Deprovera

Okay, I'm still here lurking after 6 years.
The "craziness", frequent/heavy periods and pain have become utterly
unbearable.

Today I went for a consult for an ablation.

Instead, the gyno recommended Deprovera and I got the shot.

I am now TERRIFIED.

The internet offered nothing but horror stories of bad side effects and "law
suits".

I already have anxiety disorder and panic attacks and heart palpitations
have been the one of the most miserable aspects of the perimenopause and all
of those are "side effects" of the shot, too.

I asked about all of that and the doctor said only 1% of women get that kind
of stuff.

Have I damned myself to 3 months of even ~worse~ hell?

There is no "antidote" to the shot in case you get bad side effects and so
I'm stuck with whatever happens but I honestly don't think my already
over-strained mind and body can survive 90 days of something even worse than
what I have been experiencing.

The doctor and all the nurses said they never had anyone have any problems
except that some women just felt it "wasn't working for them".


I didn't feel "bad" or "off" until I got home and read all the horror-story
posts on the internet.

I don't know what to do or think now and I'm sitting here sick with fear.

Please help.

Thanks,

Salamander
[Shari]

On May 20, 2:59*am, "Salamander" <.> wrote:
> Okay, I'm still here lurking after 6 years.
> The "craziness", frequent/heavy periods and pain have become utterly
> unbearable.
>
> Today I went for a consult for an ablation.
>
> Instead, the gyno recommended Deprovera and I got the shot.
>
> I am now TERRIFIED.
>
> The internet offered nothing but horror stories of bad side effects and "law
> suits".
>
> I already have anxiety disorder and panic attacks and heart palpitations
> have been the one of the most miserable aspects of the perimenopause and all
> of those are "side effects" of the shot, too.
>
> I asked about all of that and the doctor said only 1% of women get that kind
> of stuff.
>
> Have I damned myself to 3 months of even ~worse~ hell?
>
> There is no "antidote" to the shot in case you get bad side effects and so
> I'm stuck with whatever happens but I honestly don't think my already
> over-strained mind and body can survive 90 days of something even worse than
> what I have been experiencing.
>
> The doctor and all the nurses said they never had anyone have any problems
> except that some women just felt it "wasn't working for them".
>
> I didn't feel "bad" or "off" until I got home and read all the horror-story
> posts on the internet.
>
> I don't know what to do or think now and I'm sitting here sick with fear.
>
> Please help.
>
> Thanks,
>
> Salamander
> [Shari]


I can only offer the counter story of my friend, who absolutely LOVES
her Depo shots. She had to go off them for a while due to a blood
pressure issue (now resolved) and is singing "halleluyas" all round
now that her doctor has allowed her to go back on them again.

Side effects for her? Light periods.

Jette

Are you Jette Goldie?
If you are, hi again!

Thanks SO much for offering me a DP tale that is *not* all gloom, doom and
despair!

I wish I hadn't let the doc talk me into something I hadn't researched but
I'm trying to be hopeful that it will help me.


Shari



"wolfette" <jette.goldie@gmail.com> wrote in message
news:ec34b957-c610-46d5-9133-d71fd54800d7@m73g2000hsh.googlegroups.com...
On May 20, 2:59 am, "Salamander" <.> wrote:
> Okay, I'm still here lurking after 6 years.
> The "craziness", frequent/heavy periods and pain have become utterly
> unbearable.
>
> Today I went for a consult for an ablation.
>
> Instead, the gyno recommended Deprovera and I got the shot.
>
> I am now TERRIFIED.
>
> The internet offered nothing but horror stories of bad side effects and
> "law
> suits".
>
> I already have anxiety disorder and panic attacks and heart palpitations
> have been the one of the most miserable aspects of the perimenopause and
> all
> of those are "side effects" of the shot, too.
>
> I asked about all of that and the doctor said only 1% of women get that
> kind
> of stuff.
>
> Have I damned myself to 3 months of even ~worse~ hell?
>
> There is no "antidote" to the shot in case you get bad side effects and so
> I'm stuck with whatever happens but I honestly don't think my already
> over-strained mind and body can survive 90 days of something even worse
> than
> what I have been experiencing.
>
> The doctor and all the nurses said they never had anyone have any problems
> except that some women just felt it "wasn't working for them".
>
> I didn't feel "bad" or "off" until I got home and read all the
> horror-story
> posts on the internet.
>
> I don't know what to do or think now and I'm sitting here sick with fear.
>
> Please help.
>
> Thanks,
>
> Salamander
> [Shari]


I can only offer the counter story of my friend, who absolutely LOVES
her Depo shots. She had to go off them for a while due to a blood
pressure issue (now resolved) and is singing "halleluyas" all round
now that her doctor has allowed her to go back on them again.

