Losing hair and losing my mind!

Hello Ladies - me again

I was wondering if losing more hair than normal is a part of the Peri? I
went through a bout of TE a little under 2 years ago and it was VERY
traumatic for me. I wished to NEVER EVER go through it again. But, it's
happening again and it seems to be gradual, like it was with the TE. I
started noticing [for about a month now] there was more hair in my hands
after only one comb out in the morning. My heart sank and it sinks every
time I comb my hair now. When I do the pull test on myself I may get
only one or two hairs [this is normal], but when I do the comb out I get
A LOT of hair. Lately I have also been feeling hairs falling onto my
arms again. I'm one that has always [except when I suffered from a bout
of TE] that hardly lost a lot of hair. I'd say I was ranging from 20 -
30 strands a day. I know counting the strands of hair is absolutely
crazy, but I've started doing it again. I just want to cry! I didn't
want to get that way EVER again, but it's happening. Now I'm losing
something in the range of 50 strands with only one comb out. Washing my
hair is a nightmare, again! Now when I comb it out after a washing my
fingers get all tangled with hair! The same way as it was when I went
through TE! Is this normal for Peri and if it is when will it stop? I
have no family history of baldness in either side of my family. My
brother who is older has a nice thick head of hair and my Dad is in his
70's and he also has nice thick hair. My Mom died when we were young,
but her Mother [my Grandmother] also had nice thick hair. I just don't
understand this :-(

On Jul 14, 1:24 pm, Kath <kath*VOID*@*VOID*.invalid> wrote:

Kath,
Losing some hair because of peri may be normal, but it sounds like
something more is going on. Sorry, but what is TE? We all know what
chemotherapy does to hair. Thyroid problems can make your hair fall
out, as well as overuse of hair dye, bleach, or permanents. Inositol
supplements are good for the hair. I found a scalp stimulant recipe
with essential oils, but haven't been using it long enough to judge
its effectiveness. The oils are bay, grapefruit, lavender, rosemary,
clary sage, juniper, and/or yarrow (2 drops each) in an ounce of
jojoba or olive oil, per treatment, worked into the scalp and left on
for an hour or two before shampoo (keep out of eyes). If you can only
afford one or two oils, get lavender and bay. Scalp massage will work
some hairs loose, but they would have fallen out soon anyway, and the
stimulation encourages hair growth. Essential fatty acid supplements
are also good for hair. You may have a vitamin deficiency, especially
B vitamins.
The above are just the conventional reasons for hair loss. There are
obscure ones as well. Good luck, and hope it stops soon.
Les





> Hello Ladies - me again
>
> I was wondering if losing more hair than normal is a part of the Peri? I
> went through a bout of TE a little under 2 years ago and it was VERY
> traumatic for me. I wished to NEVER EVER go through it again. But, it's
> happening again and it seems to be gradual, like it was with the TE. I
> started noticing [for about a month now] there was more hair in my hands
> after only one comb out in the morning. My heart sank and it sinks every
> time I comb my hair now. When I do the pull test on myself I may get
> only one or two hairs [this is normal], but when I do the comb out I get
> A LOT of hair. Lately I have also been feeling hairs falling onto my
> arms again. I'm one that has always [except when I suffered from a bout
> of TE] that hardly lost a lot of hair. I'd say I was ranging from 20 -
> 30 strands a day. I know counting the strands of hair is absolutely
> crazy, but I've started doing it again. I just want to cry! I didn't
> want to get that way EVER again, but it's happening. Now I'm losing
> something in the range of 50 strands with only one comb out. Washing my
> hair is a nightmare, again! Now when I comb it out after a washing my
> fingers get all tangled with hair! The same way as it was when I went
> through TE! Is this normal for Peri and if it is when will it stop? I
> have no family history of baldness in either side of my family. My
> brother who is older has a nice thick head of hair and my Dad is in his
> 70's and he also has nice thick hair. My Mom died when we were young,
> but her Mother [my Grandmother] also had nice thick hair. I just don't
> understand this :-(

I know I lost hair when I had an adrenal tumor..don't know if it was the
meds I was on or the tumor..I was on spirolactone and high doses of
potassium..along with the run of the mill HBP and Diabetes meds. I looked
like a Chemo patient..finally after they took the tumor out my hair started
coming back...it will never be as thick as it was but at least the scalp
isn't as visible. I think if I were you I would go to the Dr and get a
thyroid panel done..see if that might be it.
Jacquie
"Kath" <kath*VOID*@*VOID*.invalid> wrote in message
news:139ic8ifr72v75c@corp.supernews.com...
> Hello Ladies - me again
>
> I was wondering if losing more hair than normal is a part of the Peri? I
> went through a bout of TE a little under 2 years ago and it was VERY
> traumatic for me. I wished to NEVER EVER go through it again. But, it's
> happening again and it seems to be gradual, like it was with the TE. I
> started noticing [for about a month now] there was more hair in my hands
> after only one comb out in the morning. My heart sank and it sinks every
> time I comb my hair now. When I do the pull test on myself I may get only
> one or two hairs [this is normal], but when I do the comb out I get A LOT
> of hair. Lately I have also been feeling hairs falling onto my arms again.
> I'm one that has always [except when I suffered from a bout of TE] that
> hardly lost a lot of hair. I'd say I was ranging from 20 - 30 strands a
> day. I know counting the strands of hair is absolutely crazy, but I've
> started doing it again. I just want to cry! I didn't want to get that way
> EVER again, but it's happening. Now I'm losing something in the range of
> 50 strands with only one comb out. Washing my hair is a nightmare, again!
> Now when I comb it out after a washing my fingers get all tangled with
> hair! The same way as it was when I went through TE! Is this normal for
> Peri and if it is when will it stop? I have no family history of baldness
> in either side of my family. My brother who is older has a nice thick head
> of hair and my Dad is in his 70's and he also has nice thick hair. My Mom
> died when we were young, but her Mother [my Grandmother] also had nice
> thick hair. I just don't understand this :-(

