomach problems - that is why I had to have it.
> Everything came back normal and no polyps were found, so I was diagnosed
> as having IBS.
>
> If you want to email me, my email address is
> bmw.girl.61@gmail.com
>
> I'm glad I'm not really alone with this adrenal tumor thing. I thought I
> was the only one that was dealing with something like this and you too
> have dealt with it, but thank the lord, yours was removed!
>
> Kathy