Side effects for her? Light periods.

Jette

Salamander wrote:
> Are you Jette Goldie?
> If you are, hi again!
>
> Thanks SO much for offering me a DP tale that is *not* all gloom, doom and
> despair!
>
> I wish I hadn't let the doc talk me into something I hadn't researched but
> I'm trying to be hopeful that it will help me.

Yeah, that's me, posting from my Google account at work. Honestly -
as the nurse said, the percentage of women who suffer "downsides" from
Depo is low and they can predict who is /likely/ to suffer based on
previous experience with other hormone type drugs. Give it a few days
before you panic!


--
Jette Goldie
jette@blueyonder.co.uk
http://www.jette.pwp.blueyonder.co.uk/
http://wolfette.livejournal.com/
("reply to" is spamblocked - use the email addy in sig)

Thanks SO much, Jette!
I'm feeling less freaked out already.....




"Jette" <bosslady@scotlandmail.com> wrote in message
news:SWzYj.6615$DZ6.3019@text.news.virginmedia.com ...
> Salamander wrote:
>> Are you Jette Goldie?
>> If you are, hi again!
>>
>> Thanks SO much for offering me a DP tale that is *not* all gloom, doom
>> and despair!
>>
>> I wish I hadn't let the doc talk me into something I hadn't researched
>> but I'm trying to be hopeful that it will help me.
>
> Yeah, that's me, posting from my Google account at work. Honestly - as
> the nurse said, the percentage of women who suffer "downsides" from Depo
> is low and they can predict who is /likely/ to suffer based on previous
> experience with other hormone type drugs. Give it a few days before you
> panic!
>
>
> --
> Jette Goldie
> jette@blueyonder.co.uk
> http://www.jette.pwp.blueyonder.co.uk/
> http://wolfette.livejournal.com/
> ("reply to" is spamblocked - use the email addy in sig)

On Mon, 19 May 2008 20:59:56 -0500, "Salamander" <.> wrote:

>Okay, I'm still here lurking after 6 years.
>The "craziness", frequent/heavy periods and pain have become utterly
>unbearable.
>
>Today I went for a consult for an ablation.
>
>Instead, the gyno recommended Deprovera and I got the shot.
>
>I am now TERRIFIED.
>
>The internet offered nothing but horror stories of bad side effects and "law
>suits".

I had 3 Depo shots a few years back to try to control migraines. I had
NO side effects whatsoever. It didn't work for the headaches, but
please don't worry too much. I think be aware of what's happening to
you, but not hyper-aware. I'm sending you my very best thoughts with
fingers crossed for a completely "silent" experience with Depo for
you.

(the other) Dana

Thank you, Dana.
You have no idea how much comfort you and Jette have given me.
I feel okay except for the heart flip-flops/hyper-awareness of heart beat
thingy which may be just anxiety.

[Hubby says I "look more peaceful" already, whatever *that* means]......)

Did you ever find anything helpful for migraines?
They are TERRIBLE things that nobody can really appreciate unless they've
had them.