x-no-archive: yes

jacquie wrote:
> I know I lost hair when I had an adrenal tumor..don't know if it was the
> meds I was on or the tumor..I was on spirolactone and high doses of
> potassium..along with the run of the mill HBP and Diabetes meds.

I lost almost half my hair last year when my cortisol was very high,
too. Numerous endocrine problems can cause this, anything from
hyperinsulinemia to thyroid or adrenal/pituitary issues. I have to
think it's possible for lower estrogen to cause hair loss, but I don't
know how much.

I sympathize, though, it was a horrible, helpless feeling last year when
I'd lost so much (fortunately, I'd started with a LOT) and didn't know
when it would stop falling out.

Susan

Kath wrote:
> Hello Ladies - me again
>
> I was wondering if losing more hair than normal is a part of the Peri? I
> went through a bout of TE a little under 2 years ago and it was VERY
> traumatic for me. I wished to NEVER EVER go through it again. But, it's
> happening again and it seems to be gradual, like it was with the TE. I
> started noticing [for about a month now] there was more hair in my hands
> after only one comb out in the morning. My heart sank and it sinks every
> time I comb my hair now. When I do the pull test on myself I may get
> only one or two hairs [this is normal], but when I do the comb out I get
> A LOT of hair. Lately I have also been feeling hairs falling onto my
> arms again. I'm one that has always [except when I suffered from a bout
> of TE] that hardly lost a lot of hair. I'd say I was ranging from 20 -
> 30 strands a day. I know counting the strands of hair is absolutely
> crazy, but I've started doing it again. I just want to cry! I didn't
> want to get that way EVER again, but it's happening. Now I'm losing
> something in the range of 50 strands with only one comb out. Washing my
> hair is a nightmare, again! Now when I comb it out after a washing my
> fingers get all tangled with hair! The same way as it was when I went
> through TE! Is this normal for Peri and if it is when will it stop? I
> have no family history of baldness in either side of my family. My
> brother who is older has a nice thick head of hair and my Dad is in his
> 70's and he also has nice thick hair. My Mom died when we were young,
> but her Mother [my Grandmother] also had nice thick hair. I just don't
> understand this :-(

You have my sympathy! I lost a lot of hair following surgery
when I was 52, and it hasn't grown back (7 years later); in fact,
it's thinner. Oddly enough, my mother had hair loss after going
into shock when she was about the same age, and she never got
hers back either.

I just live with it, since there doesn't seem to be any other
option. I don't wear a wig (can't stand the feeling), and I just
keep it at 2-3", since longer enhances the look of "thin hair".
I suppose if it gets much thinner, I'll just have to shave it off!

I think that some hair loss of hair in peri is not unusual, but
yours sounds pretty dramatic, especially if you haven't had
surgery, shock or chemo, or been mistreating it with hair
products. I concur with others in suggesting that you consult an
endocrinologist.

Sorry I don't have anything more hopeful to offer.

FurPaw

--
It will be a great day when our schools get all the money they
need and the Army has to hold a bake sale to buy a tank.

To reply, unleash the dog.

sage hen wrote:
> On Jul 14, 1:24 pm, Kath <kath*VOID*@*VOID*.invalid> wrote:
>
> Kath,
> Losing some hair because of peri may be normal, but it sounds like
> something more is going on. Sorry, but what is TE? We all know what
> chemotherapy does to hair. Thyroid problems can make your hair fall
> out, as well as overuse of hair dye, bleach, or permanents. Inositol
> supplements are good for the hair. I found a scalp stimulant recipe
> with essential oils, but haven't been using it long enough to judge
> its effectiveness. The oils are bay, grapefruit, lavender, rosemary,
> clary sage, juniper, and/or yarrow (2 drops each) in an ounce of
> jojoba or olive oil, per treatment, worked into the scalp and left on
> for an hour or two before shampoo (keep out of eyes). If you can only
> afford one or two oils, get lavender and bay. Scalp massage will work
> some hairs loose, but they would have fallen out soon anyway, and the
> stimulation encourages hair growth. Essential fatty acid supplements
> are also good for hair. You may have a vitamin deficiency, especially
> B vitamins.
> The above are just the conventional reasons for hair loss. There are
> obscure ones as well. Good luck, and hope it stops soon.
> Les
>
>
>
>
>


TE is Telogen Effluvium (sp?) It was the first time I had ever had it. I
think in my case it was on the chronic side. My doctor chalked it up
as the diet I was on and how quickly I had lost weight, but I'm not on a
diet and haven't lost weight, so I don't know what the reason would be.
This time around (hoping it's not happening again) it doesn't seem as
dramatic, but I notice the more than normal hairs falling. I have thick
hair to begin with, so hopefully it won't be noticeable. I do notice
some regrowth on the top, but it was probably already there to begin with.