Shari








"Dana Taramina" <dana@spamicide.gryffyn.com> wrote in message
news:mq5734h2vdancrt5s8bbm636uvtlhv3c9s@4ax.com...
> On Mon, 19 May 2008 20:59:56 -0500, "Salamander" <.> wrote:
>
>>Okay, I'm still here lurking after 6 years.
>>The "craziness", frequent/heavy periods and pain have become utterly
>>unbearable.
>>
>>Today I went for a consult for an ablation.
>>
>>Instead, the gyno recommended Deprovera and I got the shot.
>>
>>I am now TERRIFIED.
>>
>>The internet offered nothing but horror stories of bad side effects and
>>"law
>>suits".
>
> I had 3 Depo shots a few years back to try to control migraines. I had
> NO side effects whatsoever. It didn't work for the headaches, but
> please don't worry too much. I think be aware of what's happening to
> you, but not hyper-aware. I'm sending you my very best thoughts with
> fingers crossed for a completely "silent" experience with Depo for
> you.
>
> (the other) Dana

On Wed, 21 May 2008 07:30:33 -0500, "Salamander" <.> wrote:

>Thank you, Dana.
>You have no idea how much comfort you and Jette have given me.
>I feel okay except for the heart flip-flops/hyper-awareness of heart beat
>thingy which may be just anxiety.

You're very welcome.
>
>[Hubby says I "look more peaceful" already, whatever *that* means]......)

lol! My hubby hasn't said that in...well, ever. :^)
>
>Did you ever find anything helpful for migraines?
>They are TERRIBLE things that nobody can really appreciate unless they've
>had them.

No. I have what they call intractable or refractory migraines. I saw a
new neurologist a couple of weeks ago, "the" migraine guy in my area.
(Toronto.) It took me longer to write the list of my current meds (not
counting what I've tried that didn't work) than it took for the actual
appointment. He looked at my list and said "there's nothing I can do
for you". Frustrating, but realistic. So my current plan, according to
my family doc, is pain control until something else new comes up[ for
me to try.

(the other) Dana

"Dana Taramina" <dana@spamicide.gryffyn.com> wrote in message
newsn8c341ct2dgkeri6l0k9tj7n4f3fg00t2@4ax.com...
>
> No. I have what they call intractable or refractory migraines. I saw a
> new neurologist a couple of weeks ago, "the" migraine guy in my area.
> (Toronto.) It took me longer to write the list of my current meds (not
> counting what I've tried that didn't work) than it took for the actual
> appointment. He looked at my list and said "there's nothing I can do
> for you". Frustrating, but realistic. So my current plan, according to
> my family doc, is pain control until something else new comes up[ for
> me to try.
>
> (the other) Dana

Sometimes " the " whatever specialist is not always the person to see. Too
many times I've found that person was not on the mark and another doctor in
the field was much better. There's got to be someone else in TO that can
help you. I would find his comment very off putting and dismissive. Have you
tried acupuncture, osteopathy, naturopaths?

Roseanne

I second FD's suggestions about hunting for relief 'outside the box'.

I didn't have much luck with either an acupuncturist or a chiro because I
have peripheral nerve pain from an incorrectly healed neck fracture.
[ex-husband was a violent scumbag]

However, the chiro did prescribe me a TENS unit.
I wouldn't trade that 'shocking' little thing for the world.

I believe the body *is* electric.
[with apologies to Ray Bradbury]...
It helps me with some of the most agonizing head/neck aches and spasms
imaginable.

I've also found relief with magnetic therapy and an inversion table.

I hope that someone, somewhere can help you.

I had migraines for years as a teen and they were the worst things, ~ever~.
Mine only went away when I moved away from home at 18 and was no longer
mowing my parent's lawn.
I guess the combination of heat, gas fumes, mower exhaust and/or grass
pollen set off allergic migraines.
One day of grass mowing would put me in a darkened room for almost 2 days,
with excruciating pain and nausea.
The only thing that triggers them now is too much time in the hot sun and
perfume.

I did find this:
http://www.healthcentral.com/migraine/news-44997-5.html
http://headaches.about.com/od/medsar...a/outpt_iv.htm

And this:

http://www.ncbi.nlm.nih.gov/pubmed/15658944



I have a weird follow-up on the DP....I feel "numb".
Could this be because I have literally spent years running with
full-throttle hormonal anxiety which is now "gone"?
I don't feel "good" or "bad".....just....I dunno.....like "not me" since
"me" was always on the verge of an emotional freak out.

Does that make any sense at all?
It almost feels like the "numb" of antidepressants.
[which my idiot doctors kept prescribing for anxiety and phobias, many years
ago]


Good luck with you search.
I hate to see people suffering......