My thyroid was checked in Feb., so that can't be it.

jacquie wrote:
> I know I lost hair when I had an adrenal tumor..don't know if it was the
> meds I was on or the tumor..I was on spirolactone and high doses of
> potassium..along with the run of the mill HBP and Diabetes meds. I looked
> like a Chemo patient..finally after they took the tumor out my hair started
> coming back...it will never be as thick as it was but at least the scalp
> isn't as visible. I think if I were you I would go to the Dr and get a
> thyroid panel done..see if that might be it.
> Jacquie

Hi Jacquie

We talked before and talked about adrenal tumors. I still have the
tumor, but I've had it for who knows how long. I just can't figure out
why the sudden hair shedding. I had the thyroid panel done last Feb. and
it was normal. I think I may wait another week and see if my shedding
stays high, if it does, I'm calling my Endo doctor. I am still on
Spironolactone, but it's only 50 mgs. Derms sometimes prescribe Spiro
for hair loss - who knows maybe the Spiro is doing the opposite for me
:-( I know Potassium meds can cause hair loss, but I'm on the Spiro so I
don't lose potassium - which I'm thinking the tumor is what caused me to
lose potassium in the first place. This is confusing :-(

FurPaw wrote:

> You have my sympathy! I lost a lot of hair following surgery when I was
> 52, and it hasn't grown back (7 years later); in fact, it's thinner.
> Oddly enough, my mother had hair loss after going into shock when she
> was about the same age, and she never got hers back either.
>
> I just live with it, since there doesn't seem to be any other option. I
> don't wear a wig (can't stand the feeling), and I just keep it at 2-3",
> since longer enhances the look of "thin hair". I suppose if it gets much
> thinner, I'll just have to shave it off!
>
> I think that some hair loss of hair in peri is not unusual, but yours
> sounds pretty dramatic, especially if you haven't had surgery, shock or
> chemo, or been mistreating it with hair products. I concur with others
> in suggesting that you consult an endocrinologist.
>
> Sorry I don't have anything more hopeful to offer.
>
> FurPaw
>

Wow! Sorry about the name change - like usual, I wasn't paying
attention! My daughter uses the groups too.

I will be calling my Endo doctor next week if the shedding is still
high. I went to my Derm about a month ago - this was for skin cancer. I
was seeing him about twice a month for a while. I asked him the last
time I was there what the average hair loss is a day - his reply was 100
- 150! I just don't believe it! My average is 20 - 30 and that is
probably counting the hairs that fall out onto my clothes as well as the
one's that come out after combing.

I did have surgery back in April '06 and about 3 months later I noticed
a higher shed, but nothing like this. Gosh, I was really hoping someone
would have said it might be the heat, but this was wishful thinking :-)
I have been a little stressed out lately though. I don't know if that
would have anything to do with it.

x-no-archive: yes

Lady wrote:

> We talked before and talked about adrenal tumors. I still have the
> tumor, but I've had it for who knows how long. I just can't figure out
> why the sudden hair shedding. I had the thyroid panel done last Feb. and
> it was normal. I think I may wait another week and see if my shedding
> stays high, if it does, I'm calling my Endo doctor. I am still on
> Spironolactone, but it's only 50 mgs. Derms sometimes prescribe Spiro
> for hair loss - who knows maybe the Spiro is doing the opposite for me
> :-( I know Potassium meds can cause hair loss, but I'm on the Spiro so I
> don't lose potassium - which I'm thinking the tumor is what caused me to
> lose potassium in the first place. This is confusing :-(

You still have an adrenal tumor? Has no one suggested aggressively
evaluating and removing it?

They're not usually cancerous, but they are usually a major health risk
for their endocrine disruption.

Susan

Susan wrote:
> x-no-archive: yes

> You still have an adrenal tumor? Has no one suggested aggressively
> evaluating and removing it?
>
> They're not usually cancerous, but they are usually a major health risk
> for their endocrine disruption.
>
> Susan

The only doctor that mentioned removal was my surgeon. He asked me "How
come no one has even considered it to be removed?". I told him I did not
know why. One doctor says "It's not hurting anything" and the other says
"It's just there". I would really like to know why and how it got there
in the first place! I mean could it have been HBP medication I was
taking for over 13 years that caused this or could it have been from
something else? It's like as if they don't tell me everything. My Endo
doctor is evaluating it. First it was every 6 months I was getting a CT
scan - it didn't grow any and now it's once a year. I really would
prefer to have it removed so I'm not worrying if anything might trigger
it to start growing! I hate having that worry in the back of my mind!

What I am confused over is I had gotten a copy of my blood test results
from my Endo. These were taken last year - my Aldosterone level was off
the charts! A few weeks later my Aldosterone level was down to normal,
BUT this was after taking Spironolactone. Also my Potassium was WAY
below normal before the Spiro. I seen the Endo had written on one of my
files that I was Hypokalemia (sp?) - now my levels are normal.

Now to top off all of this, my hair shedding has increased and I don't
know why!

x-no-archive: yes

Kath wrote:

> The only doctor that mentioned removal was my surgeon. He asked me "How
> come no one has even considered it to be removed?". I told him I did not
> know why. One doctor says "It's not hurting anything" and the other says
> "It's just there".

!#%%^$&%^*!!

I would really like to know why and how it got there
> in the first place! I mean could it have been HBP medication I was
> taking for over 13 years that caused this or could it have been from
> something else?

More like you're taking HT medication because of your adrenal tumor and
possible aldosteronism. I have pituitary Cushing's disease; adrenal
tumors are a frequent occurrence, though so far, I only have thickening
of one adrenal.

It's like as if they don't tell me everything. My Endo
> doctor is evaluating it. First it was every 6 months I was getting a CT
> scan - it didn't grow any and now it's once a year. I really would
> prefer to have it removed so I'm not worrying if anything might trigger
> it to start growing! I hate having that worry in the back of my mind!
>
> What I am confused over is I had gotten a copy of my blood test results
> from my Endo. These were taken last year - my Aldosterone level was off
> the charts! A few weeks later my Aldosterone level was down to normal,
> BUT this was after taking Spironolactone. Also my Potassium was WAY
> below normal before the Spiro. I seen the Endo had written on one of my
> files that I was Hypokalemia (sp?) - now my levels are normal.
>
> Now to top off all of this, my hair shedding has increased and I don't
> know why!

You have a very serious endocrine problem and a very ignorant and
lackadaisical endo.

Check out the information and experiences on www.cushings-help.com.

Lots of good information and referrals. Get your hands on every lab
report you can, and see about finding a more knowledgable endo.

Susan

Susan wrote:
> x-no-archive: yes
>
> Kath wrote:
>
>> The only doctor that mentioned removal was my surgeon. He asked me
>> "How come no one has even considered it to be removed?". I told him I
>> did not know why. One doctor says "It's not hurting anything" and the
>> other says "It's just there".
>
> !#%%^$&%^*!!

Exactly what I feel like saying!


>
> I would really like to know why and how it got there
>> in the first place! I mean could it have been HBP medication I was
>> taking for over 13 years that caused this or could it have been from
>> something else?
>
> More like you're taking HT medication because of your adrenal tumor and
> possible aldosteronism. I have pituitary Cushing's disease; adrenal
> tumors are a frequent occurrence, though so far, I only have thickening
> of one adrenal.

This is what I thought I have is Aldosteronism, but they keep telling me
No! I did massive research online and this is what I came up with was
aldosteronism. My surgeon even suggested aldosteronism. I am just so
confused because I keep getting the "No it's not that" answer. I also
came across on MANY sites online that Spiro is given for aldosteronism.
I'm just afraid they haven't a clue on what to really do. I asked if
they dealt with this before and they both said Yes, but I'm thinking
otherwise.

>
> It's like as if they don't tell me everything. My Endo
>> doctor is evaluating it. First it was every 6 months I was getting a
>> CT scan - it didn't grow any and now it's once a year. I really would
>> prefer to have it removed so I'm not worrying if anything might
>> trigger it to start growing! I hate having that worry in the back of
>> my mind!
>>
>> What I am confused over is I had gotten a copy of my blood test
>> results from my Endo. These were taken last year - my Aldosterone
>> level was off the charts! A few weeks later my Aldosterone level was
>> down to normal, BUT this was after taking Spironolactone. Also my
>> Potassium was WAY below normal before the Spiro. I seen the Endo had
>> written on one of my files that I was Hypokalemia (sp?) - now my
>> levels are normal.
>>
>> Now to top off all of this, my hair shedding has increased and I don't
>> know why!
>
> You have a very serious endocrine problem and a very ignorant and
> lackadaisical endo.

I sure will! :-)


>
> Check out the information and experiences on www.cushings-help.com.
>
> Lots of good information and referrals. Get your hands on every lab
> report you can, and see about finding a more knowledgable endo.
>
> Susan

x-no-archive: yes

Kath wrote:

Kath, you should register at the Cushing's web site so you can read
everything and post to more than the guest threads. In particular,
there's a thread begun today or yesterday by someone in a similar
situation, with an adrenal tumor that her docs want to take out without
first evaluating her for pituitary Cushing's, the usual cause of adrenal
tumors. That thread is a good starting point for you, I think.

BTW, I have to take K Dur (time released potassium) twice per day. With
it, instead of hypertension, I have bp in the low hundreds over 60s
consistently.