Shari




"foggydoggy" <foggydoggy@cogeco.ca> wrote in message
news:jZpZj.11144$79.8190@read1.cgocable.net...
>
> "Dana Taramina" <dana@spamicide.gryffyn.com> wrote in message
> newsn8c341ct2dgkeri6l0k9tj7n4f3fg00t2@4ax.com...
>>
>> No. I have what they call intractable or refractory migraines. I saw a
>> new neurologist a couple of weeks ago, "the" migraine guy in my area.
>> (Toronto.) It took me longer to write the list of my current meds (not
>> counting what I've tried that didn't work) than it took for the actual
>> appointment. He looked at my list and said "there's nothing I can do
>> for you". Frustrating, but realistic. So my current plan, according to
>> my family doc, is pain control until something else new comes up[ for
>> me to try.
>>
>> (the other) Dana
>
> Sometimes " the " whatever specialist is not always the person to see. Too
> many times I've found that person was not on the mark and another doctor
> in the field was much better. There's got to be someone else in TO that
> can help you. I would find his comment very off putting and dismissive.
> Have you tried acupuncture, osteopathy, naturopaths?
>
> Roseanne
>

On Thu, 22 May 2008 22:32:23 -0500, "foggydoggy"
<foggydoggy@cogeco.ca> wrote:

>Sometimes " the " whatever specialist is not always the person to see. Too
>many times I've found that person was not on the mark and another doctor in
>the field was much better. There's got to be someone else in TO that can
>help you. I would find his comment very off putting and dismissive. Have you
>tried acupuncture, osteopathy, naturopaths?

Yes to all of the above. I'm now researching pain clinics, and am not
finding anything in Ontario. There are a couple of good ones in
Chicago, I may have to go there. Much money for me though.

(the other) Dana

On Fri, 23 May 2008 03:34:01 -0500, "Salamander" <.> wrote:

>I second FD's suggestions about hunting for relief 'outside the box'.
>
>I didn't have much luck with either an acupuncturist or a chiro because I
>have peripheral nerve pain from an incorrectly healed neck fracture.
>[ex-husband was a violent scumbag]

Oh, honey...Me to. though he never actually fractured me. Well, never
broke my neck.
>
>However, the chiro did prescribe me a TENS unit.
>I wouldn't trade that 'shocking' little thing for the world.

I have one. It; feels good while it's on, but doesn't actually help
the pain go away. (Like massage, acupuncture, and chiropractic.) Have
you tried Lyrica? It's specifically for nerve generated pain. It made
me crazy, but it doesn't do that to everyone.
>
>I believe the body *is* electric.
>[with apologies to Ray Bradbury]...
>It helps me with some of the most agonizing head/neck aches and spasms
>imaginable.

I'm so glad you have something that helps you well.
>
>I've also found relief with magnetic therapy and an inversion table.

Been there, done that. Didn't work for me.
>
>I hope that someone, somewhere can help you.
>
>I had migraines for years as a teen and they were the worst things, ~ever~.
>Mine only went away when I moved away from home at 18 and was no longer
>mowing my parent's lawn.
>I guess the combination of heat, gas fumes, mower exhaust and/or grass
>pollen set off allergic migraines.
>One day of grass mowing would put me in a darkened room for almost 2 days,
>with excruciating pain and nausea.
>The only thing that triggers them now is too much time in the hot sun and
>perfume.

I get heat related and scent related migraines. (And weather ones, and
hormone ones, and I didn't sleep enough ones, and I slept too much
ones.......goes on and on.)
>
>I did find this:
>http://www.healthcentral.com/migraine/news-44997-5.html
>http://headaches.about.com/od/medsar...a/outpt_iv.htm
>
>And this:
>
>http://www.ncbi.nlm.nih.gov/pubmed/15658944

Well, I've done the lidocaine, didn't work. The IV therapy in clinics
is great, Teri Robert (who co-wrote the article) is a friend of mine.
Unfortunately no one is doing it here. The Vagus Nerve Stimulation is
something I've not heard of and will look into further, thanks.

>I have a weird follow-up on the DP....I feel "numb".
>Could this be because I have literally spent years running with
>full-throttle hormonal anxiety which is now "gone"?
>I don't feel "good" or "bad".....just....I dunno.....like "not me" since
>"me" was always on the verge of an emotional freak out.
>
>Does that make any sense at all?