Susan

x-no-archive: yes

Susan wrote:
> x-no-archive: yes
>
> Kath wrote:
>
> Kath, you should register at the Cushing's web site so you can read
> everything and post to more than the guest threads. In particular,
> there's a thread begun today or yesterday by someone in a similar
> situation, with an adrenal tumor that her docs want to take out without
> first evaluating her for pituitary Cushing's, the usual cause of adrenal
> tumors. That thread is a good starting point for you, I think.
>
> BTW, I have to take K Dur (time released potassium) twice per day. With
> it, instead of hypertension, I have bp in the low hundreds over 60s
> consistently.
>
OH NO SHE DIDN'T.

Susan wrote that.

Sheesh.

Susan

Another symptom of the tumor is High Blood Pressure...Which is a very good
reason why the tumor should be removed...you may not have to take BP meds if
they remove the tumor and gland. I still have to because unfortunately the
Dr's kept on treating me for HPB and Potassium loss without even thinking it
was my adrenal gland causing it. I was 35 when they diagnosed HBP..which is
kind of young..that should have been the first hint..plus it was
uncontrollable no matter what meds they gave me.I was like 47 or 48 when I
was diagnosed with Aldostronism.. I was like 53 when the surgeon finally
told me he wanted another catscan to see if there was a tumor. After the
surgery my BP lowered but my Internist told me that because my BP was
uncontrolled for so long that my veins and arteries had stiffened a bit and
would probably have to take BPmeds the rest of my life..
Jacquie
"Kath" <kath*VOID*@*VOID*.invalid> wrote in message
news:139ni54vb529e1@corp.supernews.com...
> Susan wrote:
>> x-no-archive: yes
>
>> You still have an adrenal tumor? Has no one suggested aggressively
>> evaluating and removing it?
>>
>> They're not usually cancerous, but they are usually a major health risk
>> for their endocrine disruption.
>>
>> Susan
>
> The only doctor that mentioned removal was my surgeon. He asked me "How
> come no one has even considered it to be removed?". I told him I did not
> know why. One doctor says "It's not hurting anything" and the other says
> "It's just there". I would really like to know why and how it got there in
> the first place! I mean could it have been HBP medication I was taking for
> over 13 years that caused this or could it have been from something else?
> It's like as if they don't tell me everything. My Endo doctor is
> evaluating it. First it was every 6 months I was getting a CT scan - it
> didn't grow any and now it's once a year. I really would prefer to have it
> removed so I'm not worrying if anything might trigger it to start growing!
> I hate having that worry in the back of my mind!
>
> What I am confused over is I had gotten a copy of my blood test results
> from my Endo. These were taken last year - my Aldosterone level was off
> the charts! A few weeks later my Aldosterone level was down to normal, BUT
> this was after taking Spironolactone. Also my Potassium was WAY below
> normal before the Spiro. I seen the Endo had written on one of my files
> that I was Hypokalemia (sp?) - now my levels are normal.
>
> Now to top off all of this, my hair shedding has increased and I don't
> know why!

Did you know that it is very rare for the adrenal that is left to get a
tumor? I asked the surgeon because I wanted to know what would happen if I
ever lost the good adrenal.

"Susan" <nevermind@nomail.com> wrote in message
news:5g20hhF3efmmrU1@mid.individual.net...
> x-no-archive: yes
>
> Kath wrote:
>
>> The only doctor that mentioned removal was my surgeon. He asked me "How
>> come no one has even considered it to be removed?". I told him I did not
>> know why. One doctor says "It's not hurting anything" and the other says
>> "It's just there".
>
> !#%%^$&%^*!!
>
> I would really like to know why and how it got there
>> in the first place! I mean could it have been HBP medication I was taking
>> for over 13 years that caused this or could it have been from something
>> else?
>
> More like you're taking HT medication because of your adrenal tumor and
> possible aldosteronism. I have pituitary Cushing's disease; adrenal
> tumors are a frequent occurrence, though so far, I only have thickening of
> one adrenal.
>
> It's like as if they don't tell me everything. My Endo
>> doctor is evaluating it. First it was every 6 months I was getting a CT
>> scan - it didn't grow any and now it's once a year. I really would prefer
>> to have it removed so I'm not worrying if anything might trigger it to
>> start growing! I hate having that worry in the back of my mind!
>>
>> What I am confused over is I had gotten a copy of my blood test results
>> from my Endo. These were taken last year - my Aldosterone level was off
>> the charts! A few weeks later my Aldosterone level was down to normal,
>> BUT this was after taking Spironolactone. Also my Potassium was WAY below
>> normal before the Spiro. I seen the Endo had written on one of my files
>> that I was Hypokalemia (sp?) - now my levels are normal.
>>
>> Now to top off all of this, my hair shedding has increased and I don't
>> know why!
>
> You have a very serious endocrine problem and a very ignorant and
> lackadaisical endo.
>
> Check out the information and experiences on www.cushings-help.com.
>
> Lots of good information and referrals. Get your hands on every lab
> report you can, and see about finding a more knowledgable endo.
>
> Susan

Well it certainly sounds aldostronism to me..as you know for years they
thought I had a very rare form of it because they didn't see a tumor...7
years later the tumor was there. They only did one CatScan on me on
diagnoses to check for a tumor...my Surgeon told me that what they said I
had was so rare that they should have done a yearly Cat Scan at least. He
said the one they said I had was so rare that very few Dr's see it in their
lifetime.
Jacquie
"Kath" <kath*VOID*@*VOID*.invalid> wrote in message
news:139no772ad7ff0@corp.supernews.com...
> Susan wrote:
>> x-no-archive: yes
>>
>> Kath wrote:
>>
>>> The only doctor that mentioned removal was my surgeon. He asked me "How
>>> come no one has even considered it to be removed?". I told him I did not
>>> know why. One doctor says "It's not hurting anything" and the other says
>>> "It's just there".
>>
>> !#%%^$&%^*!!
>
> Exactly what I feel like saying!
>
>
>>
>> I would really like to know why and how it got there
>>> in the first place! I mean could it have been HBP medication I was
>>> taking for over 13 years that caused this or could it have been from
>>> something else?
>>
>> More like you're taking HT medication because of your adrenal tumor and
>> possible aldosteronism. I have pituitary Cushing's disease; adrenal
>> tumors are a frequent occurrence, though so far, I only have thickening
>> of one adrenal.
>
> This is what I thought I have is Aldosteronism, but they keep telling me
> No! I did massive research online and this is what I came up with was
> aldosteronism. My surgeon even suggested aldosteronism. I am just so
> confused because I keep getting the "No it's not that" answer. I also came
> across on MANY sites online that Spiro is given for aldosteronism. I'm
> just afraid they haven't a clue on what to really do. I asked if they
> dealt with this before and they both said Yes, but I'm thinking otherwise.
>
>>
>> It's like as if they don't tell me everything. My Endo
>>> doctor is evaluating it. First it was every 6 months I was getting a CT
>>> scan - it didn't grow any and now it's once a year. I really would
>>> prefer to have it removed so I'm not worrying if anything might trigger
>>> it to start growing! I hate having that worry in the back of my mind!
>>>
>>> What I am confused over is I had gotten a copy of my blood test results
>>> from my Endo. These were taken last year - my Aldosterone level was off
>>> the charts! A few weeks later my Aldosterone level was down to normal,
>>> BUT this was after taking Spironolactone. Also my Potassium was WAY
>>> below normal before the Spiro. I seen the Endo had written on one of my
>>> files that I was Hypokalemia (sp?) - now my levels are normal.
>>>
>>> Now to top off all of this, my hair shedding has increased and I don't
>>> know why!
>>
>> You have a very serious endocrine problem and a very ignorant and
>> lackadaisical endo.
>
> I sure will! :-)
>
>
>>
>> Check out the information and experiences on www.cushings-help.com.
>>
>> Lots of good information and referrals. Get your hands on every lab
>> report you can, and see about finding a more knowledgable endo.
>>
>> Susan

One of the symptoms of the adrenal tumor is the loss of Potassium. I was on
spirolactone and still took 6-7 potassium pills a day..that was one of the
reasons they decided on the surgery the potassium loss was uncontrollable.
The reason I mention maybe it is the spiro is because when I complained to
my Dr about the hairloss he mentioned maybe it was the Spiro doing it. I had
also put myself on a very low fat diet(only 10% of my diet was fat) Dr's
that my sister(an RN at a local Hospital) talked to said the hairloss was
because I didn't have enough fat in my diet...they told her to tell me to up
my fat intake to at least 20%. I still think it was the tumor
Jacquie
"Lady" <lady@washere.invalid> wrote in message
news:139n9p7a8h59e0a@corp.supernews.com...
> jacquie wrote:
>> I know I lost hair when I had an adrenal tumor..don't know if it was the
>> meds I was on or the tumor..I was on spirolactone and high doses of
>> potassium..along with the run of the mill HBP and Diabetes meds. I looked
>> like a Chemo patient..finally after they took the tumor out my hair
>> started coming back...it will never be as thick as it was but at least
>> the scalp isn't as visible. I think if I were you I would go to the Dr
>> and get a thyroid panel done..see if that might be it.
>> Jacquie
>
> Hi Jacquie
>
> We talked before and talked about adrenal tumors. I still have the tumor,
> but I've had it for who knows how long. I just can't figure out why the
> sudden hair shedding. I had the thyroid panel done last Feb. and it was
> normal. I think I may wait another week and see if my shedding stays high,
> if it does, I'm calling my Endo doctor. I am still on Spironolactone, but
> it's only 50 mgs. Derms sometimes prescribe Spiro for hair loss - who
> knows maybe the Spiro is doing the opposite for me :-( I know Potassium
> meds can cause hair loss, but I'm on the Spiro so I don't lose potassium -
> which I'm thinking the tumor is what caused me to lose potassium in the
> first place. This is confusing :-(

Kath <kath*VOID*@*VOID*.invalid> wrote:

> Now to top off all of this, my hair shedding has increased and I don't
> know why!