Sure, I think so. Hormones are complicated things. Good luck to you
too, and thanks for the links.

(the other) Dana

"Dana Taramina" <dana@spamicide.gryffyn.com> wrote in message
news:h5nh34dkjmv5isgmti1sd3t9pp2tbu6tfe@4ax.com...
> On Fri, 23 May 2008 03:34:01 -0500, "Salamander" <.> wrote:
>
>>I second FD's suggestions about hunting for relief 'outside the box'.
>>
>>I didn't have much luck with either an acupuncturist or a chiro because I
>>have peripheral nerve pain from an incorrectly healed neck fracture.
>>[ex-husband was a violent scumbag]
>
> Oh, honey...Me to. though he never actually fractured me. Well, never
> broke my neck.
>>

I'm sorry.
I know how much that life sucks.....

>>However, the chiro did prescribe me a TENS unit.
>>I wouldn't trade that 'shocking' little thing for the world.
>
> I have one. It; feels good while it's on, but doesn't actually help
> the pain go away. (Like massage, acupuncture, and chiropractic.) Have
> you tried Lyrica? It's specifically for nerve generated pain. It made
> me crazy, but it doesn't do that to everyone.

I haven't even heard of it.
I will check it out and if seems likely, I'll bug my family phys.

>>
>>I believe the body *is* electric.
>>[with apologies to Ray Bradbury]...
>>It helps me with some of the most agonizing head/neck aches and spasms
>>imaginable.
>
> I'm so glad you have something that helps you well.

Mostly, I just like to be shocked......LOL!


>>
>>I've also found relief with magnetic therapy and an inversion table.
>
> Been there, done that. Didn't work for me.

The inversion table works for me because the neck injury healed crooked
which caused my spine to attempt to "compensate" and I wound up with
sciatica and scoliosis.
The vertebrae are compressed and it feels SO good to stretch them out.
I get days of relief though sometimes it's only hours but anything is better
than none.

>>
>>I hope that someone, somewhere can help you.
>>
>>I had migraines for years as a teen and they were the worst things,
>>~ever~.
>>Mine only went away when I moved away from home at 18 and was no longer
>>mowing my parent's lawn.
>>I guess the combination of heat, gas fumes, mower exhaust and/or grass
>>pollen set off allergic migraines.
>>One day of grass mowing would put me in a darkened room for almost 2 days,
>>with excruciating pain and nausea.
>>The only thing that triggers them now is too much time in the hot sun and
>>perfume.
>
> I get heat related and scent related migraines. (And weather ones, and
> hormone ones, and I didn't sleep enough ones, and I slept too much
> ones.......goes on and on.)

I heard that.....:-D

>>
>>I did find this:
>>http://www.healthcentral.com/migraine/news-44997-5.html
>>http://headaches.about.com/od/medsar...a/outpt_iv.htm
>>
>>And this:
>>
>>http://www.ncbi.nlm.nih.gov/pubmed/15658944
>
> Well, I've done the lidocaine, didn't work. The IV therapy in clinics
> is great, Teri Robert (who co-wrote the article) is a friend of mine.
> Unfortunately no one is doing it here. The Vagus Nerve Stimulation is
> something I've not heard of and will look into further, thanks.

I often think I would like to pumped full of Lidocaine, 24/7 but that's
*probably* not something my doctor would agree to......
The Vagus Nerve Stimulation is experimental for migraines right now, but who
knows?
It seems to be working well for a whole slew of other problems.

>
>>I have a weird follow-up on the DP....I feel "numb".
>>Could this be because I have literally spent years running with
>>full-throttle hormonal anxiety which is now "gone"?
>>I don't feel "good" or "bad".....just....I dunno.....like "not me" since
>>"me" was always on the verge of an emotional freak out.
>>
>>Does that make any sense at all?
>
> Sure, I think so. Hormones are complicated things. Good luck to you
> too, and thanks for the links.

It went away, whatever it was.
It's very possible that I simply worked myself up into a good, frothing
panic attack.
[or the hormones leveled out a bit...who knows?].....

>
> (the other) Dana

(the only) Shari