Mine increased too for a while without any clear reason why. It was also
tangling more than usual. I started eating about 2 tbsp of coconut oil
(as a food supplement) a day and within a week, the excess shedding and
the tangling stopped.

--
Keera in Norway * Think big. Shrink to fit.
http://home.online.no/~kafox/

On Tue, 17 Jul 2007 09:45:15 +0200, thinkbig.shrinktofit@online.no
(Keera Ann Fox) wrote:

>> Now to top off all of this, my hair shedding has increased and I don't
>> know why!
>
>Mine increased too for a while without any clear reason why.


Everyone knows that during the hotter months we shed more hair and
during the colder months we grow more hair.....just like the critters
do. Or is that just an old wives tale?


Dana
Do not meddle in the affairs of dragons,
for you are crunchy and taste good with ketchup.

x-no-archive: yes

jacquie wrote:
> Another symptom of the tumor is High Blood Pressure...Which is a very good
> reason why the tumor should be removed...you may not have to take BP meds if
> they remove the tumor and gland. I still have to because unfortunately the
> Dr's kept on treating me for HPB and Potassium loss without even thinking it
> was my adrenal gland causing it. I was 35 when they diagnosed HBP..which is
> kind of young..that should have been the first hint..plus it was
> uncontrollable no matter what meds they gave me.I was like 47 or 48 when I
> was diagnosed with Aldostronism.. I was like 53 when the surgeon finally
> told me he wanted another catscan to see if there was a tumor. After the
> surgery my BP lowered but my Internist told me that because my BP was
> uncontrolled for so long that my veins and arteries had stiffened a bit and
> would probably have to take BPmeds the rest of my life..

Jacquie, I'm really confused; did they remove your adrenal wihtout
investigating if the tumor was due to pituitary disorder?

Susan

x-no-archive: yes

jacquie wrote:
> Well it certainly sounds aldostronism to me..as you know for years they
> thought I had a very rare form of it because they didn't see a tumor...7
> years later the tumor was there. They only did one CatScan on me on
> diagnoses to check for a tumor...my Surgeon told me that what they said I
> had was so rare that they should have done a yearly Cat Scan at least. He
> said the one they said I had was so rare that very few Dr's see it in their
> lifetime.

Not only is it not rare, the aldosteronism without tumor was very likely
caused by your pituitary. If you're not cured, you should have your
pituitary hormones evaluated.

Susan

Dana© <AneeBear@ownmail.com> wrote:

> On Tue, 17 Jul 2007 09:45:15 +0200, thinkbig.shrinktofit@online.no
> (Keera Ann Fox) wrote:
>
> >> Now to top off all of this, my hair shedding has increased and I don't
> >> know why!
> >
> >Mine increased too for a while without any clear reason why.
>
>
> Everyone knows that during the hotter months we shed more hair and
> during the colder months we grow more hair.....just like the critters
> do. Or is that just an old wives tale?

If it were true, I'd have hairier legs in the winter than in the summer.
;-) Hair and nails (and kids) actually grow faster in the summer.

I've never noticed a difference and my hair loss and dryness was
noticeable. I had to clean out the hair trap in my shower drain after
each shower, not just once or twice a week. The difference after eating
coconut oil was remarkable. Only a dozen strands in the drain after each
shampooing. This was a couple of months ago.

--
Keera in Norway * Think big. Shrink to fit.
http://home.online.no/~kafox/

Keera Ann Fox wrote the following on 7/17/2007 10:32 AM:

> I've never noticed a difference and my hair loss and dryness was
> noticeable. I had to clean out the hair trap in my shower drain after
> each shower, not just once or twice a week. The difference after eating
> coconut oil was remarkable. Only a dozen strands in the drain after each
> shampooing. This was a couple of months ago.

I've been using organic coconut oil for some of my cooking and baking.
I've also been putting some real coconut cream in my veggie smoothies. My
younger daughter commented that my hair looks lighter. I'm not sure if
that is because it is shinier or because the starting-to-become-visible
gray strands reflect the light. :-) How are you taking it?

Karen R.

Dana© wrote:
> On Tue, 17 Jul 2007 09:45:15 +0200, thinkbig.shrinktofit@online.no
> (Keera Ann Fox) wrote:
>
>>> Now to top off all of this, my hair shedding has increased and I don't
>>> know why!
>> Mine increased too for a while without any clear reason why.
>
>
> Everyone knows that during the hotter months we shed more hair and
> during the colder months we grow more hair.....just like the critters
> do. Or is that just an old wives tale?

My gran used to say that hair grows faster in warm weather - and from
personal experience, I suspect she was right.


--
Jette Goldie
jette@blueyonder.co.uk
http://www.jette.pwp.blueyonder.co.uk/
http://wolfette.livejournal.com/
("reply to" is spamblocked - use the email addy in sig)

Karen R. <krez56@gmail.com> wrote:

> Keera Ann Fox wrote the following on 7/17/2007 10:32 AM:
>
> > I've never noticed a difference and my hair loss and dryness was
> > noticeable. I had to clean out the hair trap in my shower drain after
> > each shower, not just once or twice a week. The difference after eating
> > coconut oil was remarkable. Only a dozen strands in the drain after each
> > shampooing. This was a couple of months ago.
>
> I've been using organic coconut oil for some of my cooking and baking.
> I've also been putting some real coconut cream in my veggie smoothies. My
> younger daughter commented that my hair looks lighter. I'm not sure if
> that is because it is shinier or because the starting-to-become-visible
> gray strands reflect the light. :-) How are you taking it?

Straight or as an additive to smoothies or cold cereal.

--
Keera in Norway * Think big. Shrink to fit.
http://home.online.no/~kafox/

Well it was a tumor and I am fine since they took the tumor out..still on
HBP meds but it is now controllable.
Jacquie
"Susan" <nevermind@nomail.com> wrote in message
news:5g3v43F3f3ccnU2@mid.individual.net...
> x-no-archive: yes
>
> jacquie wrote:
>> Well it certainly sounds aldostronism to me..as you know for years they
>> thought I had a very rare form of it because they didn't see a tumor...7
>> years later the tumor was there. They only did one CatScan on me on
>> diagnoses to check for a tumor...my Surgeon told me that what they said I
>> had was so rare that they should have done a yearly Cat Scan at least. He
>> said the one they said I had was so rare that very few Dr's see it in
>> their lifetime.
>
> Not only is it not rare, the aldosteronism without tumor was very likely
> caused by your pituitary. If you're not cured, you should have your
> pituitary hormones evaluated.
>
> Susan

On Tue, 17 Jul 2007 19:41:19 GMT, Jette <bosslady@scotlandmail.com>
wrote:

>My gran used to say that hair grows faster in warm weather - and from
>personal experience, I suspect she was right.


But, when you think about it, it makes sense. Animals shed during warm
months and their fur gets thicker in the colder months. Since we are
(ahem) animals why shouldn't it be true with us?



Dana
Do not meddle in the affairs of dragons,
for you are crunchy and taste good with ketchup.

They ran tests..blood (Sitting up...Laying down)and the 24 hour Urine
tests..anyways my Adrenals were producing to much aldostrone. My Pituitary
was never mentioned.
Jacquie
"Susan" <nevermind@nomail.com> wrote in message
news:5g3v0sF3f3ccnU1@mid.individual.net...
> x-no-archive: yes
>
> jacquie wrote:
>> Another symptom of the tumor is High Blood Pressure...Which is a very
>> good reason why the tumor should be removed...you may not have to take BP
>> meds if they remove the tumor and gland. I still have to because
>> unfortunately the Dr's kept on treating me for HPB and Potassium loss
>> without even thinking it was my adrenal gland causing it. I was 35 when
>> they diagnosed HBP..which is kind of young..that should have been the
>> first hint..plus it was uncontrollable no matter what meds they gave me.I
>> was like 47 or 48 when I was diagnosed with Aldostronism.. I was like 53
>> when the surgeon finally told me he wanted another catscan to see if
>> there was a tumor. After the surgery my BP lowered but my Internist told
>> me that because my BP was uncontrolled for so long that my veins and
>> arteries had stiffened a bit and would probably have to take BPmeds the
>> rest of my life..
>
> Jacquie, I'm really confused; did they remove your adrenal wihtout
> investigating if the tumor was due to pituitary disorder?
>
> Susan

x-no-archive: yes

jacquie wrote:
> Well it was a tumor and I am fine since they took the tumor out..still on
> HBP meds but it is now controllable.

I'm really glad you're feeling fine, but have they been monitoring your
pituitary/adrenal hormones to make sure they're all ok?

It's kind of unusual to remove an adrenal tumor without looking for
pituitary disorder.

Susan

jacquie wrote:
> One of the symptoms of the adrenal tumor is the loss of Potassium. I was on
> spirolactone and still took 6-7 potassium pills a day..that was one of the
> reasons they decided on the surgery the potassium loss was uncontrollable.
> The reason I mention maybe it is the spiro is because when I complained to
> my Dr about the hairloss he mentioned maybe it was the Spiro doing it. I had
> also put myself on a very low fat diet(only 10% of my diet was fat) Dr's
> that my sister(an RN at a local Hospital) talked to said the hairloss was
> because I didn't have enough fat in my diet...they told her to tell me to up
> my fat intake to at least 20%. I still think it was the tumor
> Jacquie

I mentioned the hairloss to my Endo doctor and he said the Spiro isn't
causing it.

Right now it seems like the shedding isn't as high as it was a few days
ago. Maybe I'm just stressing myself over nothing. Someone mentioned the
warm weather and I thought the same, BUT it seems my hair grows faster
in the warm weather.

I heard the same about fat intake. Two years ago I went on a low-carb
diet and [a few months later after starting the diet] is when I started
losing A LOT of hair. It was horrible. I thought I was going to lose my
mind! A friend laughed and told me to just get a wig if it gets too bad.
Yeah, easy for her to say!